Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,818 members • 28,154 posts

All posts for October 2019

Fatigue reduction evaluation

I found a great article evaluating different techniques and supplements for reducing fatigue in lupus....

I found a great article evaluating different techniques and supplements for redu...

miccika1

•5 years ago

1 Reply

Autoimmune Haemolytic anemia : Blood lupus

Pooh bear (the wife) has Sle, pots + loads of other stuff and now anemia. Iron, folate and B12 all normal as is erythropoietin. unusual bloods : Haemoglobin 99...

Pooh bear (the wife) has Sle, pots + loads of other stuff and now anemia. Iron, ...

jimbo1605

•5 years ago

9 Replies

Hi I am moving near to Elgin and will be needing to see a new rhumy, can atone recommend one either at Aberdeen or Inverness please?

Moving near Elgin

luupysue

•5 years ago

8 Replies

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Spontaneous bleeding on humira

I had an embarrassing moment at my Hairdresser's. I got what I thought to be a pimple on my nose a week ago-- it's healed up and just became just a bit of...

I had an embarrassing moment at my Hairdresser's. I got what I thought to be a ...

OneLove2019

•5 years ago

2 Replies

Lupus Day??

Hi all , just a question, as I am not there. Was today, or Saturday, London Lupus Information Day?? I thought it was for October the 5th? With my fog brain I...

Hi all , just a question, as I am not there. Was today, or Saturday, London Lupu...

thestorm

•5 years ago

3 Replies

Oops! Too much Prednisolone!

While I was away in Keswick I had all my pills with me and found on the first night (Wednesday) that the 4 Prednisolone I was taking were labelled Thursday (I...

While I was away in Keswick I had all my pills with me and found on the first ni...

Spotty-ewe

•5 years ago

37 Replies

Hormones - update

I posted last month about trying the pill to try to regulate my cycle and reduce my flares. Although I knew there was a good chance it might not work I thought...

I posted last month about trying the pill to try to regulate my cycle and reduce...

123MrsG

•5 years ago

2 Replies

Should I keep taking my meds?

Hi everyone. So I’ve been having flares all summer up to now and now the dr increased my hydroxychloroquine but each time I take it my stomach cramps up and I...

Hi everyone. So I’ve been having flares all summer up to now and now the dr incr...

Mmafox

•5 years ago

13 Replies

Hi Anyone diagnosed with hashimoto disease.?

Hi Anyone diagnosed with hashimoto disease.? What are your symptoms & levels of antibodies. I have sjorgrens & MS, now this.

Hi Anyone diagnosed with hashimoto disease.? What are your symptoms & levels of ...

vsapey

•5 years ago

2 Replies

Update: to have lupus or not have Lupus...

First of all apologies for the delay in getting back with my update. Quick back history - I'm a lupus patient in Leeds. Been so for about 3 years. Gone on...

First of all apologies for the delay in getting back with my update. Quick back...

Apricot100

•5 years ago

6 Replies

Am I Petty?

Am I petty? Seriously, if I am, I apologize, but here’s the thing: Last year my husband and I were visiting my father-in-law in another state, after he had a...

Am I petty? Seriously, if I am, I apologize, but here’s the thing: Last year my ...

Hidden

•5 years ago

37 Replies

Greatings

THANKS AGAIN MY FRIEND AM GLAD TO BE HERE

mwahalendealfred2019

•5 years ago

Be the first to reply

Raising UK EDS-awareness: cause quite a of us 🦓s count a form of hypermobility among our comorbidities

Inquiry into treatment of Ehlers Danlos patients and its comorbidities Ehlers-Danlos Syndromes (EDS) are part of a group of connective tissue disorders,...

Inquiry into treatment of Ehlers Danlos patients and its comorbidities Ehlers-Da...

Barnclown

•5 years ago

21 Replies

LUPUS AWARENESS AND SUPPORT FOUNDATION (LASF) FROM TANZANIA AFRICA

MY NAME IS ALFRED MWAHALENDE FROM TANZANIA,AFRICA AND GENERAL EXECUTIVE SECRETARY FROM NON GOVERNMENTAL ORGANIZATIO KNOWN AS LUPUS AWARENESS AND SUPPORT...

MY NAME IS ALFRED MWAHALENDE FROM TANZANIA,AFRICA AND GENERAL EXECUTIVE SECRETAR...

mwahalendealfred2019

•5 years ago

6 Replies

Cellcept side effects

Sorry, I seem to do nothing but ask for advice! But I don't really know anyone who has lupus experience and I'm feeling kind of worried by things that wouldn't...

Sorry, I seem to do nothing but ask for advice! But I don't really know anyone w...

November90

•5 years ago

13 Replies

What would you think of this?

I was diagnosed a couple of months ago. In Nov 2018 I had bloods which showed my CTD screen at 1.6 and dsDNA at 14. These are the bloods that diagnosed my...

I was diagnosed a couple of months ago. In Nov 2018 I had bloods which showed my...

DaftCat

•5 years ago

21 Replies

Joint pain after holiday

hey, since coming back from honeymoon, I’ve had severe joint pain, which initially started off as bursitis (diagnosed) in my right elbow, but has now spread to...

hey, since coming back from honeymoon, I’ve had severe joint pain, which initial...

Sorejoints

•5 years ago

Be the first to reply

Derwentwater achieved!

I’m so pleased to report we managed to walk right around Derwentwater today (10 miles) and are still standing! 🤪 Many thanks to all of you who prayed for dry...

I’m so pleased to report we managed to walk right around Derwentwater today (10 ...

Spotty-ewe

•5 years ago

23 Replies

How do you manage with work?

I’ve just joined the group, I have MCTD (diagnosed 2 years ago) and work 4 days a week.I had the dreaded conversation at work today where my boss told me he...

I’ve just joined the group, I have MCTD (diagnosed 2 years ago) and work 4 days ...

Mumof2andadog

•5 years ago

14 Replies

advice

i am after some other lupus help recently diagnosed but lupus been dormant but not had my first lupus flare and have started taking plaquenil for three weeks...

i am after some other lupus help recently diagnosed but lupus been dormant but n...

jogordon

•5 years ago

7 Replies

Panicking about blood in urine - lupus nephritis

I'm having a night time panic, and wondering if I should try to get an urgent doctor's appointment in the morning, or if it would be better to go straight to...

I'm having a night time panic, and wondering if I should try to get an urgent do...

November90

•5 years ago

13 Replies

Pajama Days

Am I weird, or what? I try to find the positive in things to keep my attitude happy and not bring those around me down. One of the positives about this ‘fun’...

Am I weird, or what? I try to find the positive in things to keep my attitude ha...

Hidden

•5 years ago

32 Replies

Just looked at my last post 😂😂😂😂🤦🏼‍♀️🤦🏼‍♀️

Sorry guys I have no idea why some weird words are in yesterday’s post I use the voice recording button on my phone but I didn’t check it I guess you all...

Sorry guys I have no idea why some weird words are in yesterday’s post I use th...

Buckley123

•5 years ago

16 Replies

Safe Hair Dye

Need to colour hair which is the safest hair colour for grey I want dark browny red

Need to colour hair which is the safest hair colour for grey I want dark browny ...

Eternity6

•5 years ago

26 Replies

Overactive bladder and autoimmune illnesses???

For a while now I’ve had issues with my bladder, something made worse by flares. I’ve never been able to make sense of why it gets worse but I’ve also never...

For a while now I’ve had issues with my bladder, something made worse by flares....

Lisalou19

•5 years ago

22 Replies

Still non the wiser

So basically see my neurologist and he still thinks I have UCTD and that the antibodies are racist he’s a salon that my immune system isn’t working properly if...

So basically see my neurologist and he still thinks I have UCTD and that the ant...

Buckley123

•5 years ago

18 Replies

Flu Jab

Hello everyone! I hope you are all ok (or as they say ‘as well as can be expected with Lupus’). Last year I asked on here if it was safe to have the flu jab...

Hello everyone! I hope you are all ok (or as they say ‘as well as can be expecte...

Jacqui296

•5 years ago

12 Replies

A day of mixed emotions!

Hi all Lupies, I’ve had a really strange day. I started by taking Lupus Awareness items and posters to the village hall for their coffee morning where I had...

Hi all Lupies, I’ve had a really strange day. I started by taking Lupus Awarene...

Spotty-ewe

•5 years ago

13 Replies

Burning rash

This is just one photo of my rash. It is on both legs and spreading. It burns like mad as if I have scalded myself but the pain is coming from my feet and...

This is just one photo of my rash. It is on both legs and spreading. It burns li...

CecilyParsley

•5 years ago

47 Replies

I’ve not long been diagnosed with skin lupus, but if there is any UV (even when it’s raining), I get a flare up.

I was diagnosed with skin lupus but I have it so severe, is it normal to get flare ups even when the UV Ray is only 1? It looks like I have red eye shadow, my...

I was diagnosed with skin lupus but I have it so severe, is it normal to get fla...

Teanna

•5 years ago

14 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for October 2019

Fatigue reduction evaluation

Autoimmune Haemolytic anemia : Blood lupus

Hi I am moving near to Elgin and will be needing to see a new rhumy, can atone recommend one either at Aberdeen or Inverness please?

Spontaneous bleeding on humira

Lupus Day??

Oops! Too much Prednisolone!

Hormones - update

Should I keep taking my meds?

Hi Anyone diagnosed with hashimoto disease.?

Update: to have lupus or not have Lupus...

Am I Petty?

Greatings

Raising UK EDS-awareness: cause quite a of us 🦓s count a form of hypermobility among our comorbidities

LUPUS AWARENESS AND SUPPORT FOUNDATION (LASF) FROM TANZANIA AFRICA

Cellcept side effects

What would you think of this?

Joint pain after holiday

Derwentwater achieved!

How do you manage with work?

advice

Panicking about blood in urine - lupus nephritis

Pajama Days

Just looked at my last post 😂😂😂😂🤦🏼‍♀️🤦🏼‍♀️

Safe Hair Dye

Overactive bladder and autoimmune illnesses???

Still non the wiser

Flu Jab

A day of mixed emotions!

Burning rash

I’ve not long been diagnosed with skin lupus, but if there is any UV (even when it’s raining), I get a flare up.

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