Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,688 members • 28,071 posts

All posts for June 2019

Lupus or MS

My symptoms lately are all the classic MS ones , never experienced before , especially the muscles weakness, burning feeling , spasms , I had a lumbar...

My symptoms lately are all the classic MS ones , never experienced before , esp...

Melaxx

•5 years ago

28 Replies

Prednisone help

Does anyone find that with lupus, and many other conditions, that they cannot take or tolerate Prednisone? I would like to hear from you, and as to why...

Does anyone find that with lupus, and many other conditions, that they cannot ta...

thestorm

•5 years ago

34 Replies

Never Ending Back Pain

Hello Everyone, As many of you already know I have been diagnosed with UCTD. My Rheumy says to my face that it is Lupus but for some reason (that I can’t get...

Hello Everyone, As many of you already know I have been diagnosed with UCTD. My...

Crazy_Cat_Woman

•5 years ago

13 Replies

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Sunny Days

Evening everyone, How has everybody coped in the really hot weather we’ve had these past couple of days? I’ve managed to get out and about but after a couple...

Evening everyone, How has everybody coped in the really hot weather we’ve had t...

Leenie0811

•5 years ago

47 Replies

First recognisable flare

Hi all, I was diagnosed with lupus last month with symptoms of joint pain, continuous mouth ulcers, an arm rash that wouldn’t go away and obviously all the...

Hi all, I was diagnosed with lupus last month with symptoms of joint pain, conti...

DaniMichelle

•5 years ago

13 Replies

Sunscreen advice please

Hi, I’ve been diagnosed with Jessners for some time now, but am suspecting it may be lupus. Has anyone got any advice on the make of sunscreen you find...

Hi, I’ve been diagnosed with Jessners for some time now, but am suspecting it ma...

Mabel1234

•5 years ago

10 Replies

Fear of starting Benlysta

I should be starting Benlysta soon, but started stressing out about a risk on brain infection especially since I was exposed to the JK virus before that...

I should be starting Benlysta soon, but started stressing out about a risk on br...

miccika1

•5 years ago

12 Replies

UK Medicines Recall - Clexane (B & S Healthcare)

Hi everyone, A number of medications labelled with 'B & S Healthcare' are being recalled in the UK. The blood-thinner Clexane is included on the list....

Hi everyone, A number of medications labelled with 'B & S Healthcare' are being ...

Paul_Howard

Partner•5 years ago

2 Replies

Dr ******

Any one had experience with Dr ****** part of doctor d’Cruz team ? Thanks xx

Buckley123

•5 years ago

7 Replies

Pain

Morning everyone I'm new to this group & i have SLE. My knees are driving me mad with pain in this changeable weather, anybody else suffer like this?

Morning everyone I'm new to this group & i have SLE. My knees are driving me mad...

Patsy01

•5 years ago

9 Replies

Can't smell anything

Morning everyone, I lost my sense of smell during a cold. A few weeks later it came back. A second cold had the same happen again. At the third cold it never...

Morning everyone, I lost my sense of smell during a cold. A few weeks later it c...

Ladylupus

•5 years ago

6 Replies

Sunshine

They say lupus sufferers don't act too kindly when the sun is out and certainly as hot as it is the now. I used to hate the sunshine, wouldn't even sit out in...

They say lupus sufferers don't act too kindly when the sun is out and certainly ...

Hidden

•5 years ago

10 Replies

Hair loss

Hi what is the best thing for hairlossor thinning hair

Daisy50

•5 years ago

14 Replies

Opthamology fob off

Any advice appreciated. Two weeks ago after my Rheumatologist upped my Hydroxychloroquine to 600 mg daily I had my Optician appointment and was told I had...

Any advice appreciated. Two weeks ago after my Rheumatologist upped my Hydroxych...

CecilyParsley

•5 years ago

18 Replies

Hi I’m new here from across the pond.

Hi I’ve been reading many of your posts and they have been so encouraging! Thank you. I’ve been struggling with ill health for quite a few years now. Recently...

Hi I’ve been reading many of your posts and they have been so encouraging! Thank...

sbkris1

•5 years ago

5 Replies

Sjögren’s Syndrome, cousin to lupus...

Leaflet from BSSA, BRITISH SJÖGREN’S SYDROME ASSOCIATION: https://www.bssa.uk.net/information.asp https://www.bssa.uk.net/pdfs/information-sheet.pdf

Leaflet from BSSA, BRITISH SJÖGREN’S SYDROME ASSOCIATION: https://www.bssa.uk.ne...

Hidden

•5 years ago

4 Replies

Specialists in NI?

Hello, can anyone tell me the name of a specialist in lupus in Northern Ireland please? Thank you.

Hello, can anyone tell me the name of a specialist in lupus in Northern Ireland...

Moriel4

•5 years ago

5 Replies

Leg problems

Does anyone have leg issues? I've had increasing symptoms since around September last year, started with electric shock feelings, slight swelling sensation and...

Does anyone have leg issues? I've had increasing symptoms since around September...

Happy43

•5 years ago

34 Replies

Supportive office chair. Lack of bannisters at work.

Hi guys, I've requested an assessment from occupational health as part of my reasonable adjustments at work. However the company would rather we solve any...

Hi guys, I've requested an assessment from occupational health as part of my rea...

eescvc

•5 years ago

7 Replies

Just considering

Hi everyone, my first post! I have read many though over the past few weeks since I joined the group. I have Dystonia, SCLE, Primary Sjogrens and have been...

Hi everyone, my first post! I have read many though over the past few weeks sinc...

Ladylupus

•5 years ago

5 Replies

Family don't get how serious lupus is

Anyone else struggle with this. Because I look ok they expect the same of me

Sallmell

•5 years ago

9 Replies

Pain at back of head is my steroid injection wearing off?

Hi all, thank you all for making me feel so welcome. I posted for first time about 6 weeks ago regarding diagnosis which has been 4 years and still no...

Hi all, thank you all for making me feel so welcome. I posted for first time ab...

Sallmell

•5 years ago

1 Reply

Diet for SCLE

Hi all. Has anyone used a particular diet for SCLE that has successful please?

jinty56

•5 years ago

2 Replies

How do I get back into the Fibromyalgia Action UK group?

How do I get back on to the Fibromyalgia Action UK forum?

mcglada0

•5 years ago

5 Replies

Flare Up Advice

Hello All, I have not had a flare up in quite some time and was looking for some tips on managing. My hands and feet are very achy and I am exhausted but...

Hello All, I have not had a flare up in quite some time and was looking for some...

sflynn84

•5 years ago

3 Replies

Sjogren eye problems

my eyes seem to be getting worse and more dry and red nearly every other week already on Hydroxychloroquine and Hylo forte 4 times a day nothing working can...

my eyes seem to be getting worse and more dry and red nearly every other week al...

Matt80

•5 years ago

12 Replies

Rheumatology appointment - not sure what to expect

I'm very new to this, so apologies in advance for being a bit clueless! I had a blood test done for ANA back in the spring and it came back positive, as did...

I'm very new to this, so apologies in advance for being a bit clueless! I had a ...

November90

•5 years ago

78 Replies

Developing a new me 😬. Just 5 minutes away I can take the girl out of the city and into the open 😊

Slowly finding ways to help me manage with symptoms and to help heal my mental state. I took this photo for some of you lovelies. Literally the greenery goes...

Slowly finding ways to help me manage with symptoms and to help heal my mental s...

Lisalou19

•5 years ago

18 Replies

Newly diagnosed lupus - kidneys?

Hi all, Last month they cautiously diagnosed me with lupus and started me on 400mg of hydroxychloroquine. They’ve said it could be any connective tissue...

Hi all, Last month they cautiously diagnosed me with lupus and started me on 400...

DaniMichelle

•5 years ago

9 Replies

Prescription Charges Coalition

Have you avoided taking prescribed medication because of the cost of your prescription, even for a short period of time? Have you suffered any consequences...

Have you avoided taking prescribed medication because of the cost of your prescr...

Chanpreet_Walia

LUPUS UK•5 years ago

1 Reply

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for June 2019

Lupus or MS

Prednisone help

Never Ending Back Pain

Sunny Days

First recognisable flare

Sunscreen advice please

Fear of starting Benlysta

UK Medicines Recall - Clexane (B & S Healthcare)

Dr ******

Pain

Can't smell anything

Sunshine

Hair loss

Opthamology fob off

Hi I’m new here from across the pond.

Sjögren’s Syndrome, cousin to lupus...

Specialists in NI?

Leg problems

Supportive office chair. Lack of bannisters at work.

Just considering

Family don't get how serious lupus is

Pain at back of head is my steroid injection wearing off?

Diet for SCLE

How do I get back into the Fibromyalgia Action UK group?

Flare Up Advice

Sjogren eye problems

Rheumatology appointment - not sure what to expect

Developing a new me 😬. Just 5 minutes away I can take the girl out of the city and into the open 😊

Newly diagnosed lupus - kidneys?

Prescription Charges Coalition

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