Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,744 members • 28,102 posts

All posts for February 2019

Photosensitive rash?

Hi can anyone advise if this sounds like a photosensitive rash. I developed a sun allergy around 4 years ago. It was diagnosed by the gp. It never itched or...

Hi can anyone advise if this sounds like a photosensitive rash. I developed a su...

Hidden

•5 years ago

18 Replies

Traveling to different time zones and medication

Does anyone know how to deal with medication schedule when traveling to different time zones such as nine hours difference? I always get ill when traveling to...

Does anyone know how to deal with medication schedule when traveling to differen...

miccika1

•5 years ago

2 Replies

Seizure

Does anyone experience warning signs before a seizure is about to happen?

Stephanie89

•5 years ago

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Bloods needed by rheumatology?

Looking for a bit of advice please, I was diagnosed with lupus in October last year and put on hydroxychloroquine. I have another appt next month and...

Looking for a bit of advice please, I was diagnosed with lupus in October last y...

Jmcb123

•5 years ago

8 Replies

EDS Patient Involvement Opportunity

***HeadsUp EDS Patients #InvolvementOpportunity*** ***Have your say in designing future research on childbearing with hypermobile Ehlers-Danlos syndrome***...

***HeadsUp EDS Patients #InvolvementOpportunity*** ***Have your say in designi...

Wendy39

•5 years ago

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Positive ANA 1:80

Hi everyone hope all are well. So I had a hospital appointment for another reason and mentioned I was awaiting an ANA result. She had a look for me and said it...

Hi everyone hope all are well. So I had a hospital appointment for another reaso...

Purplestaffie

•5 years ago

13 Replies

1st dose of Rituximab

As the title says it's my 1st dose of Rituximab next week to hopefully help bring the inflammation in my kidneys down. I know everyone is different with...

As the title says it's my 1st dose of Rituximab next week to hopefully help brin...

Hidden

•5 years ago

4 Replies

Lupus Screen / CTD Screen results

Hi guys, I’m awaiting my blood results from my first ever Lupus and I’m getting very impatient..! It’s been over 2 weeks since I had the bloods taken now (the...

Hi guys, I’m awaiting my blood results from my first ever Lupus and I’m getting ...

MemmaJ

•5 years ago

14 Replies

Shivers

Hiya all, Hope you are well! I have been shivering for about a month. I went to see my doc and he saw my ESR was up to 77! Pretty high considering I’m usually...

Hiya all, Hope you are well! I have been shivering for about a month. I went to...

LilyMistri2

•5 years ago

2 Replies

Move without pain by Martha Peterson

I’m Information gathering again! Has anyone read this book and tried the daily exercises? Were they beneficial? Best wishes Kevin

I’m Information gathering again! Has anyone read this book and tried the daily ...

Kevin53

•5 years ago

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New

Hello everyone So a little about what I been going through it’s been since January of last year where the joint pain hurting so bad It makes me cry chronic...

Hello everyone So a little about what I been going through it’s been since Janu...

Stephanie89

•5 years ago

12 Replies

😫😫😫OMG

Hi 2weeks of coughn non stop sleepless nights tried alot of home remedies counter medincines nothing helping feel as though im disturbing rest of family at...

Hi 2weeks of coughn non stop sleepless nights tried alot of home remedies counte...

Naz2005

•5 years ago

15 Replies

Positive auto antibodies

Hi all Can anyone tell me if positive auto antibodies is the same as positive ANA or could it mean anything? prior to an op when I had blood tests (in case you...

Hi all Can anyone tell me if positive auto antibodies is the same as positive AN...

Krawlins

•5 years ago

7 Replies

NEWBIE - I just want to know what's wrong with me - a diagnosis would help me to deal with my illnesses

Hi All, I'm new to this forum but reading some of the posts have given me some hope that there is a light at the end of the tunnel. I'm 44 years old and for...

Hi All, I'm new to this forum but reading some of the posts have given me some h...

Catchacowboy

•5 years ago

18 Replies

Autoimmune hepatitis

I posted a few weeks ago as my rheumatologist sent me for hepatitis blood tests and I was worried sick! I saw him today and he said I had a positive result for...

I posted a few weeks ago as my rheumatologist sent me for hepatitis blood tests ...

bleeny

•5 years ago

5 Replies

Recurrent symptoms of UTIs or UTIs that don't produce positive urine cultures

https://www.theguardian.com/society/2019/feb/20/in-pain-all-the-time-will-there-ever-be-relief-for-women-with-chronic-life-changing-utis I posted this earlier...

https://www.theguardian.com/society/2019/feb/20/in-pain-all-the-time-will-there-...

PMRpro

•5 years ago

1 Reply

Gynaecology problems

Hi anyone know if Lupus and gynaecology problems are linked? I have had issues all my life and the only relief is the pill. I’ve had two specialists say they...

Hi anyone know if Lupus and gynaecology problems are linked? I have had issues a...

Gizmo81

•5 years ago

6 Replies

Benidorm

Arrived in Benidorm yesterday afternoon. Oh my goodness we went through special assistance. I would defo recommend to anyone flying. It was so easy, cut out...

Arrived in Benidorm yesterday afternoon. Oh my goodness we went through special ...

LouLamb

•5 years ago

14 Replies

Positive ANA test, what does this mean?

Hi, It’s my first time posting on here. I’ve had a multitude of symptoms that I’ve been trying to find an answer for ☹️ My main symptom is fatigue, feels...

Hi, It’s my first time posting on here. I’ve had a multitude of symptoms that ...

Amber83

•5 years ago

6 Replies

My First Hydrotherapy Appontment

Was very enjoyable! I’ve hankered after this for a couple of years, with therapists wavering between “too many calories expended“ and “will increase your...

Was very enjoyable! I’ve hankered after this for a couple of years, with therapi...

Lupiknits

•5 years ago

6 Replies

Dilating eye drops reaction

Hi everyone, just back from a very difficult ophthalmology appointment. I have 'mild' mixed connective tissue disorder and have been on hydroxychloroquine for...

Hi everyone, just back from a very difficult ophthalmology appointment. I have '...

msporridge

•5 years ago

6 Replies

Constant nausea

Good day everyone, recently I've been realizing that I have quite a lot of nausea especially during the morning time. It's a problem to even drink water. I...

Good day everyone, recently I've been realizing that I have quite a lot of nause...

Stephanie0210

•5 years ago

13 Replies

Problems with getting blood from my veins any reasons why. is it lupus or something else.

Hi everyone thank you for reading my post. Am finding it’s getting more difficult to get blood from my veins and the blood looks lumpy not like it was years...

Hi everyone thank you for reading my post. Am finding it’s getting more difficul...

Hidden

•5 years ago

35 Replies

Sick of being sick and personality change skull head, numbness

Could weep after everything I have to start same tests again plus they seem more interested in bile malabsorption issues so checking for any vitamin signs in...

Could weep after everything I have to start same tests again plus they seem more...

Burnley1234

•5 years ago

5 Replies

Benefits but still working?

I currently work around 35 hours/week but my job involves standing pretty much the whole shift... I was diagnosed with SLE lupus in October 2018 and put on...

I currently work around 35 hours/week but my job involves standing pretty much t...

Jmcb123

•5 years ago

2 Replies

Insecticides and auto immunity

Do you live in an area where lots of insecticides are used. You may find this interesting....

Do you live in an area where lots of insecticides are used. You may find this in...

overnighthearingloss

•5 years ago

23 Replies

I’m new here with very recent diagnosis

Had a diagnosis of lupus and Sjögren’s syndrome a few days ago which gives an explanation for a whole load of symptoms. It’s really good to have a diagnosis...

Had a diagnosis of lupus and Sjögren’s syndrome a few days ago which gives an ex...

Cottar

•5 years ago

16 Replies

Low WBC & Lymphocytes

Hiya I've been taking azathioprine since December last year, I'm on 150mg daily now, last week, had a phone call off gp to say my WBC & Lymphocytes are very...

Hiya I've been taking azathioprine since December last year, I'm on 150mg daily ...

Angellealea1

•5 years ago

6 Replies

Struggling to look after myself living alone.

Hi, I live with a flatmate but I essentially live alone. I work full time and spend most evenings and weekends visiting my family so I'm not lonely and...

Hi, I live with a flatmate but I essentially live alone. I work full time and s...

eescvc

•5 years ago

9 Replies

Another update

I just thought I would post this. As some of you know I have been quite unwell for a while now. I saw Dr Ellie Korendowych in Bath on the 4th October who...

I just thought I would post this. As some of you know I have been quite unwell f...

Wrexlu

•5 years ago

8 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for February 2019

Photosensitive rash?

Traveling to different time zones and medication

Seizure

Bloods needed by rheumatology?

EDS Patient Involvement Opportunity

Positive ANA 1:80

1st dose of Rituximab

Lupus Screen / CTD Screen results

Shivers

Move without pain by Martha Peterson

New

😫😫😫OMG

Positive auto antibodies

NEWBIE - I just want to know what's wrong with me - a diagnosis would help me to deal with my illnesses

Autoimmune hepatitis

Recurrent symptoms of UTIs or UTIs that don't produce positive urine cultures

Gynaecology problems

Benidorm

Positive ANA test, what does this mean?

My First Hydrotherapy Appontment

Dilating eye drops reaction

Constant nausea

Problems with getting blood from my veins any reasons why. is it lupus or something else.

Sick of being sick and personality change skull head, numbness

Benefits but still working?

Insecticides and auto immunity

I’m new here with very recent diagnosis

Low WBC & Lymphocytes

Struggling to look after myself living alone.

Another update

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