Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,744 members • 28,102 posts

All posts for March 2019

Applying for benefits

Good evening lovelies I had a kidney transplant a few years ago and the quality of it is deteriorating and I’m beginning to feel the effects of this which is...

Good evening lovelies I had a kidney transplant a few years ago and the quality...

Taurion

•5 years ago

3 Replies

Esa

Hi Not sure if you remember that I had to re apply for ESA, i got a letter today, to say that I am still in Support group & everything will continue as normal....

Hi Not sure if you remember that I had to re apply for ESA, i got a letter today...

Cal66

•5 years ago

12 Replies

Not A Good Day

Today is one of those days where you just don’t feel right. I’m not sure what is going on. For one thing just took my blood pressure it is 178/126. However I...

Today is one of those days where you just don’t feel right. I’m not sure what i...

Tiras

•5 years ago

9 Replies

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miscarriage of twins

I have just miscarried twins at 16 weeks. I had a miscarriage of a girl at 15 weeks last but wasnt receiving any treatment at the time and the baby had...

I have just miscarried twins at 16 weeks. I had a miscarriage of a girl at 15 w...

Emily00

•5 years ago

34 Replies

High cholesterol

Hi everyone, I have lupus and the menopause and it’s currently a tough time for me because of these. I’m 50 Suddenly my cholesterol is high on a fasted...

Hi everyone, I have lupus and the menopause and it’s currently a tough time for ...

LilyMistri2

•5 years ago

26 Replies

Just posting to show a member what my skin does when in contact with water!!! Not even hot water as that seems to dry my skin out

Boudica1 this is what my skin does mainly on legs, feet chest and hands when in contact with water!!! As previously said never mentioned it to specialist as...

Boudica1 this is what my skin does mainly on legs, feet chest and hands when in...

Lisalou19

•5 years ago

20 Replies

Husbands cancer

Hi everyone just wanted to say thank you all for your support and give you an update on my husbands cancer. He had a scan last week, his tumour has reduced in...

Hi everyone just wanted to say thank you all for your support and give you an up...

Josieswolf

•5 years ago

12 Replies

Love

A photo of Laura and I after the wedding of some of our friends. In September Laura and I will be married 38 Years! I am so Blessed to have a Beautiful,...

A photo of Laura and I after the wedding of some of our friends. In September La...

Tiras

•5 years ago

21 Replies

ANGIEB80

Have been on prednisone since 1991...5 mg

AngieTX

•5 years ago

2 Replies

Numbness and tingling

Hi I just wondered if anyone else with SLE experiences numbness and tingling in there fingers. It's just started this last week and I've also had aching and...

Hi I just wondered if anyone else with SLE experiences numbness and tingling in ...

Hhood

•5 years ago

10 Replies

Update... change in diagnosis...

Just thought I’d update. Been in hospital all day today and finally a little further forward. My lupus tests are borderline so they are redoing. For definite...

Just thought I’d update. Been in hospital all day today and finally a little fur...

Angie245

•5 years ago

13 Replies

Cardiff Lupus Support Group

Hi everyone, I'm very pleased to announce that thanks to the help and hard work of Dalila, the new Cardiff Lupus Support Group will be having its first...

Hi everyone, I'm very pleased to announce that thanks to the help and hard work ...

Paul_Howard

Partner•5 years ago

20 Replies

More Lupus Skin Issues

I have more places/rashes starting on my left foot now, right behind my toes. The one on my right foot is healing but, it is now going on 2 1/2 months and it...

I have more places/rashes starting on my left foot now, right behind my toes. Th...

Tiras

•5 years ago

4 Replies

Do you have days when literally everything you touch hurts? Like a bruising feeling?

I can touch my thighs they hurt, arms legs head, everything hurts to touch! I can only explain it as it feels like bruising but without a bruise 🤷‍♀️ There...

I can touch my thighs they hurt, arms legs head, everything hurts to touch! I ca...

Lisalou19

•5 years ago

23 Replies

Imposter Syndrome (as described by Twitchytoes)

It has been a struggle since my disastrous appointment with the rheumy as I was depending on my regular GP, the one who suggested that I might have lupus, to...

It has been a struggle since my disastrous appointment with the rheumy as I was ...

Annienjoe

•5 years ago

27 Replies

Any recommended Rheumatologists Dr.?

Hello I'm new in London and currently residing at Mitcham. I need help to any highly recommended Lupus or Rheumatologists Dr. to visit for monitoring.I hope...

Hello I'm new in London and currently residing at Mitcham. I need help to any hi...

Yves2

•5 years ago

3 Replies

Frustrated after Rheumatologist appointment!

Sorry it’s going to be a moan about my appointment today. We are so lucky to have the NHS but today I’m feeling rather frustrated after a really unhelpful...

Sorry it’s going to be a moan about my appointment today. We are so lucky to hav...

Yellow5

•5 years ago

8 Replies

fact sheets how interesting?

I have just had a little look through some of the fact sheets people had kindly told me to look through and I cant believe the things I have in common with...

I have just had a little look through some of the fact sheets people had kindly ...

bev2002

•5 years ago

5 Replies

I know im being very dramatic but I feel as though I can have this rant on here

How often are people having flare ups?.I know everyone will be different but mine are becoming more regular now. I'm not a good patient as I'm very active and...

How often are people having flare ups?.I know everyone will be different but min...

bev2002

•5 years ago

9 Replies

Lupus rash

Hi all, My lupus has been under control for a while now due to rituximab infusions. But I have woken up with a lupus rash this morning. Is it possible to have...

Hi all, My lupus has been under control for a while now due to rituximab infusio...

Sarahjj87

•5 years ago

6 Replies

Plaquenil

Hello everyone, I’ve started taking plaquenil I’m a week in now and I’ve noticed that my hands turn purple and orange , I do have Raynauds however im a lot...

Hello everyone, I’ve started taking plaquenil I’m a week in now and I’ve noticed...

MidnightMystery

•5 years ago

5 Replies

why cant I buy my b12 injections online anymore? is it due to Brexit? worried as alternate with one from gp and running out!

b12 injection supplies

Blueeyes57

•5 years ago

8 Replies

Lupus and soya milk/ estrogen

This question is for lupus ladies going through the menopause. Have any of you taken Soya milk for menopausal relief? Does it make you feel better or worse?...

This question is for lupus ladies going through the menopause. Have any of you ...

LilyMistri2

•5 years ago

18 Replies

Lumps... auto immune link?

Has anyone suffered with lumps like these? I was dignoised with a benign tumour in my left cheek but when the right also did the same the plastic surgeon...

Has anyone suffered with lumps like these? I was dignoised with a benign tumour ...

Angie245

•5 years ago

6 Replies

Part 2

Please read after part one

Buckley123

•5 years ago

10 Replies

Part one

Please read part one and two any advice xx

Buckley123

•5 years ago

Be the first to reply

Can I have some advice Please xx

I’ve got lupus and rheumatoid arthritis and I’ve been getting pains in my feet, knees and is now starting in my back and shoulders and I know that’s my...

I’ve got lupus and rheumatoid arthritis and I’ve been getting pains in my feet, ...

Elishaannxx

•5 years ago

9 Replies

Memories

After everyone had left this morning, and it’s to cold to get out yet. I sat in the floor in front of the open fireplace, watching the flames, just like I use...

After everyone had left this morning, and it’s to cold to get out yet. I sat in ...

Tiras

•5 years ago

19 Replies

Search for New Rheumatologist: Update / Request for Feedback: Dr S Tosoundidou and Dr J Hunter (via Private Message Please).

Hi All As some of you will be aware, like many here I have been struggling with my current rheumatologist for some time and have been searching for a new...

Hi All As some of you will be aware, like many here I have been struggling with ...

Foggyme

•5 years ago

10 Replies

Seizures

Hi all Was in town shopping last Tuesday when I came around on the floor surrounded by paramedics. I had gone in a shop to buy some cards when my eyes...

Hi all Was in town shopping last Tuesday when I came around on the floor surrou...

Hollydebs

•5 years ago

9 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for March 2019

Applying for benefits

Esa

Not A Good Day

miscarriage of twins

High cholesterol

Just posting to show a member what my skin does when in contact with water!!! Not even hot water as that seems to dry my skin out

Husbands cancer

Love

ANGIEB80

Numbness and tingling

Update... change in diagnosis...

Cardiff Lupus Support Group

More Lupus Skin Issues

Do you have days when literally everything you touch hurts? Like a bruising feeling?

Imposter Syndrome (as described by Twitchytoes)

Any recommended Rheumatologists Dr.?

Frustrated after Rheumatologist appointment!

fact sheets how interesting?

I know im being very dramatic but I feel as though I can have this rant on here

Lupus rash

Plaquenil

why cant I buy my b12 injections online anymore? is it due to Brexit? worried as alternate with one from gp and running out!

Lupus and soya milk/ estrogen

Lumps... auto immune link?

Part 2

Part one

Can I have some advice Please xx

Memories

Search for New Rheumatologist: Update / Request for Feedback: Dr S Tosoundidou and Dr J Hunter (via Private Message Please).

Seizures

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Did you experience more frequent and/or severe lupus flares during the hot summer 2018 compared to summer 2017? (Please explain in comments)

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