Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,744 members • 28,102 posts

All posts for May 2019

Anyone with pure membranous (lupus nephritis Type 5)?

I have had lupus since 22. I never had any kidney issues until this year--at age 44--I am beyond angry about this--I have never heard of it attacking your...

I have had lupus since 22. I never had any kidney issues until this year--at age...

NewEngland3

•5 years ago

17 Replies

Hallucinations

Hi Guys, just wanted to asked about your opinion. My sister is only 14 and was diagnosed with lupus 2weeks ago. Now she's having hallucinations and couldn't...

Hi Guys, just wanted to asked about your opinion. My sister is only 14 and was d...

Anjlyne

•5 years ago

13 Replies

Tortured by a Butterfly -- Dermatology and extreme sun reactions

Hi Guys, Got my Rheumatology letter yesterday, which threw me in multiple directions (and upset me about the breast explant situation again -- but I'll save...

Hi Guys, Got my Rheumatology letter yesterday, which threw me in multiple direc...

panda2

•5 years ago

1 Reply

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Strange immune system bloods

My wife has SLE plus a host of other nasty stuff but recently we had IGg sub class bloods done which revealed : Low : IGg 3 and low IGg 4 the rest normal Low...

My wife has SLE plus a host of other nasty stuff but recently we had IGg sub cla...

jimbo1605

•5 years ago

6 Replies

Just when we thought things were settling down ...

Pooh bear (the wife) has been doing brilliantly since her SLE diagnosis in 2017. However, Since stepping down pred to 15mg at the insistence of a rheumy of...

Pooh bear (the wife) has been doing brilliantly since her SLE diagnosis in 2017...

jimbo1605

•5 years ago

3 Replies

Today’s blood appointment - really confused from test print out

Evening all, I’ve had bloods today and they said it was an antibody screening along with the inflammation levels so it was good to find out exactly what was...

Evening all, I’ve had bloods today and they said it was an antibody screening al...

Leenie0811

•5 years ago

6 Replies

Autoimmune Disease / Lupus / Fibromyalgia???

Hi All, I am at a dead end and unable to get a clear diagnosis. I have had three ANA tests and all have been positive for Autoimmune disease, suspecting...

Hi All, I am at a dead end and unable to get a clear diagnosis. I have had three...

Blessings101

•5 years ago

7 Replies

Methotrexate and omeprazole

I have just read that Methotrexate should not be taken along with PPI's. Is this correct? I take both and I think a lot of you here do, so is this information...

I have just read that Methotrexate should not be taken along with PPI's. Is thi...

Georgie-girl

•5 years ago

8 Replies

Travelling

Hey guys, I'm planning on travelling to Spain next year & Thailand in 2021, just checking to see if anyone as had any issues with travel, due to health & meds,...

Hey guys, I'm planning on travelling to Spain next year & Thailand in 2021, just...

Angellealea1

•5 years ago

5 Replies

My partner has lupus

Hi, so I’m new to the group and have joined as I want to learn more about how to support my partner who has lupus. She’s told me she thinks she’s in the...

Hi, so I’m new to the group and have joined as I want to learn more about how to...

Little5

•5 years ago

6 Replies

Running alive with livedo! Bloods for aps are negative. It's abit of a strange one

Does anyone get extensive Livedo? It covers my legs, hands and all my arms. No diagnostic reasoning for it at this time, is always worse when I feel poorly....

Does anyone get extensive Livedo? It covers my legs, hands and all my arms. No...

Lisalou19

•5 years ago

20 Replies

My son - photosensitive rash?

I am so worried. My 13 year old son has come home from school with a rash all over his arms. He wore a short sleeve shirt to school today and it’s been......

I am so worried. My 13 year old son has come home from school with a rash all o...

Wendy39

•5 years ago

34 Replies

PIP appeal

Anybody in Derbyshire awaiting pip appeal ? Or have a pip appeal recently ?If so how long did you wait ? And where about did it take place ? #sickofwaiting...

Anybody in Derbyshire awaiting pip appeal ? Or have a pip appeal recently ?If so...

Hidden

•5 years ago

12 Replies

New at this sharing on line

Anyone with discoid lupus/mctd?? I'm new an still learning how to do this online thing

Anyone with discoid lupus/mctd?? I'm new an still learning how to do this online...

K_fuller

•5 years ago

4 Replies

Blood Test Today - Advice needed

Morning Everyone, I have another blood test today and wanted to ask if anyone has some advice for my next steps. This will be the 4th blood test to see in...

Morning Everyone, I have another blood test today and wanted to ask if anyone h...

Leenie0811

•5 years ago

2 Replies

Not sure if it's lupus

I have been diagnosed with fibromyalgia, stenosis, bruised spinal cord c-4, degenerative disc disease entire spine, fatty liver and I don't drink, just obese...

I have been diagnosed with fibromyalgia, stenosis, bruised spinal cord c-4, dege...

Tashalynk2

•5 years ago

1 Reply

LUPUS AND THE HEART

HI EVERYONE DOES ANYONE GET PALPATAIONS HEART FLUTTERING HAD LUPUS 15YEARS AND BEEN ON STERIODS THE WHOLE TIME TRYED LOTS OF TREATMENTS LOVE TO HEAR FROM...

HI EVERYONE DOES ANYONE GET PALPATAIONS HEART FLUTTERING HAD LUPUS 15YEARS AND B...

Kirkcaldy

•5 years ago

2 Replies

Legs shaking at night

Anyone else get legs shaking at night my partner can feel it to infact he wakes me a few times I can sometimes feel it once I’ve woken. My muscles still...

Anyone else get legs shaking at night my partner can feel it to infact he wakes ...

Buckley123

•5 years ago

19 Replies

Lupus Information Day

Thank you to the Devon and Cornwall Group and the Lupus UK Romford team for organising an excellent and interesting day in Exeter yesterday. Prof. Graham...

Thank you to the Devon and Cornwall Group and the Lupus UK Romford team for orga...

Kevin53

•5 years ago

2 Replies

Please help . . Need suggestions for skin issue

Hi all ;) I have had a very red and inflamed heel on one foot for over a year now. Every couple of weeks the skin peels off in very large thick pieces. The...

Hi all ;) I have had a very red and inflamed heel on one foot for over a year no...

lupette

•5 years ago

9 Replies

Exam fatigue

Hi, so I am a week into GCSEs and I have found that after an exam I am often very tired however as exams are almost daily I have to revise content for the...

Hi, so I am a week into GCSEs and I have found that after an exam I am often ver...

redredblue

•5 years ago

12 Replies

Groundbreaking genetic discovery shows why Lupus develops

A friend of mine just sent me the link to this article. Hope and progress!...

milkwoman

•5 years ago

13 Replies

Cortisol tests while on prednisolone

At my endo consultation today, I asked a question that had been bugging me. We all know that natural cortisol production is suppressed while we are taking...

At my endo consultation today, I asked a question that had been bugging me. We ...

whisperit

•5 years ago

12 Replies

Painful vein after iv

I was in hospital on iv fluid and antibiotics for 5 days. After 10 days my veins are still very painful and today they tried to take blood but the nurse could...

I was in hospital on iv fluid and antibiotics for 5 days. After 10 days my vein...

Tulipano

•5 years ago

4 Replies

Worried

Hi I have lupus, copd, diabetes, diverticulitis and a few other things. Have had extremely dry mouth, and dry eyes, fatigue, tingling in hands only,aching...

Hi I have lupus, copd, diabetes, diverticulitis and a few other things. Have had...

Cherubman

•5 years ago

2 Replies

Any Advice for hand skin cracking up?

On top of good old Raynaud’s which I still have while most people are in tee shirts, I have to wash my hands constantly before and after applying various...

On top of good old Raynaud’s which I still have while most people are in tee sh...

Lupiknits

•5 years ago

10 Replies

My support working said claim pip, I wish I had NEVER entered that interrogation which is meant to be an assessment 😔 the system sucks

Whether I get it or not, right now no amount of money is going to pull me out of this extremely low mood! I did a claim for pip based on social services advise...

Whether I get it or not, right now no amount of money is going to pull me out of...

Lisalou19

•5 years ago

18 Replies

Do I give up on healthcare altogether and search for other health and care alternatives. have now lost all faith in the medical profession.

Hi everyone I went yesterday to see a well respected gynaecologist specialist who deals with prolapse issues and had waited months to see her. I was shocked...

Hi everyone I went yesterday to see a well respected gynaecologist specialist wh...

Hidden

•5 years ago

14 Replies

Hydroxide and hypoglycaemia

Hi, My husband and I have noticed now, that if there is too much of a gap between meals, I start feeling and getting unwell (I don't just mean a bit hungry)....

Hi, My husband and I have noticed now, that if there is too much of a gap betwe...

MissusTee

•5 years ago

19 Replies

Changing myco brand...

I have been taking mycophenolate for the last 3 months, the myfortic brand. Last time I renewed my prescription they changed the brand, i was really unwell...

I have been taking mycophenolate for the last 3 months, the myfortic brand. Last...

soootired

•5 years ago

16 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for May 2019

Anyone with pure membranous (lupus nephritis Type 5)?

Hallucinations

Tortured by a Butterfly -- Dermatology and extreme sun reactions

Strange immune system bloods

Just when we thought things were settling down ...

Today’s blood appointment - really confused from test print out

Autoimmune Disease / Lupus / Fibromyalgia???

Methotrexate and omeprazole

Travelling

My partner has lupus

Running alive with livedo! Bloods for aps are negative. It's abit of a strange one

My son - photosensitive rash?

PIP appeal

New at this sharing on line

Blood Test Today - Advice needed

Not sure if it's lupus

LUPUS AND THE HEART

Legs shaking at night

Lupus Information Day

Please help . . Need suggestions for skin issue

Exam fatigue

Groundbreaking genetic discovery shows why Lupus develops

Cortisol tests while on prednisolone

Painful vein after iv

Worried

Any Advice for hand skin cracking up?

My support working said claim pip, I wish I had NEVER entered that interrogation which is meant to be an assessment 😔 the system sucks

Do I give up on healthcare altogether and search for other health and care alternatives. have now lost all faith in the medical profession.

Hydroxide and hypoglycaemia

Changing myco brand...

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