Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,744 members • 28,102 posts

All posts for August 2018

Support our Wolf - Paul

https://www.justgiving.com/fundraising/paul-howard-2018 Many thanks. Best wishes Kevin

https://www.justgiving.com/fundraising/paul-howard-2018 Many thanks. Best wish...

Kevin53

•6 years ago

1 Reply

So unhappy!

So after being told I had lupus, telling my employer and getting sacked over it, a 2nd rheumatologist said it was undifferentiated connective tissue disease....

So after being told I had lupus, telling my employer and getting sacked over it,...

cathylou

•6 years ago

51 Replies

Accepting my capabilities and channelling it into something new

My new venture. I've finally found something that takes away the focus of pain.

Ladyuponthelake

•6 years ago

22 Replies

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Just exhausted will this ever end!???!!!!

I’ve been off sick from work following a flare up for about 2 wks now and each time I think I might be feeling better and could return to work ( I only work 2...

I’ve been off sick from work following a flare up for about 2 wks now and each t...

Sara_A

•6 years ago

6 Replies

Feeling sore on hydroxychloroquine

Hello, I’ve been on a reduced dose of hydroxy for a couple of months and am working up to a full dose. However I’ve started to feel really sore under the skin...

Hello, I’ve been on a reduced dose of hydroxy for a couple of months and am work...

phoebe-18

•6 years ago

3 Replies

Lupus Medication

Hello. Newbie here. can anyone please explain the pros and cons of taking Hydroxchloroquine Sulphate Tablets 200mg please. the information leaflet which is in...

Hello. Newbie here. can anyone please explain the pros and cons of taking Hydrox...

just-typing

•6 years ago

10 Replies

Second opinion?

Hi This is my first post so please bare with me. Can anybody help me with symptoms I’m having and test results. I saw a rhuematologist yesterday who didn’t...

Hi This is my first post so please bare with me. Can anybody help me with sympt...

Littlemisssunshine87

•6 years ago

36 Replies

Led TV Reaction

I react severely to all forms of lighting. I have just purchased a new LED TV (had a very old TV previously). However, I have reacted to the TV and need to...

I react severely to all forms of lighting. I have just purchased a new LED TV (h...

loopy-lou

•6 years ago

14 Replies

Hello I'm a Newbie

Hi All, Long post alert. This is my first foray on this site so let me give you a little background. I was diagnosed with Sjogrens Syndrome just after my first...

Hi All, Long post alert. This is my first foray on this site so let me give you ...

slaithwaite

•6 years ago

9 Replies

Should I ask for second opinion?

I am looking for some advice please.... I was diagnosed with rheumatoid arthritis 4 years ago and have recently been diagnosed with autoimmune hepatitis and...

I am looking for some advice please.... I was diagnosed with rheumatoid arthriti...

Melcw

•6 years ago

10 Replies

Invest in olive oil now?

According to Lupus News Today, a recent research paper shows that virgin olive oil may help reduce SLE activity. The study found that lab mice fed with olive...

According to Lupus News Today, a recent research paper shows that virgin olive o...

whisperit

•6 years ago

11 Replies

SHORT SURVEY: Help researchers at UCL with their plans for a study looking at the impact of gender and puberty on lupus and treatments.

Researchers at UCL Centre for Adolescent Rheumatology are interested in studying the impact that gender and puberty may have on lupus and the treatments that...

Researchers at UCL Centre for Adolescent Rheumatology are interested in studying...

Paul_Howard

Partner•6 years ago

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August's Topic of the Month - Coping with Lung Problems (We want to hear your tips and experiences)

Our Topic of the Month discussion for August is 'Coping with Lung Problems'. A large proportion of people with lupus will experience some form of lung or...

Our Topic of the Month discussion for August is 'Coping with Lung Problems'. A l...

Paul_Howard

Partner•6 years ago

29 Replies

Subtle reminder that I should be taking care of myself....

Went to the theatre to see a show.... The gentleman sat next to my husband asked him if he'd heard of lupus? And explained that he'd recently lost his wife...

Went to the theatre to see a show.... The gentleman sat next to my husband asked...

Hidden

•6 years ago

10 Replies

July's Topic of the Month - Caring for your Feet

Hi everyone, We've published our Topic of the Month article for July about caring for your feet. You can read it at...

Hi everyone, We've published our Topic of the Month article for July about carin...

Paul_Howard

Partner•6 years ago

2 Replies

Feels Like so Much Waiting and Worrying

I'm really trying to go day to day with what's been happening to me. When this all started with stomach problems I didn't really expect to end up here. I keep...

I'm really trying to go day to day with what's been happening to me. When this a...

eirinym

•6 years ago

9 Replies

OT love

Something really positive to report! Less than a fortnight after being referred for a home Occupational Therapy assessment, I have already got a new stair...

Something really positive to report! Less than a fortnight after being referred ...

whisperit

•6 years ago

32 Replies

RASH: sitting under fluorescent lighting at work makes my skin feel like it's burning, and this happens.

I've developed various symptoms, some very bizarre, since I started to become unwell in March 2016. I am back and forth to the GP to only be, as I feel, fobbed...

I've developed various symptoms, some very bizarre, since I started to become un...

AField

•6 years ago

2 Replies

lupus or/and fibromialgia?

Hi all, not been on here for a long time as first I was diagnosed with lupus last February but now it's been confirmed I have fibromialgia. I have also been...

Hi all, not been on here for a long time as first I was diagnosed with lupus las...

Mandypandy1969

•6 years ago

15 Replies

Dents

Hello to everyone. Hope all is well. Has anyone experienced dents above the knee in both legs?

Hello to everyone. Hope all is well. Has anyone experienced dents above the knee...

faithnhm333

•6 years ago

5 Replies

Any suggestions for shampoo?

Hi guys, I’ve recently been diagnosed and still don’t know how to go about this. Can anyone recommend a shampoo and skin care?

Hi guys, I’ve recently been diagnosed and still don’t know how to go about this...

Lili18

•6 years ago

11 Replies

Weight Gain

Hi all, Hope you are all doing well? I have been on steroids now for 2 years and my dose changes all the time plus every three months I have injections and...

Hi all, Hope you are all doing well? I have been on steroids now for 2 years and...

LSurtees

•6 years ago

4 Replies

Only me again 🙄. Has anyone opted for a hysterectomy during their battle with Lupus! I feel my hormones are feeding every flare

I can literally tell what day I’m on during my cycle, due to increased skin rashes, painful hands , feet and back! I’ve always noticed my hormones play a part...

I can literally tell what day I’m on during my cycle, due to increased skin rash...

Lisalou19

•6 years ago

21 Replies

Is yoga enough

Hi guys I have read that I need to do excercises . Since I have been diagnosed eoth lupus I am trying to do yoga. It is really helping me. But I have read...

Hi guys I have read that I need to do excercises . Since I have been diagnosed e...

Saranda

•6 years ago

2 Replies

Where Next?

I had my Rheumatology appointment at The Royal Free Hospital today, I’m not going to name and shame or go in to detail but I think I need to be referred...

I had my Rheumatology appointment at The Royal Free Hospital today, I’m not goin...

LLH76

•6 years ago

5 Replies

Never ending lupus!!

I’ve currently been off work for just over a week now following a flare after being abroad in the sun (never had any problem with the sun before!) I keep...

I’ve currently been off work for just over a week now following a flare after be...

Sara_A

•6 years ago

7 Replies

Coping with depression

Hi everyone i’m sure I am not the only one who feels like this, but how do you cope with depression. The past three years have been so hard for me. My...

Hi everyone i’m sure I am not the only one who feels like this, but how do you c...

Josieswolf

•6 years ago

20 Replies

Plaquenil and Ringing in Ears?

Hi all, I was wondering if anyone has had ringing in their ears after starting plaquenil? I have been plaquenil for one year and it was almost immediately...

Hi all, I was wondering if anyone has had ringing in their ears after starting p...

sflynn84

•6 years ago

5 Replies

Information on Nettienet

Sadly this is the answer I got about Nettienet. As I remember wasn't she justt as about to see her Rheumy about going on a new drug? Let's hope she is taking...

Sadly this is the answer I got about Nettienet. As I remember wasn't she justt a...

AgedCrone

•6 years ago

1 Reply

Prednisolone diary 13 - what do I know?

Entry 12 was written a week after going up to 24mg of methyl prednisolone. It left me feeling much improved in mood and energy levels, and optimistic that we...

Entry 12 was written a week after going up to 24mg of methyl prednisolone. It le...

whisperit

•6 years ago

17 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for August 2018

Support our Wolf - Paul

So unhappy!

Accepting my capabilities and channelling it into something new

Just exhausted will this ever end!???!!!!

Feeling sore on hydroxychloroquine

Lupus Medication

Second opinion?

Led TV Reaction

Hello I'm a Newbie

Should I ask for second opinion?

Invest in olive oil now?

SHORT SURVEY: Help researchers at UCL with their plans for a study looking at the impact of gender and puberty on lupus and treatments.

August's Topic of the Month - Coping with Lung Problems (We want to hear your tips and experiences)

Subtle reminder that I should be taking care of myself....

July's Topic of the Month - Caring for your Feet

Feels Like so Much Waiting and Worrying

OT love

RASH: sitting under fluorescent lighting at work makes my skin feel like it's burning, and this happens.

lupus or/and fibromialgia?

Dents

Any suggestions for shampoo?

Weight Gain

Only me again 🙄. Has anyone opted for a hysterectomy during their battle with Lupus! I feel my hormones are feeding every flare

Is yoga enough

Where Next?

Never ending lupus!!

Coping with depression

Plaquenil and Ringing in Ears?

Information on Nettienet

Prednisolone diary 13 - what do I know?

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