Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,732 members • 28,092 posts

All posts for August 2018

Shoulder Scan Today

Out of the blue I had a shoulder scan today, the least of my joint paint. I've learnt, never ever mention anything negative about another consultant, that...

Out of the blue I had a shoulder scan today, the least of my joint paint. I've...

Ladyuponthelake

•6 years ago

9 Replies

Another severe allergic reaction!

Hello all, Currently in the middle of my second severe allergic reaction to medication in the past 2 months. Went to a&e was put on a drip and given 30mg of...

Hello all, Currently in the middle of my second severe allergic reaction to med...

mollyaimee

•6 years ago

2 Replies

Take part in a user-testing workshop for a new website around clinical trials.

Sense about Science is currently organising a user-testing workshop on a new website around stem cell therapy clinical trials, and they would like someone from...

Sense about Science is currently organising a user-testing workshop on a new web...

Paul_Howard

Partner•6 years ago

2 Replies

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Shampoo advice

Hello. Quick question. I read that argan shampoo and conditioner (this italian nashi brand) are supposed to be very good for lupus being all natural and...

Hello. Quick question. I read that argan shampoo and conditioner (this italian n...

Saranda

•6 years ago

8 Replies

Newbie

Hi everyone, I'm looking for some advice. I hope you don't mind me asking. I've been suffering for the last 14 years with symptoms that my optition, dentist,...

Hi everyone, I'm looking for some advice. I hope you don't mind me asking. I've ...

jozyjump

•6 years ago

12 Replies

Did anyone posting here start their lupus journey with positive blood results without clinical symptoms?

So, following my visit to the dermatologist on Tuesday to be told I had rosacea not malar rash... I did some further research regarding positive anti-dsDNA and...

So, following my visit to the dermatologist on Tuesday to be told I had rosacea ...

Hidden

•6 years ago

22 Replies

Diagnosed with Fibromyalgia

Hi all its been a while since last post. Just thought I'd update you. I has my second visit with Rheumy today and he has decided as all bloods are normal apart...

Hi all its been a while since last post. Just thought I'd update you. I has my s...

Yellow-Petal

•6 years ago

15 Replies

Candy floss hair anyone??

Hi all - was just wondering if it's a common symptom to have hair like candy floss... with SLE Lupus? That's the only way I can describe how it looks these...

Hi all - was just wondering if it's a common symptom to have hair like candy flo...

DJK99

•6 years ago

10 Replies

Prednisolone

Hi guys, Ive been on prednisolone 30 mg for the past two weeks and ive noticed that my face has started to swell, the dreaded moonface. The doctor said that...

Hi guys, Ive been on prednisolone 30 mg for the past two weeks and ive noticed ...

Lili18

•6 years ago

5 Replies

Flares

Hi brothers and sisyers my sister got flares for the first time since she was diagnosed with lupus sle...i pray that she have strength to go through it am...

Hi brothers and sisyers my sister got flares for the first time since she was di...

Hidden

•6 years ago

1 Reply

New Appointment with some more Comprehensive Blood Tests

Finally getting some more comprehensive blood tests done. It sort of makes me feel a bit better it's finally happening. Oddly the doctor I saw suspects I may...

Finally getting some more comprehensive blood tests done. It sort of makes me fe...

eirinym

•6 years ago

3 Replies

The best medicine!

Laughter xxxx

eekt

•6 years ago

3 Replies

Does anyone else have trouble with jaw joints: aching, tired, some swelling, irritating the trigeminal nerve, and numbness in lips?

Any ideas if connected to lupus?

Annienjoe

•6 years ago

4 Replies

Ritixamab

Hi. I’m due to start Iv Ritixamab - peoples experiences would be welcome xx

Wolf1

•6 years ago

8 Replies

Not Sjogrens then.....

Hi, I posted here some time ago saying I was under investigation for primary Sjogren's. Although I have the classic signs of no tears (I do have eyelid tears...

Hi, I posted here some time ago saying I was under investigation for primary Sjo...

Bluedragon

•6 years ago

16 Replies

I can't stand the pain anymore.

I am so new at this I don't know how to get around on here. I need to know if Lupus really presents a feeling of picking and burning like fire ants biting and...

I am so new at this I don't know how to get around on here. I need to know if Lu...

kfmeme

•6 years ago

9 Replies

Knee pain

Hi my 10 year old daughter has lupus and has awful knee pain for the past few months esp at night. She never gets a full nights rest:( Have been told by...

Hi my 10 year old daughter has lupus and has awful knee pain for the past few mo...

Lipstick9

•6 years ago

18 Replies

PIP CAB meeting tomorrow

The CAB are helping me fill out my PIP form tomorrow in a one and a half hour appointment. I’m worried that the time won’t be adequate, as my DLA form took me...

The CAB are helping me fill out my PIP form tomorrow in a one and a half hour ap...

LilyMistri2

•6 years ago

7 Replies

#dry mouth

Since April at night i have such a dry mouth....i even get the metallic taste. Im worried about my teeth with not much saliva protecting them, and bacteria...

Since April at night i have such a dry mouth....i even get the metallic taste. I...

DeeLP

•6 years ago

37 Replies

Medical PTSD

Thanks to Barnclown and others to introducing me to this concept 😍😍😍 (how do I embed a link to a member?... is there a test for cognitive dysfuntion?? 😨) I...

Thanks to Barnclown and others to introducing me to this concept 😍😍😍 (how do ...

eekt

•6 years ago

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Wasp sting ...Ouch !!

I went strawberry picking with my daughter and grandchildren today until a wasp went up my sandle and kept stinging one of my toes !! . Absolutely killing...

I went strawberry picking with my daughter and grandchildren today until a wasp ...

englishrose67

•6 years ago

3 Replies

Relaxing Image

Something for you to hopefully enjoy and to Relax to. I'm enjoying painting it helps keep my mind off pain. Barnclown shared her thoughts about how important...

Something for you to hopefully enjoy and to Relax to. I'm enjoying painting it h...

Ladyuponthelake

•6 years ago

21 Replies

Lupus or not lupus?... That is the question...

Saw the dermatologist today who has ruled out 'malar' rash advising that it is rosacea and he is prescribing a cream to help this. Other than having had a...

Saw the dermatologist today who has ruled out 'malar' rash advising that it is r...

Hidden

•6 years ago

11 Replies

For Ladyuponthelake

A bit of freeform knitting. In a colourful mood that day!

Lupiknits

•6 years ago

6 Replies

I’m sick of being ill and tired 😓

I know this is nothing new for everyone on here but I’m so sick of being tired. I try and rest as much as possible but I feel my life is on hold. I can’t...

I know this is nothing new for everyone on here but I’m so sick of being tired. ...

Kelihunt41

•6 years ago

5 Replies

Could I have Lupus?

Hello I was tested for Lupus nearly 2 years ago and my blood came back borderline. I saw a rheumotologist where I was diagnosed with Fibromyalgia. I also have...

Hello I was tested for Lupus nearly 2 years ago and my blood came back borderlin...

Sophie1304

•6 years ago

10 Replies

Question about Autoimmune and Raynaud's

This really is just a quick question. I was wondering, since so many people with autoimmune disease seem to have Raynaud's phenomenon, is it possible to have...

This really is just a quick question. I was wondering, since so many people with...

eirinym

•6 years ago

3 Replies

K. J. OK steroids.....

Hi. I was diagnosed with sle about 5 years ago, I am currently taking methotrexate with folic acid but last week, due to a dodgy eye, was prescribed...

Hi. I was diagnosed with sle about 5 years ago, I am currently taking methotrex...

kjones

•6 years ago

2 Replies

Hydroxychloroquine & Eye Tests..

Hi all, I’ve recently had a Discoid lupus diagnosis and have been prescribed hydroxychloroquine. I also have RA and have been on this previously for my RA. My...

Hi all, I’ve recently had a Discoid lupus diagnosis and have been prescribed hyd...

RachelD1972

•6 years ago

3 Replies

My Own Parent thinks my Drug treatment prescribed is the cause of my problems verses my Lupus-Fibromyalgia-Thyroid disease!

This changes daily with the wind! My Parent ( I won’t say Father or Mother ) I only have one in my life- The other ditched a long one ago) I am older now...

This changes daily with the wind! My Parent ( I won’t say Father or Mother ) ...

MO3S50

•6 years ago

14 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for August 2018

Shoulder Scan Today

Another severe allergic reaction!

Take part in a user-testing workshop for a new website around clinical trials.

Shampoo advice

Newbie

Did anyone posting here start their lupus journey with positive blood results without clinical symptoms?

Diagnosed with Fibromyalgia

Candy floss hair anyone??

Prednisolone

Flares

New Appointment with some more Comprehensive Blood Tests

The best medicine!

Does anyone else have trouble with jaw joints: aching, tired, some swelling, irritating the trigeminal nerve, and numbness in lips?

Ritixamab

Not Sjogrens then.....

I can't stand the pain anymore.

Knee pain

PIP CAB meeting tomorrow

#dry mouth

Medical PTSD

Wasp sting ...Ouch !!

Relaxing Image

Lupus or not lupus?... That is the question...

For Ladyuponthelake

I’m sick of being ill and tired 😓

Could I have Lupus?

Question about Autoimmune and Raynaud's

K. J. OK steroids.....

Hydroxychloroquine & Eye Tests..

My Own Parent thinks my Drug treatment prescribed is the cause of my problems verses my Lupus-Fibromyalgia-Thyroid disease!

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