Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,732 members • 28,092 posts

All posts for January 2020

Update - myositis, migraines and private/NHS cooperation

Hello again. First many apologies for my long absence again. It's due to my developing an acute propensity to migraines. They are triggered by any exposure to...

Hello again. First many apologies for my long absence again. It's due to my deve...

•4 years ago

Hot flush in thigh and buttock

Hi there, I have Lupus (sle) and APS. The past week I have been having a hot wet sensation in my thigh and buttock. It only lasts a few seconds but happens...

Hi there, I have Lupus (sle) and APS. The past week I have been having a hot we...

•4 years ago

Help Understanding Rheumy's Letter and Kidney Question

Evening All, I was wondering if someone would be able to help me understand the following points of the letter my Rheumatologist has sent to my GP. The letter...

Evening All, I was wondering if someone would be able to help me understand the...

•4 years ago

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Breathe!! 😕🍀🤞

Hi everyone! Well I don't know whether I am suffering from post Christmas/New Year blues or if I am just getting nervous about next week's rectocele operation....

Hi everyone! Well I don't know whether I am suffering from post Christmas/New Ye...

•4 years ago

This SUCKS 🤪

LUPUS-Sjogren’s-Fibromyalgia-arthritis-bone spur’s-high blood pressure-enlarged heart-Thyroid disorder-extreme sleep apnea-asthma-COPD-chronic pain-Carparal...

LUPUS-Sjogren’s-Fibromyalgia-arthritis-bone spur’s-high blood pressure-enlarged ...

•4 years ago

pruritus with flare ups?

A quick question to see if anyone else has come across this?! For the past 10 weeks I have been stuck in a cycle of flaring, it first starts with all over...

A quick question to see if anyone else has come across this?! For the past 10 ...

•4 years ago

Prednisone

Is 20mg of prednisone an high dose? I’ve been on steroids for few months on and off , I fear I need a higher dose bc no improvement on the weakness of my...

Is 20mg of prednisone an high dose? I’ve been on steroids for few months on and ...

•4 years ago

Doing well

I was being proactive; eating well, resting, yoga, HCQ, you know what I mean. I made it through the driving distances for my fathers passing, therapy sessions,...

I was being proactive; eating well, resting, yoga, HCQ, you know what I mean. I ...

•4 years ago

New year !

Hi all, I’ve been very distance from this page for a while. Not as active as I’ve been in the past. The main cause for that is I’ve taken up diamond...

Hi all, I’ve been very distance from this page for a while. Not as active as I...

•4 years ago

On the Merry go round again

Happy New Year everyone. I really hope that you all have as pain free and joyful a year as you can. For me I started the year on my eighth lot of antibiotics...

Happy New Year everyone. I really hope that you all have as pain free and joyful...

•4 years ago

White patchy spots

What are these white spots on my skin?

What are these white spots on my skin?

•4 years ago

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First Appointment

Hi everyone , I’m due for my first appointment at Birmingham City Hospital as I believe they have a Lupus Centre of Excellence there, has anyone got any...

Hi everyone , I’m due for my first appointment at Birmingham City Hospital as I ...

•4 years ago

Test result guidance

Hello all. Happy new year! I haven’t posted in a while. It’s been a hectic year of cataract surgery and elbow surgeries. Hoping 2020 will be calmer. Today I...

Hello all. Happy new year! I haven’t posted in a while. It’s been a hectic year...

•4 years ago

I'm back in the room!!

Hippy Happy New Year everyone!! 🎉🎉🎉 I would like to take this opportunity to thank u all for your support last year..bug hugs all round!! In actual fact...

Hippy Happy New Year everyone!! 🎉🎉🎉 I would like to take this opportunity to ...

•4 years ago

in need of help

hi, lm finding it hard to send replies but lm sure l will get it soon rodders

hi, lm finding it hard to send replies but lm sure l will get it soon rodders

•4 years ago

Can Universal Credit be backdated?

Hello everyone, I have been sick with Lupus since January 2019 and a result I haven't been able to work. I applied for Universal Credit in October 2019....

Hello everyone, I have been sick with Lupus since January 2019 and a result I h...

•4 years ago

Just diagnosed

New to LUPUS After 2 years of being unwell have finally been given a diagnosis of lupus and been put on meds Hydro. Just wanted to know how people have got on...

New to LUPUS After 2 years of being unwell have finally been given a diagnosis o...

•4 years ago

Serious question about hydro

Hey guys how was your Christmas? I had a great Christmas pain free would you believe now I’ve been paying for it for it since 🤦🏼‍♀️😂😌 I joined a new gp...

Hey guys how was your Christmas? I had a great Christmas pain free would you bel...

•4 years ago

Rixtaban infusion

Hey! How is everyone happy new year !Bought myself A pill box as that’s how tragic my life has become Argh! Anyways, I live in dubai now and dr now wants to...

Hey! How is everyone happy new year !Bought myself A pill box as that’s how tra...

•4 years ago

Pip expert on forum

Hi, I believe there is a PIP person the forum that I may be able to with on the phone. Can anyone let me know who this is please. Thank you.

Hi, I believe there is a PIP person the forum that I may be able to with on the ...

•4 years ago

HAPPY NEW YEAR!! one and all.

HAPPY NEW YEAR!! everyone. Well the end of 2019 didn't go as planned or very well at all. There was my husband and I sitting enjoying a film and a glass of...

HAPPY NEW YEAR!! everyone. Well the end of 2019 didn't go as planned or very we...

•4 years ago

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Happy New Year

Happy New Year everyone. 🙏May 2020 be a year full of health, happiness, and answers.

Happy New Year everyone. 🙏May 2020 be a year full of health, happiness, and ans...

•4 years ago

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