Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,734 members • 28,096 posts

All posts for August 2019

London Lupus Information Day - 5th October 2019

Hi everyone, On Saturday 5th October we will be hosting a free Lupus Information Day at Hilton London Tower Bridge, 5 More London Place, Tooley Street,...

Hi everyone, On Saturday 5th October we will be hosting a free Lupus Information...

Paul_Howard

Partner•5 years ago

33 Replies

I'm going to be on annual leave - 10/08/2019 to 01/09/2019

Hi everyone, I just wanted to post a quick message to let you know that after today I will be on annual leave, returning on 02/09/2019. I'm very lucky to be...

Hi everyone, I just wanted to post a quick message to let you know that after to...

Paul_Howard

Partner•5 years ago

25 Replies

Myocarditis, anyone?

It’s been a long time since I posted so many blessings to all of you ❤️❤️ It’s been a rough 6 months and now another diagnosis: Myocarditis. Not the clearing...

It’s been a long time since I posted so many blessings to all of you ❤️❤️ It’s ...

katidid

•5 years ago

5 Replies

Want to take advantage of all our features? Just log in!

Not in a good place health wise, but I’ve just managed a whole 30 days 🚭🚭🚭

At least I’m trying to help myself right????

Lisalou19

•5 years ago

28 Replies

food for mood

As I have been very unwell with my flare-ups these past few weeks, and I thank all of you for your supports, and inspirations. I found myself wondering in my...

As I have been very unwell with my flare-ups these past few weeks, and I thank a...

thestorm

•5 years ago

7 Replies

Lupus rash advice please

Hi everyone! Sorry it’s been a awhile but I have a question about a rash that’s developed on my body. I have SLE and suspected aps disease. I’m on...

Hi everyone! Sorry it’s been a awhile but I have a question about a rash that’...

kaw86

•5 years ago

5 Replies

Methotrexate alert jewellery

Hello all. I have just started taking Methotrexate. Does anyone wear a medical alert bracelet or necklace ? If so which brand/type ? Thank you

Hello all. I have just started taking Methotrexate. Does anyone wear a medical a...

pinkandfluffy

•5 years ago

12 Replies

Painful livedoid vasculitis

I’ve just been discharged from 5weeks in hospital with painful livedoid vasculitis in my feet and lower legs. I couldn’t walk. Took 2 weeks to relieve the...

I’ve just been discharged from 5weeks in hospital with painful livedoid vasculit...

Sunphoenix

•5 years ago

12 Replies

Cutting work to part time

I have sle which is troubling my kidneys liver joints. I am currently in a flare and just so tired. I work full time and it is now taking it's toll. I want...

I have sle which is troubling my kidneys liver joints. I am currently in a flar...

Donnygirl

•5 years ago

8 Replies

Methotrexate

Hi, this is the first time I've written a post, but have been following for a while. I'm on Hydroxychloroquine and yesterday started Methotrexate. My bottom...

Hi, this is the first time I've written a post, but have been following for a wh...

Pinky1go

•5 years ago

5 Replies

Question about vitamin D

Just a "curiosity question", really! I've read something about associations between low vitamin D levels and lupus and I don't quite understand whether low...

Just a "curiosity question", really! I've read something about associations betw...

November90

•5 years ago

5 Replies

Thinning and Brittle Hair

I have probable SLE due to joint pain and anti double stranded DNA. I take hydroxychloroquin. My hair has gone very thin, shorter and brittle has anyone else...

I have probable SLE due to joint pain and anti double stranded DNA. I take hydro...

Hhood

•5 years ago

14 Replies

Results ❤️ so far

Ace levels high Brain mri still inflamed but stable Nerve test negative so it’s just inflamed muscles Anyone have higher ace levels ? Xx

Ace levels high Brain mri still inflamed but stable Nerve test negative so it’...

Buckley123

•5 years ago

11 Replies

My youtube channel where I want to give people more details about having lupus and suffering from depression and anxiety

please check my YouTube channel click on the link below or copy and paste link in url thank you...

please check my YouTube channel click on the link below or copy and paste link i...

Tash1987

•5 years ago

3 Replies

IM depo medrone

Hooray, I’ve finally had my depo medrone injection today! The Rheumatologist is 50/50 as to whether it will help as I don’t have an official diagnosis....this...

Hooray, I’ve finally had my depo medrone injection today! The Rheumatologist is ...

SRiley

•5 years ago

20 Replies

Lupus

Hi I was diagnosed with Lupus in February, in the hole it's not been too bad, however I have had a swelling on my neck for about 6 months, waiting for CT...

Hi I was diagnosed with Lupus in February, in the hole it's not been too bad, ho...

Bear15

•5 years ago

Be the first to reply

Theory

I have a theory about autoimmune disease. It began to show up with vague symptoms mostly in women in the ‘70’s. Of course problems and patients have increased....

I have a theory about autoimmune disease. It began to show up with vague symptom...

NeuronerdDoaty

•5 years ago

65 Replies

Lupus and Wellbeing

I was officially diagnosed with Lupus in July 2019. It has been difficult to adjust to my new body. I am uncomfortable with the amount of medication I am...

I was officially diagnosed with Lupus in July 2019. It has been difficult to adj...

SLE-Warrior

•5 years ago

7 Replies

Anyone doing Euro Lupus protocol? (Low dose cyclophosphamide)

Hello to everyone out there! I’m new to the group - seeking advice from those who have undergone the Euro Lupus Protocol? This is cytoxan (cyclophosphamide)...

Hello to everyone out there! I’m new to the group - seeking advice from those w...

Tired-in-Toronto

•5 years ago

4 Replies

A question regarding dsDNA

Hi all, I have been diagnosed with SLE Jan last year and found lupusuk a few months later. The site and magazines have provided nearly all my knowledge so I am...

Hi all, I have been diagnosed with SLE Jan last year and found lupusuk a few mon...

Apple_pie

•5 years ago

2 Replies

Don’t know why I asked to see it

Look at this anyone else have these results ?? This was 9months a go now anyone else had changes that have got worse I know I’m a health anxiety idiot but I...

Look at this anyone else have these results ?? This was 9months a go now anyone...

Buckley123

•5 years ago

27 Replies

Sunflower Lanyards

Hi everyone, I hope you are all as well as can be expected. I especially hope that those that are housebound due to the sun like me are ok and not going too...

Hi everyone, I hope you are all as well as can be expected. I especially hope th...

happytulip

•5 years ago

10 Replies

Disabled badge

I am looking into applying for a disabled badge. I have only just turned 20 and I have systemic Lupus. I was diagnosed in 2014. I was wondering does that make...

I am looking into applying for a disabled badge. I have only just turned 20 and ...

Ash2394

•5 years ago

47 Replies

Lupus don't understand this disease

Hi been diagnosed with lupus and don't understand what they call flare's do you have to have a rash to go with the flare .Got trouble with bad tummy pains very...

Hi been diagnosed with lupus and don't understand what they call flare's do you ...

Cjgj

•5 years ago

12 Replies

So tied

Hi team Only me So bloody tired 💤 For no reason keep trying to push though it but getting dressed today was a achievement. Anyone ever feel like wading...

Hi team Only me So bloody tired 💤 For no reason keep trying to push though ...

Buckley123

•5 years ago

10 Replies

Olive leaf extract

Hi everyone. Someone said they are using olive leaf extract and have since been much better with regards to arthritis inflammation and stomach problems. Has...

Hi everyone. Someone said they are using olive leaf extract and have since been ...

Pipido36

•5 years ago

6 Replies

Lupus and fibrosis advice

Hi just recently been diagnosed with Lupus SLE and left lung fibrosis due to late diagnosis (although they seem to think they've caught it early?) I'm about a...

Hi just recently been diagnosed with Lupus SLE and left lung fibrosis due to lat...

Hidden

•5 years ago

6 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for August 2019

London Lupus Information Day - 5th October 2019

I'm going to be on annual leave - 10/08/2019 to 01/09/2019

Myocarditis, anyone?

Not in a good place health wise, but I’ve just managed a whole 30 days 🚭🚭🚭

food for mood

Lupus rash advice please

Methotrexate alert jewellery

Painful livedoid vasculitis

Cutting work to part time

Methotrexate

Question about vitamin D

Thinning and Brittle Hair

Results ❤️ so far

My youtube channel where I want to give people more details about having lupus and suffering from depression and anxiety

IM depo medrone

Lupus

Theory

Lupus and Wellbeing

Anyone doing Euro Lupus protocol? (Low dose cyclophosphamide)

A question regarding dsDNA

Don’t know why I asked to see it

Sunflower Lanyards

Disabled badge

Lupus don't understand this disease

So tied

Olive leaf extract

Lupus and fibrosis advice

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