Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,811 members • 28,149 posts

All posts for December 2018

£10 Christmas Bonus

I received a letter from DWP telling me I shall have a £10 bonus because of my PIP. I’ve been planning all year on what to spend it on. I vaguely remember the...

I received a letter from DWP telling me I shall have a £10 bonus because of my P...

Lupiknits

•5 years ago

13 Replies

Am I just lazy?

Hi again I’ve felt so crappy and exhausted physically and mentally drained my whole body is aching I’m not sleeping (nothing new there) I’ve had to cancel a...

Hi again I’ve felt so crappy and exhausted physically and mentally drained my wh...

Jammyonion13

•5 years ago

10 Replies

sinusitus issues..

I also meant to add to my post that 4 years ago my step daughter died of sepsis aged 44, i was in close contact before she was admitted to hospital and then...

I also meant to add to my post that 4 years ago my step daughter died of sepsis ...

dees2201

•5 years ago

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continual sinusitas for 11 months !!!!!

Couple of questions I hope i may be able to get help with.. Firstly iv had this now continually for 11 months, iv had anti- biotics, loads of different nasal...

Couple of questions I hope i may be able to get help with.. Firstly iv had this ...

dees2201

•5 years ago

4 Replies

Insomnia

I have been taking zoplicone on and off for many years with amitriplyn ,it helps with my insomnia as I haven’t slept well for years as I am 67 years old and...

I have been taking zoplicone on and off for many years with amitriplyn ,it helps...

Waytreeteresa

•5 years ago

1 Reply

I’m biased, I think Health Unlocked is superb!!

This site provides a very informative and supportive forum for Lupus patients and their families and it’s totally free. Many users are also members of Lupus...

This site provides a very informative and supportive forum for Lupus patients an...

Kevin53

•5 years ago

2 Replies

Is this a butterfly rash?

Hi all, Thankyou for having me here! I’d just like to give some back ground ... I have suffered from Raynauds for a good few years I have three children I gave...

Hi all, Thankyou for having me here! I’d just like to give some back ground ... ...

Chaz1226

•5 years ago

24 Replies

Pain in wrist esp in cold?

Hi, I have lupus do have wrist, hand and thumb pain anyway but last 10 days or do have had really sharp sudden pain on under side of my wrist lasting seconds...

Hi, I have lupus do have wrist, hand and thumb pain anyway but last 10 days or d...

Sara_A

•5 years ago

4 Replies

Although re MS, this article is so inspiring to all with autoimmune.. but £65 for a candle?! Er....ummm

https://www.getthegloss.com/article/i-learned-the-hard-way-why-wellness-matters?utm_source=Get+the+Gloss+weekly&utm_campaign=bce4667f47-Sunday+8th+December+2018

https://www.getthegloss.com/article/i-learned-the-hard-way-why-wellness-matters?...

DJK99

•5 years ago

3 Replies

Advise please guys x

Heya guys I’ve been really ill going through my diagnosis of lulus still and it’s been 4week and I still haven’t got a letter to go see a rheumatologist...

Heya guys I’ve been really ill going through my diagnosis of lulus still and it’...

Elishaannxx

•5 years ago

16 Replies

ANA blood test

Hi. I have had blood tests recently as dr thinks possibility of autoimmune disease due to family history and CKD. When I look through my results I can’t see...

Hi. I have had blood tests recently as dr thinks possibility of autoimmune disea...

Redsong

•5 years ago

6 Replies

Lung transplant

Lung transplant Hi guys and gals my name is Dawn I m with harefield hospital and hoping to get put on lung transplant list I just waiting for the angio they...

Lung transplant Hi guys and gals my name is Dawn I m with harefield hospital and...

Survivor23

•5 years ago

3 Replies

Cancer update

I would like to thank each and every one of for the wonderful supportive replies. They mean so very much to me. He started his chemo yesterday three days...

I would like to thank each and every one of for the wonderful supportive replies...

Josieswolf

•5 years ago

4 Replies

The common cold and nasal sores! Does it make them worse

When I’m sick all hell let’s loose, my body doesn’t seem to cope too well. Then there’s these nasal sores 😔 my nose is extremely painful right now, and I’m...

When I’m sick all hell let’s loose, my body doesn’t seem to cope too well. Then...

Lisalou19

•5 years ago

4 Replies

Work Update !

So just an update on the work front. I spoke to one of the deputy heads at the school yesterday and he said I will be moving to owls class from January. I'm...

So just an update on the work front. I spoke to one of the deputy heads at the s...

LouLamb

•5 years ago

4 Replies

Rheumatology appointment in January

Hi all, it's my first post, I'm hoping I can get some thoughts from you... I first went to my GP about my aches and pains 7 years ago, they tested for...

Hi all, it's my first post, I'm hoping I can get some thoughts from you... I fir...

JaxPow

•5 years ago

3 Replies

Hello..

Hi Guys, I'm quite new to this, I have lupus and autoimmune hepatitis. I'm looking to gain another information as possible about these conditions so I can...

Hi Guys, I'm quite new to this, I have lupus and autoimmune hepatitis. I'm looki...

SianB11

•5 years ago

2 Replies

Flare from stretching???

Hello lovelies! Weird thing happened. I had knee surgery and part of rehab is a hardcore stretching program. It’s about 1.5 hours per session at least 3-4...

Hello lovelies! Weird thing happened. I had knee surgery and part of rehab is a...

katidid

•5 years ago

3 Replies

ALERT on medical records so we get the correct care if admitted via A&E - please ask for this!

Hello, I don't know how many people have this already or if it's available at all hospitals. I had a meeting recently with my local hospital where we discussed...

Hello, I don't know how many people have this already or if it's available at al...

Melba1

•5 years ago

13 Replies

my rheumy got excited

Rheumy appointment today. I gave her my written list of pains etc and she got excited saying it sounded like fibromyalgia and she had a leaflet. She is also...

Rheumy appointment today. I gave her my written list of pains etc and she got ex...

suzannah16

•5 years ago

27 Replies

Good morning everyone

I just wanted to tell you how grateful I am to be a part of this forum. God knows it is not easy. But you amazing and wonderful people are what keeps me going...

I just wanted to tell you how grateful I am to be a part of this forum. God know...

Lili18

•5 years ago

8 Replies

Cancer update

Sorry not on for a while. I had to rush my husband into hospital yesterday. We were told that his cancer has spread all over his abdominal organs. The damage...

Sorry not on for a while. I had to rush my husband into hospital yesterday. We w...

Josieswolf

•5 years ago

26 Replies

Just because I've got Lupus it doesn't mean every pain I should be prescribed mind altering drugs

I have a high intolerance to opiates, and drugs such as amytripline, gapapentin, etc. Please note they are great drugs for some just not for me. They turn me...

I have a high intolerance to opiates, and drugs such as amytripline, gapapentin,...

EHSs

•5 years ago

15 Replies

Fractured elbow 😭

Hi So was in hospital last week with chest and sinus infection which caused a flare. Discharged on Friday and Tuesday I decide to back to work... I slipped on...

Hi So was in hospital last week with chest and sinus infection which caused a f...

imzi

•5 years ago

2 Replies

fingertip sensitivity

anyone here experiencing extreme fingertip, bottom of foot sensitivity? i have lupus nephritis and just went on a bunch of new mediciation including...

anyone here experiencing extreme fingertip, bottom of foot sensitivity? i have...

originalsweetie

•5 years ago

4 Replies

Research Survey - Over 160 responses so far!

***This survey is now closed. Thank you to everyone who took part. You can read more about the future of this project at...

***This survey is now closed. Thank you to everyone who took part. You can read ...

Paul_Howard

Partner•5 years ago

1 Reply

Quick Question: Private v NHS Consultation / Treatment. How does this work in practise...or does it?

Hi All Further to my last post about an appaling consultation with current rheumatologist I'm trying to get my dizzy head around the above issue. I've read...

Hi All Further to my last post about an appaling consultation with current rheum...

Foggyme

•5 years ago

20 Replies

Hi just wanted to know i know ...

Hi just wanted to know i know its true we put weight on with steriods is this same for everyone i know ive put loads on feel like embarrassment it was my...

Hi just wanted to know i know its true we put weight on with steriods is this sa...

Naz2005

•5 years ago

2 Replies

Breathing problems

My wife has made remarkable progress since being diagnosed with SLE last year and suffering many years undiagnosed before this. This is thanks to a few expert...

My wife has made remarkable progress since being diagnosed with SLE last year an...

jimbo1605

•5 years ago

24 Replies

Cupping

Has anyone on here tried cupping? Is it safe if you have lupus? Thanks

HannahLupus

•5 years ago

4 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for December 2018

£10 Christmas Bonus

Am I just lazy?

sinusitus issues..

continual sinusitas for 11 months !!!!!

Insomnia

I’m biased, I think Health Unlocked is superb!!

Is this a butterfly rash?

Pain in wrist esp in cold?

Although re MS, this article is so inspiring to all with autoimmune.. but £65 for a candle?! Er....ummm

Advise please guys x

ANA blood test

Lung transplant

Cancer update

The common cold and nasal sores! Does it make them worse

Work Update !

Rheumatology appointment in January

Hello..

Flare from stretching???

ALERT on medical records so we get the correct care if admitted via A&E - please ask for this!

my rheumy got excited

Good morning everyone

Cancer update

Just because I've got Lupus it doesn't mean every pain I should be prescribed mind altering drugs

Fractured elbow 😭

fingertip sensitivity

Research Survey - Over 160 responses so far!

Quick Question: Private v NHS Consultation / Treatment. How does this work in practise...or does it?

Hi just wanted to know i know ...

Breathing problems

Cupping

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