Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,732 members • 28,092 posts

All posts for July 2018

Changes.....

Hi all, I've been on hydrachloxichlorin 400mg daily my rhumi halved the dose three weeks ago after 15yrs on it said that was too long as it can damage your...

Hi all, I've been on hydrachloxichlorin 400mg daily my rhumi halved the dose thr...

Kriss53

•6 years ago

5 Replies

Hydroxychloroquine and IVF

I've been on hydroxy for 4 years now I'm about to start IVF my rhumy said meds will need doubling which I didn't question. At my appointment at IVF clinic...

I've been on hydroxy for 4 years now I'm about to start IVF my rhumy said meds w...

hanb27

•6 years ago

4 Replies

Very anxious about having IV Cyclophosphamide. need to hear of your experience with this drug.

Hi everyone, I really need your help. I have lung disease caused by lupus. currently my lupus is not under controlled and my lung capacity is diminishing. I...

Hi everyone, I really need your help. I have lung disease caused by lupus. curr...

field

•6 years ago

15 Replies

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Hydroxychloroquine and anxiety

I just wondered if anyone else has had a similar experience. I am 12 weeks into my hydroxychloroquine treatment for possibly Lupus (still no definite...

I just wondered if anyone else has had a similar experience. I am 12 weeks into ...

AmyG6500

•6 years ago

29 Replies

End of term

Just finished my 2nd school year at the school I work in ! September will be a big change for me as I’m moving into another class. The children are completely...

Just finished my 2nd school year at the school I work in ! September will be a ...

LouLamb

•6 years ago

9 Replies

MEDICATION PRODUCT RECALL : VALSARTAN

A recall is underway across Europe following recent and emerging information that a potentially carcinogenic impurity has been identified as part of the...

A recall is underway across Europe following recent and emerging information tha...

Paul_Howard

Partner•6 years ago

1 Reply

Any tips for the finger tips?

Sorry for the unpleasant photo! My nails have become really ridged and pale. Not sure if can see the ridges in the photo, but the ridges are like a darker...

Sorry for the unpleasant photo! My nails have become really ridged and pale. No...

BlackNov

•6 years ago

21 Replies

Everything At Once 😱

I keep on hoping for, but not really expecting, news about whether my PIP has been renewed. Phone call this morning from an official making the final decision...

I keep on hoping for, but not really expecting, news about whether my PIP has be...

Lupiknits

•6 years ago

9 Replies

Immune system - confused 😵

I cannot wrap my head around immune systems. I know my immune system is attacking 'self' and targeting certain areas but that's as far as i get! My daughter...

I cannot wrap my head around immune systems. I know my immune system is attackin...

cathylou

•6 years ago

9 Replies

Do I have lupus

Had a skin biopsy done in April the results came back as lichenoid inflammation. The dermatologist asked me some questions and I replied that I get rash on my...

Had a skin biopsy done in April the results came back as lichenoid inflammation....

Jazzy10

•6 years ago

5 Replies

Anyone tried Boombod from Holland & Barrett for weightloss!

Im seeing great reviews everywhere for this product. The main ingredient is Glucomannan which is a natural weight loss aid. Holland & Barrett have this product...

Im seeing great reviews everywhere for this product. The main ingredient is Gluc...

Shann07

•6 years ago

3 Replies

Muscle cramps

I have lupus sjogrens and PBC. I have been getting pins needles and bad muscle spasms and twitching. I was really worried l may have MS lve been to see a...

I have lupus sjogrens and PBC. I have been getting pins needles and bad muscle s...

kingsnorth43

•6 years ago

5 Replies

PIP Appeal

Hi, my pip appeal was adjourned I’m april I have today received a new date in August .. not sure why case was adjourned. Just feeling anxious, I have lupus so...

Hi, my pip appeal was adjourned I’m april I have today received a new date in Au...

jeevan05

•6 years ago

2 Replies

Back rash

I have a rash on my spine mid back. No itching or pain. My doctor says that it is lupus attacking my skin. I have no other symptoms have not been sick in many...

I have a rash on my spine mid back. No itching or pain. My doctor says that it i...

Cjeanblair

•6 years ago

2 Replies

Overwhelmed with Lupus

Hi I had Lupus for about year along with Sjogrens, RA and fibromyalgia. I take injections and prednisone along with many other meds. My doctor is weaning me...

Hi I had Lupus for about year along with Sjogrens, RA and fibromyalgia. I take i...

InezJ

•6 years ago

7 Replies

Please sign this petition - Help support people living with lupus in Wales get access to specialist care.

Please help us support people living with lupus in Wales by signing this petition started by the Pembrokeshire Lupus Group. We are calling on the Welsh...

Please help us support people living with lupus in Wales by signing this petitio...

Paul_Howard

Partner•6 years ago

32 Replies

Not in bloods

I wondered if anyone could help me please. I have all the classic signs of lupus but it does not show in my blood so the rheumatologist has suggested I might...

I wondered if anyone could help me please. I have all the classic signs of lupus...

Kittyjack

•6 years ago

20 Replies

mental health issues

someone I know tried taking there own life ,, she was put to mental team in Halifax hospital ,, then passed to ppl in Dewsbury ,, who have done absolutely...

someone I know tried taking there own life ,, she was put to mental team in Hali...

shaun1610

•6 years ago

12 Replies

Bittersweet

better than the alternative, I guess....

whisperit

•6 years ago

20 Replies

This is a call out for. Do you feel down after your 3 month rheumatology review for Lupus?

Hi all - I've just received my rheumatology review letter and am really down and very tearful. I feel helpless and hopeless suddenly. I have Lupus SLE...

Hi all - I've just received my rheumatology review letter and am really down and...

DJK99

•6 years ago

13 Replies

support groups ?

hello everyone just want to know if anyone knows of any support groups in colchester area , have been looking but no luck so far . would really love to meet...

hello everyone just want to know if anyone knows of any support groups in colche...

samlewis67

•6 years ago

8 Replies

Sun tan lotion

Hi my names Mary, I have cutaneous Lupus, was wondering if anybody has any ideas of suntan lotion which doesn’t leave awful stains on clothes.

Hi my names Mary, I have cutaneous Lupus, was wondering if anybody has any ideas...

Amber560

•6 years ago

30 Replies

Bruising under toes

Does anyone experience this? It seems to happen mainly on my little toes when I've been walking for a while and has been happening for several months. My...

Does anyone experience this? It seems to happen mainly on my little toes when I...

flap7

•6 years ago

2 Replies

Sun tan lotion

Does anyone else have problems which sun tan lotion to use, as I find they make such a mess of your clothes, particularly whites!!

Does anyone else have problems which sun tan lotion to use, as I find they make ...

Amber560

•6 years ago

3 Replies

Advice

Does anyone know if rigors are connected with lupus

Lucyllama

•6 years ago

7 Replies

Anywhere in UK that does full UV window tinting?

Hi everyone, I need to get 3 quotes to UV tint my car for work. I’m a nurse and use my car a lot in the community. I’m hoping that access to work will...

Hi everyone, I need to get 3 quotes to UV tint my car for work. I’m a nurse and ...

Serser

•6 years ago

6 Replies

Is it possible for blood tests to show you no longer have "Lupus Factors" in your blood?

Have had Lupus for years and I'm now feeling a lot better . Lungs still bad and RA still ordinary but latest blood tests seem to show promising results.

Have had Lupus for years and I'm now feeling a lot better . Lungs still bad and ...

JOWE

•6 years ago

2 Replies

I wish for comfy days

I think it definitely worsen as times Go by for sure I call it old befor my time can hardly walk from this crippling diease. I have injection once a week to...

I think it definitely worsen as times Go by for sure I call it old befor my time...

nita57

•6 years ago

2 Replies

Arthritis Ra lupus

nita57

•6 years ago

Be the first to reply

Lupus aura and energy?

I had the most mysterious experience yesterday. I work at a summer camp and one of the girls (16 years old) approached me and told me that she can sense that I...

I had the most mysterious experience yesterday. I work at a summer camp and one ...

linicole

•6 years ago

21 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for July 2018

Changes.....

Hydroxychloroquine and IVF

Very anxious about having IV Cyclophosphamide. need to hear of your experience with this drug.

Hydroxychloroquine and anxiety

End of term

MEDICATION PRODUCT RECALL : VALSARTAN

Any tips for the finger tips?

Everything At Once 😱

Immune system - confused 😵

Do I have lupus

Anyone tried Boombod from Holland & Barrett for weightloss!

Muscle cramps

PIP Appeal

Back rash

Overwhelmed with Lupus

Please sign this petition - Help support people living with lupus in Wales get access to specialist care.

Not in bloods

mental health issues

Bittersweet

This is a call out for. Do you feel down after your 3 month rheumatology review for Lupus?

support groups ?

Sun tan lotion

Bruising under toes

Sun tan lotion

Advice

Anywhere in UK that does full UV window tinting?

Is it possible for blood tests to show you no longer have "Lupus Factors" in your blood?

I wish for comfy days

Arthritis Ra lupus

Lupus aura and energy?

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