Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,687 members • 28,070 posts

All posts for February 2020

Eyelid bruising

Hi everyone. I think I saw something similar on here a while ago but I can't now find it. Has anyone else experienced spontaneous eyelid bruising? I woke up...

Hi everyone. I think I saw something similar on here a while ago but I can't now...

Justinealexx

•4 years ago

5 Replies

Getting there

Good evening all., quick update. My granddaughter is doing really well, normal conversations with her now, interacting with her friends on their group chat,...

Good evening all., quick update. My granddaughter is doing really well, normal c...

Forgot2mention

•4 years ago

3 Replies

Newly diagnosed SLE

Hi all I have been diagnosed 2 weeks ago with SLE and it’s currently active. I also have lupus nephritis (LN) class 3 and now on MMF, steroid and anti malarial...

Hi all I have been diagnosed 2 weeks ago with SLE and it’s currently active. I a...

new_panda

•4 years ago

25 Replies

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Pain Clinic

Hi, I’m wondering if any of you have attended a ‘pain clinic’ before? I’m concerned if I attend appointment set up for me that they will stop or reduce my pain...

Hi, I’m wondering if any of you have attended a ‘pain clinic’ before? I’m concer...

TM1970

•4 years ago

18 Replies

I neeed your guys advice !! ❤️

So few weeks ago I went to hospital because my neck was really weak and my eye was playing up to be told by my local hospital they where admitting me because I...

So few weeks ago I went to hospital because my neck was really weak and my eye w...

Buckley123

•4 years ago

65 Replies

Pictures of swollen fingers

Hi me again so I will post some pictures of my swollen fingers . Itches and looks like something inside but I know there’s not and it’s possibly the...

Hi me again so I will post some pictures of my swollen fingers . Itches and look...

Natz36

•4 years ago

10 Replies

Stomach pain

Hi Still yet to be diagnosed as you know I’m awaiting a rheumatologist appointment. Just wondering if anyone gets like a stomach pain not that bad where you...

Hi Still yet to be diagnosed as you know I’m awaiting a rheumatologist appointm...

Natz36

•4 years ago

6 Replies

Meds or not

Last March I started having I am tired spells and my blood pressure was going for a very low to high to low hello how are you Dave and passed out just gone...

Last March I started having I am tired spells and my blood pressure was going fo...

Marieg2009

•4 years ago

3 Replies

Learn about an exciting new research study!

LUPUS UK are working with researchers at Cambridge University, patient-researchers from this forum, psychologists and some of the top UK rheumatologists, to...

LUPUS UK are working with researchers at Cambridge University, patient-researche...

Paul_Howard

Partner•4 years ago

14 Replies

The first part of the LUPUS UK HealthUnlocked Community Research Study has been published - Read it now!

Hi everyone, I am very pleased to announce that a paper from the research study conducted within this forum has now been published and is available to read...

Hi everyone, I am very pleased to announce that a paper from the research study ...

Paul_Howard

Partner•4 years ago

35 Replies

Fed up with IBS diagnosis! Ridiculous!

Hi guys I haven't been on for a while as iv been so very I'll. In May I lost 2 and a half stone in 4 weeks! Yes exactly. I went to see rheumy (not my usual Dr)...

Hi guys I haven't been on for a while as iv been so very I'll. In May I lost 2 a...

Hidden

•4 years ago

12 Replies

Lupus diagnosis

Sorry guys I need to vent. Since I got the diagnosis of Lupus i have been many medications and doses. At times I do not take my medication constantly. I don't...

Sorry guys I need to vent. Since I got the diagnosis of Lupus i have been many m...

SLE-Warrior

•4 years ago

1 Reply

Lupus SLE

Hey I'm new to this but Ive been battling lupus for 12 I'm now 22 it was under control but now Ive been on infusions for a year and its made me worse if...

Hey I'm new to this but Ive been battling lupus for 12 I'm now 22 it was under c...

Emma977

•4 years ago

2 Replies

Hello Everyone. I don't yet have a diagnosis... in fact I haven't yet dared to consult my doctor with this.

Did anyone have a problem getting a diagnosis that went on for many years before a doctor finally recognised it?

Did anyone have a problem getting a diagnosis that went on for many years before...

beludesigns

•4 years ago

9 Replies

Mammogram

Hi, I’ve been called back for further tests after a mammogram, I’m scared , they suggest to go with someone but I haven’t got anyone . So Monday repeat...

Hi, I’ve been called back for further tests after a mammogram, I’m scared , they...

Melaxx

•4 years ago

14 Replies

Problems posting from a mobile

Has anyone else had problems posting from a mobile... I keep getting the attached message. ..

Has anyone else had problems posting from a mobile... I keep getting the attache...

Pop007

•4 years ago

1 Reply

Is this a flare up?

hi, I intermittently develop small, red, raised "blisters" on my fingers which are painful and feel like a pin is being stabbed into me if touched. Its my 3rd...

hi, I intermittently develop small, red, raised "blisters" on my fingers which a...

pattypatchwork

•4 years ago

1 Reply

Malar rash with scales going around eyes and eyes?

Does anybody else who has a malar rash have scaly patches that go around your eyes and eyelids? It burns, I'm waiting on my rheumatology appt still but my...

Does anybody else who has a malar rash have scaly patches that go around your ey...

SethHov

•4 years ago

1 Reply

Rituximab subsequent courses

As Rituximab takes a while to kick in, why do they leave it so long between courses? It feels like being on a rollercoaster . It took 14 weeks for my husband...

As Rituximab takes a while to kick in, why do they leave it so long between cour...

Pop007

•4 years ago

3 Replies

Lupus and biologics

Hi all, hope you're doing well considering. I was wondering if biologics help with sun sensitivity? Thank you.

Hi all, hope you're doing well considering. I was wondering if biologics help wi...

Comeonpeeps

•4 years ago

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Spinal Clinic Referral

Just been referred to the spinal clinic today, I have a bulging disc in lower back, L4 L5, I had an epidural as well as 6 lower facet joint injections on...

Just been referred to the spinal clinic today, I have a bulging disc in lower ba...

Jhpc

•4 years ago

28 Replies

Stereoids with bradycardia and few more questions.

Hi all, I have already written this similar questions few days ago, but I posted them as a question, so I have no idea if it is visable at all, so I will...

Hi all, I have already written this similar questions few days ago, but I posted...

MatPatP

•4 years ago

4 Replies

Methotrexate and Coronavirus

Apologies if this topic has already been posted but as an SLE patient on methotrexate I just wondered if anyone has had a conversation with their doctor on the...

Apologies if this topic has already been posted but as an SLE patient on methotr...

Sin123

•4 years ago

8 Replies

Ongoing allergic reaction... and horrible horrible hives...

Hello! I am back yet again for any advice people might have. I've posted twice in the past, once as I was curious as to whether people thought I might have...

Hello! I am back yet again for any advice people might have. I've posted twice...

Hidden

•4 years ago

8 Replies

I’m a newbie and looking for a bit of advice...

Hiya guys I’m 19 and have been through the mil a bit with my health since starting puberty and only recently me and my family have been wondering if there’s a...

Hiya guys I’m 19 and have been through the mil a bit with my health since starti...

Serena15

•4 years ago

3 Replies

Early I'll health retirement

Hi, I am going to see my rheumatologist tomorrow and asking him to back me up for ill health retirement. I am worried that he may disagree and want me to try...

Hi, I am going to see my rheumatologist tomorrow and asking him to back me up fo...

Autumnwillow

•4 years ago

4 Replies

Flares, fitigue and breathing issues

Hi I had a highly likely probable lupus diagnosis 2 years ago after terrible joint pain in wrists and fingers and feet and pain in upper arm muscles. Bloods...

Hi I had a highly likely probable lupus diagnosis 2 years ago after terrible jo...

Hhood

•4 years ago

2 Replies

Methotrexate and Corona Virus

Apologies if this topic has already been posted but as an SLE patient on methotrexate I just wondered if anyone has had a conversation with their doctor on the...

Apologies if this topic has already been posted but as an SLE patient on methotr...

Sin123

•4 years ago

6 Replies

Azathioprine

Hello everyone here at lupus uk . I’ve been prescribed to take the above medication by rumy . Been reasonably ok on it besides a thick type helmet headache and...

Hello everyone here at lupus uk . I’ve been prescribed to take the above medicat...

Willow1414

•4 years ago

15 Replies

Lost as I have a negative ANA

Hi all! Hope you’re all ok. I would just like some insight on if this sounds similar to anyone else’s experiences here. I have had a range of issues, starting...

Hi all! Hope you’re all ok. I would just like some insight on if this sounds si...

Cazza_dow

•4 years ago

9 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for February 2020

Eyelid bruising

Getting there

Newly diagnosed SLE

Pain Clinic

I neeed your guys advice !! ❤️

Pictures of swollen fingers

Stomach pain

Meds or not

Learn about an exciting new research study!

The first part of the LUPUS UK HealthUnlocked Community Research Study has been published - Read it now!

Fed up with IBS diagnosis! Ridiculous!

Lupus diagnosis

Lupus SLE

Hello Everyone. I don't yet have a diagnosis... in fact I haven't yet dared to consult my doctor with this.

Mammogram

Problems posting from a mobile

Is this a flare up?

Malar rash with scales going around eyes and eyes?

Rituximab subsequent courses

Lupus and biologics

Spinal Clinic Referral

Stereoids with bradycardia and few more questions.

Methotrexate and Coronavirus

Ongoing allergic reaction... and horrible horrible hives...

I’m a newbie and looking for a bit of advice...

Early I'll health retirement

Flares, fitigue and breathing issues

Methotrexate and Corona Virus

Azathioprine

Lost as I have a negative ANA

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