Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,821 members • 28,155 posts

All posts for October 2019

Hydroxychloroquine

As anyone who takes this medication knows, we are advised to have yearly eye tests, so, as instructed I went for mine yesterday with a well known high street...

As anyone who takes this medication knows, we are advised to have yearly eye te...

Angiedj

•5 years ago

27 Replies

Cardiff Lupus Group Meeting - Saturday 16th November 2019

Hi everyone, The next meeting of the Cardiff Lupus Support Group will take place on Saturday 16th November 2019 from 1.30pm – 4pm at; Star Hub ...

Hi everyone, The next meeting of the Cardiff Lupus Support Group will take place...

Paul_Howard

Partner•5 years ago

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Sore muscles in the eve maimly

Hey guys how are we all ? Anyone else get sore tight tender muscles of the legs feet and knees at night some nights I can ignore it but nights like tonight...

Hey guys how are we all ? Anyone else get sore tight tender muscles of the le...

Buckley123

•5 years ago

24 Replies

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Does anyone have problems with their laryx

Hi I was just wondering if anyone ever has issues with their laryx. Ive always suffered with sore throats but ive had laryngitis twice in a year, having...

Hi I was just wondering if anyone ever has issues with their laryx. Ive always...

Luppylou

•5 years ago

5 Replies

Lupus and Addison Disease

I have had Lupus for the past 6 years, have any of the Lupus patients been diagnosed with Addison disease also. If so, could you fill me in on the effects...

I have had Lupus for the past 6 years, have any of the Lupus patients been diagn...

Caroleborrmann

•5 years ago

2 Replies

Sildenifil when trying to conceive?

I take sildenifil for secondary raynauds disease and am also trying for a baby. If you have been in this situation what was the advice you were given from...

I take sildenifil for secondary raynauds disease and am also trying for a baby. ...

Dancingc21

•5 years ago

5 Replies

Bitter sweet day! Cysts and lupus correlation? Azathioprine medication?

Well what a whirlwind since my last post! Had my jaw bone shaved because of the pressure from these crazy lumps in my face, started Hydro which has worked to...

Well what a whirlwind since my last post! Had my jaw bone shaved because of the ...

Angie245

•5 years ago

7 Replies

Is this lupus?

I’ve been having problems with my left hand - swollen, painful, unable to properly bend fingers, make a fist- and constant abdominal pain for some while. Some...

I’ve been having problems with my left hand - swollen, painful, unable to prope...

SashaT64

•5 years ago

10 Replies

Check your Meds! Check the contra indicated meds.

I’m not sure how many this would apply to, but it is an example of the importance of record keeping in one place, and not assume they continue to be correct....

I’m not sure how many this would apply to, but it is an example of the importanc...

Lupiknits

•5 years ago

17 Replies

Bursitis of the hip

I know with Lupus or any auto immune illnesses that we can often take longer to heal but I’ve had what they feel is Bursitis of the hip for weeks and it’s...

I know with Lupus or any auto immune illnesses that we can often take longer to ...

Gillyg

•5 years ago

18 Replies

Tacrolimus for lupus nephritis Class V? Cellcept isnt working.

Hello, Does anyone have experience with adding Tacrolimus for nephritis? Quick summary-At 22 dg with lupus, was on plaquenil, then age 44 ie this year out of...

Hello, Does anyone have experience with adding Tacrolimus for nephritis? Quick s...

NewEngland3

•5 years ago

5 Replies

Go That Extra Mile update

Just to let you all know that the money from the sponsored walk around Derwentwater is now all in. I raised £62 (from neighbours, friends and folk at the...

Just to let you all know that the money from the sponsored walk around Derwentwa...

Spotty-ewe

•5 years ago

23 Replies

Weird swelling in one ankle/foot only?

Bit of back history first... Likely broke my foot about 10 weeks ago now (drs aren't certain, but pretty sure, xray not 100% definitive.) Still fair lump...

Bit of back history first... Likely broke my foot about 10 weeks ago now (drs ...

bengali

•5 years ago

1 Reply

My daughter been diagnosed with pots

My 11 year old has been diagnosed with pots today gutted is a understatement 😭

Buckley123

•5 years ago

39 Replies

Anyone Feeling Me?

Anyone else here have this problem? (I want to see all hands up!) 🙋🏻‍♀️

Hidden

•5 years ago

35 Replies

Thank you dear KrazyKat 🐱 for starting your art post. I am really enjoying everyone’s art work 😍 this is my daughters 😉

Personally I don’t have an artistic bone in my body! Although I would say my personality is a fine art 😜 Thank you everyone for sharing your art here. I’ve...

Personally I don’t have an artistic bone in my body! Although I would say my pe...

Lisalou19

•5 years ago

16 Replies

Feeling a bit lost...

Hello Everyone, I hope you’re all as well as you can be. I have been very ill since December 2017 (I’ve never been quite ‘right’ ever since I was around 11...

Hello Everyone, I hope you’re all as well as you can be. I have been very ill ...

Wanheda242

•5 years ago

2 Replies

Discoid?

Me again! I could only attach one photo but believe me I have several! 😂😂 Last night I didn’t have these marks but they’ve appeared this morning. I usually...

Me again! I could only attach one photo but believe me I have several! 😂😂 Las...

DaftCat

•5 years ago

9 Replies

Possible specialist lupus centre at Aberdeen Royal Infirmary?

Currently there is no specialist lupus centre in Scotland, something which I feel is desperately needed. I have heard from another member of this community...

Currently there is no specialist lupus centre in Scotland, something which I fee...

junemc

•5 years ago

30 Replies

Breast Implants and Lupus

Just wanted to know if anyone with Lupus has had breast implants and if so, have you had any issues. Thanks

Just wanted to know if anyone with Lupus has had breast implants and if so, have...

Westkey

•5 years ago

6 Replies

Mobility issues

Firstly I want to thank every single person who took the time to respond to my previous post regarding my horrid doctor, it meant more than you know and gave...

Firstly I want to thank every single person who took the time to respond to my p...

PickledGinger

•5 years ago

9 Replies

Therapeutic arts and crafts

In response to KrazyKat’s post yesterday I find it SO therapeutic to knit, crochet and sew. The results are not always very professional, but hey who cares?...

In response to KrazyKat’s post yesterday I find it SO therapeutic to knit, croch...

Spotty-ewe

•5 years ago

44 Replies

Claim benefits lupus

What benefits can I claim, PIP refused!??

Elisabeta92

•5 years ago

1 Reply

Uctd experience please

Hey guys how are you all I was wondering if you have uctd could you take the time to tell me your experience I would very much appreciate it ? Lots ❤️...

Hey guys how are you all I was wondering if you have uctd could you take the t...

Buckley123

•5 years ago

16 Replies

Yesterday’s appointment at Dermatology

Hello. The photo is in response to KrazyKat’s post on craft hobbies. I knit these teddies for a friend’s son’s wedding earlier this year. I had an...

Hello. The photo is in response to KrazyKat’s post on craft hobbies. I knit t...

Barbara17

•5 years ago

14 Replies

Bioplex CTD Screen (?)

Today I have my 1st follow up appointment with the Rheumatology department who have confirmed that I do have lupus and will now be referred to a consultant who...

Today I have my 1st follow up appointment with the Rheumatology department who h...

pattypatchwork

•5 years ago

2 Replies

Mobility issues

I have scleroderma, lupus, osteoarthritis, sero negative arthritis, myelopathy, antiphosphilipid syndrome and a bunch of horrible other stuff. For the last 18...

I have scleroderma, lupus, osteoarthritis, sero negative arthritis, myelopathy, ...

PickledGinger

•5 years ago

25 Replies

Lupus art gallery anyone..I feel inspired!!

It seems to me that we have many talented individuals on this forum n I believe that art in any way shape or form is a wonderful way of expressing...

It seems to me that we have many talented individuals on this forum n I believe ...

Krazykat26

•5 years ago

38 Replies

Pain

Good morning, I'm trying to find out if any one with lupus has ever had Renal colic?

Good morning, I'm trying to find out if any one with lupus has ever had Renal co...

djsema

•5 years ago

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Lupus and Arthritis

Hi everyone, I'm having a lot of pain in my hips and quite severe I left one,usually at night, especially if I lay on it. Also sharp very bad pain in groin...

Hi everyone, I'm having a lot of pain in my hips and quite severe I left one,usu...

smellie

•5 years ago

10 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for October 2019

Hydroxychloroquine

Cardiff Lupus Group Meeting - Saturday 16th November 2019

Sore muscles in the eve maimly

Does anyone have problems with their laryx

Lupus and Addison Disease

Sildenifil when trying to conceive?

Bitter sweet day! Cysts and lupus correlation? Azathioprine medication?

Is this lupus?

Check your Meds! Check the contra indicated meds.

Bursitis of the hip

Tacrolimus for lupus nephritis Class V? Cellcept isnt working.

Go That Extra Mile update

Weird swelling in one ankle/foot only?

My daughter been diagnosed with pots

Anyone Feeling Me?

Thank you dear KrazyKat 🐱 for starting your art post. I am really enjoying everyone’s art work 😍 this is my daughters 😉

Feeling a bit lost...

Discoid?

Possible specialist lupus centre at Aberdeen Royal Infirmary?

Breast Implants and Lupus

Mobility issues

Therapeutic arts and crafts

Claim benefits lupus

Uctd experience please

Yesterday’s appointment at Dermatology

Bioplex CTD Screen (?)

Mobility issues

Lupus art gallery anyone..I feel inspired!!

Pain

Lupus and Arthritis

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