Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,716 members • 28,082 posts

All posts for October 2019

Chest/rib pain help

Hi guys I love this site as I know if I’m feeling unwell or have new symptoms there’s always someone who can give advice, so I’ve had a chest infection and...

Hi guys I love this site as I know if I’m feeling unwell or have new symptoms th...

Sammymoat1986

•4 years ago

3 Replies

Hydroxychloroquine and gastric problems

Hi, I'm having gastric problems which I think could be caused by Hydroxychloroquine even though it's Zentiva brand. I take 200mg a day and wondered if I could...

Hi, I'm having gastric problems which I think could be caused by Hydroxychloroqu...

Biddy47

•4 years ago

19 Replies

Perfume

I would never buy a mainstream fragrance because they are full of chemicals. However dose anyone have the experience of flare up from an all natural essential...

I would never buy a mainstream fragrance because they are full of chemicals. How...

Mozart12

•4 years ago

9 Replies

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Don’t ever give up hope of getting answers to why your so ill, it just needs to be dealt with by the right person.

Finally saw a Dr who listened to me and put me in the right direction and I was offered an Referal with an immunologist after much I’ll health and many...

Finally saw a Dr who listened to me and put me in the right direction and I was ...

Hidden

•4 years ago

13 Replies

Alcohol- eye lashes - and now my hair dye 🤦🏼‍♀️🤦🏼‍♀️🤦🏼‍♀️

Well my life is over 👎😂🔨🙄 Not only hAve my eyes become to sensitive for my lashes and alcohol seems to disagree with me as if I’m allergic and now my hair...

Well my life is over 👎😂🔨🙄 Not only hAve my eyes become to sensitive for my l...

Buckley123

•4 years ago

3 Replies

A&E or not

Hello guys, I posted a post last night relating to my current situation which seems to be getting worst a lot today. I have a lot of issues over the years,...

Hello guys, I posted a post last night relating to my current situation which ...

Staceylouise90

•4 years ago

12 Replies

euthromycin

I am in the process o being diagnosed with Lupus I also have problems with my oesophagus motility and have just been prescribed very large doses of euthromycin...

I am in the process o being diagnosed with Lupus I also have problems with my oe...

suetye

•4 years ago

1 Reply

Possible Lupus?

Hello, I was wondering if anyone could give me advice, I have been feeling poorly for the last few years with different things, but the last year I’ve been...

Hello, I was wondering if anyone could give me advice, I have been feeling poor...

Staceylouise90

•4 years ago

28 Replies

SLOW RECOVERY ON HYDROXYCHLOROQUINE- ANYONE ELSE FOUND NO IMPROVEMENT AFTER THREE WEEKS?

TAKING 400MG HYDROXYCHLOROQUINE FOR THIRD WEEK AND STILL FEELING REALLY AWFUL...HOW LONG UNTIL I EVEN START TO IMPROVE? i THOUGHT PERHAPS I WOULD SEE A...

TAKING 400MG HYDROXYCHLOROQUINE FOR THIRD WEEK AND STILL FEELING REALLY AWFUL.....

Tinkytink

•4 years ago

17 Replies

Azathioprine

Can I have your experiences of this drug please? My rheumy wants me to start this (as soon as my blood tests come back to show I’m healthy enough 😳) and I...

Can I have your experiences of this drug please? My rheumy wants me to start thi...

DaftCat

•4 years ago

16 Replies

Spine

Plaquenil has significantly reduced the peripheral joint pain but does nothing for my spine. When I take higher doses of anti-inflammatories, the spine pain,...

Plaquenil has significantly reduced the peripheral joint pain but does nothing f...

maye1

•4 years ago

4 Replies

Remove from thyroid posts

Please remove me from thyroid list. I have SLE but my thyroid is not affected. Thank you.

Please remove me from thyroid list. I have SLE but my thyroid is not affected. T...

Ellenkay55

•4 years ago

4 Replies

Just need to tell someone.SORRY FOR THE LONG POST

Hi, Good evening everyone that is here reading our " complaints " ,fears and other feelings..... I've not written anything for a bit as I've been busy with...

Hi, Good evening everyone that is here reading our " complaints " ,fears and ot...

Tavares79

•4 years ago

14 Replies

Painns in bonesthere

Does anyone out there suffer from pains in the bones in the top and around the ankles of their feet, also wrists and hands, sometimes picking a cup up can...

Does anyone out there suffer from pains in the bones in the top and around the a...

Doey1962

•4 years ago

7 Replies

Is drinking a big no no seems to be a new thing for me

Hey guys I had two and half glass of wine last night. I felt fine but then started feeling so hot and clammy and throwing up all night and this morning Can be...

Hey guys I had two and half glass of wine last night. I felt fine but then start...

Buckley123

•4 years ago

24 Replies

Has there been much evidence of genetic link for Lupus

Over the past several months I have been asked a number of times if any family members have Lupus as it is one of the identifying factors during diagnosis. Up...

Over the past several months I have been asked a number of times if any family m...

Lizziequink

•4 years ago

29 Replies

Shingles 😣

Thank you all for your very helpful replies. I am coping with the rash though itching day and night😕 (thank goodness it's only around chest height) but...

Thank you all for your very helpful replies. I am coping with the rash though it...

Bronn

•4 years ago

7 Replies

migraines/Headaches

Hi Everyone, haven't been on here in a while like 4 years now!! 7 years with the thing and am now 25. Hope everyone is doing well apart from the big "L" word...

Hi Everyone, haven't been on here in a while like 4 years now!! 7 years with the...

Danielle2419

•4 years ago

16 Replies

Swallowing

For the past couple of weeks I’ve been having a hard time swallowing food to the point where I find now that I’m unable to eat anything solid without gulping...

For the past couple of weeks I’ve been having a hard time swallowing food to the...

Pug-Mum-89

•4 years ago

39 Replies

Elevated Flow Cytometry

Has anyone ever had elevated CD3+, Cd4+, Cd19+ or CD56+ absolute blood results elevated? Thanks for any insight.

Has anyone ever had elevated CD3+, Cd4+, Cd19+ or CD56+ absolute blood results e...

Stm252

•4 years ago

2 Replies

What the world need now is....

Hi all 🤗🤗🤗 It's Saturday night n I'm staying in as usual n I've got my arty head on!! I'm in pain n I'm relying on hubby for most things..it's soooo...

Hi all 🤗🤗🤗 It's Saturday night n I'm staying in as usual n I've got my arty h...

Krazykat26

•5 years ago

16 Replies

Thank you

Dear Paul, thank you for allowing me to join. May your annual holiday be a blessed time. Regards

Dear Paul, thank you for allowing me to join. May your annual holiday be a bles...

Eliza67

•5 years ago

Be the first to reply

Horrible virus, now I think it's going into a flare!!!

So had an awful viral illness which started with a temp of 39.5 a wk ago and all wk I've had a fever daily of above 38.5 and felt awful with bad throat and...

So had an awful viral illness which started with a temp of 39.5 a wk ago and all...

Sara_A

•5 years ago

7 Replies

Thank you Kevin:)

I am posting this one again, found by great minds here ,with caring hearts, intuition, advocacy for many, and the true and blue desire to help teach others....

I am posting this one again, found by great minds here ,with caring hearts, intu...

thestorm

•5 years ago

1 Reply

Waterproof swimwear to avoid UTIs?

At last I have tried out my waterproof shorts in the swimming pool. You can see them in the photo with a near-matching tankini top. Just to make sure I had...

At last I have tried out my waterproof shorts in the swimming pool. You can see...

Spotty-ewe

•5 years ago

20 Replies

Lupus and Chocolate

Hi All Lupus Warriors, I have SLE, Discoid Lupus, Fibromyalgia and Raynauds. I have noticed every time I eat chocolate I am hit with a bad fever, and...

Hi All Lupus Warriors, I have SLE, Discoid Lupus, Fibromyalgia and Raynauds. I...

Blessings101

•5 years ago

26 Replies

We are not alone

I came across this video with Lupus sufferers which I found uplifting. Sorry if it’s already been posted here. The link is: https://youtu.be/ozW9Z2EZevU

I came across this video with Lupus sufferers which I found uplifting. Sorry if ...

buzzards

•5 years ago

5 Replies

Re, your replies on my sisters "lupus" face.

Thankyou everyone for all your help ad comments, re my dear sister . She sees her dermatologist every 6 months and he has never suggested any cleanser or...

Thankyou everyone for all your help ad comments, re my dear sister . She sees he...

Marielena2

•5 years ago

Be the first to reply

Private Appointment/Prescriptions

Evening! Does anybody have experience of seeing a rheumatologist privately? My current consultant is leaving her post & going to another hospital but my...

Evening! Does anybody have experience of seeing a rheumatologist privately? My ...

tweetyburd

•5 years ago

7 Replies

Levels up, does that mean my meds aren't working?

I had my blood tests results back today after being on hydrochoxoquine since June. The ANA and the Dsdna are up ANA from 2.3 to 2.7 and Dsdna from 23 to 25. Is...

I had my blood tests results back today after being on hydrochoxoquine since Jun...

F1zz

•5 years ago

3 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for October 2019

Chest/rib pain help

Hydroxychloroquine and gastric problems

Perfume

Don’t ever give up hope of getting answers to why your so ill, it just needs to be dealt with by the right person.

Alcohol- eye lashes - and now my hair dye 🤦🏼‍♀️🤦🏼‍♀️🤦🏼‍♀️

A&E or not

euthromycin

Possible Lupus?

SLOW RECOVERY ON HYDROXYCHLOROQUINE- ANYONE ELSE FOUND NO IMPROVEMENT AFTER THREE WEEKS?

Azathioprine

Spine

Remove from thyroid posts

Just need to tell someone.SORRY FOR THE LONG POST

Painns in bonesthere

Is drinking a big no no seems to be a new thing for me

Has there been much evidence of genetic link for Lupus

Shingles 😣

migraines/Headaches

Swallowing

Elevated Flow Cytometry

What the world need now is....

Thank you

Horrible virus, now I think it's going into a flare!!!

Thank you Kevin:)

Waterproof swimwear to avoid UTIs?

Lupus and Chocolate

We are not alone

Re, your replies on my sisters "lupus" face.

Private Appointment/Prescriptions

Levels up, does that mean my meds aren't working?

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