Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,744 members • 28,102 posts

All posts for January 2020

Hello again

Hi Please could someone give me advice but nothing that’s going to scare me like go hospital urgently 🙈 I have severe anxiety health issues and am doing my...

Hi Please could someone give me advice but nothing that’s going to scare me lik...

Natz36

•4 years ago

12 Replies

Erythromyalgia

Hello, All. I'm a 68 year old woman with lupus, Raynaud's, erythromyalgia & peripheral neuropathy. I'm really struggling with the EM and am wondering how many...

Hello, All. I'm a 68 year old woman with lupus, Raynaud's, erythromyalgia & per...

skylark15

•4 years ago

30 Replies

Left sided headache for 10 weeks and internal tremor for 6 months

Dear friends, I hope you are all as well as you can be and I just wondered if anyone could provide any advice? Re: headache, GCA has been ruled out as ESR and...

Dear friends, I hope you are all as well as you can be and I just wondered if an...

Horsewhisper

•4 years ago

14 Replies

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Maybe lupus?

Hey, So I’m new to this so not sure if I’m doing it right but... I’ve been suffering now for 8 years what the doctors have been calling an ‘allergy’, I have...

Hey, So I’m new to this so not sure if I’m doing it right but... I’ve been suff...

Montycorgi

•4 years ago

5 Replies

😠😠😠 So angry

Operation postponed 😠😠😠😠 anesthetist taken ill. I'd gotten myself worked up ready for this and now it's not happening. Home for me today 😢

Operation postponed 😠😠😠😠 anesthetist taken ill. I'd gotten myself worked up ...

Bronn

•4 years ago

21 Replies

Thank you 💐

Thanks to everyone for the good wishes. It won't be long now and I'm really nervous. I'll be sure to let you know once I'm able

Thanks to everyone for the good wishes. It won't be long now and I'm really nerv...

Bronn

•4 years ago

1 Reply

Benefits

Hi folks, how is everyone keeping?looking for some advice and help please. I'm currently in full time employment but on paid sick leave just now through having...

Hi folks, how is everyone keeping?looking for some advice and help please. I'm c...

Hidden

•4 years ago

3 Replies

Prednisone- Can the weight gain occur pretty fast?

My girlfriend had started plaquenil around December 13. She was also given prednisone to take once Daily. But we told them we didn’t really want her on...

My girlfriend had started plaquenil around December 13. She was also given predn...

Robby36

•4 years ago

3 Replies

Cannot sleep 😕

Tomorrow must be playing on my mind more than I realise. I'd like to thank everyone for their good wishes, thank guys this really helpful. I think I'll have a...

Tomorrow must be playing on my mind more than I realise. I'd like to thank every...

Bronn

•4 years ago

2 Replies

Sitting on my hospital bed 😕

Oh well here goes, 1 rectocele repair coming up. Phew! it'll be all over tomorrow thank goodness. I'll let you all know how it goes. I've had loads of good...

Oh well here goes, 1 rectocele repair coming up. Phew! it'll be all over tomorro...

Bronn

•4 years ago

8 Replies

PIP and Lupus

Has anyone managed to get on PIP with lupus? I put in an application in September 2019 and I had an assessor came to my home a week before Xmas. I couldn’t go...

Has anyone managed to get on PIP with lupus? I put in an application in Septembe...

July_2019

•4 years ago

14 Replies

Starting methotrexate tomorrow from mycophenolate...bit scared...

I've been on mycophenolate for a while and been on azathioprine b4 but still not under control on mycophenolate and steroids. So now rheum has decided to try...

I've been on mycophenolate for a while and been on azathioprine b4 but still not...

Sara_A

•4 years ago

22 Replies

Patients with any condition currently injecting (pre-filled injection with a dial a dose) needed for paid market research.

Patients with any condition currently injecting (pre-filled injection with a dial a dose) needed for paid market research GKA (a medical market research...

Patients with any condition currently injecting (pre-filled injection with a dia...

Chanpreet_Walia

LUPUS UK•4 years ago

4 Replies

Fat I’ll waiting for a diagnosis

Hello me again. It feels so good to be able to talk to people who are not judging me regarding the lupus and I’m still yet to find out what’s happening. So...

Hello me again. It feels so good to be able to talk to people who are not judgin...

Natz36

•4 years ago

12 Replies

Myeloma

Friday saw consultant annual review stopped medication last May thought she would tell me off but instead she has sent me for a CT scan had different blood...

Friday saw consultant annual review stopped medication last May thought she woul...

Bessy01

•4 years ago

2 Replies

Appointment this Thursday at Leeds with rumi

Hi I have my appointment this Thursday , feeling anxious has I was not able to tolerate methotrexate has my liver function blood test went upto 91 . So I’m to...

Hi I have my appointment this Thursday , feeling anxious has I was not able to ...

Willow1414

•4 years ago

6 Replies

Private Consultant

Hi All, So I have been sufferfing with what I believe is Lupus for nearly 3 years now and nobody is listening to me I have a LOT of the symptoms and can feel...

Hi All, So I have been sufferfing with what I believe is Lupus for nearly 3 ye...

kelly8975

•4 years ago

7 Replies

Anifrolumab - A breakthrough potential lupus treatment

Hi everyone, Over the weekend many of you may have seen an article published by the Daily Mail about the breakthrough potential new lupus treatment,...

Hi everyone, Over the weekend many of you may have seen an article published by ...

Paul_Howard

Partner•4 years ago

16 Replies

Frustrated

So now get a letter as follow up from Rheumatologist. Bloods are mainly normal but now instead of anticardiolipin antibody I now have positive Lupus...

So now get a letter as follow up from Rheumatologist. Bloods are mainly normal b...

ScottishGirlGla

•4 years ago

8 Replies

How long for ANA test results?

hi all, went to GP with a persistent rash on my face and she's done an ANA as is concerned about possibility of Lupus (as she says I'm "rather autoimmuney" -...

hi all, went to GP with a persistent rash on my face and she's done an ANA as is...

Hidden

•4 years ago

6 Replies

Finally a new lupus drug

Interesting article in the Mail on Sunday about a new lupus drug called Anifrolumab. Unfortunately it is about 30 years too late for me, my lupus seems to be...

Interesting article in the Mail on Sunday about a new lupus drug called Anifrolu...

IMWilson

•4 years ago

1 Reply

Vasculitis

I have been diagnosed with ‘mild’ lupus but am awaiting test results for vasculitis & Lyme disease does anyone else have any experience of these ?

I have been diagnosed with ‘mild’ lupus but am awaiting test results for vasculi...

er21894

•4 years ago

1 Reply

New lupus cure???

Has anyone heard anything about this?...

Jo1974manchester

•4 years ago

1 Reply

New Drug for Lupus Sufferers

My friend send me this link about a new drug for lupus. What do you all think? https://mol.im/a/7876813

My friend send me this link about a new drug for lupus. What do you all think? ...

Maureenpearl

•4 years ago

5 Replies

New lupus drug

My friend just sent me this link. It sounds great but how many are actually accessing these new “miracle” drugs??...

My friend just sent me this link. It sounds great but how many are actually acc...

Wendy39

•4 years ago

19 Replies

Lupus

Hi . So since the beginning of 2019 w started to notice a few things regarding my health like fatigue and dizziness severe pain in my left toes and raynauds...

Hi . So since the beginning of 2019 w started to notice a few things regarding m...

Natz36

•4 years ago

17 Replies

Eating all day long.

Hi, I’m on steroids 20 mg and I’m sure I’m developing an eating disorder, I binge on bad food all day long I can’t help myself, sweets stuff, crisps , bread,...

Hi, I’m on steroids 20 mg and I’m sure I’m developing an eating disorder, I bing...

Melaxx

•4 years ago

6 Replies

Advice please?

Hi all I have rhumatoid arthritis which is fairly controlled by Methatrexate injections and Leflunamide. Lately I have had loads of bouts of pain in my calf...

Hi all I have rhumatoid arthritis which is fairly controlled by Methatrexate inj...

Vroni

•4 years ago

3 Replies

Bad follower Alert

Hi everyone, hope all is well as it can be. I am posting about an unethical new follower here, as I received this one today in my in-box on Health Unlocked....

Hi everyone, hope all is well as it can be. I am posting about an unethical new ...

thestorm

•4 years ago

5 Replies

Advice please!

Hello there, I hope no one minds me posting in this community but I wanted some advice from people diagnosed with Lupus. I am a 26 year old woman, based in...

Hello there, I hope no one minds me posting in this community but I wanted some ...

Hidden

•4 years ago

6 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for January 2020

Hello again

Erythromyalgia

Left sided headache for 10 weeks and internal tremor for 6 months

Maybe lupus?

😠😠😠 So angry

Thank you 💐

Benefits

Prednisone- Can the weight gain occur pretty fast?

Cannot sleep 😕

Sitting on my hospital bed 😕

PIP and Lupus

Starting methotrexate tomorrow from mycophenolate...bit scared...

Patients with any condition currently injecting (pre-filled injection with a dial a dose) needed for paid market research.

Fat I’ll waiting for a diagnosis

Myeloma

Appointment this Thursday at Leeds with rumi

Private Consultant

Anifrolumab - A breakthrough potential lupus treatment

Frustrated

How long for ANA test results?

Finally a new lupus drug

Vasculitis

New lupus cure???

New Drug for Lupus Sufferers

New lupus drug

Lupus

Eating all day long.

Advice please?

Bad follower Alert

Advice please!

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