Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,744 members • 28,102 posts

All posts for March 2019

Right Aorta

Has anyone else got a right Aorta. If so do u know what problems it can cause. Many thanks Jeff

Has anyone else got a right Aorta. If so do u know what problems it can cause. M...

BARTLETT1965

•5 years ago

7 Replies

Hearing loss.

Has anyone taking Plaquenil experienced any hearing loss?

Gram26

•5 years ago

10 Replies

Fellow sufferer

Hi everyone, I'm very new to this app. I have been reading through some comments and thinking OMG thats me, I've got that, that happens to me...…..I suffer,...

Hi everyone, I'm very new to this app. I have been reading through some comme...

puzzles65

•5 years ago

17 Replies

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DWP and benefits during a challenge against a fit-for-work test

https://www.theguardian.com/society/2019/mar/18/misleading-dwp-letter-causing-ill-and-disabled-people-to-lose-benefits I thought I would bring this article to...

https://www.theguardian.com/society/2019/mar/18/misleading-dwp-letter-causing-il...

PMRpro

•5 years ago

21 Replies

Request information

Hi everyone, I recently moved to England (Peterborough) and I will have my first GP appointment here. How does lupus control work here? Is it always done in...

Hi everyone, I recently moved to England (Peterborough) and I will have my first...

Mariana26

•5 years ago

6 Replies

Good But Sad Day

So far not a bad today, however, it is just starting. The sad part is Dad passed away 2 years ago today! Sitting in front of the fire place, it is cool...

So far not a bad today, however, it is just starting. The sad part is Dad passe...

Tiras

•5 years ago

13 Replies

Hoping you will get answers!!

So even if Ana is just a bit over normal levels with your symptoms they should be able to diagnose. At first was told I had non hodgkins but 3 months later was...

So even if Ana is just a bit over normal levels with your symptoms they should b...

Jojo070674

•5 years ago

1 Reply

crazy symptoms and no diagnosis

Hi everyone! I’m pretty new to this app. I have been checked for lupus 3 times, drs keep checking my ANA and it keeps coming back neg. they are looking out for...

Hi everyone! I’m pretty new to this app. I have been checked for lupus 3 times, ...

Hidden

•5 years ago

27 Replies

Pred question...

I'm prescribed short courses of pred for flares. I've been off aza since end November last year, began myco early Feb and owing to flaring because of the lack...

I'm prescribed short courses of pred for flares. I've been off aza since end No...

soootired

•5 years ago

12 Replies

Methotrexate

Morning all Just a quick question. I am on methotrexate injections and so far all of my blood tests have been OK. Does that mean my immune system has not been...

Morning all Just a quick question. I am on methotrexate injections and so far al...

Tia666

•5 years ago

1 Reply

confusing symptoms and labs

Hi All! Hope everyone is well. Wanted to share something w you all and was hoping for some advice/feedback. II’ve been having some discoloration in my hands...

Hi All! Hope everyone is well. Wanted to share something w you all and was hopi...

bballfanatic

•5 years ago

2 Replies

LUPUS UK News & Views Magazine Spring 2019 - OUT NOW

The new edition of our News & Views magazine has been sent out to all LUPUS UK members, so if you’re a member it will be dropping through your letterbox...

The new edition of our News & Views magazine has been sent out to all LUPUS UK m...

Paul_Howard

Partner•5 years ago

Be the first to reply

Rash on arms

Hi This might sound like a super stupid question so sorry in advance. When I get a lupus rash it always occurs on my arms. Obviously it’s sun-sensitive so...

Hi This might sound like a super stupid question so sorry in advance. When I ge...

Hayleyrose28

•5 years ago

22 Replies

Tonsillitis

My son may have tonsillitis I have SLE should I be around him?

Sami1982

•5 years ago

4 Replies

new walking buddy

I have a new walking buddy. Almost a year to the day I lost my wonderful dog, Gus, I adopted Mandy. A 14 year old crossbreed pup [lol] who lost her owner last...

I have a new walking buddy. Almost a year to the day I lost my wonderful dog, Gu...

suzannah16

•5 years ago

21 Replies

Sacroiliitis

Hello again I am currently in agoneeeee with pain in my left hip/buttock area and low back. My GP gave me a thorough going over yesterday and between us...

Hello again I am currently in agoneeeee with pain in my left hip/buttock area a...

Fennella02

•5 years ago

12 Replies

Water retention

Been taking furosemide for a number of months now and only really have a little water retention in my feet/ankles now. As I'm on my feet all day at work the...

Been taking furosemide for a number of months now and only really have a little ...

Hidden

•5 years ago

7 Replies

My bowel is giving up! Is this common with lupus patients?

Hi there, I have been diagnosed with lupus for 17 years (51 years of age now) but I am currently well managed. I do however have a series of other issues...

Hi there, I have been diagnosed with lupus for 17 years (51 years of age now) b...

Ieuann133

•5 years ago

19 Replies

Mast Cell Dermatology Appointment today with full flare visible! I am a very rare patient 😲 couldn’t Of asked for a nicer doctor

I thought my appointment was a routine dermatology appointment as that is what I am used too. But this one was very different indeed and I was referred to him...

I thought my appointment was a routine dermatology appointment as that is what I...

Lisalou19

•5 years ago

19 Replies

Still confused!

Sorry for banging on about this, but I'm still confused about what tests have been done! Can any one shed any more light? So, I posted recently that the...

Sorry for banging on about this, but I'm still confused about what tests have be...

Bubble89

•5 years ago

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Divorce

Hi, Am in a process to get divorce. My family think that because I am ill it will be so much harder for to cope. I have lupus sle, fibromyalgia and...

Hi, Am in a process to get divorce. My family think that because I am ill it ...

Tulipano

•5 years ago

20 Replies

Rheumatology this Morning

I made a good start by waking up at 9.20 for a 9.30 appt. After trying to call them over and over, but getting no answers, and having the usual paranoia about...

I made a good start by waking up at 9.20 for a 9.30 appt. After trying to call t...

Lupiknits

•5 years ago

5 Replies

Yes!!! I’ve turned a slight corner today 😀

Eventually I’m starting to come out of this pain of a flare,I’m not a hundred percent but a lot better.i just need to be mindful of my activities and not over...

Eventually I’m starting to come out of this pain of a flare,I’m not a hundred pe...

bev2002

•5 years ago

1 Reply

Connective tissue

I've been going to rheumatology since 2005 for SLE checks, blood and urine tests, the usual. The last time I was there the doctor asked if I'd like to go to...

I've been going to rheumatology since 2005 for SLE checks, blood and urine tests...

chrisj

•5 years ago

16 Replies

Results from my Rheumatologist appointment

So hello everyone, on Monday I had my 2nd rheumatologist appointment I was really nervous me and mum went and I have been fully diagnosed with, lupus,...

So hello everyone, on Monday I had my 2nd rheumatologist appointment I was reall...

Elishaannxx

•5 years ago

6 Replies

WOrld young Rheumatic Diseases Day (WORD Day) - 18th March 2019

Hi everyone, The first WOrld young Rheumatic Diseases Day (WORD Day) will be taking place on 18th March 2019. The new annual event will take place on the same...

Hi everyone, The first WOrld young Rheumatic Diseases Day (WORD Day) will be tak...

Paul_Howard

Partner•5 years ago

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Mycophenolate motofil generic...

... I started mmf a month ago and was given a generic myco rather than cellcept, but it did have a brand name starting with "m" . When I got my new...

... I started mmf a month ago and was given a generic myco rather than cellcept,...

soootired

•5 years ago

7 Replies

Confused

Hi, I'm new here and could really do with some help please. Since 2012 I have tested positive for dsdna antibodies levels have been between 51 - 67 through out...

Hi, I'm new here and could really do with some help please. Since 2012 I have te...

EllieE

•5 years ago

1 Reply

I AM ANGRY WITH YOU MY BODY (coping with Lupus)

The poem below, I wrote it one night when I could not sleep! Instead of getting frustrated I thought I can put down what I really felt! Sorry its really...

The poem below, I wrote it one night when I could not sleep! Instead of getting...

Pipido36

•5 years ago

6 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for March 2019

Right Aorta

Hearing loss.

Fellow sufferer

DWP and benefits during a challenge against a fit-for-work test

Request information

Good But Sad Day

Hoping you will get answers!!

crazy symptoms and no diagnosis

Pred question...

Methotrexate

confusing symptoms and labs

LUPUS UK News & Views Magazine Spring 2019 - OUT NOW

More Problems

Rash on arms

Tonsillitis

new walking buddy

Sacroiliitis

Water retention

My bowel is giving up! Is this common with lupus patients?

Mast Cell Dermatology Appointment today with full flare visible! I am a very rare patient 😲 couldn’t Of asked for a nicer doctor

Still confused!

Divorce

Rheumatology this Morning

Yes!!! I’ve turned a slight corner today 😀

Connective tissue

Results from my Rheumatologist appointment

WOrld young Rheumatic Diseases Day (WORD Day) - 18th March 2019

Mycophenolate motofil generic...

Confused

I AM ANGRY WITH YOU MY BODY (coping with Lupus)

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