Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,744 members • 28,102 posts

All posts for August 2018

I'm new

I'm Sharon I'm 47 from Newcastle I've had lupus of the skin for 9 years and it's taking it's till now. Has anybody got it on there feet as I'm getting very...

I'm Sharon I'm 47 from Newcastle I've had lupus of the skin for 9 years and it's...

Pinky06

•6 years ago

4 Replies

Forgotten Meds

Hi, I have come away for 5 days and just discovered my meds of 17.5mg Prednisolone and 400mg Plaquinel (Hydroxyc.) were left behind. I am on another immune...

Hi, I have come away for 5 days and just discovered my meds of 17.5mg Prednisolo...

DeborahMonmouth

•6 years ago

7 Replies

Thumbs up to Nurse Practitioner

My post yesterday about the VitD puzzle has been laid to rest temporarily by the Nurse Practitioner at my practice. The only way I could sneak under the radar...

My post yesterday about the VitD puzzle has been laid to rest temporarily by the...

Lupiknits

•6 years ago

2 Replies

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Returning to work advice

Dear all I’m looking for some advice I’ve been off work since Feb 2018 with fatigue , joint pain , nerve pain , dry eyes & mouth . I’ve had numerous test and...

Dear all I’m looking for some advice I’ve been off work since Feb 2018 with fa...

Angelamarston1963

•6 years ago

4 Replies

SLE - sweating - cold hands and feet - red around cuticles

Now the heatwave is over, I'll be the only gal in town with an all-over body sweat. My hands and feet are always colder, but still sweaty, and around the...

Now the heatwave is over, I'll be the only gal in town with an all-over body swe...

eekt

•6 years ago

2 Replies

PIP and Motobility tension

Hi everyone It has been awhile I posted. I am so tensed and worried that i have practically exhausted and worry and tension left in me. My PIP was stopped in...

Hi everyone It has been awhile I posted. I am so tensed and worried that i have...

ijeasike

•6 years ago

3 Replies

Lupus flare still

I wrote the other day thinking the sun had burnt my eyelid. Turns out it os Photosensitivity again. Didn't realise it could affect my eyes especially when...

I wrote the other day thinking the sun had burnt my eyelid. Turns out it os Phot...

Wrexlu

•6 years ago

3 Replies

How to stop being seen as an illness?

Hello, I've just gone back to work after being ill with a chest infection; I have Lupus, Lupus nephritis, interstitial lung disease, bronchiectasis. This is my...

Hello, I've just gone back to work after being ill with a chest infection; I hav...

Lil-Miss

•6 years ago

4 Replies

Teeth

So I went to the dentist today . She checked over my teeth and told me I need to come back and get some more fillings . I also have some teeth on the way to...

So I went to the dentist today . She checked over my teeth and told me I need t...

LouLamb

•6 years ago

11 Replies

Vit D3 Mystery

I went to collect my usual monthly prescription. When I got home there was an extra package containing 20,000 IU of Vit D3 with instructions to take two a...

I went to collect my usual monthly prescription. When I got home there was an e...

Lupiknits

•6 years ago

9 Replies

Appointment with Professor D’Cruz today . Healthunlocked community, you are amazing, thank you xx

All I can say, is finally someone who was willing to listen and read my diary . Out of all the blood tests I’ve had over the years , I had 2 bits of white...

All I can say, is finally someone who was willing to listen and read my diary . ...

Lisalou19

•6 years ago

10 Replies

The symptoms stuff

So I've a very important question about Lupus symptoms,when you started having them did they stay with you for a time,but some days they just keep calm for a...

So I've a very important question about Lupus symptoms,when you started having t...

MiriamGallego

•6 years ago

4 Replies

Update- neurology appointment second opinion

I had a second neuro appointment arranged through my Benenden cover at the Spire hospital. See my previous post ‘Useless neurology appointment ‘. Brilliant!...

I had a second neuro appointment arranged through my Benenden cover at the Spire...

marghay13

•6 years ago

2 Replies

It May or May not Be Lupus

Unsure Whether I Have Lupus at this Point, but... I'm definitely struggling as I'm just beginning to get to the bottom of what's going on. It all started a...

Unsure Whether I Have Lupus at this Point, but... I'm definitely struggling as I...

eirinym

•6 years ago

6 Replies

Suburnt eyelid

I was just wondering has anybody experienced a sunburnt eyelid/eye even when wearing sunglasses? Very sore and painful. Thank you.

I was just wondering has anybody experienced a sunburnt eyelid/eye even when wea...

Wrexlu

•6 years ago

1 Reply

HELP PLEASE

I have received a summary of my rheumatoid consultation. It says my blood teste revealed weakly positive Aca in lgG spectrum and they need to repeat the test...

I have received a summary of my rheumatoid consultation. It says my blood teste ...

maalidog

•6 years ago

2 Replies

Discoid Lupus

Does anyone haveDiscoid Lupus? It's what I have, I've never talked with anyone else with it.

Does anyone haveDiscoid Lupus? It's what I have, I've never talked with anyone e...

CcyrpesS

•6 years ago

16 Replies

Info on moving abroad with existing illness (SLE)

Seriously thinking of moving to Spain (currently live in the UK) and wondered if anyone else has made this move and how they got on with health care?? I can't...

Seriously thinking of moving to Spain (currently live in the UK) and wondered if...

Debra60

•6 years ago

14 Replies

Heamathorax

Hi there everyone, I'm currently in hospital with a heamathorax, not too severe but enough to keep me here. My bloods are up the wall too. The doctor say the...

Hi there everyone, I'm currently in hospital with a heamathorax, not too severe ...

moontreegoddess

•6 years ago

3 Replies

Immune suppression mix

Hi I seem to be on a lot of immune suppression. I have SLE & renal transplant. Is anyone else on Prograf (Tacrolimus) Mycophenalate Mofetil & Zentiva...

Hi I seem to be on a lot of immune suppression. I have SLE & renal transplant. ...

MandaM

•6 years ago

4 Replies

Plaquenil dosage

Hi there , been on plaquenil for many years . Now I have recently gained some weight so my rheumatologist increased my dosage with the new guidelines . She...

Hi there , been on plaquenil for many years . Now I have recently gained some we...

Jances13

•6 years ago

19 Replies

Severe joint and back pain

Hello all, I have mixed connective tissue disease, for the last six months I've Benn suffering quite severe unexplained join pain. Has anyone used the "Pain...

Hello all, I have mixed connective tissue disease, for the last six months I've ...

larainehudson49

•6 years ago

1 Reply

New to the group / advice needed please x

Hi my name is Michelle and I wondered if anyone could help or offer any advice I had Hashimotos and a total thyrodectomy 2 years ago which was a great success...

Hi my name is Michelle and I wondered if anyone could help or offer any advice ...

Mmw-15

•6 years ago

6 Replies

New UK Immune-Mediated Inflammatory Disease Biobank

It's not-so-new news but I missed it last year. 'Big data' project with the hope of producing personalised treatment through molecular mapping. xxx...

It's not-so-new news but I missed it last year. 'Big data' project with the hope...

eekt

•6 years ago

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Hey There!👋✨

I'm new,my name is Miriam and I would love to talk with someone who has or knows about Lupus pretty well,I've been concerned about my health lately and I...

I'm new,my name is Miriam and I would love to talk with someone who has or knows...

MiriamGallego

•6 years ago

3 Replies

Any ideas on these rashes lupus ?

Hi, been getting all sorts of rashes all over, but mainly hands, top of feet, toes and chest. All at different times. Hands come out red and burning round the...

Hi, been getting all sorts of rashes all over, but mainly hands, top of feet, to...

Hidden

•6 years ago

7 Replies

Sorry - another question!

Hi all, I seem to be posting here all the time at the minute - sorry! After starting a 2nd course of antibiotics for a chest infection that won't clear I...

Hi all, I seem to be posting here all the time at the minute - sorry! After sta...

cathylou

•6 years ago

8 Replies

Lupus rash??? From sun??

Have come out in this rash chest up on holiday in menorca at mo 31 degrees. I’ve had factor 50 on and not been sunbathing or anything silly just short stints...

Have come out in this rash chest up on holiday in menorca at mo 31 degrees. I’ve...

Sara_A

•6 years ago

19 Replies

Copy of PIP Assessor's Report

I have until 28 August to get my Manatory Assessment information in. I'm grateful to whoever told me I was entitled to see the assessor's report. I've only...

I have until 28 August to get my Manatory Assessment information in. I'm gratefu...

Lupiknits

•6 years ago

20 Replies

Dating and Lupus

Anyone has experience with sharing lupus diagnosis with the person you are seeing? How does it work? What responses do you usually get? Lupus is a big part of...

Anyone has experience with sharing lupus diagnosis with the person you are seein...

linicole

•6 years ago

9 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for August 2018

I'm new

Forgotten Meds

Thumbs up to Nurse Practitioner

Returning to work advice

SLE - sweating - cold hands and feet - red around cuticles

PIP and Motobility tension

Lupus flare still

How to stop being seen as an illness?

Teeth

Vit D3 Mystery

Appointment with Professor D’Cruz today . Healthunlocked community, you are amazing, thank you xx

The symptoms stuff

Update- neurology appointment second opinion

It May or May not Be Lupus

Suburnt eyelid

HELP PLEASE

Discoid Lupus

Info on moving abroad with existing illness (SLE)

Heamathorax

Immune suppression mix

Plaquenil dosage

Severe joint and back pain

New to the group / advice needed please x

New UK Immune-Mediated Inflammatory Disease Biobank

Hey There!👋✨

Any ideas on these rashes lupus ?

Sorry - another question!

Lupus rash??? From sun??

Copy of PIP Assessor's Report

Dating and Lupus

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