Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,744 members • 28,102 posts

All posts for July 2018

Serena Williams

Enjoying Wimbledon and watching Serena Williams playing. Does anyone agree with me that it is likely she is now sun sensitive? She’s completely covered and...

Enjoying Wimbledon and watching Serena Williams playing. Does anyone agree with ...

Barbara17

•6 years ago

7 Replies

Just been diagnosed with shingles

I have Lupus, sarcoidosis, rheumatoid arthritis, eye and skin sensitivity, I've also been treated for breast cancer so I'm on tamoxifen, hydroxychloroquine,...

I have Lupus, sarcoidosis, rheumatoid arthritis, eye and skin sensitivity, I've ...

EHSs

•6 years ago

7 Replies

Livedo Reticularis plus Raynauds...what next??

I swear, every time I go see my rheumatologist she says your lupus is really starting to bring out everything else...you now have livedo reticularis and...

I swear, every time I go see my rheumatologist she says your lupus is really sta...

Macsimum_de

•6 years ago

3 Replies

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HELP PLEASE

Please Can anybody answer me . I m very concerned about my nail toe condition . If You have any idea . Please answer me . The brown spot on my big nail toe ....

Please Can anybody answer me . I m very concerned about my nail toe condition . ...

Hidden

•6 years ago

7 Replies

Heathweave

Can one help me. I've been poorly the last few weeks. Going hot then cold. I've a very bad right shoulder. From the top side of neck right down to the end of...

Can one help me. I've been poorly the last few weeks. Going hot then cold. I've...

Lupploo

•6 years ago

5 Replies

Look up pictures of bier spots or palmar erythema.

Especially if your a heavy drinker, they can both be benign, but are also very common in correlation to advanced liver problems, and will typically come and...

Especially if your a heavy drinker, they can both be benign, but are also very c...

newyork2018

•6 years ago

1 Reply

Anxiety

I was diagnosed with SLE 2 years ago and I really feel like I need some therapeutic services to help me understand this condition. I’m extremely anxious...

I was diagnosed with SLE 2 years ago and I really feel like I need some therapeu...

loopyloo58

•6 years ago

5 Replies

First referral

My GP has run various autoimmune tests and the ANA has come back positive, I’m also presenting with most of the symptoms of lupus. He stated last week he would...

My GP has run various autoimmune tests and the ANA has come back positive, I’m a...

Holliemog1

•6 years ago

2 Replies

lupus , neutropenia , anaemiea and hypothyroidisim

hello, everyone, I am new for all of this and I will appreciate your help. my story had begun with my third miscarriage in the last April where I was very ill...

hello, everyone, I am new for all of this and I will appreciate your help. my st...

nora123456

•6 years ago

11 Replies

Pain

Why do I have so much pain

evelyn32877

•6 years ago

2 Replies

Bilateral chronic, reoccurring mastoiditis/ear infections/glue ear, PET and lupus (sle). Does anyone have experience of this?

Hi fellow warriors :) I have just been diagnosed with sle but I think I started with it in my teenage years-i am now 36. I have bilateral (both sides)...

Hi fellow warriors :) I have just been diagnosed with sle but I think I started ...

Serser

•6 years ago

2 Replies

Something we can all relate to

If have a chance watch 'Brain on Fire' I'm sure we cn all relate to how the parents feel. It's about a Brain Autoimmune Disease

If have a chance watch 'Brain on Fire' I'm sure we cn all relate to how the par...

Ladyuponthelake

•6 years ago

6 Replies

Upped steroid dosage

Hello all, Following a severe allergic reaction to hydroxychloroquine, I’ve stopped taking that and my rheumatologist has told me to up my steroid dosage from...

Hello all, Following a severe allergic reaction to hydroxychloroquine, I’ve sto...

mollyaimee

•6 years ago

6 Replies

Sun cream

Good evening friendly lupus folks Quick question - can anyone recommend an SPF 50 suncream that is okay for sensitive skin? Always wear cream but usually a...

Good evening friendly lupus folks Quick question - can anyone recommend an SPF ...

HelenL75

•6 years ago

17 Replies

Graham Hughes International Charity (GHIC) patients' meeting in London (21st September 2018)

The Graham Hughes International Charity (GHIC) are having their first patient meeting on 21st September 2018 at London Hilton Tower Bridge. There is an...

The Graham Hughes International Charity (GHIC) are having their first patient me...

Paul_Howard

Partner•6 years ago

2 Replies

Proteinuria in lupus

My mother was diagnosed with lupus last year in August. Since then, we have are having regular blood/urine(regular/24 hours) test and she is taking steroids...

My mother was diagnosed with lupus last year in August. Since then, we have are ...

samsitr

•6 years ago

3 Replies

PIP / Lupus / Delay?

PIP - hi everyone, I'm having a super stressful time with my health at the moment and in 7 weeks it's going to be my brother's wedding in August. On top of...

PIP - hi everyone, I'm having a super stressful time with my health at the momen...

LilyMistri2

•6 years ago

8 Replies

Prednisolone diary 12 - a breakthrough?

Following my developing myositis, I switched up from 4mg pred, first to 12mg and then to 24mg methyl pred daily. The 3 weeks on 12mg seemed to have little...

Following my developing myositis, I switched up from 4mg pred, first to 12mg and...

whisperit

•6 years ago

33 Replies

Vogue

thought I'd share my forearm with you, think i may have to postpone my vogue cover shoot for a little while 😁

thought I'd share my forearm with you, think i may have to postpone my vogue cov...

Hidden

•6 years ago

2 Replies

anybody diagnosed with lupus had balance problems headaches fever joint pain on immune suppressant told symptoms Fibo

Writing here for some support how to make a long story short back in 1998 I had a seizure I didn't know what was happening in years before in my late teens...

Writing here for some support how to make a long story short back in 1998 I had...

Hidden

•6 years ago

2 Replies

Looking for some advice please

I am 37. I have been struggling for years with various unexplained aches, pains and fatigue. I have back issues with herniated discs, stomach problems with...

I am 37. I have been struggling for years with various unexplained aches, pains ...

Barks1

•6 years ago

1 Reply

Productive GP appointment today

After messing about for 2 weeks waiting for a GP phone call, I hand delivered a letter to the surgery last week listing what I needed to talk about and was...

After messing about for 2 weeks waiting for a GP phone call, I hand delivered a ...

flap7

•6 years ago

6 Replies

Nothing gained by rheumy appointment

Appointment with rheumy today, started well no panic attack then went down hill from there. The nurse taking my blood pressure wasn't looking what she was...

Appointment with rheumy today, started well no panic attack then went down hill ...

Bronn

•6 years ago

21 Replies

Just joined the groupe

Hi all I a new be. I'e had lupus for well over 30 years now. My hobbies are knitting and sewing. And I do a lot of reading. I am all so a big fan of dolphins....

Hi all I a new be. I'e had lupus for well over 30 years now. My hobbies are knit...

Lupploo

•6 years ago

10 Replies

Newly diagnosed with SLE

Hello My name is Mia. I'm 21 years old, and I've just been diagnosed with SLE. I live in Kent and have a close family and friend network around me. As I'm new...

Hello My name is Mia. I'm 21 years old, and I've just been diagnosed with SLE. I...

Mia_Alicia

•6 years ago

10 Replies

Freak accident 😜 Surgery?

Hello friends! My husband and I just returned from a fabulous vacation in horse and bourbon country, USA--aka-- Kentucky. Despite smashing my foot while using...

Hello friends! My husband and I just returned from a fabulous vacation in horse ...

shareasmile

•6 years ago

6 Replies

True lipids

has anyone heard of this cream called true lipids , it is supposed to be good but i can't find anywhere in the UK that stocks it .

has anyone heard of this cream called true lipids , it is supposed to be good bu...

Hidden

•6 years ago

2 Replies

Hydroxy and Hashimotos

Does anybody take Hydroxychloroquine and have Hashimotos for either Lupus or Sjogrens? Does it affect your Hashimotos? Or is it ok?

Does anybody take Hydroxychloroquine and have Hashimotos for either Lupus or Sjo...

mistygrey

•6 years ago

1 Reply

Discoid lupus

Hi, I only found out last week that I have discoid lupus. I’m am slightly worried as I booked a holiday to Turkey in August which is super hot! I’ve asked my...

Hi, I only found out last week that I have discoid lupus. I’m am slightly worrie...

Luciab06

•6 years ago

9 Replies

Beware of Shingles (Shingrix) vaccine!

I had an appointment with my Rheumatologist a couple of weeks ago and she advised me to have a Shingles vaccine. She said the new one is ok for people with...

I had an appointment with my Rheumatologist a couple of weeks ago and she advise...

ecough

•6 years ago

41 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for July 2018

Serena Williams

Just been diagnosed with shingles

Livedo Reticularis plus Raynauds...what next??

HELP PLEASE

Heathweave

Look up pictures of bier spots or palmar erythema.

Anxiety

First referral

lupus , neutropenia , anaemiea and hypothyroidisim

Pain

Bilateral chronic, reoccurring mastoiditis/ear infections/glue ear, PET and lupus (sle). Does anyone have experience of this?

Something we can all relate to

Upped steroid dosage

Sun cream

Graham Hughes International Charity (GHIC) patients' meeting in London (21st September 2018)

Proteinuria in lupus

PIP / Lupus / Delay?

Prednisolone diary 12 - a breakthrough?

Vogue

anybody diagnosed with lupus had balance problems headaches fever joint pain on immune suppressant told symptoms Fibo

Looking for some advice please

Productive GP appointment today

Nothing gained by rheumy appointment

Just joined the groupe

Newly diagnosed with SLE

Freak accident 😜 Surgery?

True lipids

Hydroxy and Hashimotos

Discoid lupus

Beware of Shingles (Shingrix) vaccine!

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Did you experience more frequent and/or severe lupus flares during the hot summer 2018 compared to summer 2017? (Please explain in comments)

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