Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,744 members • 28,102 posts

All posts for May 2019

Extra Plaquenil

Hi all I have a done something very stupid, I took some extra Plaquenil hoping it would improve my symptoms. I thought if I took extra pills it would control...

Hi all I have a done something very stupid, I took some extra Plaquenil hoping ...

•5 years ago

First symptoms?

Hi guys, What were your first symptoms before diagnosing? Sincer february i feel very tired and my joints hurt. But i need to mention that i have...

Hi guys, What were your first symptoms before diagnosing? Sincer february i fee...

•5 years ago

I'm new to this......

Hi, I'm new to this. I was diagnosed with discoid lupus erythematosus just over 10 years ago. I've been backwards and forwards to the dermatologist and...

Hi, I'm new to this. I was diagnosed with discoid lupus erythematosus just over ...

chocolate_girl73

•5 years ago

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Lupus Check List ( this one could get you started )

Many of us when we meet with the doctors, it's like a deer in headlights. We forget what we've gone through during the past three months, since the last...

Many of us when we meet with the doctors, it's like a deer in headlights. We fo...

•5 years ago

Be the first to reply

THANK YOU for your involvement in our LUPUS UK Community Forum Research

Hi everyone, I just wanted to take a moment to thank all of you who took part in the recent group discussions on this site which were part of the LUPUS UK...

Hi everyone, I just wanted to take a moment to thank all of you who took part in...

Partner•5 years ago

Give up undiagnosed

Doc just said because neg lupus blood despite all other problems ie facial palsy twitching fingers well everything I previously spoke of it’s just a functional...

Doc just said because neg lupus blood despite all other problems ie facial palsy...

•5 years ago

Barefoot with Lupus

I don’t know if this is caused from anxiety, or what? I have a blister that came up on my left foot. It almost looks like a blood blister? The surgery for...

I don’t know if this is caused from anxiety, or what? I have a blister that came...

•5 years ago

Humidity and the wrath of lupu

Just joined here, have lupus for a few years and it seemed to calm down for about a year. Then, all heck broke out when I turned 57. My symptoms are now all in...

Just joined here, have lupus for a few years and it seemed to calm down for abou...

•5 years ago

New to this...

Hello I’ve had many years of pain and various other issues, most recently (last 5 years) developed reynauds, rosacea, nausea, dizziness, scalp psoriasis,...

Hello I’ve had many years of pain and various other issues, most recently (last ...

•5 years ago

White spots

I haven’t been diagnosed as of yet ( under rheumatologist etc etc for severe muscle pains and a long list of other ailments alongside it ) but I’m wondering...

I haven’t been diagnosed as of yet ( under rheumatologist etc etc for severe mus...

•5 years ago

Mom of 15 year old. Still no diagnosis. New to group

Primary care. What a waste of precious time. My daughter remains undiagnosed since the age of 6. At 6 she had symptoms of a MILD? "auto immune inflammatory...

Primary care. What a waste of precious time. My daughter remains undiagnosed sin...

•5 years ago

Neck swelling

I have lupus, a few months ago my neck left side and back of neck mostly, have swollen and feels very uncomfortable, has anyone else had this, or maybe know...

I have lupus, a few months ago my neck left side and back of neck mostly, have s...

•5 years ago

Lupus and oral biopsy

Hi could anyone help me? I've just been told I had lupus anticoagulant in blood. DVRRT 1.31 (three months ago 1.22) with positive ANA weakly diffuse 1:80...

Hi could anyone help me? I've just been told I had lupus anticoagulant in blood....

•5 years ago

Can I take my prednisone again on MTX?

Okay so I have been off prednisone for a few weeks and now on MTX completely and it sucks. I am aching again, bolated andnasueated. I felt great on steroids...

Okay so I have been off prednisone for a few weeks and now on MTX completely and...

•5 years ago

Temperature

In the last few days I had a cold with runny nose. Tonight I actually feel worse. I have 37.5 temperature even though I took paracetamol 1 hr ago I am...

In the last few days I had a cold with runny nose. Tonight I actually feel wors...

•5 years ago

Does anyone have 2 fused fingers on their dominant hand?

Hello Folks, I was wondering if anyone has fused fingers on their dominant hand? I had massive hand surgery last year on all 4 fingers on my right hand, with a...

Hello Folks, I was wondering if anyone has fused fingers on their dominant hand?...

•5 years ago

funny foggy moments

I was hanging the washing out this morning when I realised I had already washed it yesterday. I had picked up the basket of clean washing and done it again....

I was hanging the washing out this morning when I realised I had already washed ...

•5 years ago

Lupus Awareness month / World Lupus day

In USA they have a Lupus Awareness month in May. In UK October is Lupus Awareness month, however all over the globe everyone also has a World Lupus Day on 10th...

In USA they have a Lupus Awareness month in May. In UK October is Lupus Awarenes...

•5 years ago

Need advice for anemia

Hello friends! I recently received blood test results that showed my rbc count is slightly lower than normal, while my hemoglobin and hematocrit are hovering...

Hello friends! I recently received blood test results that showed my rbc count i...

•5 years ago

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