Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,811 members • 28,149 posts

All posts for December 2018

ITS DESTROYED ME ......

😥😥😥

Naz2005

•5 years ago

2 Replies

LIFE ......

😥😥😥

Naz2005

•5 years ago

2 Replies

FATTY

😭😭😭

Naz2005

•5 years ago

1 Reply

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SAME STRUGGLE ...

SAME STRUGGLE

Naz2005

•5 years ago

11 Replies

The words that mold us

I was checking a new message from my doctor who is ordering a cardio study. I scrolled through mostly to double check the day, time, location, etc. But then I...

I was checking a new message from my doctor who is ordering a cardio study. I sc...

katidid

•5 years ago

3 Replies

Blurry vision

I’ve got a red mark under my left eye which appeared roughly Thursday I think . It’s getting redder and sore. Today at work just before half 8 I got blurry...

I’ve got a red mark under my left eye which appeared roughly Thursday I think . ...

LouLamb

•5 years ago

11 Replies

New to this site

Hi all. This is my first time on a forum. I have been diagnosed with lupus and rheumatoid arhritus I also have a mechanical mitral valve and on going heart...

Hi all. This is my first time on a forum. I have been diagnosed with lupus and r...

Tia666

•5 years ago

12 Replies

Pip award

Has any one with lupus been awarded lpip I have lupus fibromyalgia arthritis in feet vit d defiency calcium defiency, b12 defiency plus a few more illnesses...

Has any one with lupus been awarded lpip I have lupus fibromyalgia arthritis in ...

Jill41

•5 years ago

1 Reply

Tests

Here are the tests listed x

Chaz1226

•5 years ago

3 Replies

Will I always look like this ?

I’m struggling with symptoms today, anyone else look like me, what do you say when people ask what’s wrong with your face? How can I make it go away? Feeling...

I’m struggling with symptoms today, anyone else look like me, what do you say wh...

Chaz1226

•5 years ago

25 Replies

Methatrexate and sickness

Hi I’ve not posted for a long time I’ve had a very good run the Meds seem to be working very well after 3 crappy yrs anyhow my daughter is now on methatrexate...

Hi I’ve not posted for a long time I’ve had a very good run the Meds seem to be ...

Ianrussell69

•5 years ago

7 Replies

Something I have been watching online.

There's an online series running at the moment. It's currently about halfway through but they usually do a replay weekend at the end where you can catch any...

There's an online series running at the moment. It's currently about halfway thr...

overnighthearingloss

•5 years ago

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Positive Ana then negative

Hi everyone. 4 weeks ago my pcp ordered blood work because he suspected I had a thyroid issue. He also did an Ana test. The Ana test came back positive and I...

Hi everyone. 4 weeks ago my pcp ordered blood work because he suspected I had a ...

Kwilliams123084

•5 years ago

5 Replies

And this is me on a good day....

My extreme chronic fatigue has taken an extra twist as I add hydrocortisone into my steroid mix, and I'd be delighted if anyone has thoughts or experiences to...

My extreme chronic fatigue has taken an extra twist as I add hydrocortisone into...

whisperit

•5 years ago

36 Replies

Anybody Else Experienced This?

Hi Everyone Hope everyone is managing to keep warm and as well as possible for all us autoimmune warriors in the build up to the festive period . X Its been a...

Hi Everyone Hope everyone is managing to keep warm and as well as possible for ...

Mrsdoozer

•5 years ago

10 Replies

Swelling above ankles

Hello all my anxiety is kicking in, all night I’ve been having horrible throbbing knees , I took my socks off and noticed under the band line my legs have...

Hello all my anxiety is kicking in, all night I’ve been having horrible throbbin...

Chaz1226

•5 years ago

6 Replies

I feel worry about it .

Hi , I’m 36 old lady and recently have found out that I have been diagnosed with lupus . This really effect my skin and loosing my hair .

Hi , I’m 36 old lady and recently have found out that I have been diagnosed with...

Zohreh

•5 years ago

6 Replies

WHO IS MENTAL

Hi been suffering with right head pain neck & shoulder pain head has been goin numb & cold from right side been to GP before he said i think you got mental...

Hi been suffering with right head pain neck & shoulder pain head has been goin n...

Naz2005

•5 years ago

16 Replies

Update - one step closer!

Hello everyone Thankyou all for your support and guidance! I’d just like to update everybody, I managed to get an appointment with my GP today, I was sent to...

Hello everyone Thankyou all for your support and guidance! I’d just like to upda...

Chaz1226

•5 years ago

7 Replies

First NHS appointment at The Kellgren Centre MRI

Hi everyone, I promised I’d update through this journey with my second opinion after the first rheumatologist I saw dismissed my bloods and was unhelpful to...

Hi everyone, I promised I’d update through this journey with my second opinion a...

Littlemisssunshine87

•5 years ago

7 Replies

Thank you to everyone who contributed to the recent research study

Hi everyone, I want to say a massive THANK YOU to everyone who took the time to share their experiences about their journey to diagnosis and the level...

Hi everyone, I want to say a massive THANK YOU to everyone who took the time to ...

Paul_Howard

Partner•5 years ago

3 Replies

Throat problems

Hello I am just asking for advice. I have SLE and loads of other things but had a bad chest infection and after three lots of antibiotics two weeks ago I lost...

Hello I am just asking for advice. I have SLE and loads of other things but had ...

Catcon01

•5 years ago

7 Replies

shocking

Beggining to realise that getting diagnosis and or treatment is nearly impossible had to go to hospital yesterday I'm away from home and was told that quote...

Beggining to realise that getting diagnosis and or treatment is nearly impossibl...

Burnley1234

•5 years ago

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Plasma or Stem cell treatment use with Lupus people

I've been told I need a new knee by my specialist and my second opinion just wants to inject my knee which makes me think one is extreme the other not. The...

I've been told I need a new knee by my specialist and my second opinion just wan...

Roanna

•5 years ago

4 Replies

Follow up on WOWZERS!

Check this out. Sooooooo many of us are having similar experiences! For me it was my blood work and pelvic MRI. Oh! I found a copy of an ECG from a year and a...

Check this out. Sooooooo many of us are having similar experiences! For me it wa...

katidid

•5 years ago

4 Replies

Presentation - Annual Lupus Conference!

Hi all, Sorry for the delay, but here is the presentation given by Dr. Wallace at the national Lupus convention this past September in LA. Sorry about the...

Hi all, Sorry for the delay, but here is the presentation given by Dr. Wallace a...

katidid

•5 years ago

2 Replies

Any advice greatly appreciated.

Hi all and hope you are all as well as you can be. Winter can be a pretty tough time for a lot of you I know. It's been a while since I have posted here as...

Hi all and hope you are all as well as you can be. Winter can be a pretty tough ...

Georgie-girl

•5 years ago

8 Replies

Lupus diagnoses turns to fibromyalgia

Hi guys, I haven't been on the forum for a while. I suppose I was feeling a bit fed up. I was diagnosed with with Lupus in February I think after blood tests...

Hi guys, I haven't been on the forum for a while. I suppose I was feeling a bit ...

ChantelF

•5 years ago

32 Replies

Advice

I've been getting headaches now for 2mths doctor wants me to start amitriptyline 2 a day for 3 days then take 3 a day for 2 days then 4 at night but unsure...

I've been getting headaches now for 2mths doctor wants me to start amitriptyline...

suemac

•5 years ago

1 Reply

Just a Moan because I need someone to hear it!

The cold snap is affectingly me badly and I think longingly of the three meds that I couldn’t tolerate. The dog, because the winds were so strong and cold,...

The cold snap is affectingly me badly and I think longingly of the three meds th...

Lupiknits

•5 years ago

22 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for December 2018

ITS DESTROYED ME ......

LIFE ......

FATTY

SAME STRUGGLE ...

The words that mold us

Blurry vision

New to this site

Pip award

Tests

Will I always look like this ?

Methatrexate and sickness

Something I have been watching online.

Positive Ana then negative

And this is me on a good day....

Anybody Else Experienced This?

Swelling above ankles

I feel worry about it .

WHO IS MENTAL

Update - one step closer!

First NHS appointment at The Kellgren Centre MRI

Thank you to everyone who contributed to the recent research study

Throat problems

shocking

Plasma or Stem cell treatment use with Lupus people

Follow up on WOWZERS!

Presentation - Annual Lupus Conference!

Any advice greatly appreciated.

Lupus diagnoses turns to fibromyalgia

Advice

Just a Moan because I need someone to hear it!

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