Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,732 members • 28,092 posts

All posts for March 2019

Nails

AndrewT; This is the photo you ask for. This is the pinkest, the natural/nude nail treatment has been thus far. I hope it doesn’t get any pinker than...

AndrewT; This is the photo you ask for. This is the pinkest, the natural/nud...

•5 years ago

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Getting used to the “new normal”

Hello everyone I have collected some more AI related conditions in the last 4 months such as autoimmune gastritis, Costochondritis and suspected Sjogrens. I...

Hello everyone I have collected some more AI related conditions in the last 4 m...

•5 years ago

Flu

Hi everyone, I've had the flu going into 3 weeks now! Doctor refused to give me any medication last week. She said my chest was very mucuosy but sorry I can't...

Hi everyone, I've had the flu going into 3 weeks now! Doctor refused to give me ...

•5 years ago

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You couldn't make this up!

So I paid privately to see a Gastroenterologist. Recommends Endoscopy, and will do it on NHS. Request denied by hospital. My GP has to refer to the SAME...

So I paid privately to see a Gastroenterologist. Recommends Endoscopy, and wi...

•5 years ago

Follow up appt with another GP

Hey all it’s been a while since I last posted. My original GP suggested retesting this month and in order to do that I needed to schedule an appointment. She...

Hey all it’s been a while since I last posted. My original GP suggested retesti...

•5 years ago

Rash on leg

Hi just wondering if anyone else had a rash that felt kije a sun burn like mine

Hi just wondering if anyone else had a rash that felt kije a sun burn like mine

•5 years ago

Skin

As you can see in the photo, i have places on my arm now. it is not just the skin on my feet I have an issue with! It is the skin on my entire body. My skin...

As you can see in the photo, i have places on my arm now. it is not just the ski...

•5 years ago

Nails

Well, I got the nail treatment done again, it has gotten to the point I hate having to do nails, yes fingers and toes. However, if I don’t, my nails will...

Well, I got the nail treatment done again, it has gotten to the point I hate hav...

•5 years ago

Holland and Barrett

Thankyou everyone for your positive responses to my first post after I joined the group ... just a question .. do you take health supplements and if so are...

Thankyou everyone for your positive responses to my first post after I joined th...

•5 years ago

Newbie - Positive anti DS-DNA and high titre ANA

Dear all - I just wondered if anyone has a similar story to mine or any experience with the symptoms. I'm 7 years in now but as yet no diagnosis. I'm a 49...

Dear all - I just wondered if anyone has a similar story to mine or any experien...

•5 years ago

CBD oil?

Hi everyone, I am noticing it is easy to buy CBD oil from reputable chemists such as Lloyds Pharmacy or boots. I've also been reading about CBD and Lupus. I...

Hi everyone, I am noticing it is easy to buy CBD oil from reputable chemists suc...

•5 years ago

Not a question “my world is not the same as yours, I feel like I don’t belong” 😢 how I feel around others who just don’t get it 😔

It sounds depressing I know, I’m not depressed ! I’m just trapped inside this body that is failing me daily. The world around me is full of happy faces, happy...

It sounds depressing I know, I’m not depressed ! I’m just trapped inside this b...

•5 years ago

My daughter have Lupus

Hei, I have 3 children....all of them have ME...but now the eldest is diagnosed with Lupus. We think maybe it have been Lupus the whole time. She has been...

Hei, I have 3 children....all of them have ME...but now the eldest is diagnosed...

spanskmargeritt

•5 years ago

Interaction of Hemp Oil with lupus meds

I’m kind of sick and tired (literally lol) of being in constant pain, I really want to get back to work and I’m considering taking hemp seed oil capsules (from...

I’m kind of sick and tired (literally lol) of being in constant pain, I really w...

ButterflyEffect96

•5 years ago

Newly diagnosed

Hi .. I’m newly diagnosed with lupus and am absolutely devastated.. I’m reading lots about this condition but am not taking any prescribed meds for this at...

Hi .. I’m newly diagnosed with lupus and am absolutely devastated.. I’m reading ...

•5 years ago

Nailfold capillaroscopy. Testing not available in the areas I live. Are there any private clinics that do this test?

Hi after speaking to my GP in regards to a nailfold capillaroscopy test. She contacted my rheumatologist and it's not available in thr area I live in. Which is...

Hi after speaking to my GP in regards to a nailfold capillaroscopy test. She con...

•5 years ago

Prednisolone and acne

Hi guys, I have a question. I’ve been getting severe acne ever since I started with medication for Lupus. My rheumy said that it’s caused by prednisolone. Of...

Hi guys, I have a question. I’ve been getting severe acne ever since I started ...

•5 years ago

Medication

I have a question to ask. I am starting on the Methotrexate today just once a week. I have been given 10mg dose but 4 tablets at 2.5mg. Am I to presume that I...

I have a question to ask. I am starting on the Methotrexate today just once a we...

•5 years ago

I'm terrified

I've just been to my haematologist 3 months after my initial blood test and scans. She said there were a few abnormalities in my results so they would like to...

I've just been to my haematologist 3 months after my initial blood test and scan...

•5 years ago

Car insurance courtesy car

I’ve been very unfortunate and had three deer strikes in recent years all needing insurance repairs. Each time I go through the same battle to get an...

I’ve been very unfortunate and had three deer strikes in recent years all needin...

•5 years ago

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Undifferentiated Connective Tissue Disease

Hello everyone, just an update. My Rheumatologist tells me that I have Undifferentiated Connective Tissue Disease. I’ve read up on it but I’m really not sure...

Hello everyone, just an update. My Rheumatologist tells me that I have Undiffe...

Crazy_Cat_Woman

•5 years ago

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