Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,744 members • 28,102 posts

All posts for December 2019

Survey or research on skin conditions by administators

Does anyone know how I access something that just popped up then disappeared from the admistrators about a survey or research on skin conditions that you have...

Does anyone know how I access something that just popped up then disappeared fro...

catblue1865

•4 years ago

3 Replies

Sleep apnoea and insomnia

Does anyone else suffer from insomnia or sleep apnoea or are these not common conditions associated with lupus?

Does anyone else suffer from insomnia or sleep apnoea or are these not common co...

catblue1865

•4 years ago

45 Replies

Participants needed for a Research Study about Skin Conditions (Deadline extended to 24th December)

Participants needed for a research study investigating a novel self-help intervention for people with skin conditions. Skin conditions can have an...

Participants needed for a research study investigating a novel self-help interve...

Chanpreet_Walia

LUPUS UK•4 years ago

3 Replies

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Dialysis

Got discharged on monday afternoon as my dialysis machine and solutions all arrived on Monday morning. Adapted quite well to doing it on my own at night and...

Got discharged on monday afternoon as my dialysis machine and solutions all arri...

Hidden

•4 years ago

5 Replies

Feeling a bit apprehensive

Monday I’ve got a scan on the kidney area as I have an occasional proper bleed in urine. Also have had quite a few bad UTI’s lately. Tuesday I’ve got cortisone...

Monday I’ve got a scan on the kidney area as I have an occasional proper bleed i...

Jhpc

•4 years ago

18 Replies

Lupus and pregnancy

Hi I’m been diagnosed with lupus almost 4yrs now. I’m getting to my 30’s now n I’m getting really worried because I want start having babies. I’m on...

Hi I’m been diagnosed with lupus almost 4yrs now. I’m getting to my 30’s now n I...

Gubby_1

•4 years ago

10 Replies

Lupus UK Display

I’m sitting in the hospital foyer with the display my hubby and I set up last night. I’m not allowed to place a donations box on the table (hospital policy)...

I’m sitting in the hospital foyer with the display my hubby and I set up last ni...

Spotty-ewe

•4 years ago

45 Replies

Left eye causing discomfort

First thing to ever go wrong with me was rapd Left I now seem smaller feels like there’s something in it constantly this picture will be your right It’s not...

First thing to ever go wrong with me was rapd Left I now seem smaller feels like...

Buckley123

•4 years ago

25 Replies

Finally a (sort of) diagnoses

Saw an immunologist who was excellent, after 12 months of ill health and test after test he said he can say I have mild lupus, not full diagnosis but I am...

Saw an immunologist who was excellent, after 12 months of ill health and test af...

Gizmo81

•4 years ago

21 Replies

Festive

Dear All not posted anything lately as not much to say, but keeping an eye to see everyone else is ok👍🏼 Have just been soldiering on with life, changing meds...

Dear All not posted anything lately as not much to say, but keeping an eye to se...

HelenL75

•4 years ago

12 Replies

Pain after cast removed after surgery, could this be lupus or something else? Any ideas?

Hey all, happy holidays to you all. I had right hand surgery in October. Crossed intrinsic transfer and stabilization with tendon...

Hey all, happy holidays to you all. I had right hand surger...

Roanna

•4 years ago

16 Replies

Does anyone know if this is happening in hospitals in England, Scotland or Northern Ireland?

https://www.walesonline.co.uk/news/health/red-cross-wales-christmas-hospitals-17426315?utm_source=facebook.com&utm_medium=social&utm_campaign=wales_main Does...

https://www.walesonline.co.uk/news/health/red-cross-wales-christmas-hospitals-17...

Wendy39

•4 years ago

9 Replies

Tried making mince pies 🙈. Not sure I will make the great British bake off 😂

Had to share with you as some of you may recall how terrible my baking is!!!! I was going to take them into work but don’t think they will go down to well....

Had to share with you as some of you may recall how terrible my baking is!!!! I...

Lisalou19

•4 years ago

24 Replies

Participants (Females, aged 20-35) needed for an article on challenges faced by those with an invisible illness for Exetera Magazine

Eden Spence, freelance writer, and university student is looking to submit an article entitled ‘But you don’t look sick: What does it mean to live with an...

Eden Spence, freelance writer, and university student is looking to submit an ar...

Chanpreet_Walia

LUPUS UK•4 years ago

3 Replies

Dr c letter part 2

Second part of the letter

Buckley123

•4 years ago

13 Replies

Letter from dr c part one

For anyone to have a input compared to my last letter but again no answers really

For anyone to have a input compared to my last letter but again no answers reall...

Buckley123

•4 years ago

1 Reply

Still screaming into and now punching my pillow 😠

Oh I was so looking forward to my rheumy appointment but to get a phone call from appointments office 36 hours prior cancelling. I rang my rheumy secretary on...

Oh I was so looking forward to my rheumy appointment but to get a phone call fro...

Bronn

•4 years ago

9 Replies

Macular Oedema

Hello everyone. The saga with my eyes continues. I went to the Optician, a different one this time, for a sight test. My GP and Rheumatology Helpline had told...

Hello everyone. The saga with my eyes continues. I went to the Optician, a diffe...

CecilyParsley

•4 years ago

27 Replies

December already !

Hey, I’m not quite sure how we got to December already. I’ve had a crappy few weeks recently. I had tonsillitis for 2 weeks recently. Then I had a sickness...

Hey, I’m not quite sure how we got to December already. I’ve had a crappy few...

LouLamb

•4 years ago

12 Replies

Raised ferritin anyone and second toe update

Hello everyone I just thought I'd write an update as I hope this will inspire others with diagnosis difficulties not to give up!. I had an emergency Rheumy...

Hello everyone I just thought I'd write an update as I hope this will inspire ot...

misty14

•4 years ago

46 Replies

Travel insurance

Heya everyone, sorry I haven’t posted in a while I’m very poorly atm, been diagnosed with loads of other things so ive been in and out of hospital, I am going...

Heya everyone, sorry I haven’t posted in a while I’m very poorly atm, been diagn...

Elishaannxx

•4 years ago

22 Replies

Happy Christmas

This is a great supporting community. Happy Christmas and good outcomes for 2020. It’s all down to you helping each other. Many thanks to Paul, Chanpreet,...

This is a great supporting community. Happy Christmas and good outcomes for 2020...

Kevin53

•4 years ago

10 Replies

Beauty salon visit?

Hi friends, wanted to know that are u ladies with Lupus, are fine with your regular salon or spa visits? Does this possess any threat to our skin issues? Is it...

Hi friends, wanted to know that are u ladies with Lupus, are fine with your regu...

Putloo

•4 years ago

5 Replies

Rare night out ❤️

Merry Christmas 🎄 no alcohol for me though 😂🤦🏼‍♀️❤️

Buckley123

•4 years ago

18 Replies

Azathioprine and Mesalazine

The saga continues... I started taking azathioprine a week ago despite speaking to a pharmacist that my mesalazine was mentioned in the aza leaflet. He told...

The saga continues... I started taking azathioprine a week ago despite speaking...

DaftCat

•4 years ago

8 Replies

Been told probably false positive ANA

Hi I had a positive result for ANA and the ANA pattern was described as pattern 1 - normal - no action needed. I asked my GP to explain in an email and to...

Hi I had a positive result for ANA and the ANA pattern was described as pattern...

FoggyMoggy

•4 years ago

36 Replies

Made to Measure Arm and Hand Warmers

I found two balls of rather fancy wool and silk Japanese yarn. Each ball was exactly enough for one warmer. It’s a chunky yarn, knitted in rib, and reaches...

I found two balls of rather fancy wool and silk Japanese yarn. Each ball was exa...

Lupiknits

•4 years ago

12 Replies

Swelling/fluid behind knees and in thighs

Hi everyone I’ve recently joined this forum as I am newly diagnosed with lupus and totally uneducated on the illness. I have Swelling/fluid behind both knees...

Hi everyone I’ve recently joined this forum as I am newly diagnosed with lupus a...

Bobbydoodle

•4 years ago

3 Replies

Has anyone got any information as to why alcohol is simply a NO NO. Makes me feel so sick .....

I have read posts about this quite a few times but wondered if anyone has ever received any information as to why alcohol makes us feel so poorly? I had 3 Gin...

I have read posts about this quite a few times but wondered if anyone has ever r...

Lisalou19

•4 years ago

47 Replies

It's my birthday tomorrow.

Quick question: I am getting my eyebrows threading tomorrow. Is it safe to get my eyebrows tint (I have been diagnosed with SLE)? In the past, I have also had...

Quick question: I am getting my eyebrows threading tomorrow. Is it safe to get m...

SLE-Warrior

•4 years ago

4 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for December 2019

Survey or research on skin conditions by administators

Sleep apnoea and insomnia

Participants needed for a Research Study about Skin Conditions (Deadline extended to 24th December)

Dialysis

Feeling a bit apprehensive

Lupus and pregnancy

Lupus UK Display

Left eye causing discomfort

Finally a (sort of) diagnoses

Festive

Pain after cast removed after surgery, could this be lupus or something else? Any ideas?

Does anyone know if this is happening in hospitals in England, Scotland or Northern Ireland?

Tried making mince pies 🙈. Not sure I will make the great British bake off 😂

Participants (Females, aged 20-35) needed for an article on challenges faced by those with an invisible illness for Exetera Magazine

Dr c letter part 2

Letter from dr c part one

Still screaming into and now punching my pillow 😠

Macular Oedema

December already !

Raised ferritin anyone and second toe update

Travel insurance

Happy Christmas

Beauty salon visit?

Rare night out ❤️

Azathioprine and Mesalazine

Been told probably false positive ANA

Made to Measure Arm and Hand Warmers

Swelling/fluid behind knees and in thighs

Has anyone got any information as to why alcohol is simply a NO NO. Makes me feel so sick .....

It's my birthday tomorrow.

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