Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,725 members • 28,086 posts

All posts for February 2019

Metotroxat

Hi everyone! Is Alkohol during the treatment with Metotroxat forbieden?

Tala59

•5 years ago

1 Reply

Post-herpetic neuralgia

I contracted shingles in May 2017 and have suffered ever since with post-herpetic neuralgia on my left shoulder blade. The pain is immense and can travel into...

I contracted shingles in May 2017 and have suffered ever since with post-herpeti...

Hidden

•5 years ago

9 Replies

Life with Lupus

Barnclown gave me the name Barefoot Gardener, due to the fact I have had to go barefoot 100% of the time for 2 plus years due to Lupus skin issues. Yes, in...

Barnclown gave me the name Barefoot Gardener, due to the fact I have had to go b...

Tiras

•5 years ago

27 Replies

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Lumpy lymph nodes

Hi everyone. Looking for reassurance I think. Had swollen lymph nodes in armpit and neck checked out over past 18 months...told nothing to worry about. Noe...

Hi everyone. Looking for reassurance I think. Had swollen lymph nodes in armpit...

Flueby

•5 years ago

7 Replies

Home 😕

Came home from Benidorm on Monday. I didn’t get to my bed until 10pm. Then was up at half 7 for work 😑 I felt amazing when I was away no pains and I could...

Came home from Benidorm on Monday. I didn’t get to my bed until 10pm. Then was u...

LouLamb

•5 years ago

12 Replies

Lupus

Hello everyone, it has been a while since I made a post, probably well over a year. On top of SLE I have now been diagnosed now with cancer. My Lupus skin...

Hello everyone, it has been a while since I made a post, probably well over a ye...

Tiras

•5 years ago

52 Replies

Treatment card holders

Looking for information if anyone can help, I'm looking to seeing you can get treatment card holders. I now have to carry a steroid card, warfarin card and a...

Looking for information if anyone can help, I'm looking to seeing you can get tr...

Hidden

•5 years ago

10 Replies

How can I help

Hi guys i am new to the group and wanted to introduce myself. I was diagnosed 36 years ago with SLE lupus. Today at 56 and for the past 10 years I have been...

Hi guys i am new to the group and wanted to introduce myself. I was diagnosed 36...

Sue6

•5 years ago

7 Replies

Does anyone know what these marks are??? First one appeared I thought it was a burn even though it was on elbow. Leaves a scar behind

Any idea? First one appeared about 2 weeks ago. Convinced myself it was just a burn. Took ages to heal. No itching like a bite would and no pin mark in the...

Any idea? First one appeared about 2 weeks ago. Convinced myself it was just a...

Lisalou19

•5 years ago

4 Replies

Sunscreen for SLE

Hi guys, Does anyone have sunscreen prescribed for their lupus? I did ask for it to be added to my medication as I have SLE but feel like I’m bugging my docs...

Hi guys, Does anyone have sunscreen prescribed for their lupus? I did ask for i...

ButterflyEffect96

•5 years ago

26 Replies

Medscape article: Gut microbes may predict lupus flares

Hope this link works. I don't profess to understand everything in it but it may mean more to some of our better informed and more knowledgeable members....

Hope this link works. I don't profess to understand everything in it but it may ...

Justinealexx

•5 years ago

1 Reply

made a new friend

while walking on Monday I made a new friend who looked how I felt.

suzannah16

•5 years ago

2 Replies

1st dose of Rituximab

Had my 1st dose of Rituximab yesterday and it all went as well as it could've. I probably could've went back to work today but feel a little tired and as my...

Had my 1st dose of Rituximab yesterday and it all went as well as it could've. I...

Hidden

•5 years ago

6 Replies

Finger and feet pain any advice/hints/tips please! :)

Anyone get severe finger and feet pain? It’s driving me insane! Any hints or tips? I’ve started wearing gloves as they start by getting so cold and then begin...

Anyone get severe finger and feet pain? It’s driving me insane! Any hints or tip...

Angie245

•5 years ago

8 Replies

Does anyone have ideas what my many symptoms and health conditions may be or linked to as I am struggling to understand what’s wrong with me

Hi everyone am struggling each day with various symptoms I start the day with a sore throat, sore tongue amd neck and I have a bitter taste in my mouth and I...

Hi everyone am struggling each day with various symptoms I start the day with a ...

Hidden

•5 years ago

1 Reply

Travelling

Good day everyone. So it's been almost 3 years since I've been diagnosed. However, this is the first time that I would be travelling. Is there anything that I...

Good day everyone. So it's been almost 3 years since I've been diagnosed. Howeve...

Stephanie0210

•5 years ago

5 Replies

Toe problems

Hi all, I have a question regarding my toes. I find that a few times a day my toes lock (feels like the joints inside lock up) and then feel like toes are bent...

Hi all, I have a question regarding my toes. I find that a few times a day my to...

Benne09

•5 years ago

8 Replies

Moods/Emotions

Hi all, so I was wondering if Lupus effects moods and emotions. I often feel down and a little depressed. I understand that it can lead to depression but I...

Hi all, so I was wondering if Lupus effects moods and emotions. I often feel dow...

redredblue

•5 years ago

13 Replies

Failure of Drs and specialists in recognising and treating lupus and other health conditions.

I just had to write this post today. After getting a double appointment with a new lady dr yesterday I thought we could look at my long list of symptoms and as...

I just had to write this post today. After getting a double appointment with a n...

Hidden

•5 years ago

14 Replies

My opinion

I’m not able to be technologically correct, but I feel that this ap is a useful tool. I’m not on it a lot, but have learned so much regarding the...

I’m not able to be technologically correct, but I feel that this ap is a useful ...

Mean-time

•5 years ago

2 Replies

New Diagnosis Hypothyroidism

Hi all Firstly, hope you are all doing well? I have once again bring really ill since Nov, had tonsillitis twice and a chest infection that just would not go....

Hi all Firstly, hope you are all doing well? I have once again bring really ill ...

LSurtees

•5 years ago

7 Replies

Reduced methotrexate and feeling a little tired with a dry mouth 🤔

Hi friends! Diagnosed with lupus in March 2017, and have been doing pretty well on 2 plaquenil (1 morning, 1 night), 20mg methotrexate and 10mg folic acid...

Hi friends! Diagnosed with lupus in March 2017, and have been doing pretty well ...

kyliexc

•5 years ago

1 Reply

Lupus test?

Hi! I posted on this forum a little while back (though can't see my original post any more - no idea what I did there!). I've had a long list of health...

Hi! I posted on this forum a little while back (though can't see my original pos...

Bubble89

•5 years ago

12 Replies

Results regarding hand x- rays

This post is more of a statement so you dont have to comment if you don’t want to. About a month ago I believe it was, I noticed that My hands were growing...

This post is more of a statement so you dont have to comment if you don’t want t...

JennaShi

•5 years ago

15 Replies

I'd like to introduce u to my new best friend...

Hi all Meet the new man in my life... I've called him Brian!! I got a brand new wheelchair on Xmas Eve n was hoping that I'd be able to get myself around..the...

Hi all Meet the new man in my life... I've called him Brian!! I got a brand new...

Krazykat26

•5 years ago

18 Replies

Sciatica/cramp/back pain

I suffered badly with back pain when my lupus first presented. In more recent years it has been quiet. But over the last month or so I have felt the...

I suffered badly with back pain when my lupus first presented. In more recent y...

overnighthearingloss

•5 years ago

4 Replies

No notes

Good morning all has anyone heard of someone having Lupus flares but all bloods showing normal even though you have an infection , it keeps happening, also...

Good morning all has anyone heard of someone having Lupus flares but all bloods ...

Kimmi56

•5 years ago

5 Replies

Independent mobility assessment for blue badge. Anyone had one?

I've just received a letter from my local council for a IMA with a physiotherapist for this Thursday to assess my eligibility for a blue badge. I'm really...

I've just received a letter from my local council for a IMA with a physiotherapi...

eescvc

•5 years ago

4 Replies

Cataract update

Hello all. It's been a hectic couple of weeks. MRI scan on my hip last week. Awaiting results for that one but a wholly unpleasant 50 minute experience that...

Hello all. It's been a hectic couple of weeks. MRI scan on my hip last week. Awa...

Justinealexx

•5 years ago

10 Replies

Can dry mouth /Sjogrens increase digestive problems?

I had one of those dreams when you’re about to take an exam and realise you haven’t studied. Last night it was Biology ‘O’ Level ( yes that dates me). I woke...

I had one of those dreams when you’re about to take an exam and realise you have...

Lupiknits

•5 years ago

34 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for February 2019

Metotroxat

Post-herpetic neuralgia

Life with Lupus

Lumpy lymph nodes

Home 😕

Lupus

Treatment card holders

How can I help

Does anyone know what these marks are??? First one appeared I thought it was a burn even though it was on elbow. Leaves a scar behind

Sunscreen for SLE

Medscape article: Gut microbes may predict lupus flares

made a new friend

1st dose of Rituximab

Finger and feet pain any advice/hints/tips please! :)

Does anyone have ideas what my many symptoms and health conditions may be or linked to as I am struggling to understand what’s wrong with me

Travelling

Toe problems

Moods/Emotions

Failure of Drs and specialists in recognising and treating lupus and other health conditions.

My opinion

New Diagnosis Hypothyroidism

Reduced methotrexate and feeling a little tired with a dry mouth 🤔

Lupus test?

Results regarding hand x- rays

I'd like to introduce u to my new best friend...

Sciatica/cramp/back pain

No notes

Independent mobility assessment for blue badge. Anyone had one?

Cataract update

Can dry mouth /Sjogrens increase digestive problems?

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