Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,744 members • 28,102 posts

All posts for November 2018

WHAT & WHO WAS I ???

I have forgotten what its like to be normal to do everything i used to like the floor been taken beneath me struggling every day what a terrifying & scarry...

I have forgotten what its like to be normal to do everything i used to like the ...

•6 years ago

DOES ANYBODY KNOW OR HELP ???

Hi as i have been very ill & people have become aware i was told that i should cliam PIP as i have LUPS (sle) FIBROMYALGIA type 2DIABETES suffer with VERTIGO &...

Hi as i have been very ill & people have become aware i was told that i should c...

•6 years ago

Asked for copies of rheumy to GP letters copied to me as well. Actually happened!

I've had two rheumy appts in the last two weeks. The first, which I wrote earlier about, has me joining a wide ranging research into auto immune disorders ....

I've had two rheumy appts in the last two weeks. The first, which I wrote earlie...

•6 years ago

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Tapering prednisone

Hi guys I have a question, hopefully you can help me. I started with 30 mg prednisone and was tapered slowly to 10 mg on 8 October. It’s been a month now on...

Hi guys I have a question, hopefully you can help me. I started with 30 mg pred...

•6 years ago

Help

Still waiting for either clarification on diagnosis now been told I (have a systemic disorder) by doctor nothing else he's always waiting for direction from...

Still waiting for either clarification on diagnosis now been told I (have a syst...

•6 years ago

Is this a butterfly rash?

I've been feeling sick on and off for awhile now, and recently started having extreme fatigue as well as pleuritic chest pain and lung inflammation, and...

I've been feeling sick on and off for awhile now, and recently started having ex...

•6 years ago

Pain in neck and base of skull

Hello everyone, I have had Lupus and Underactive Thyroid for over 10 years, fully medicated on methotrexate and pleqenil etc and so am now used to the...

Hello everyone, I have had Lupus and Underactive Thyroid for over 10 years, full...

•6 years ago

Wrong about my rheumatologist!

Well I was wrong about my rheumatologist. She sent me straight to x Ray, did blood tests, and has ordered a ct scan and referred me to pulmonary. She said the...

Well I was wrong about my rheumatologist. She sent me straight to x Ray, did blo...

•6 years ago

OMG IM SO GREEDY

Cant believe i cant stop eating increased appetite eating everything put so much weight on cant control myself 😥😥😥😡😡😡

Cant believe i cant stop eating increased appetite eating everything put so much...

•6 years ago

was going to post a happy post but got deflated

I was going to post a happy post for once. since coming off my blood pressure tablets [with reluctant doctors permission] I have lost 4lb [2K] of the 42lb I...

I was going to post a happy post for once. since coming off my blood pressure ta...

•6 years ago

Needing help please

Please can anyone recommend a rheumatologist who specialises or has an interested in lupus in the West Yorkshire area please ..I’m tired ..I hurt...I can’t...

Please can anyone recommend a rheumatologist who specialises or has an intereste...

•6 years ago

Mycophenolate

Hi, I'd really like to hear people's experiences with mycophenolate please? Thanks.

Hi, I'd really like to hear people's experiences with mycophenolate please? Th...

•6 years ago

Debilitating tension headaches recently.

Hi, The past couple of months I've been suffering from tension headaches the severity and frequency of which seem to be increasing. The pattern seems to be...

Hi, The past couple of months I've been suffering from tension headaches the sev...

•6 years ago

how to define a lupus flare

I read a lot of symptoms on here that people post about lupus and other things but for me fatigue and pain are the worst. I don't think I get a lot of the...

I read a lot of symptoms on here that people post about lupus and other things b...

•6 years ago

Lupus diagnosis

After 2 and a half years of feeling like I was going mad with all sorts of strange symptoms I received a definite lupus (SLE) diagnosis last week, prescribed...

After 2 and a half years of feeling like I was going mad with all sorts of stran...

•6 years ago

Lupus Awareness Month is over, but you can continue your support throughout the year.

Lupus Awareness Month may be over for 2019 but you can still help to support other people affected by lupus throughout the year! Please consider taking up...

Lupus Awareness Month may be over for 2019 but you can still help to support oth...

Partner•6 years ago

painful nostrils!!!!

So I don’t have a cold, but my nostrils are so painful. They feel extremely dry and each time I move them the pain gets worse, almost like they are really...

So I don’t have a cold, but my nostrils are so painful. They feel extremely dry...

•6 years ago

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