Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,837 members • 28,177 posts

All posts for June 2019

Costocondrotis and in a lot of pain

This started three days ago. It is so sharp I can’t breath. It is in my right rear flank area and radiates to the front. Seems like everything I have read most...

This started three days ago. It is so sharp I can’t breath. It is in my right re...

Lupigirl

•5 years ago

13 Replies

New Rheumatologist tomorrow

Will be seeing a Rheumatologist tomorrow and driving about 3 hours one way. Nervous and excited and hopeful that she wont blow me off. I honestly just want to...

Will be seeing a Rheumatologist tomorrow and driving about 3 hours one way. Nerv...

JennaShi

•5 years ago

2 Replies

CBD/ medical marijuana??

Hi everyone. I am in the UK and I have lupus, fibromyalgia, Raynaud, myositis IBS and the list goes on. I don't know very much about CBD or medical marijuana...

Hi everyone. I am in the UK and I have lupus, fibromyalgia, Raynaud, myositis IB...

Karm

•5 years ago

14 Replies

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Lupus nephritis

Hello everyone, I've just been diagnosed with Lupus nephritis on to of my sle.....has anyone undergone treatment for this as I've been offered the choice of...

Hello everyone, I've just been diagnosed with Lupus nephritis on to of my sle......

Northernd

•5 years ago

58 Replies

Confused!

Hi All, new to this platform. Goid to see so much support. I have been under investigation for 4 years, first for MS now lupus. Positive ANA , facial rash,...

Hi All, new to this platform. Goid to see so much support. I have been under in...

Sallmell

•5 years ago

24 Replies

Uctd Brain/neurological involvement new meds making me sick !!

Any one else have uctd and brain lesions or neurological involvement ? I’m in bed today meant to be at the gym.. New hydro the make is different Called...

Any one else have uctd and brain lesions or neurological involvement ? I’m in b...

Buckley123

•5 years ago

9 Replies

This disease...

Has anyone else had a temporary remission from symptoms? I've had 7 days feeling well and like the old me, only for it all to come back with a vengeance 😫....

Has anyone else had a temporary remission from symptoms? I've had 7 days feeling...

Happy43

•5 years ago

16 Replies

Sore/sensitive mouth

Hi, Does anyone get a sore mouth? As my skin on face is sore and swollen my lips are cut and sore however my mouth is also extra sensitive and sore. The edges...

Hi, Does anyone get a sore mouth? As my skin on face is sore and swollen my lips...

Woods01

•5 years ago

4 Replies

Had a few rough days and going to work tomorrow. This is a coping mechanism of mine, wear bright pink. Reminds me it’s just a bad day

I don’t think I’ve actually ever posted a photo of my whole face 🙈 Excuse the 10 chins 😂. Thought I would share as this really does work for me. Kind of...

I don’t think I’ve actually ever posted a photo of my whole face 🙈 Excuse the 1...

Lisalou19

•5 years ago

36 Replies

lupus erythematosus panniculitis ???

lupus erythematosus panniculitis has anyone else suffered with this? I’m going to be having a biopsy to confirm as I have two masses in my cheeks which cause...

lupus erythematosus panniculitis has anyone else suffered with this? I’m going t...

Angie245

•5 years ago

3 Replies

Volunteers needed for upcoming LUPUS UK online survey

***Thank you so much to those who volunteered to review the survey for us. We believe we now have enough helpers. Please look out for the online survey...

***Thank you so much to those who volunteered to review the survey for us. We be...

Paul_Howard

Partner•5 years ago

10 Replies

New to site.....Advice needed please

Hi Everyone, I am a newbie to this site even though i was diagnosed with SLE and Antiphoslipid syndrome back in 2002 after having 18 miscarriages and then a...

Hi Everyone, I am a newbie to this site even though i was diagnosed with SLE and...

Lairyone

•5 years ago

1 Reply

Any experience with these doctors?

Hey all - me again! So I've established I can get a second opinion here from one of 2 doctor's. They're the only options I will be given. My choices are Dr Zoe...

Hey all - me again! So I've established I can get a second opinion here from one...

Bubble89

•5 years ago

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Goose bumps????

My SLE has been a monster to me lately, but I seem to have yet another newer symptom. After I eat a meal not a snack, I get cold, I mean even when it is 80+...

My SLE has been a monster to me lately, but I seem to have yet another newer sym...

thestorm

•5 years ago

14 Replies

Painful vein after iv

Last month I had an infection and stayed in hospital for 5 days with iv fluid and antibiotics. Since then my vein is still sore. Looks swollen to me too....

Last month I had an infection and stayed in hospital for 5 days with iv fluid an...

Tulipano

•5 years ago

5 Replies

Red burning rash

Good morning everyone, my elbow started burning the other day and every since it’s been really bad I can’t have anything touching it or anything and burns when...

Good morning everyone, my elbow started burning the other day and every since it...

Elishaannxx

•5 years ago

6 Replies

AIP Diet (Autoimmune Protocol)

I have been reading about the above diet and I have decided to give it a try. For those who haven't heard of it, as the name suggests it is a diet for anyone...

I have been reading about the above diet and I have decided to give it a try. Fo...

junemc

•5 years ago

10 Replies

Discoid Lupus

Hi all As the scarring caused by discoid lupus progresses friends of my sons (aged 4 and 6) are now asking questions about what’s wrong with my face which is...

Hi all As the scarring caused by discoid lupus progresses friends of my sons (...

Biri

•5 years ago

8 Replies

Could I have lupus

I have been struggling for a while. Severe memory cognitive problems neck pain and fatigue that seems to hit and disappear. I have been feeling as if I'm...

I have been struggling for a while. Severe memory cognitive problems neck pain a...

Paterson05

•5 years ago

5 Replies

Possible rash butterfly 🦋 or not

Not a very goo pic of me 😂 My cheeks become red and flushed as I start to feel ill this is how I know a headache is coming I also get neck pain and joint pain...

Not a very goo pic of me 😂 My cheeks become red and flushed as I start to feel ...

Buckley123

•5 years ago

14 Replies

Lupus and menopausal symptoms

I’m 50 still having menstrual cycles but not as regular , I’m guessing im premenopausal, does lupus get worst ? Bc in the past year my raynauds, arthritic...

I’m 50 still having menstrual cycles but not as regular , I’m guessing im premen...

Melaxx

•5 years ago

7 Replies

Trigeminal neuralgia

Good evening all, I'm just wondering if anyone has ever suffered Trigeminal Neuralgia? I've had a flare up of it for about a week, it did subside, but came...

Good evening all, I'm just wondering if anyone has ever suffered Trigeminal Neur...

Angellealea1

•5 years ago

6 Replies

I am puzzled - immunosuppressants or not?

I was diagnosed with SLE 6 months ago by rheumatologist and prescribed hydroxychloroquine. I saw the rheumy nurse a couple of weeks ago and she said the...

I was diagnosed with SLE 6 months ago by rheumatologist and prescribed hydroxych...

bleeny

•5 years ago

9 Replies

Invisible illness

I have SLE and fibromyalgia. This week I explained to my line manager that I was experiencing a flare. He has suggested making me a badge with a picture of a...

I have SLE and fibromyalgia. This week I explained to my line manager that I was...

Tdajp

•5 years ago

21 Replies

Losing Weight

Hello, I hope you are all well this Sunday morning. I’m hoping someone may be able to advise me on weight loss, I suffer from PCOS & Lupus SLE, I have...

Hello, I hope you are all well this Sunday morning. I’m hoping someone may be a...

Ashleigh12992

•5 years ago

15 Replies

Horrendous lower right abdomen pain

Morning all, I’ve been suffering with lower right quadrant pain going on three weeks now, I had an ovarian cyst last year and the pain is very similar to that...

Morning all, I’ve been suffering with lower right quadrant pain going on three w...

Selwin2000

•5 years ago

3 Replies

Stomach pains

I have lupus and i'm ment to be going away on Wednesday but suffering with really bad stomach pains that r really painful. Does anyone else have these sort of...

I have lupus and i'm ment to be going away on Wednesday but suffering with reall...

Sarahjane27

•5 years ago

1 Reply

Symptoms and misdiagnosis

Hi everyone, This is going to be a bit of a long one but wondered if anyone else has had similar a similar experience and if my symptoms 'fit' because I feel...

Hi everyone, This is going to be a bit of a long one but wondered if anyone els...

cbear28

•5 years ago

29 Replies

Possible lupus, autoimmune condition or a series of unrelated symptoms?!

Hi all, I know that no one here can diagnose but would be grateful for any thoughts. I’m due to see my gp again Monday and am aware they probably think I’m a...

Hi all, I know that no one here can diagnose but would be grateful for any thoug...

Becky1984star

•5 years ago

22 Replies

Dryness

What type of lotion do you find works best for dry skin? For my scalp I only shampoo twice weekly and use a castor oil shampoo. No blow drying. (I’m 55 so I’m...

What type of lotion do you find works best for dry skin? For my scalp I only sha...

NeuronerdDoaty

•5 years ago

5 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for June 2019

Costocondrotis and in a lot of pain

New Rheumatologist tomorrow

CBD/ medical marijuana??

Lupus nephritis

Confused!

Uctd Brain/neurological involvement new meds making me sick !!

This disease...

Sore/sensitive mouth

Had a few rough days and going to work tomorrow. This is a coping mechanism of mine, wear bright pink. Reminds me it’s just a bad day

lupus erythematosus panniculitis ???

Volunteers needed for upcoming LUPUS UK online survey

New to site.....Advice needed please

Any experience with these doctors?

Goose bumps????

Painful vein after iv

Red burning rash

AIP Diet (Autoimmune Protocol)

Discoid Lupus

Could I have lupus

Possible rash butterfly 🦋 or not

Lupus and menopausal symptoms

Trigeminal neuralgia

I am puzzled - immunosuppressants or not?

Invisible illness

Losing Weight

Horrendous lower right abdomen pain

Stomach pains

Symptoms and misdiagnosis

Possible lupus, autoimmune condition or a series of unrelated symptoms?!

Dryness

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