Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,724 members • 28,085 posts

All posts for May 2019

Scars now 2

Post removed due to my name and date of birth thanks guys appreciate you kind words as always xxx Here’s one of mum and I instead xxx

Post removed due to my name and date of birth thanks guys appreciate you kind ...

Buckley123

•5 years ago

12 Replies

Scars now 2

What do you think c

Buckley123

•5 years ago

Be the first to reply

Scars now 2

What do you think c

Buckley123

•5 years ago

35 Replies

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Scared now

What do you think Post removed as it showed my name thanks for all comments anyone that will find the letter interesting can message and il send you one ❤️

What do you think Post removed as it showed my name thanks for all comments ...

Buckley123

•5 years ago

6 Replies

Diagnosis

If you are at the end of a flare up, can this affect your ANA result? Or does it not matter if Lupus is active or not?

If you are at the end of a flare up, can this affect your ANA result? Or does it...

cathART

•5 years ago

4 Replies

Has anyone had this combo of bloodwork and symptoms?

I was dx'd with lupus in 1997 but have never had any kidney or liver or other organ involvement except possibly some CNS stuff. I have taken Plaquenil in the...

I was dx'd with lupus in 1997 but have never had any kidney or liver or other or...

lupette

•5 years ago

Be the first to reply

Speechless...London Bridge appointment

After all the rollercoaster I've been through and I still am had the well waited app , I won't say with who , however I have been dismissed and concluded that...

After all the rollercoaster I've been through and I still am had the well waite...

Theodora23

•5 years ago

40 Replies

Exhaustion before periods

Hi I have thyroid and sjogrens diseases but a week before periods start I am floored and can hardly move. The same for a week after my period and have heavy...

Hi I have thyroid and sjogrens diseases but a week before periods start I am fl...

mistygrey

•5 years ago

3 Replies

Hi- Have fatigue, joint pain, swollen glands, mouth ulcers, scaly red rash on face when in sun since Xmas but ANA test just back negative?

I’m 57 and realised I’ve had periods like this for over 20 years. Only when I developed the rash that I considered Lupus - it’s like reading about myself -

I’m 57 and realised I’ve had periods like this for over 20 years. Only when I de...

cathART

•5 years ago

28 Replies

Thank You

I'm very grateful I found this online community last week. You have been so helpful with your guidance and understanding from your own first-hand experiences,...

I'm very grateful I found this online community last week. You have been so help...

GhostfaceMcGee

•5 years ago

1 Reply

Did your loved ones want you to get a second opinion?

I recently told my parents about my primary doctor referring me to a rheumatologist for further evaluation, because I may need to switch back onto their health...

I recently told my parents about my primary doctor referring me to a rheumatolog...

GhostfaceMcGee

•5 years ago

8 Replies

Hello

I’m new and so glad I found this. I truly appreciate all of you kind and brave enough to share. I have the most problem with realizing I’m not a workaholic...

I’m new and so glad I found this. I truly appreciate all of you kind and brave e...

NeuronerdDoaty

•5 years ago

1 Reply

Hip pain

I’ve been reading about the hip pain which I have but recently at night my forearms and a little less my wrists have been waking me up feeling like they are...

I’ve been reading about the hip pain which I have but recently at night my forea...

NeuronerdDoaty

•5 years ago

3 Replies

Does Plaquenil affect my menstrual cycle?

I’ve been diagnosed with lupus for a little over half a year, i’ve been put on hydroxychloroquine or plaquenil around the same time too. I’m only 16, so it’s...

I’ve been diagnosed with lupus for a little over half a year, i’ve been put on h...

jaylovesstars

•5 years ago

2 Replies

Skin Issues Anyone

Does anyone get a lot of blisters in their scalp. I have MCTD and get really annoyed with this. Taking immunoglobulin iv therapy now/

Does anyone get a lot of blisters in their scalp. I have MCTD and get really ann...

nanno

•5 years ago

11 Replies

Pain, pain and more pain

Hello Everyone, I’ve not written in a while. Things have not been good recently. I’m in a lot of pain this morning; mostly in my back (right hand side) and...

Hello Everyone, I’ve not written in a while. Things have not been good recently...

Crazy_Cat_Woman

•5 years ago

6 Replies

Pip Tribunal

Devastated to find out today that I didn’t get the higher rate mobility rate at my mandatory reconsideration, despite 8 doctors letters and a letter from the...

Devastated to find out today that I didn’t get the higher rate mobility rate at ...

LilyMistri2

•5 years ago

8 Replies

Strengthening words for everyone please read........

To all of us, some more uplifting words to see US all through the looking glass!!! Come on we are strong, and together we can be even stronger my humble...

To all of us, some more uplifting words to see US all through the looking glass!...

thestorm

•5 years ago

2 Replies

Rhuenatology apt did NOT go well - rant warning!

I had my appointment to see Rhumatology today. After initially being told it was an 8 month wait, my GP wrote a follow up letter and I was offered an...

I had my appointment to see Rhumatology today. After initially being told it was...

Bubble89

•5 years ago

18 Replies

Is sudden aggressive onset of SLE with Lupus Nephritus normal?

My partner's SLE and Lupus Nephritus came on suddenly 6 weeks ago and he's currently hospitalized. It's very aggressive and rapid and he's struggling because...

My partner's SLE and Lupus Nephritus came on suddenly 6 weeks ago and he's curre...

PCRHDRFDF

•5 years ago

4 Replies

Avascular Necrosis caused by Steroids.

From personal experience I wouldn’t touch steroids with a barge pole. 10 years after being given steroids briefly for an overactive thyroid gland problem, I...

From personal experience I wouldn’t touch steroids with a barge pole. 10 years ...

ripon1756

•5 years ago

7 Replies

happy bloods

just got my blood results from yesterday. WBC is 3. this is the highest it has been for years. urate levels have dropped by nearly 200 which is fantastic. I...

just got my blood results from yesterday. WBC is 3. this is the highest it has b...

suzannah16

•5 years ago

11 Replies

Lupus or something else? Guidance please :)

Hi all, I've been reading many posts on here but yet to write myself. I'm in a bit of a pickle. As a child I was always getting sick. Pneumonia twice,...

Hi all, I've been reading many posts on here but yet to write myself. I'm in a b...

Wardlow

•5 years ago

5 Replies

How often do you have flare ups?

Just curious how often everyone has flare ups of their condition? How does a flare affect you? I don’t have an official diagnosis but had what has been...

Just curious how often everyone has flare ups of their condition? How does a fla...

SRiley

•5 years ago

5 Replies

London bridge appointment

Hi all , I have been up and down and had terrible days. Had recently bloods taken for systemic mastocytosis... I have finally decided and made an appointment...

Hi all , I have been up and down and had terrible days. Had recently bloods ta...

Theodora23

•5 years ago

20 Replies

Was it worth it for you to take advantage of a referral to a Rheumatologist?

My primary doctor just referred me to a rheumatologist to go over my lab work. I am hesitant, because I'm my symptoms are not drastically affecting my daily...

My primary doctor just referred me to a rheumatologist to go over my lab work. I...

GhostfaceMcGee

•5 years ago

9 Replies

Blood tests for monitoring

Hello out there! I have a question about monitoring for Lupus. My lovely and very supportive GP admits to knowing very little about Lupus. I am being seen and...

Hello out there! I have a question about monitoring for Lupus. My lovely and ver...

C-aches

•5 years ago

8 Replies

disappointed and tired

Hi all. I have just been to a renal consultation and wanted to ask my DR about something my radiologist said when I had my kidneys scanned. The radiologist...

Hi all. I have just been to a renal consultation and wanted to ask my DR about s...

suzannah16

•5 years ago

21 Replies

Mixed Cognitive tissue disorder

Hi all thanks for your support I’ve seen doctor de Cruz just now and he said he thinks I have raynards And mixed cognitive tissue disorder or a lupus like...

Hi all thanks for your support I’ve seen doctor de Cruz just now and he said he...

Buckley123

•5 years ago

63 Replies

Rheumatology chapel allerton Leeds

Hi everyone , I’m just wondering if anyone is under the same group of consultants has me , as I do worry at times about notes been written up and diagnosis...

Hi everyone , I’m just wondering if anyone is under the same group of consultan...

Willow1414

•5 years ago

13 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for May 2019

Scars now 2

Scars now 2

Scars now 2

Scared now

Diagnosis

Has anyone had this combo of bloodwork and symptoms?

Speechless...London Bridge appointment

Exhaustion before periods

Hi- Have fatigue, joint pain, swollen glands, mouth ulcers, scaly red rash on face when in sun since Xmas but ANA test just back negative?

Thank You

Did your loved ones want you to get a second opinion?

Hello

Hip pain

Does Plaquenil affect my menstrual cycle?

Skin Issues Anyone

Pain, pain and more pain

Pip Tribunal

Strengthening words for everyone please read........

Rhuenatology apt did NOT go well - rant warning!

Is sudden aggressive onset of SLE with Lupus Nephritus normal?

Avascular Necrosis caused by Steroids.

happy bloods

Lupus or something else? Guidance please :)

How often do you have flare ups?

London bridge appointment

Was it worth it for you to take advantage of a referral to a Rheumatologist?

Blood tests for monitoring

disappointed and tired

Mixed Cognitive tissue disorder

Rheumatology chapel allerton Leeds

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