Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,744 members • 28,102 posts

All posts for June 2018

1St rheumatology appt

HI everyone. Have my first rheumatology appt tomorrow. Have written all my symptoms down cause I will forget and I now have new symptoms. For the last 3...

HI everyone. Have my first rheumatology appt tomorrow. Have written all my sym...

•6 years ago

Constructive discussion with rheumy :)

I've complained a fair bit here about my rheumy, so it's only fair I should also post when he deserves praise. After the difficulties I had last week in...

I've complained a fair bit here about my rheumy, so it's only fair I should also...

•6 years ago

Advice please

Hi I have lupus SLE also discoid. I recently joined a swimming pool. Just wandering if anyone knows if it is safe for me to use the sauna and steam rooms...

Hi I have lupus SLE also discoid. I recently joined a swimming pool. Just wande...

•6 years ago

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Frustrated .

I was at my Rheumatologist appointment last week, my other half came with me for support. I saw the Lupus nurse yet again (She is really nice but l have not...

I was at my Rheumatologist appointment last week, my other half came with me for...

•6 years ago

Has anyone had pleurisy and how long did it last?

Hi everyone I have a number of health problems, Lupus, Fibro, Diabetes, High blood pressure etc and normally suffer a lot with my lungs and kidneys. I get...

Hi everyone I have a number of health problems, Lupus, Fibro, Diabetes, High blo...

•6 years ago

Sunshine 🌞

Hi all you lovely Lupies out there. Hope you have been enjoying the lovely weather we have been having 👍🏻 And that you are all as well as you can be 😊 I’m...

Hi all you lovely Lupies out there. Hope you have been enjoying the lovely weath...

•6 years ago

Help!!

I suffer with Lupus, Fibro myalgia, Epilepsy, Asthma and numerous other health issues. I have recently come out of hospital after a water infection went to my...

I suffer with Lupus, Fibro myalgia, Epilepsy, Asthma and numerous other health i...

•6 years ago

Help needed

Hy, my niece has lupus for a couple of years now. She is 23 now. maybe 10 days ago she suffered horrible pain and nothing (aspirin, ibuprofen) could make it...

Hy, my niece has lupus for a couple of years now. She is 23 now. maybe 10 days ...

•6 years ago

Sinus inflammation

A sinus ct scan showed sinus inflammation which reached very close to my optic nerve causing a scar behind my eye. My consultant thinks is due to blood vessels...

A sinus ct scan showed sinus inflammation which reached very close to my optic n...

•6 years ago

PIP

Has anyone tried applying for PIP with there illness

Has anyone tried applying for PIP with there illness

•6 years ago

Is there Something I Can Take?

in regards to pain meds, I cannot take them. I am on a med that has an opiate blocker in it called; Naloxone. Yea i take Suboxone, Im not a heroin addict or...

in regards to pain meds, I cannot take them. I am on a med that has an opiate bl...

•6 years ago

Is there a Pain Medication You Can Take?

in regards to pain meds, I cannot take them. I am on a med that has an opiate blocker in it called; Naloxone. Yea i take Suboxone, Im not a heroin addict or...

in regards to pain meds, I cannot take them. I am on a med that has an opiate bl...

•6 years ago

Lupus pain and no treatment

Hi I’m back again, I was started on methotrexate end of April dose of 15mg had stop three weeks ago due to low white cell count so in reality I only managed...

Hi I’m back again, I was started on methotrexate end of April dose of 15mg had ...

•6 years ago

Hair loss

I don’t have any eyebrow, hair won’t grow due to my lupus. Thank god for eyebrow pencil.

I don’t have any eyebrow, hair won’t grow due to my lupus. Thank god for eyebro...

•6 years ago

ANA positive can turn negative ANA

I had a severe allergy reaction and found ANA positive 4 months ago. Had a lot of issues joint and muscles pain. Breathing difficulties and chest pain etc. Now...

I had a severe allergy reaction and found ANA positive 4 months ago. Had a lot o...

•6 years ago

Should I go to A&E

We are a family of autoimmune disorders. My sister has lupus and my mum has rheumatoid arthritis. I’ve been back and forth to doctors for a year with strange...

We are a family of autoimmune disorders. My sister has lupus and my mum has rheu...

•6 years ago

A bit of advice please

I know this doesn’t relate to lupus directly and I know nobody on here is medically allowed to comment but I was wondering if anyone knows the answer. I’m on...

I know this doesn’t relate to lupus directly and I know nobody on here is medica...

•6 years ago

MRI of the brain.

Neurologist ordered MRI and I am terrified. I have claustrophobia. The doctor said they can sedate me. I am so scared! Has anyone had this...my question is do...

Neurologist ordered MRI and I am terrified. I have claustrophobia. The doctor sa...

•6 years ago

Bronchoscopy- done. Well sort of!!

Hi Went to St Thomas’s Hospital yesterday for the dreaded bronchoscopy. All the staff were amazing!!! So kind and understanding. The procedure was .. let’s say...

Hi Went to St Thomas’s Hospital yesterday for the dreaded bronchoscopy. All the ...

•6 years ago

Lupus rash

Hi. I am a 46 yr old who is currently under going several tests to figure out what ails me. I have painful joints. Especially my feet and shoulders. And there...

Hi. I am a 46 yr old who is currently under going several tests to figure out wh...

•6 years ago

I Have Pain on right side on top of breast that radiates to armpit. Does anyone else ever have this?

This started last night. When I woke up this morning It was still there. It is like an ache that comes on every 3-4 minutes and is bad. It will go into my...

This started last night. When I woke up this morning It was still there. It is l...

•6 years ago

Feeling Anxious All The Time in Social Situations, Work Friends & Family. Who Can't Get Approved For SSDI?

If you feel the way I do with Sever Anxiety in Social Gatherings, Work, Job Interviews(don't get job as you are nervous/anxious) & Just Life in...

If you feel the way I do with Sever Anxiety in Social Gatherings, Work, Job Inte...

•6 years ago

Pain in Upper Right Top of Breast & Into ArmPit

I am suffering with this annoying pain that started last night. It is located on my right side, top of breast and radiated into my armpit. It comes and goes...

I am suffering with this annoying pain that started last night. It is located on...

•6 years ago

Access to medical records

Following this week's debacle, I thought it would be handy to share people's experiences with this. My rheumy department today told me that they could not send...

Following this week's debacle, I thought it would be handy to share people's exp...

•6 years ago

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