Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,744 members • 28,102 posts

All posts for August 2019

Let’s talk headaches

I have the worst pain going from my neck behind my ear to my head like a shooting electric shocking pain into my head making my eyes slightly blurry and hot...

I have the worst pain going from my neck behind my ear to my head like a shootin...

Buckley123

•5 years ago

47 Replies

I was prescribed this on Wednesday by dermatologist to treat hair loss. What treatments have worked for you?

I have lost well over 50% of my hair now ☹️ Unfortunately I had to wash my hair before Wednesday’s appointment as my scalp becomes so dry . I have noticed if...

I have lost well over 50% of my hair now ☹️ Unfortunately I had to wash my hair ...

Lisalou19

•5 years ago

7 Replies

Need help

Anyone else having problems posting with a picture ?

Buckley123

•5 years ago

2 Replies

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Very confused about ANA test?

Hi there! I have Hashimoto’s + hypothyroidism. I had a full ANA panel done. My ANA screen was positive. Anti-Chromatin antibodies were positive and...

Hi there! I have Hashimoto’s + hypothyroidism. I had a full ANA panel done. My A...

Sieramelon

•5 years ago

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Terrified!

My rheumatologist has recently told me that my blood test has come back as positive for Lupus but that it is currently dormant. I have started taking...

My rheumatologist has recently told me that my blood test has come back as posit...

DaftCat

•5 years ago

16 Replies

Confused and Upset

Hi, I have just been diagnosed with Lupus and am slowly getting my head around it. Mine was "stumbled across" whilst being investigated as to why i have had a...

Hi, I have just been diagnosed with Lupus and am slowly getting my head around i...

pattypatchwork

•5 years ago

29 Replies

Steroid injection and face flush (wolf face🙄)

I had a shoulder steroid injection on Wednesday and later that day noticed a lupus flush/not quite ‘rash’ across my face and nose. The wolf look. Still there...

I had a shoulder steroid injection on Wednesday and later that day noticed a lup...

SH55

•5 years ago

7 Replies

PoTs ?

It looks like Pooh Bear (the wife) has PoTs in addition to the SLE diagnosed a few years ago now. Does anyone have experience of this please - how to get the...

It looks like Pooh Bear (the wife) has PoTs in addition to the SLE diagnosed a f...

jimbo1605

•5 years ago

12 Replies

Exercising with Lupus Disease

Currently, I am doing swimming lessons every Sunday which I really enjoy. I feel like I need to do more. I am not comfortable with my body and the steroids I...

Currently, I am doing swimming lessons every Sunday which I really enjoy. I feel...

SLE-Warrior

•5 years ago

15 Replies

West London support groups

Hi everyone I’ve been recently diagnosed and still coming to terms with everything that’s going on. It’s been an emotional rollercoaster and it would be great...

Hi everyone I’ve been recently diagnosed and still coming to terms with everyth...

HappySummer

•5 years ago

5 Replies

Advise on possible autoimmune conditions please :)

Hello, I have been back and forth to my doctors since the end of last year with various symptoms. But I am having a real issue in getting any form of...

Hello, I have been back and forth to my doctors since the end of last year with ...

louisaj15

•5 years ago

11 Replies

Anyone Know what this means ?

Just got the blood results back from the hospital ! ANA remains positive at 1 in 400 Ro52 positivity Double standard DNA is negative. So dose anyone know what...

Just got the blood results back from the hospital ! ANA remains positive at 1 in...

Mozart12

•5 years ago

1 Reply

The saga continues 😐. New scales on backs of hands

Photos never do us much justice But I have these new patches on backs of hands that developed during a flare last week. Starts as a small round patch of skin...

Photos never do us much justice But I have these new patches on backs of hands ...

Lisalou19

•5 years ago

12 Replies

Blood transfusion

I was diagnosed 2012 have had much other until last few month I had 2 blood transfusions has any one else had this prob

I was diagnosed 2012 have had much other until last few month I had 2 blood tran...

debby197

•5 years ago

2 Replies

Blood results

Hi do I need to be worried because ive never had a raised DNA titre before I just don't understand what it means 😔

Hi do I need to be worried because ive never had a raised DNA titre before I jus...

Jakki27

•5 years ago

4 Replies

Hydroxy chloroquine availabilty

Hi everyone Just wondering how your getting on with hydroxy chloroquine availability in your area?. I've just been told by my local Boots that the...

Hi everyone Just wondering how your getting on with hydroxy chloroquine availabi...

misty14

•5 years ago

61 Replies

My Iritis flared on Humira and MTX

Hurts like the dickens. I am using drops too. Wondering if it is because I stopped taking prednisone a week agao? Seems weird that with all the meds I am on,...

Hurts like the dickens. I am using drops too. Wondering if it is because I stop...

OneLove2019

•5 years ago

4 Replies

LUPUS AWARENESS MONTH CAMPAIGN

We are looking for individuals who would be happy to share a picture and a few facts about themselves as part of our Lupus Awareness Month fact file campaign...

We are looking for individuals who would be happy to share a picture and a few f...

Chanpreet_Walia

LUPUS UK•5 years ago

3 Replies

Rash under breast - shingles??

Hi all So thought I'd ask opinions before reaching out to GP as fed up of feeling like a hypochondriac I dont suffer with migraines however on Sunday I took...

Hi all So thought I'd ask opinions before reaching out to GP as fed up of feelin...

MOOG144

•5 years ago

17 Replies

Complications on healing a bone injury, has this happened to anyone?!

Hi everyone, I was diagnosed with a periostitis a month ago. I was running and suddenly felt as if my muscle had stretched to the point of breakage. I kept on...

Hi everyone, I was diagnosed with a periostitis a month ago. I was running and ...

MerB90

•5 years ago

5 Replies

Coming off hydroxychloroquine-- symptoms returning?

After having been in remission for about a year, my rheumy suggested I reduce my dosage of hydroxychloroquine from 200 twice/day to 200 once/day. About 3-4...

After having been in remission for about a year, my rheumy suggested I reduce my...

Jaybz

•5 years ago

10 Replies

Does a Malar Rash, muscle pain & tiredness make Lupus???

Hi, I have a rash - a VERY itchy, painful, raw, stinging, burning rash. I've got it above my right eye (inner side) under it and - without any visible signs -...

Hi, I have a rash - a VERY itchy, painful, raw, stinging, burning rash. I've got...

Chancery

•5 years ago

13 Replies

LUPUS GET TOGETHER!

Tuesday, 3rd September at Crossgates Community Centre LD1 6RE from 10.30 am to 12.30 pm.

Tuesday, 3rd September at Crossgates Community Centre LD1 6RE from 10.30 am to 1...

Chanpreet_Walia

LUPUS UK•5 years ago

1 Reply

Lupus symptoms??

I have been experiencing heat sweats. I have noticed that I am always hot. I live in London and recently the temperature has been much cooler. I need to have...

I have been experiencing heat sweats. I have noticed that I am always hot. I liv...

SLE-Warrior

•5 years ago

10 Replies

Sore

Hi everyone how are you all ?? I can’t get over how sore I have become really weird in the last few weeks Mainly last two days Feet ankles toes legs knees...

Hi everyone how are you all ?? I can’t get over how sore I have become really ...

Buckley123

•5 years ago

5 Replies

Struggling

Last night was probably one of the worst nights I have had. My body hurt so much, i felt like my legs didn't belong to me, I was hot I was cold...this morning...

Last night was probably one of the worst nights I have had. My body hurt so much...

Sallmell

•5 years ago

5 Replies

Neurologist appointment 2nd September, but not sure what I’m meant to be saying. Been far too bogged down with rheumatologists 😐

I’ve had mri of brain and spine so MS is ruled out. But I’m not sure what of these following symptoms are for this department 🤔 Burning sensation in feet...

I’ve had mri of brain and spine so MS is ruled out. But I’m not sure what of t...

Lisalou19

•5 years ago

70 Replies

Very Upset and Confused

Hello everyone As many of you already know I have been formally diagnosed with Undifferentiated Connective Tissue Disease which is Lupus like. I have most of...

Hello everyone As many of you already know I have been formally diagnosed with...

Crazy_Cat_Woman

•5 years ago

26 Replies

Hospital change

Well yesterday I cancelled all appointments with my hospital the stress they are causing have caused is pathetic, I have now requested to be referred to...

Well yesterday I cancelled all appointments with my hospital the stress they are...

Jill41

•5 years ago

6 Replies

Soon to be mum with Lupus and Sjrogens

Hi all, I am just looking for a bit of advice regarding my birth plan. Sorry if TMI but I don’t know what to do. My consultant has said that he will give me a...

Hi all, I am just looking for a bit of advice regarding my birth plan. Sorry if ...

JennaeClifford

•5 years ago

5 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for August 2019

Let’s talk headaches

I was prescribed this on Wednesday by dermatologist to treat hair loss. What treatments have worked for you?

Need help

Very confused about ANA test?

Terrified!

Confused and Upset

Steroid injection and face flush (wolf face🙄)

PoTs ?

Exercising with Lupus Disease

West London support groups

Advise on possible autoimmune conditions please :)

Anyone Know what this means ?

The saga continues 😐. New scales on backs of hands

Blood transfusion

Blood results

Hydroxy chloroquine availabilty

My Iritis flared on Humira and MTX

LUPUS AWARENESS MONTH CAMPAIGN

Rash under breast - shingles??

Complications on healing a bone injury, has this happened to anyone?!

Coming off hydroxychloroquine-- symptoms returning?

Does a Malar Rash, muscle pain & tiredness make Lupus???

LUPUS GET TOGETHER!

Lupus symptoms??

Sore

Struggling

Neurologist appointment 2nd September, but not sure what I’m meant to be saying. Been far too bogged down with rheumatologists 😐

Very Upset and Confused

Hospital change

Soon to be mum with Lupus and Sjrogens

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