Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,744 members • 28,102 posts

All posts for May 2019

Treatment options

Hi everyone, I have an appointment on 6th June at the CTD clinic and I'm certain the subject of further treatment will be brought up as this was briefly...

Hi everyone, I have an appointment on 6th June at the CTD clinic and I'm certai...

Happy43

•5 years ago

12 Replies

Help please

Hi I’m new here My daughter in law age 24 has mixed connective tissue disorder and I’m looking for a centre of excellence in the North West England as I’m not...

Hi I’m new here My daughter in law age 24 has mixed connective tissue disorder a...

Z_oo1

•5 years ago

2 Replies

Significant other has lupus and diabetes

Hello everyone, I do not suffer from lupus, fortunately, but my significant other does, I guess I am here for advice from others who are also in...

Hello everyone, I do not suffer from lupus, fortunately, but my significant ot...

MegumiTakani13

•5 years ago

2 Replies

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Dr Cruz tomorrow

Hi guys nervous as I have my appointment tomorrow with doctor Cruz for a second opinion from doc kaul. Hoping this man will help but most of all be more...

Hi guys nervous as I have my appointment tomorrow with doctor Cruz for a second ...

Buckley123

•5 years ago

16 Replies

Fantastic Rumi dep

Hi all went for a Rumi app 2weeks ago got the full mot then told to go straight to go m6 bp was 194/98 😖 I’ve had it cheque out the upshot got to get my...

Hi all went for a Rumi app 2weeks ago got the full mot then told to go straight ...

Ianrussell69

•5 years ago

5 Replies

So many questions. SS, EDS, Mast cell, just baffled.

As a lot of you know, I have never had a conclusive, definitive diagnosis, it has always just been an "assumed" or "possible" sjogrens and my second opinion...

As a lot of you know, I have never had a conclusive, definitive diagnosis, it ha...

Georgie-girl

•5 years ago

40 Replies

Waiting times

Not that this is of any great benefit to me lol but I wanted to know what amount of time you all waited to see an nhs rheumatologist and whereabouts you are in...

Not that this is of any great benefit to me lol but I wanted to know what amount...

lizzy1976

•5 years ago

11 Replies

Follow

I am a complete idiot?? How do I follow someone? Trying to follow someone I keep in touch with and can’t see an option for it lol

I am a complete idiot?? How do I follow someone? Trying to follow someone I keep...

lizzy1976

•5 years ago

1 Reply

Vitamin B12 experiment update

A few weeks ago, I began a "therapeutic trial" of IM Vitamin B12 injections, despite having normal serum levels of B12 and folate. My main aim was to see if it...

A few weeks ago, I began a "therapeutic trial" of IM Vitamin B12 injections, des...

whisperit

•5 years ago

23 Replies

Bruising

Random bruises spear on joints of toes they don't hurt go away then come back any ideas

Random bruises spear on joints of toes they don't hurt go away then come back an...

Shellys22

•5 years ago

13 Replies

This little piggy went wee wee wee all the way home?

Hi all, I need some advice as my pain has me up howling at the moon, having lupus, raynauds copd and more, I am up because my fingers and toes are pulsating...

Hi all, I need some advice as my pain has me up howling at the moon, having lupu...

thestorm

•5 years ago

2 Replies

Should I be concerned about my high ANA titer?

I am not diagnosed with anything, but doctor has ordered blood work to figure out why I have had fatigue, mouth sores, headaches, swollen lymph nodes and a...

I am not diagnosed with anything, but doctor has ordered blood work to figure ou...

GhostfaceMcGee

•5 years ago

2 Replies

Arm pain 😣😣😣

Hi all , i need to pick your brain about arm snd neck pain . I have Sjögrens and along with the usual dry eyes and mouth, i also presented with lymph node...

Hi all , i need to pick your brain about arm snd neck pain . I have Sjögrens and...

weathervane

•5 years ago

23 Replies

Bamboo UV Protective Clothing

I’m trying to find some nice UV protective clothing but am very fussy! I can’t bear being hot and find synthetic materials so clingy and uncomfortable but the...

I’m trying to find some nice UV protective clothing but am very fussy! I can’t b...

Yellow5

•5 years ago

7 Replies

Medical marijuana and CBD products for AI

I was not sure if I am able to post this question in this community forum so if it's against the rules or offensive to anyone please let me know and I will...

I was not sure if I am able to post this question in this community forum so if ...

Kismetsoul

•5 years ago

14 Replies

Lupus rash

HI , can a lupus rash start gradually ?

odeetree

•5 years ago

5 Replies

Methylprednisone

Hi guys, my sister have completed her 3 dose of methylprednisone. We never see changes, she still acts differently, never answers questions and her max sleep...

Hi guys, my sister have completed her 3 dose of methylprednisone. We never see c...

Anjlyne

•5 years ago

4 Replies

Feel so alone :-/

Hi :-) I will try not to waffle on, I just could really do with a listening ear at the minute! I don’t have a formal diagnosis- I’ve been told that something...

Hi :-) I will try not to waffle on, I just could really do with a listening ear ...

SRiley

•5 years ago

61 Replies

Hydroxycloroquine Zentiva problem getting it

Hello . Boots is unable to get hydroxycloroquine Zentiva from their suppliers, they suggested I trawled around the country with my prescription asking other...

Hello . Boots is unable to get hydroxycloroquine Zentiva from their suppliers, t...

Tzav

•5 years ago

5 Replies

Nephrologist

Have any of you had to see a nephrologist regarding SLE? If so who have you seen and could you reccommend someone? Thank you Lucy xx

Have any of you had to see a nephrologist regarding SLE? If so who have you seen...

Wrexlu

•5 years ago

8 Replies

Fecal transplant

Did anyone do a fecal transplant for any reason? If yes, what were the results?...

Did anyone do a fecal transplant for any reason? If yes, what were the results?....

miccika1

•5 years ago

68 Replies

The theme to us all 😊❤😊

Hi my Hub friends, I have been very unwell these past few weeks, and have not posted anything, but I have been reading everyday the struggles and ins-and outs...

Hi my Hub friends, I have been very unwell these past few weeks, and have not po...

thestorm

•5 years ago

2 Replies

New rash and other symptoms

Has anybody had this type of rash? This happened after a bath today. I do seem to be intolerant to heat and often wake up with mild chest rash also after a...

Has anybody had this type of rash? This happened after a bath today. I do seem t...

Happy43

•5 years ago

17 Replies

Well it comes a time of ”sink or swim” have to try and go back to work for my trio to survive 😑 scared I'm useless

Well for many, you find out when your ill how little help and support there is. It’s tough mentally and emotionally but I have to try and put some normality...

Well for many, you find out when your ill how little help and support there is. ...

Lisalou19

•5 years ago

34 Replies

Numbness in left hand fingers

Hi Can anyone give me some advise. My index finger and middle finger on my left hand have started to go numb, loss of sensation is maybe a better way of...

Hi Can anyone give me some advise. My index finger and middle finger on my left...

MOOG144

•5 years ago

3 Replies

Another study links autoimmune disorders with trauma related stress

A study comparing over 100,000 people with stress-related disorders - including Post Traumatic Stress Disorder (PTSD) - with their unaffected siblings has...

A study comparing over 100,000 people with stress-related disorders - including ...

whisperit

•5 years ago

64 Replies

Letter given to Rheumatologist w labs and an article

Hi all, I typed up a letter to the Rheumatologist whom I was referred to and included my lab work along with a government article on the Hep 2 cell ANA test....

Hi all, I typed up a letter to the Rheumatologist whom I was referred to and inc...

JennaShi

•5 years ago

4 Replies

PIP Assessment Torture and Victory

I have two tales to tell, one of part victory for my husband victory award of standard PIP and my assessment stress. My husband after his nightmares with the...

I have two tales to tell, one of part victory for my husband victory award of st...

Banditqueen

•5 years ago

6 Replies

Muscle weakness

My legs muscles mainly have been really weak , heavy , hard to go up the stairs up hilly road have to stop several times . Had blood tests come back with very...

My legs muscles mainly have been really weak , heavy , hard to go up the stairs ...

Melaxx

•5 years ago

11 Replies

Positive ANA/negative ENA update!

I had a positive ANA test and was referred for an ENA panel. It has come back negative, as well as C3 and C4 being negative too. I’m feeling as bad as ever....

I had a positive ANA test and was referred for an ENA panel. It has come back ne...

Wee1kirby

•5 years ago

23 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for May 2019

Treatment options

Help please

Significant other has lupus and diabetes

Dr Cruz tomorrow

Fantastic Rumi dep

So many questions. SS, EDS, Mast cell, just baffled.

Waiting times

Follow

Vitamin B12 experiment update

Bruising

This little piggy went wee wee wee all the way home?

Should I be concerned about my high ANA titer?

Arm pain 😣😣😣

Bamboo UV Protective Clothing

Medical marijuana and CBD products for AI

Lupus rash

Methylprednisone

Feel so alone :-/

Hydroxycloroquine Zentiva problem getting it

Nephrologist

Fecal transplant

The theme to us all 😊❤😊

New rash and other symptoms

Well it comes a time of ”sink or swim” have to try and go back to work for my trio to survive 😑 scared I'm useless

Numbness in left hand fingers

Another study links autoimmune disorders with trauma related stress

Letter given to Rheumatologist w labs and an article

PIP Assessment Torture and Victory

Muscle weakness

Positive ANA/negative ENA update!

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