Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,744 members • 28,102 posts

All posts for September 2019

Advice please re excessive swelling and burned looking skin

Hi everyone, can I please get some advice? As you know I was taken off Hydroxychloroquine at the end of June after my new Rheumatologist upped my dose to 600...

Hi everyone, can I please get some advice? As you know I was taken off Hydroxych...

CecilyParsley

•5 years ago

32 Replies

Mysterious bumpy rash thing?

Anyone got any ideas of what this rash could be or how to get rid of it? It’s up the inside of my arms and in my groin area, no where else. Also it isn’t itchy...

Anyone got any ideas of what this rash could be or how to get rid of it? It’s up...

Armrash94

•5 years ago

Be the first to reply

Am I ever going to get a full picture 🤦🏼‍♀️

Hello you lot ❤️ So I had thyroid suggested to me I couldn’t of course get my GP to do anything about it by the NHS so I pay privately through midi checks to...

Hello you lot ❤️ So I had thyroid suggested to me I couldn’t of course get my ...

Buckley123

•5 years ago

21 Replies

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Sunburns

I was recently diagnosed with lupus and a couple days before I was diagnosed I got a sunburn on my leg. I know that one of the symptoms of lupus is...

I was recently diagnosed with lupus and a couple days before I was diagnosed I g...

crij

•5 years ago

4 Replies

Tips on how to cope with 12hr day!

Hiya, I have 2 days at work this week, Wed & Thurs where I am working from 8:30am to 9pm and on my feet all day long! I work for a college and these are...

Hiya, I have 2 days at work this week, Wed & Thurs where I am working from 8:30a...

Becky1995

•5 years ago

1 Reply

Eureka moment?

Good morning everyone, I have scle and Sjogrens and have had a really bad summer with a rash spreading all over my body, starting on my face. I’ve been...

Good morning everyone, I have scle and Sjogrens and have had a really bad summe...

Barbara17

•5 years ago

5 Replies

New Loopy type person first post

I tend to follow you folks with similar issues and learn from you guys and gals. There's so much to learn and try to understand. Here's a summary of my...

I tend to follow you folks with similar issues and learn from you guys and gals...

loopy4me

•5 years ago

1 Reply

Anyone have experience with ice pick headaches?

Hello friends! Over the last 2 days, I have had stabbing pains in the left side of my head. The pain is sudden and lasts only a second or two and makes me...

Hello friends! Over the last 2 days, I have had stabbing pains in the left side...

shareasmile

•5 years ago

2 Replies

Hair loss product.

Hi everyone......I've seen a few posts on hair loss and the distress it causes, and thought I'd start a new post, rather than reply on existing ones. Hopefully...

Hi everyone......I've seen a few posts on hair loss and the distress it causes, ...

TeeWotserface

•5 years ago

7 Replies

Thank you and here is a natural pain relief link.

Hi there dear friends it's Ce here. 🤗🤗🤗 I have a link to share with you, but first I wish to thank all of you an especially @storm for your beautiful...

Hi there dear friends it's Ce here. 🤗🤗🤗 I have a link to share with you, but ...

Keepstrong

•5 years ago

3 Replies

Weird bumps on my skin

Hi everyone, this is a bit bizarre, and please excuse the length of the post. Over the last few weeks I've noticed the odd red, itchy bump come up on parts of...

Hi everyone, this is a bit bizarre, and please excuse the length of the post. O...

TeeWotserface

•5 years ago

2 Replies

Negative ANA blood result twice... Is there a chance it could still be a auto immune disease?

Hello all! I have been having all sorts of symptoms and illnesses the past 18 months. Started with severe Erythema Nodosum, which lasted 3 months and was so so...

Hello all! I have been having all sorts of symptoms and illnesses the past 18 mo...

cdow

•5 years ago

16 Replies

Swollen sore ears after starting mycophenolate

Hello everyone I've recently finished cyclophosphamide intravenous treatment for my lupus nephritis, I am now on mycophenolate 4 tablets twice a day. I have...

Hello everyone I've recently finished cyclophosphamide intravenous treatment for...

Northernd

•5 years ago

3 Replies

Worried about seeing occupational health at work

Hi all, I am hoping you may be quell my fears. I have not had a confirmed diagnosis of lupus yet. My rheumatologist is airing on side of caution although he...

Hi all, I am hoping you may be quell my fears. I have not had a confirmed diag...

Sallmell

•5 years ago

8 Replies

Can u have a drink while taking peniquil?

If u have lupus

Flowersbush

•5 years ago

10 Replies

Hydroxychlorquine alternative

Hi all, has anyone had to come off Hydroxychlorquine and if so what alternative was offered? I’ve got Sjögren’s, Lupus and RA with lung disease and on...

Hi all, has anyone had to come off Hydroxychlorquine and if so what alternative ...

Barbs51

•5 years ago

4 Replies

Mysterious Rash

I be suddenly had a rash come up only on forearms , very itchy I’m not sure whether this photo can pick it up clearly, I’m on long term steriods5mg for...

I be suddenly had a rash come up only on forearms , very itchy I’m not sure whet...

Eternity6

•5 years ago

19 Replies

Something to make all Lupies smile.

When I was at my local Bannatynes Health club recently one of the ladies recommended a class which starts at 8am. When I told her I wasn’t good at getting up...

When I was at my local Bannatynes Health club recently one of the ladies recomme...

Spotty-ewe

•5 years ago

14 Replies

Sugar and Lupus plus update on my left eye

Hi, Has anyone else developed an issue with sugar? The last few times I have eaten cake I get the sudden urge to go to the loo and a couple of times have only...

Hi, Has anyone else developed an issue with sugar? The last few times I have ea...

pattypatchwork

•5 years ago

8 Replies

Hydroxychloroquin increase

Hi everyone, just a quick question. I have a new rheumatologist and he has increased my Hydroxychloroquin from 200mg a day to 200mg one day and 400 on...

Hi everyone, just a quick question. I have a new rheumatologist and he has incr...

Biddy47

•5 years ago

16 Replies

Hydroxichloroquin & Toxic Retinitis

Hi As most of you know that the Opthamologist at the Eye Infirmary told me that I have toxic Retinitis. I unexpectantly had to attend another visual fields...

Hi As most of you know that the Opthamologist at the Eye Infirmary told me that ...

Cal66

•5 years ago

10 Replies

Occupational Health

Hi, This afternoon I had an occupational health assessment. The Dr said he wants me to go on to reduced hours (30 hours a week) for at least six months and...

Hi, This afternoon I had an occupational health assessment. The Dr said he want...

Rosebud40

•5 years ago

1 Reply

Calling all dog owners 🐶

It's six years since I lost my beloved canine best friend Max ❤ and it's only now that I can imagine having a furry companion again. My question is do the...

It's six years since I lost my beloved canine best friend Max ❤ and it's only no...

Happy43

•5 years ago

39 Replies

Are you due to receive a biologic therapy in the next two weeks? Would you be happy to appear on TV?

Hi everyone, We've been contacted by a producer who is working on a Channel 4 programme for the documentary series, Dispatches. The programme is investigating...

Hi everyone, We've been contacted by a producer who is working on a Channel 4 pr...

Paul_Howard

Partner•5 years ago

4 Replies

Guidance needed!

Hi there, I was diagnosed in December last year with subacute cutainious Lupus Erythematosus, and Urticarial vasculitis. I was prescribed Hydroxychloroquin...

Hi there, I was diagnosed in December last year with subacute cutainious Lupus E...

Apple86

•5 years ago

2 Replies

Changing Hospitals

Has anyone gone through the process of changing the hospital they attend for rheumatology outpatient appointments? I saw my consultant today & found out that...

Has anyone gone through the process of changing the hospital they attend for rhe...

tweetyburd

•5 years ago

3 Replies

Go the extra mile! Or not?

Hi fellow Lupies, I’m in a bit of a dilemma as I really want to walk around Derwentwater (10 miles) next week with my friend over from Australia, and try to...

Hi fellow Lupies, I’m in a bit of a dilemma as I really want to walk around Derw...

Spotty-ewe

•5 years ago

21 Replies

Lupus and sciatica

I think I am in a flair as despite my steroid injection 3 weeks ago the pain I have felt the last few days and weakness has been unbearable at times. My legs...

I think I am in a flair as despite my steroid injection 3 weeks ago the pain I h...

Sallmell

•5 years ago

3 Replies

Anti ds dna and cardio lipid results

Hello, you have all been a big help previously and I was after, what will hopefully be, one final bit of help. Back story, positive ANA result and Ro52 and...

Hello, you have all been a big help previously and I was after, what will hopefu...

Ilovechips81

•5 years ago

1 Reply

I am 42 with sle and heart and lung diseases just looking for new friends

I am 42 I have sle lupus and heart and lung diseases I'm on a convocation of drugs. I'm looking for new friends to bond with for advice and support and to be a...

I am 42 I have sle lupus and heart and lung diseases I'm on a convocation of dru...

Enya2010

•5 years ago

24 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for September 2019

Advice please re excessive swelling and burned looking skin

Mysterious bumpy rash thing?

Am I ever going to get a full picture 🤦🏼‍♀️

Sunburns

Tips on how to cope with 12hr day!

Eureka moment?

New Loopy type person first post

Anyone have experience with ice pick headaches?

Hair loss product.

Thank you and here is a natural pain relief link.

Weird bumps on my skin

Negative ANA blood result twice... Is there a chance it could still be a auto immune disease?

Swollen sore ears after starting mycophenolate

Worried about seeing occupational health at work

Can u have a drink while taking peniquil?

Hydroxychlorquine alternative

Mysterious Rash

Something to make all Lupies smile.

Sugar and Lupus plus update on my left eye

Hydroxychloroquin increase

Hydroxichloroquin & Toxic Retinitis

Occupational Health

Calling all dog owners 🐶

Are you due to receive a biologic therapy in the next two weeks? Would you be happy to appear on TV?

Guidance needed!

Changing Hospitals

Go the extra mile! Or not?

Lupus and sciatica

Anti ds dna and cardio lipid results

I am 42 with sle and heart and lung diseases just looking for new friends

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