Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,744 members • 28,102 posts

All posts for December 2019

Lupus, APS, and a DVT at 19

Ive been reading the posts on here since my diagnosis so I thought finally i’d introduce myself. I was recently diagnosed with lupus sle and anti phospholipid...

Ive been reading the posts on here since my diagnosis so I thought finally i’d i...

•4 years ago

Electric Shock Sensation down one side of face.

Hi all Hope you are all doing well. I just wanted to ask for advice. Over a month or so ago I boarded a bus and banged my head on one of the ceilings within...

Hi all Hope you are all doing well. I just wanted to ask for advice. Over a mon...

•4 years ago

Feedback on Specialist Lupus Nurses

Hello everyone, LUPUS UK is currently in the process of creating a webpage dedicated to Specialist Lupus Nurses, outlining the importance of their role and why...

Hello everyone, LUPUS UK is currently in the process of creating a webpage dedic...

Chanpreet_Walia

LUPUS UK•4 years ago

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Share your experiences of lupus in a research study

Researchers at Duke University in the United States are seeking a diverse group of individuals to interview about their experiences of living with systemic...

Researchers at Duke University in the United States are seeking a diverse group ...

Partner•4 years ago

Heart problems & a way to detect them early

I hope that it is ok to share this on the Lupus site. There will be people from the other 2 sites that would also benefit from the knowledge. There are many...

I hope that it is ok to share this on the Lupus site. There will be people from ...

•4 years ago

Update... kind of?

Hello Everyone. I had my Rheumatologist appointment yesterday as some of you may know. My ANA came back clear, so he said I don’t have Lupus. I tried to...

Hello Everyone. I had my Rheumatologist appointment yesterday as some of you m...

•4 years ago

Promising developments or a blip?

I have had Anosmia since before I was diagnosed with lupus. A while back I saw a forum discussion saying lupies with anosmia should have further investigations...

I have had Anosmia since before I was diagnosed with lupus. A while back I saw a...

overnighthearingloss

•4 years ago

New drug treatment for Lupus?

Hello everyone Just thought I'd share an article there's been in the 'Times' about a drug company Immupharma being able to resurrect it's lupus drug Lupuzor....

Hello everyone Just thought I'd share an article there's been in the 'Times' abo...

•4 years ago

I all, I’ve looked on the site of the Lupus site and it was very helpful.

I saw my Dermatologist last week and it seems that I am sensitive to UVA and UVB. I get burnt even when it’s dull but if a slight blue sky for 5mins, I blister...

I saw my Dermatologist last week and it seems that I am sensitive to UVA and UVB...

•4 years ago

Oestrogen

Hi. It's a long time since I posted here but I'm hoping someone might recall the problem I've had, particularly with getting a diagnosis of lupus. Since I last...

Hi. It's a long time since I posted here but I'm hoping someone might recall the...

•4 years ago

Violent headache.

Hi everyone, I hope you are all keeping as well as can be expected. I was wondering if anyone suffers violent headaches, last week I had one that lasted two...

Hi everyone, I hope you are all keeping as well as can be expected. I was wonder...

•4 years ago

Long Time No Post

Hello Everyone, I haven't posted for a few months now but I thought I should come on and see how you were all doing and to give you a bit of an update. I...

Hello Everyone, I haven't posted for a few months now but I thought I should com...

Crazy_Cat_Woman

•4 years ago

Feeling nervous about rheumatologist app tomorrow?

Hello Everyone, I hope you’re all as well as you can be. So I finally have my Rheumatologist appointment tomorrow, which means I finally get the diagnosis...

Hello Everyone, I hope you’re all as well as you can be. So I finally have my ...

•4 years ago

I had a fall

Full length, battered and bruised but unbroken. Stripped pine floors are attractive but not cushioning. I’ve long determined to downsize when Blue shuffles...

Full length, battered and bruised but unbroken. Stripped pine floors are attrac...

•4 years ago

CKD

I've recently been diagnosed with Chronic Kidney Disease, mainly due to my high blood pressure which has now stabilised due to medication. Does anyone else...

I've recently been diagnosed with Chronic Kidney Disease, mainly due to my high ...

•4 years ago

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