Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,734 members • 28,095 posts

All posts for August 2019

Rash/mark

Morn fellow lupies Where do I start! Skin issues. Got a strange rash/mark on my leg. S shape with a translucent circle in the middle which you can’t see...

Morn fellow lupies Where do I start! Skin issues. Got a strange rash/mark on...

Hollydebs

•5 years ago

2 Replies

Surgery if in a flare

Hi All, flare feels imminent but having surgery on Wednesday. Will they still do the surgery mid flare?

Hi All, flare feels imminent but having surgery on Wednesday. Will they still d...

Poppypig

•5 years ago

6 Replies

Second Toe Pain Update

Hi everyone Just thought I'd update you on my second toe pain. I've .had my new insoles and they make walking more uncomfortable so I've gone back to old ones...

Hi everyone Just thought I'd update you on my second toe pain. I've .had my new...

misty14

•5 years ago

54 Replies

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Anyone else with UCTD or Lupus have tooth loss?

I’ve been being tested for Lupus for over a year and still going. They have diagnosed UCTD but are still looking into lupus. Besides everything else, hair...

I’ve been being tested for Lupus for over a year and still going. They have diag...

Hidden

•5 years ago

12 Replies

STOPPING PREDNISOLONE FOR SHORT SYNACTHEN TEST

. I have been on various steroid doses ( prednisolone) for 10 years or so. I have been on 5mg for the past couple of years. I had a random cortisol test which...

. I have been on various steroid doses ( prednisolone) for 10 years or so. I hav...

dlp5

•5 years ago

7 Replies

Is this it now then

Hi guys only me 👍😌 Just wondering what other people’s journeys have been like .. I’m stable brain wise according to my mri which is obviously great But I...

Hi guys only me 👍😌 Just wondering what other people’s journeys have been like...

Buckley123

•5 years ago

41 Replies

New strange symptom

Hi Everyone, Hope you are all well, I’ve been experiencing some strange sensation when I’ve been drinking cold drinks and it’s really hard to explain but here...

Hi Everyone, Hope you are all well, I’ve been experiencing some strange sensati...

Leenie0811

•5 years ago

2 Replies

Disability Appointment: Personal Independence Payment.

I have my Personal Independence Payment appointment next week Thursday. I received a booklet of what to expect during the appointment. I want to apply for...

I have my Personal Independence Payment appointment next week Thursday. I receiv...

SLE-Warrior

•5 years ago

3 Replies

Mixed connected tissue disease

Question has anybody have multiple illnesses with a mixed connective tissue disease do you have everything that has to do with mix mixed connective tissue...

Question has anybody have multiple illnesses with a mixed connective tissue dise...

Amyd43

•5 years ago

15 Replies

Noise sensitivity and fatigue - advice please?

Hi everyone.......first of all I'm new here. I'm just looking for a bit of advice. Two things are particularly causing me some anxiety and distress at the...

Hi everyone.......first of all I'm new here. I'm just looking for a bit of advi...

TeeWotserface

•5 years ago

13 Replies

Please remember your cervical screening ladies 😘 it takes less than 5 minutes x

I think it’s important to remember our other bodily parts that may not be causing us problems and can easily be forgotten what with all the other stuff causing...

I think it’s important to remember our other bodily parts that may not be causin...

Lisalou19

•5 years ago

4 Replies

Ana

haylesmith18

•5 years ago

3 Replies

Ana

Do anyone know what i have

haylesmith18

•5 years ago

Be the first to reply

Positive ANA, antiRO52 and AntiRO60 - any advice appreciated

Hi, I wrote a while ago as I had been told I had positive ANA but had to wait to see the Gp. I’ve seen him today and got the following results ANA positive...

Hi, I wrote a while ago as I had been told I had positive ANA but had to wait to...

Ilovechips81

•5 years ago

19 Replies

Osteoporosis

Hi, Am in a Lupus flare at the moment so not too bright. Just found out from my dexa scan that I have osteoporisis. GP wants me to start alendronic acid. I...

Hi, Am in a Lupus flare at the moment so not too bright. Just found out from m...

babssara

•5 years ago

21 Replies

Holiday and happy times !

Hi all, So yesterday I came back from holiday. I had the best week away in Clacton with my mum and 2 year old cousin. I did all the driving 2 hours each way....

Hi all, So yesterday I came back from holiday. I had the best week away in Clac...

LouLamb

•5 years ago

11 Replies

Hungry horse

Hi a bit of a stupid question, but does anyone have times when they are always hungry? I have never been a big one for food, but I want to eat all the time,...

Hi a bit of a stupid question, but does anyone have times when they are always h...

Bear15

•5 years ago

6 Replies

Feeling very lost and alone.

Hi, Diagnosed Lupus Jan 2018. Positive ANA, dsDNA, Rheumatoid Factor, Ro52, Mi2b, anti cardiolipin numerous tests over the past 20 months) I was given an...

Hi, Diagnosed Lupus Jan 2018. Positive ANA, dsDNA, Rheumatoid Factor, Ro52, Mi...

eescvc

•5 years ago

3 Replies

Dr George Robinson research SLE

Hi I attended Dr George Robinson diet as therapeutic based on research at UCL for SLE patient at St George's few weeks ago. It was very promising to hear blood...

Hi I attended Dr George Robinson diet as therapeutic based on research at UCL fo...

pookavi

•5 years ago

4 Replies

Hydroxychloroquine

I take Hydroxychloroquine 200 one a day in the morning, I have been suffering from on going nausea and my GP thinks Hydroxychloroquine is the culprit, even...

I take Hydroxychloroquine 200 one a day in the morning, I have been suffering fr...

Biddy47

•5 years ago

22 Replies

Has anyone experienced osteonecrosis of the hip?

Hello, friends! Due to several rounds of prednisone over the last 8 years and numerous injections in joints including the hip, I believe I have developed...

Hello, friends! Due to several rounds of prednisone over the last 8 years and n...

shareasmile

•5 years ago

1 Reply

Pip assessment

Hi everyone, you may remember a couple of months ago i was feeling anxious & stressed that I was to move from Dla & was to attend my 1st Pip appointment. I am...

Hi everyone, you may remember a couple of months ago i was feeling anxious & st...

Cal66

•5 years ago

10 Replies

What does remission mean in terms of Lupus?

My consultant has mentioned she wants my Lupus to go into remission. However, I am not sure what that means. How would I know my Lupus has gone into......

My consultant has mentioned she wants my Lupus to go into remission. However, I ...

SLE-Warrior

•5 years ago

5 Replies

Stress and Lupus Flare

Hi everyone, I’m new to the community although I was diagnosed with Lupus 6 years ago following a head to toe rash as a reaction to Terbinafine. However it...

Hi everyone, I’m new to the community although I was diagnosed with Lupus 6 year...

Spotty-ewe

•5 years ago

16 Replies

Hugs

Anyone experienced the only way I can describe as " hugs" Such a strange feeling feels like I am being squeezed stops me in my tracks if I get them they carry...

Anyone experienced the only way I can describe as " hugs" Such a strange feelin...

lilly60

•5 years ago

9 Replies

Swollen salivary gland

I got Rheumatoid arthritis and SLE and taking hydroxychloroquine and azathioprine. The last couple of weeks I’ve notice that I got a lump near my ear and jaw...

I got Rheumatoid arthritis and SLE and taking hydroxychloroquine and azathioprin...

Sezvic

•5 years ago

6 Replies

Painful sore feeling feet at night advice

Hi. I've had Lupus 14 yrs, secondary vasculitis 10 yrs, and now borderline type 2 diabetes. I'm currently struggling with burning sore feeling feet at night,...

Hi. I've had Lupus 14 yrs, secondary vasculitis 10 yrs, and now borderline type...

Toldyouifeltill

•5 years ago

10 Replies

Not feeling so alone

I would like to thank all of you who have replied to my 1st post, you have all helped me not feel so alone...i had gotten so down that i even asked my...

I would like to thank all of you who have replied to my 1st post, you have all h...

pattypatchwork

•5 years ago

7 Replies

Thin membrane kidney disease

Hi, I received my kidneys biopsy results and the doctor said I have thin membrane disease. No sign of inflammation. I am wondering though if it's still...

Hi, I received my kidneys biopsy results and the doctor said I have thin membran...

Tulipano

•5 years ago

1 Reply

Scalp Issues & Hair Loss

Hi Lisalou19, Firstly, I hope your newly prescribed shampoo gives you some relief from the continous itch & heat and worse of all hair loss. As a female you...

Hi Lisalou19, Firstly, I hope your newly prescribed shampoo gives you some relie...

hopegalore20

•5 years ago

8 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for August 2019

Rash/mark

Surgery if in a flare

Second Toe Pain Update

Anyone else with UCTD or Lupus have tooth loss?

STOPPING PREDNISOLONE FOR SHORT SYNACTHEN TEST

Is this it now then

New strange symptom

Disability Appointment: Personal Independence Payment.

Mixed connected tissue disease

Noise sensitivity and fatigue - advice please?

Please remember your cervical screening ladies 😘 it takes less than 5 minutes x

Ana

Ana

Positive ANA, antiRO52 and AntiRO60 - any advice appreciated

Osteoporosis

Holiday and happy times !

Hungry horse

Feeling very lost and alone.

Dr George Robinson research SLE

Hydroxychloroquine

Has anyone experienced osteonecrosis of the hip?

Pip assessment

What does remission mean in terms of Lupus?

Stress and Lupus Flare

Hugs

Swollen salivary gland

Painful sore feeling feet at night advice

Not feeling so alone

Thin membrane kidney disease

Scalp Issues & Hair Loss

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