Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,744 members • 28,102 posts

All posts for July 2018

Does it get worse?

is lupus an illness that generally worsens over time? I know there will be exceptions but i mean as a general rule.

is lupus an illness that generally worsens over time? I know there will be excep...

cathylou

•6 years ago

10 Replies

Feeling low

Hi this is my first time posting but like so many others it helps to know you’re not alone. I was diagnosed in October last year with SLE, Infamortary...

Hi this is my first time posting but like so many others it helps to know you’re...

Creamcrackered

•6 years ago

8 Replies

Shaky hands

Hi. Don't post very often. Read alot of post and sympathise and have alot of the same symptoms. For a good while now I have noticed I have had shaky hands...

Hi. Don't post very often. Read alot of post and sympathise and have alot of the...

Karm

•6 years ago

7 Replies

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Private diagnosis ? Would you recommend? Who did you use?

I’m so tired of feeling so rubbish and just being put on a rollercoaster with doctors who just won’t listen Have you seen a private doctor? Did they use...

I’m so tired of feeling so rubbish and just being put on a rollercoaster with do...

Lisalou19

•6 years ago

11 Replies

Diagnosis

Apologies if I am not on the right place I ve been unwell for some time aches pains muscular and joint , some gastric issues , fatigue and tiredness , . Visite...

Apologies if I am not on the right place I ve been unwell for some time aches pa...

Christie22

•6 years ago

8 Replies

Mepacrine

Hi Been to see Prof Cruz team again at Guy’s. They are now starting me on mepacrine. I’m a little concerned. Anyone else on it? Thanks

Hi Been to see Prof Cruz team again at Guy’s. They are now starting me on mepac...

Wolf1

•6 years ago

9 Replies

July's Topic of the Month - Caring for your Feet (We want to hear your tips and experiences)

Our Topic of the Month discussion for July is 'Caring for your Feet'. Problems with the feet are common in the general population, but they can have even more...

Our Topic of the Month discussion for July is 'Caring for your Feet'. Problems w...

Paul_Howard

Partner•6 years ago

15 Replies

Forcing Diagnosis through deliberate Flares?

Hi, I'm new here and have sort of come here out of desperation. For the last 7 years I have had health issues covering all of the classic symptoms of Lupus but...

Hi, I'm new here and have sort of come here out of desperation. For the last 7 y...

lsavery

•6 years ago

19 Replies

The state of play in Wales

Lack of NHS resources in Wales causing delays to inflammatory arthritis diagnosis and treatment State of Play Wales report Rheumatology and arthritis...

Lack of NHS resources in Wales causing delays to inflammatory arthritis diagnosi...

Kevin53

•6 years ago

7 Replies

Recently flare up and new diagnosis

I was just released from my last stay in the hospital for 10 days. The doctors found out I have nephritis caused by the lupus which I was diagnosed in 1993...

I was just released from my last stay in the hospital for 10 days. The doctors f...

Cubiche

•6 years ago

6 Replies

Finally

After almost three years and multiple doctors I finally have a diagnoses of RRMS. Now they want do genetic testing for what I don't know, it's expensive and...

After almost three years and multiple doctors I finally have a diagnoses of RRMS...

I814u24u

•6 years ago

3 Replies

Coping without caffeine!

Hi guys, I hope everyone's been doing well. After having some gastric problems as of late, I've decided to look at my caffeine intake. I've always been one...

Hi guys, I hope everyone's been doing well. After having some gastric problems ...

AmyJ3

•6 years ago

12 Replies

Bruises

Hi everyone, have any of you lupus friends suffered with bruises appearing. If I'd knocked myself Ye I'd expect a bruise, but I can honestly say I have not....

Hi everyone, have any of you lupus friends suffered with bruises appearing. If I...

Bronn

•6 years ago

14 Replies

Worsening head and neck pain.

I have been having headaches which I have put down to the warm weather but this week my neck has been getting progressively sore and stiff and I’m in a fair...

I have been having headaches which I have put down to the warm weather but this ...

imzi

•6 years ago

8 Replies

Has anyone had photosensitive testing done to help in a diagnosis?

I feel like I’m being pulled from pillow to post, and all I need right now is someone to help!!!!! My bloods are always normal which is not helping. So now...

I feel like I’m being pulled from pillow to post, and all I need right now is so...

Lisalou19

•6 years ago

5 Replies

Hydroxychloroquine and throbbing veins?

I have been on a low dose of hydroxy for a few weeks now and have noticed a lot of throbbing and pulsing veins in my arms and legs. I have experienced this...

I have been on a low dose of hydroxy for a few weeks now and have noticed a lot ...

phoebe-18

•6 years ago

4 Replies

June's Topic of the Month - Starting a New Treatment

Hi everyone, We've just published our Topic of the Month article for June about starting a new treatment. You can read it at...

Hi everyone, We've just published our Topic of the Month article for June about ...

Paul_Howard

Partner•6 years ago

Be the first to reply

Is it a Lupus Flare, Celiac flare, or menopause...?

I am new here. I was recently told my symptoms were Lupus, so I am trying to learn about this. I have all the symptoms but not the butterfly rash on the face....

I am new here. I was recently told my symptoms were Lupus, so I am trying to lea...

jash55

•6 years ago

4 Replies

how to explain lupus to others

Hi all, I'm new here and just diagnosed with lupus for 6 months (though I suffer lupus symptoms for a long time). The disease is really harsh. It not only...

Hi all, I'm new here and just diagnosed with lupus for 6 months (though I suffer...

imkeener

•6 years ago

8 Replies

Mycophenolate and pregnancy

To the ladies taking mycophenolate, does this medication make it harder to become pregnant

To the ladies taking mycophenolate, does this medication make it harder to becom...

Tash1987

•6 years ago

2 Replies

Occupational therapy appointment and PIP question

I have been thinking about putting in an application for PIP for support with difficulties caused by SLE/Raynauds's/back and leg issues. I am currently self...

I have been thinking about putting in an application for PIP for support with di...

flap7

•6 years ago

6 Replies

Rituximab and belimibub

I have pretty horrid Sjorgrens and they think they're some lupus in there too. I have been on hydroxy 400 for some time now with steroids here and there, but...

I have pretty horrid Sjorgrens and they think they're some lupus in there too. ...

puffyface

•6 years ago

7 Replies

Bath Hospital

I was wondering if any of you have been to Bath hospital and how you got on. Lupus has only showed up once in my blood in 2007 but I continue to have problems....

I was wondering if any of you have been to Bath hospital and how you got on. Lup...

Wrexlu

•6 years ago

17 Replies

Should I be worried?

I've been asked to provide a third urine sample in as many weeks. It shows wcc < 10 and rcc 5-99 i have no idea if that's bad. How many tests am i likely to...

I've been asked to provide a third urine sample in as many weeks. It shows wcc <...

cathylou

•6 years ago

10 Replies

Weak, achey muscles.

Hi, I've been having really bad problems with weak and achey muscles in my legs and arms. This stops me from walking for more than 10 minutes or so and can...

Hi, I've been having really bad problems with weak and achey muscles in my legs ...

eescvc

•6 years ago

8 Replies

Soft tissue issues

Knee, shoulder & hip all painful. X-rays show all is same. Thinking soft tissue inflammation. Can’t take antiinflammatories due to kidney issues. Any ideas for...

Knee, shoulder & hip all painful. X-rays show all is same. Thinking soft tissue ...

Sheole

•6 years ago

6 Replies

Independence

This week another piece of my independence walked out the door. I’ve been struggling with getting in and out the bath for a while but with the use of aids I’ve...

This week another piece of my independence walked out the door. I’ve been strugg...

Tinkerjack1912

•6 years ago

28 Replies

Massive study shows correlation between stress disorders and later auto-immune disease

A correlation study of over 1 million Swedes has just been published. It shows that those diagnosed with a significant stress disorder such as PTSD, acute...

A correlation study of over 1 million Swedes has just been published. It shows t...

whisperit

•6 years ago

24 Replies

Support

Has anyone had lupus and fibromygia for years, and felt like the support has not been there medically and at home? Does anyone have good support medically?

Has anyone had lupus and fibromygia for years, and felt like the support has not...

pixie24

•6 years ago

7 Replies

Fed up

I’m writing that at 4:30 am this morning . I took my injection on Thursday and yesterday I forgot my folic acid because I went out for a meal with work and...

I’m writing that at 4:30 am this morning . I took my injection on Thursday and ...

LouLamb

•6 years ago

43 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for July 2018

Does it get worse?

Feeling low

Shaky hands

Private diagnosis ? Would you recommend? Who did you use?

Diagnosis

Mepacrine

July's Topic of the Month - Caring for your Feet (We want to hear your tips and experiences)

Forcing Diagnosis through deliberate Flares?

The state of play in Wales

Recently flare up and new diagnosis

Finally

Coping without caffeine!

Bruises

Worsening head and neck pain.

Has anyone had photosensitive testing done to help in a diagnosis?

Hydroxychloroquine and throbbing veins?

June's Topic of the Month - Starting a New Treatment

Is it a Lupus Flare, Celiac flare, or menopause...?

how to explain lupus to others

Mycophenolate and pregnancy

Occupational therapy appointment and PIP question

Rituximab and belimibub

Bath Hospital

Should I be worried?

Weak, achey muscles.

Soft tissue issues

Independence

Massive study shows correlation between stress disorders and later auto-immune disease

Support

Fed up

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Did you experience more frequent and/or severe lupus flares during the hot summer 2018 compared to summer 2017? (Please explain in comments)

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