Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,738 members • 28,097 posts

All posts for December 2018

Is this a typical lupus rash/anyone had this?

As the title says Thanks and Merry Christmas. And can you only add one picture??

As the title says Thanks and Merry Christmas. And can you only add one picture??...

Comeonpeeps

•5 years ago

23 Replies

Shingles

Would be keen to hear from anyone with S.L.E. & Shingles. !st time I have had Shingles (S.L.E. 9yrs). A bit surprised at how painful it is & how low I feel....

Would be keen to hear from anyone with S.L.E. & Shingles. !st time I have had Sh...

Kazunlocked

•5 years ago

7 Replies

Reactions to all medication help and advice needed.

Hi have been on the Hydroxychloroquine for a few weeks. Am thinking I am allergic to it as after every tablet I take I start to feel quite unwell then after...

Hi have been on the Hydroxychloroquine for a few weeks. Am thinking I am allergi...

Hidden

•5 years ago

26 Replies

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First full day AND night out!!

Hi all, Big win - I woke up at a normal hour and despite my joints being cranky, I pushed on and did all the Christmas shopping, errand running, did my hair...

Hi all, Big win - I woke up at a normal hour and despite my joints being cranky...

katidid

•5 years ago

6 Replies

A little help for fellow anxiety sufferers.

Hope this helps some of you.

Bronn

•5 years ago

1 Reply

First Christmas

Hi, I’m new! Recently diagnosed so it’s my first Christmas with lupus diagnosis. I’ve read your posts and it’s good to hear others story. It’s quite lonely,...

Hi, I’m new! Recently diagnosed so it’s my first Christmas with lupus diagnosis....

Greentomatoes

•5 years ago

13 Replies

Night cramps 😢 and Night heat

Cramp in my legs and feet nearly every night. So painful I can barely move my leg an inch. I've tried massage, altering my electric bed so's raising my legs,...

Cramp in my legs and feet nearly every night. So painful I can barely move my le...

Bronn

•5 years ago

20 Replies

Wishing you all the very best at Christmas time, and hoping your health is kinder to you in 2019. Xx

Just to say to each and everyone one of you, you are amazing for continuing through your struggles, you are strong for still standing and internally beautiful...

Just to say to each and everyone one of you, you are amazing for continuing thro...

Lisalou19

•5 years ago

8 Replies

how sleepy does amitriptyline make you?

I am on fluoxetine and have now been prescribed amitriptyline for pain relief, the fluoxetine is already helping me sleep better but as I have a stoma i'm...

I am on fluoxetine and have now been prescribed amitriptyline for pain relief, t...

suzannah16

•5 years ago

18 Replies

Ouch!

Greetings! I am rather glad this year is winding down. But I guess one more thing had to happen. I broke my toe yesterday. I am wondering if this can trigger...

Greetings! I am rather glad this year is winding down. But I guess one more thin...

Meg03

•5 years ago

3 Replies

overly sensitive taste buds

does anyone else have overly sensitive taste buds, I even find tomato ketchup to be too spicy. it's not an infection just can't eat anything with even a hint...

does anyone else have overly sensitive taste buds, I even find tomato ketchup to...

suzannah16

•5 years ago

15 Replies

I have a new superpower

A while ago, I posted about the power this condition apparently gives me to read clinical reports by telepathy (you know, the way doctors assume that you have...

A while ago, I posted about the power this condition apparently gives me to read...

whisperit

•5 years ago

24 Replies

Video Capillaroscopy! what is this? has anyone had this done? what is the purpose of it? can not find much information on the internet

My first nhs appointment at guys on the 11th December. I am now due to go back on the 4th January. So grateful for the short waiting time, I initially...

My first nhs appointment at guys on the 11th December. I am now due to go back ...

Lisalou19

•5 years ago

9 Replies

Leg cramps or called Charlie horse

Hi Hope all doing well ! Does anyone suffer from leg cramps or Charlie horse muscle spasms I don’t know what to do I I have done massage bathing soaking heat...

Hi Hope all doing well ! Does anyone suffer from leg cramps or Charlie horse mu...

Mystik

•5 years ago

13 Replies

burden

Who else feels like a burden to there family and feel like they can't speak to them

Who else feels like a burden to there family and feel like they can't speak to t...

Louiser18

•5 years ago

8 Replies

I need some advice please .

Hi , I have been suffering with my both hands skin and also my foot which is really painful and itching . It’s so hard to using my hand to do anything’s . I...

Hi , I have been suffering with my both hands skin and also my foot which is rea...

Zohreh

•5 years ago

15 Replies

Azathioprine and chicken pox

Hi all. I am on azathiaprine and prednisolone. I am due to spend Christmas with family including my baby nephew who has come down with chicken pox! I have...

Hi all. I am on azathiaprine and prednisolone. I am due to spend Christmas with...

Jessie_2014

•5 years ago

6 Replies

Doxycycline

I have been prescribed 2 wks. of doxycycline for a chest infection. I have cutaneous lupus (not SLE) and sjogren's syndrome. The leaflet says to tell your...

I have been prescribed 2 wks. of doxycycline for a chest infection. I have cutan...

Biddy47

•5 years ago

18 Replies

First rheumatologist appointment

I got my letter this morning for my first rheumatologist appointment I’m abit nervous as I don’t know what to expect and I don’t know what to ask, can anybody...

I got my letter this morning for my first rheumatologist appointment I’m abit ne...

Elishaannxx

•5 years ago

8 Replies

Well that didn’t last long.... prednisolone

Only been taking prednisolone for 5 days at 7.5mg and had to taper down to 5mg yesterday. The side effects I’m having are awful, it’s made the things I need...

Only been taking prednisolone for 5 days at 7.5mg and had to taper down to 5mg y...

Littlemisssunshine87

•5 years ago

10 Replies

TWO TREES AT CHRISTMAS (A CHRISTMAS WISH)

It’s Christmas time. A time for miracles. A time, I stubbornly insisted, for a real Christmas tree. ‘But the needles,’ my mother said. ‘The mess...’ And even...

It’s Christmas time. A time for miracles. A time, I stubbornly insisted, for a r...

lupusinflight

•5 years ago

28 Replies

Pip assesment

Just returned from pip assesment. Feel totally wrung out!!!! Kept waiting for an hour. Questions very loaded and not very relevant to lupus. Assesor seemed...

Just returned from pip assesment. Feel totally wrung out!!!! Kept waiting for an...

Tia666

•5 years ago

6 Replies

C3 and C4

Hi. How fast do your c3 and c4 complements grow? Have these values gone to normal for you and how long did that Take? Thank you.

Hi. How fast do your c3 and c4 complements grow? Have these values gone to norma...

Claricemary

•5 years ago

5 Replies

Pip

Morning all. I have a pip assesment today and am so nervous. Have read so many negative outcomes about it. Any advice or success stories?? X

Morning all. I have a pip assesment today and am so nervous. Have read so many n...

Tia666

•5 years ago

5 Replies

Gut bacteria in lupus

Folks, did anyone do any gut bacteria tests? There is so much talk about gut microbiome influencing lupus...I did some tests and found out that I have gut...

Folks, did anyone do any gut bacteria tests? There is so much talk about gut mic...

miccika1

•5 years ago

43 Replies

Merry Christmas from LUPUS UK (Office Closing Dates)

We would like to wish everyone a Merry Christmas and we hope you all have a wonderful time during this festive season. The LUPUS UK National Office will be...

We would like to wish everyone a Merry Christmas and we hope you all have a wond...

Paul_Howard

Partner•5 years ago

37 Replies

ME(CFS) & Lupus

Hi all, Do you have any information about the similarities or cross over between Lupus fatigue and the fatigue experienced by CFS/ME individuals. I've finished...

Hi all, Do you have any information about the similarities or cross over between...

katidid

•5 years ago

110 Replies

REALITY

TRUTH.....

Naz2005

•5 years ago

10 Replies

SAME FEELING ALL THE TIME ....

😫😫😫

Naz2005

•5 years ago

Be the first to reply

SORRY .....

😥😥😥

Naz2005

•5 years ago

2 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for December 2018

Is this a typical lupus rash/anyone had this?

Shingles

Reactions to all medication help and advice needed.

First full day AND night out!!

A little help for fellow anxiety sufferers.

First Christmas

Night cramps 😢 and Night heat

Wishing you all the very best at Christmas time, and hoping your health is kinder to you in 2019. Xx

how sleepy does amitriptyline make you?

Ouch!

overly sensitive taste buds

I have a new superpower

Video Capillaroscopy! what is this? has anyone had this done? what is the purpose of it? can not find much information on the internet

Leg cramps or called Charlie horse

burden

I need some advice please .

Azathioprine and chicken pox

Doxycycline

First rheumatologist appointment

Well that didn’t last long.... prednisolone

TWO TREES AT CHRISTMAS (A CHRISTMAS WISH)

Pip assesment

C3 and C4

Pip

Gut bacteria in lupus

Merry Christmas from LUPUS UK (Office Closing Dates)

ME(CFS) & Lupus

REALITY

SAME FEELING ALL THE TIME ....

SORRY .....

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Did you experience more frequent and/or severe lupus flares during the hot summer 2018 compared to summer 2017? (Please explain in comments)

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