Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,732 members • 28,092 posts

All posts for August 2018

Low resting heart rate

Hi everyone, haven’t been on in a while. Has anyone had experience with a low resting heart rate? I am in the process of verifying, but was at gym and my...

Hi everyone, haven’t been on in a while. Has anyone had experience with a low ...

•6 years ago

Advice on blood results anyone?

Hi All. Thank you for letting me join. I'm not actually diagnosed with lupus yet. I have so many medical mysteries that have been going on for so long I that...

Hi All. Thank you for letting me join. I'm not actually diagnosed with lupus yet...

•6 years ago

Change of diagnosis 😲

Hi all , im posting today about my son who is 25 , he has been under going tests because of shoulder pain and swelling , large plaque on upper arm with loss of...

Hi all , im posting today about my son who is 25 , he has been under going tests...

•6 years ago

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Too hot! (And not in a good way)

Anyone else always hot? I’m not referring to sun intolerance - or sweating. I’m 40 and my mom didn’t hit menopause until 50 so I don’t think it’s that. Just...

Anyone else always hot? I’m not referring to sun intolerance - or sweating. I’m ...

•6 years ago

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Mammogram

Hi I went for my first mammogram last Thursday. I’ve been recalled Togo to hospital tomorrow!! I’m obviously concerned. I have lupus, with lung complications,...

Hi I went for my first mammogram last Thursday. I’ve been recalled Togo to hospi...

•6 years ago

SLE Quality of Life Questionnaire

This is supposed to be an annual part of SLE monitoring, according to the BSR Guideline (Table 6 assessment and monitoring). I found one here to take to my...

This is supposed to be an annual part of SLE monitoring, according to the BSR Gu...

•6 years ago

SLE review data collection sheet

Hi Lupies! I'm taking this sheet to my review tomorrow - it's included in the BSR Guideline Table 6, Assessment and Monitoring of SLE. My Rheumie doesn't use...

Hi Lupies! I'm taking this sheet to my review tomorrow - it's included in the BS...

•6 years ago

Radial nerve pain both arms and joint pain

Hi all, I have been suffering with extremely painful nerve pain down both arms for the last 4 weeks or so, My physio said it is the radial nerve, no idea why...

Hi all, I have been suffering with extremely painful nerve pain down both arms f...

•6 years ago

ESA

Hi,I’m Andrew,I’m 41 and have had Lupus since 16.My Doctor after 2 different tales finally says If i get a letter of the DHSS they will do the note.The DHSS...

Hi,I’m Andrew,I’m 41 and have had Lupus since 16.My Doctor after 2 different tal...

•6 years ago

Is anyone else taking Hydroxychloriqine and Cellcept

I have SLE. I am taking Hydroxychloriqine and Cellcept. Is anyone else taking both? I also have Sjogren's disease and Fibromyalgia. I'm 40 years old. I was...

I have SLE. I am taking Hydroxychloriqine and Cellcept. Is anyone else taking bo...

•6 years ago

Successful appointment today 😊

Hello everyone, I haven’t posted in a while as I’ve been just trying to deal with things. But today I saw my lovely consultant. I can honestly say I feel like...

Hello everyone, I haven’t posted in a while as I’ve been just trying to deal wit...

•6 years ago

West Midlands Lupus Information Day - Saturday 6th October 2018

The West Midlands Lupus Information Day will take place on Saturday 6th October 2018 at The Great Hall, Dudley College, The Broadway, Dudley, West Midlands,...

The West Midlands Lupus Information Day will take place on Saturday 6th October ...

Partner•6 years ago

Missing a support group

My husband and I moved from Cambridgeshire to one of the home counties south of London. In Cambs. we had excellent support through our Lupus group leaders and...

My husband and I moved from Cambridgeshire to one of the home counties south of ...

•6 years ago

Negative Lupus Blood results

My Rheumatologist and I are quite baffled... I was diagnosed with Lupus in September 2016 in South Africa. Moved to London just over 1 year ago. Did blood...

My Rheumatologist and I are quite baffled... I was diagnosed with Lupus in Septe...

•6 years ago

Lupus Question

Can a person test positive for lupus in blood work and actually not have lupus? I saw my rheumatologist last week he said I didn’t have lupus because I don’t...

Can a person test positive for lupus in blood work and actually not have lupus? ...

•6 years ago

Food and Lupus

Curious about the correlation between Lupus and food. Has anyone looked into this or have any information?

Curious about the correlation between Lupus and food. Has anyone looked into thi...

•6 years ago

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