Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,738 members • 28,097 posts

All posts for September 2018

Hi I am new here my husband suffers with fibromyalgia and I am trying to buy a new mattress for our bed but unsure which to I need some help

looking for some help on buying the correct mattress for my husband it would be lovely to see mark have a good night sleep going forward many thanks for your...

looking for some help on buying the correct mattress for my husband it would be ...

kideny

•6 years ago

8 Replies

Used all my spoons :( super flare

Tried to take on a normal day yesterday. Errands, walk the dog, physical therapy. I had down time so thought I would be ok. PILED on the sunscreen and covered...

Tried to take on a normal day yesterday. Errands, walk the dog, physical therapy...

katidid

•6 years ago

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Flu Jab Differences

I realise there are two types of flu jabs this year. One for under 65's and a different one for over 65's. I am off for my flu jab tomorrow and would like the...

I realise there are two types of flu jabs this year. One for under 65's and a di...

loopy-lou

•6 years ago

26 Replies

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Breathing issues with lupus

I was diagnosed with lupus last November and been on Hydroxychloroquine since. I suffer on and off with breathing issues where I feel I can't take in enough...

I was diagnosed with lupus last November and been on Hydroxychloroquine since. I...

Hhood

•6 years ago

9 Replies

Brittle hair?

ive had issues with hair loss but now my hair has become really brittle and is snapping really badly. Anyone else with experience of this? Did you find...

ive had issues with hair loss but now my hair has become really brittle and is s...

cathylou

•6 years ago

12 Replies

Any Vets or Veterinary Nurses on here?

Hello, I'm new here, I was diagnosed in November last year whilst going through IVF. At the time, I was doing an access to science course and mid placement at...

Hello, I'm new here, I was diagnosed in November last year whilst going through...

21022447

•6 years ago

1 Reply

Immune suppressed and suffering from a cold - what do I do?

This is the first time I've caught anything since taking immune suppressants, so I'm unsure of what I need to do. I've had the cold since the weekend and it's...

This is the first time I've caught anything since taking immune suppressants, so...

eescvc

•6 years ago

6 Replies

QUOTE OF THE DAY: "we can’t help everyone; yet everyone can help someone"

Thanks Kevin53 !!! 🌟🌟🌟

eekt

•6 years ago

4 Replies

Steroids and first rheumatology appointment

Hi folks I have my first appointment with a rheumatologist on 19th October. I first have to attend on the 2nd October for bloods and investigations. My...

Hi folks I have my first appointment with a rheumatologist on 19th October. I ...

Vixen77

•6 years ago

3 Replies

Lymphoma

Hi all had my scan today as I could feel a smallish lump which appeared twelve months ago and finally got the scan I have many swollen nodes in my left side...

Hi all had my scan today as I could feel a smallish lump which appeared twelve m...

Loopyloo43

•6 years ago

12 Replies

Help!! Any knowledge or advice really appreciated.

Hi I wondered if anyone could give some advice? My sister in law in Egypt has lupus and is really ill at the moment her toes on one foot are totally black and...

Hi I wondered if anyone could give some advice? My sister in law in Egypt has l...

Daisygold12

•6 years ago

7 Replies

Lupus Awareness Month....what can we do? ☀️

Hi lovely folks! 👋 Soon be October and Lupus Awareness Month. How about a plan? The following was not written by me (if only I could write so eloquently and...

Hi lovely folks! 👋 Soon be October and Lupus Awareness Month. How about a plan?...

eekt

•6 years ago

12 Replies

Lupus London patient meeting

Just wanted to say a big thank you to everyone involved in arranging the London Lupus and Hughes Syndrome patient meeting. I attended on Friday and after...

Just wanted to say a big thank you to everyone involved in arranging the London ...

Loula82

•6 years ago

7 Replies

An Idle Thought: Has anyone put in a Freedom of Information Request application re PIP costs?

Looking at the horrors and dehumanising means of assessing PIP, which the govt introduced to cut down the previous DLA costs. Has anyone tried an FOI request...

Looking at the horrors and dehumanising means of assessing PIP, which the govt i...

Lupiknits

•6 years ago

20 Replies

Is there a lupus period connection?

Firstly, I have not yet ( and hopefully won’t ) got a diagnosis of lupus, but an urgent referral has been made. Secondly, is there any connection between...

Firstly, I have not yet ( and hopefully won’t ) got a diagnosis of lupus, but an...

Arcus13

•6 years ago

5 Replies

Can I ask for medication before diagnosis been waiting 10years I'm on pregabalin tramadol renavit ensure powders venaflaxine but nothing

I've had ruptured ear drum diverticulsr. Bile malabsorption repeated plueresy double pneumonia citrate psoriasis and seizures or epilepsy elavated white blood...

I've had ruptured ear drum diverticulsr. Bile malabsorption repeated plueresy do...

Burnley1234

•6 years ago

2 Replies

Lupus & Skin Care: Protection & Beauty

Hi all! Not me in the photo, just thought it was pretty and a fun way to kick off a discussion. I was having coffee with a friend and somehow we happened upon...

Hi all! Not me in the photo, just thought it was pretty and a fun way to kick of...

katidid

•6 years ago

22 Replies

Getting the PIP

Well, I had my assessment this morning. Some FYI points: - I had no trouble in having a home assessment. This was a major relief as the logistics of getting...

Well, I had my assessment this morning. Some FYI points: - I had no trouble in h...

whisperit

•6 years ago

25 Replies

Bloods

Do you have bloods that are normal when having a flare? My rheamy seems to be dictated by this so am left without answers and treatment so struggle each...

Do you have bloods that are normal when having a flare? My rheamy seems to be di...

Loopyloo43

•6 years ago

12 Replies

Newbie, awaiting rheumatology and urology...

Hi Folks! I’ve been following this forum for a few weeks now after it was suggested that I may have lupus and/or some other related autoimmune disease. For...

Hi Folks! I’ve been following this forum for a few weeks now after it was sugges...

Vixen77

•6 years ago

10 Replies

Follow Up - C Diff - It's Back (uugghhh!)

Hello lovlies, So the first treatment to get rid of this oh-so-fun super bug failed. They put me on another course of Vanco this time with an additional 2...

Hello lovlies, So the first treatment to get rid of this oh-so-fun super bug fai...

katidid

•6 years ago

6 Replies

Need opinions please

Hi i have been diagnosed with Lupus. I am only taking prednisolone. Is there any other medication that i should be taking ?

Hi i have been diagnosed with Lupus. I am only taking prednisolone. Is there any...

Pandalea

•6 years ago

4 Replies

Sinus Infection is NOT??

So I’ve had this “stuffy nose” for months. I have tried almost everything over the counter, under the counter and even been prescribed antibiotics but nothing...

So I’ve had this “stuffy nose” for months. I have tried almost everything over t...

Macsimum_de

•6 years ago

3 Replies

Steroids

Hello everyone Just a quick question. Is it ok to just come off steroids when you've been taking 30 mg for five days or is a slow withdrawal needed?. Many...

Hello everyone Just a quick question. Is it ok to just come off steroids when yo...

misty14

•6 years ago

2 Replies

Hi

Hello everyone, i just wanted to wish you all a beautiful day!

Lili18

•6 years ago

5 Replies

Lupus Anticoagulant

Hi. Further to my post a few days ago another test result has been added - PNP Ratio, again positive. Is this significant, too?

Hi. Further to my post a few days ago another test result has been added - PNP R...

Suecon

•6 years ago

4 Replies

Change of diagnosis

Hi All Having been told by my Consultant’s Registrar in August that I had Lupus SLE , I went back to see the Consultant today and she said that although I have...

Hi All Having been told by my Consultant’s Registrar in August that I had Lupus ...

Seren65

•6 years ago

34 Replies

Leg swelling too

Benne09

•6 years ago

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Photo after being in sun for ten mins

Hey all this what happened when my symptoms all started. Any similarities?

Benne09

•6 years ago

2 Replies

Getting diagnosis and treatment

Groundhog Day now getting sent back to reumatologist who would not diagnose 6yrs ago,I had the following,elevated white blood cells for ten years,double...

Groundhog Day now getting sent back to reumatologist who would not diagnose 6yrs...

Burnley1234

•6 years ago

1 Reply

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for September 2018

Hi I am new here my husband suffers with fibromyalgia and I am trying to buy a new mattress for our bed but unsure which to I need some help

Used all my spoons :( super flare

Flu Jab Differences

Breathing issues with lupus

Brittle hair?

Any Vets or Veterinary Nurses on here?

Immune suppressed and suffering from a cold - what do I do?

QUOTE OF THE DAY: "we can’t help everyone; yet everyone can help someone"

Steroids and first rheumatology appointment

Lymphoma

Help!! Any knowledge or advice really appreciated.

Lupus Awareness Month....what can we do? ☀️

Lupus London patient meeting

An Idle Thought: Has anyone put in a Freedom of Information Request application re PIP costs?

Is there a lupus period connection?

Can I ask for medication before diagnosis been waiting 10years I'm on pregabalin tramadol renavit ensure powders venaflaxine but nothing

Lupus & Skin Care: Protection & Beauty

Getting the PIP

Bloods

Newbie, awaiting rheumatology and urology...

Follow Up - C Diff - It's Back (uugghhh!)

Need opinions please

Sinus Infection is NOT??

Steroids

Hi

Lupus Anticoagulant

Change of diagnosis

Leg swelling too

Photo after being in sun for ten mins

Getting diagnosis and treatment

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