Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,818 members • 28,154 posts

All posts for June 2018

Tacrolimus?

Lupus 15+ years. Chloroquine, Cellcept, Azathioprine, one dose of Rituximab. Now starting on Tacrolimus but worried about long term. Anyone else?

Lupus 15+ years. Chloroquine, Cellcept, Azathioprine, one dose of Rituximab. ...

patient165

•6 years ago

2 Replies

New PIP review information

This will be of interest to many who use this forum - let's hope there is more concrete information to follow....

This will be of interest to many who use this forum - let's hope there is more c...

flap7

•6 years ago

2 Replies

Confused 🤷‍♀️

Hi, I have fibromyalgia and peripheral arterial disease plus a few others, but my memory is that crap I can’t recall them lol. I’m here to ask for advice, I’ve...

Hi, I have fibromyalgia and peripheral arterial disease plus a few others, but m...

Bardongirl50

•6 years ago

14 Replies

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Anyone had an Acute Kidney Stage Warning?

My last two blood tests have highlighted an acute kidney stage warning, so instead of seeing my GP next week after the blood tests last week, I am to have the...

My last two blood tests have highlighted an acute kidney stage warning, so inste...

Lupiknits

•6 years ago

6 Replies

Ear bleeding

Hi, a family member has recently been diagnosed with SLE. Currently back in hospital, what is the best treatment to stop the rim of the ear(helix?) bleeding ?...

Hi, a family member has recently been diagnosed with SLE. Currently back in hosp...

NewYorktoParis

•6 years ago

4 Replies

Mycophenolate and feeling awful after a month -- normal??

Hi everyone, I've been taking my generous concoction of meds seemingly a-ok, until now. I started Mycophenolate early May, without issue at first, just a...

Hi everyone, I've been taking my generous concoction of meds seemingly a-ok, unt...

panda2

•6 years ago

21 Replies

Please help do I have lupus

Hi please can anyone help me before I go mad. A doctor at work says I may have lupus after lots of different out breaks I have. I won't list them all but the...

Hi please can anyone help me before I go mad. A doctor at work says I may have l...

Tyco1

•6 years ago

4 Replies

PIP Application Nightmare

Hello All I have joined the forum as a family member of someone suffering from Lupus in order to gain further insight and understanding. At the moment, the...

Hello All I have joined the forum as a family member of someone suffering from L...

andyking1990

•6 years ago

7 Replies

This ones about my daughter

Going back to my post about my daughter she was diagnosed with anckalosing spondylitis then went to see our phyio and she said I’m not a dr but it’s not the...

Going back to my post about my daughter she was diagnosed with anckalosing spond...

Ianrussell69

•6 years ago

4 Replies

Undiagnosed

Hi all my health issues are getting me down, I’ve been suffering with joint pain and rashes for 10 year since my mum pasted away. I’ve had a few ops for...

Hi all my health issues are getting me down, I’ve been suffering with joint pain...

Babyida

•6 years ago

6 Replies

Interviewee needed for ELLE UK

ELLE UK is looking to interview a woman with lupus (aged 18-35) to share her experience of losing her eyebrows for an online article. ELLE UK would ideally...

ELLE UK is looking to interview a woman with lupus (aged 18-35) to share her exp...

Chanpreet_Walia

LUPUS UK•6 years ago

2 Replies

New arrival!

Hi everyone - i posted a couple of months ago about my pregnancy and issues with my baby's growth in the womb. The baby has now arrived! She is called Juniper...

Hi everyone - i posted a couple of months ago about my pregnancy and issues with...

Swifty77

•6 years ago

20 Replies

Positive anti dsdna but no symptoms

My anti dsdna has come back positive, but other than occasional arthritis flares I haven’t had any other symptoms. Does this mean I will eventually developed...

My anti dsdna has come back positive, but other than occasional arthritis flares...

Parker42

•6 years ago

6 Replies

Chest pain

Hi my lupie friends Does anyone suffer with intermittent chest pain? I have been last couple of weeks. The first time was quite painful when I went swimming....

Hi my lupie friends Does anyone suffer with intermittent chest pain? I have been...

englishrose67

•6 years ago

9 Replies

Feeling comforted

This is my first post and I don’t even know if I have SLE but after 20 years of going to Doctors and complaining about pain and fatigue I finally got a new...

This is my first post and I don’t even know if I have SLE but after 20 years of ...

Rhod

•6 years ago

6 Replies

COPING DAY TO DAY ? ? ?

Hi everyone, just so fed of this today. Since my renal then chest infection cleared up I get 1 good day 1 bad day alternately. Good days are good bad days...

Hi everyone, just so fed of this today. Since my renal then chest infection cl...

Bronn

•6 years ago

7 Replies

Elbow/knee rash

Morning everyone! I was wondering if anyone has had an itchy, burning rash on their joints? It start on one elbow a week ago and is now on both elbows and one...

Morning everyone! I was wondering if anyone has had an itchy, burning rash on t...

abt84

•6 years ago

11 Replies

Questions about Disease Activity and Plaquenil dose

Hello all, I had an appointment with my Rheumy this past week and she told me a couple of surprising things based on what she says is "new research"......

Hello all, I had an appointment with my Rheumy this past week and she told me a...

ecough

•6 years ago

23 Replies

Still waiting

Hi all, Just wanting to connect with others and possibly gain some advice here. Brief history 6 years ago I had a retinal vein occlusion (TIA) and a year and a...

Hi all, Just wanting to connect with others and possibly gain some advice here. ...

balamuti

•6 years ago

7 Replies

Lupus Nephritis

Hi Hoping for some advise... I was diagnosed with SLE and Lupus Nephritis in Feb. I've started on 60mg steroids and MMf straight away, last month I had...

Hi Hoping for some advise... I was diagnosed with SLE and Lupus Nephritis in Fe...

MOOG144

•6 years ago

3 Replies

If not Lupus... what next?

Not exactly lupus related. I guess technically it's the opposite. It seems a few people here are lupus-like though or will have been through different...

Not exactly lupus related. I guess technically it's the opposite. It seems a few...

BubbleMonkey

•6 years ago

17 Replies

Skin biopsy

Hi has anyone had biopsy and it shows another desese not Lupus ? Thanks in advance

Hi has anyone had biopsy and it shows another desese not Lupus ? Thanks in advan...

suzierwp330

•6 years ago

5 Replies

Brain fog

Hi, Everyone not posted on here for while although I read post everyday and identify with fellow lupus suffers . Just recently I have become extremely...

Hi, Everyone not posted on here for while although I read post everyday and id...

tinkslupus

•6 years ago

17 Replies

Update on results

Good morning everyone, I have just been diagnosed with a rare form of lymphoma called nodal marginal zoneB-cell. I have been losing weight for over a year,...

Good morning everyone, I have just been diagnosed with a rare form of lymphoma c...

Lizard28

•6 years ago

13 Replies

Skin biopsies

Just a quick vent: had three biopsies today. New “suspicious” growths since I started Stellara as an experimental treatment for the joint pain and swelling....

Just a quick vent: had three biopsies today. New “suspicious” growths since I st...

katidid

•6 years ago

1 Reply

Lupus on brain mri facial palsy

Any one have experience with lupus on brain, lupus showing on mri or facial palsy?

Any one have experience with lupus on brain, lupus showing on mri or facial pals...

cathylou

•6 years ago

6 Replies

Work/career/hobbies

So I've had it confirmed. Started hydroxychloroquine today, can't wait for it to kick in. Does it really take 3 months? Will it stop me having flares? I told...

So I've had it confirmed. Started hydroxychloroquine today, can't wait for it t...

cathylou

•6 years ago

13 Replies

Surgery Tomorrow

Hi fellow warriors, I’m planned to have a total abdominal hysterectomy tomorrow & I was already feeling anxious etc but now tonight I’ve discovered the biggest...

Hi fellow warriors, I’m planned to have a total abdominal hysterectomy tomorrow ...

tweetyburd

•6 years ago

11 Replies

Sun

Hi everyone, well my chest infection is starting to clear up 😃 and I'm feeling a heck of a lot better. My task now is not to overdo things, hard when your a...

Hi everyone, well my chest infection is starting to clear up 😃 and I'm feeling ...

Bronn

•6 years ago

15 Replies

Anti ds DNA of 65?

ANA of 1:1280 and Anti ds DNA of 65. Docs/lab saying the 65 indicates a negative for the anti ds DNA test. Most things I've read are to the contrary. Any...

ANA of 1:1280 and Anti ds DNA of 65. Docs/lab saying the 65 indicates a negativ...

trost

•6 years ago

2 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for June 2018

Tacrolimus?

New PIP review information

Confused 🤷‍♀️

Anyone had an Acute Kidney Stage Warning?

Ear bleeding

Mycophenolate and feeling awful after a month -- normal??

Please help do I have lupus

PIP Application Nightmare

This ones about my daughter

Undiagnosed

Interviewee needed for ELLE UK

New arrival!

Positive anti dsdna but no symptoms

Chest pain

Feeling comforted

COPING DAY TO DAY ? ? ?

Elbow/knee rash

Questions about Disease Activity and Plaquenil dose

Still waiting

Lupus Nephritis

If not Lupus... what next?

Skin biopsy

Brain fog

Update on results

Skin biopsies

Lupus on brain mri facial palsy

Work/career/hobbies

Surgery Tomorrow

Sun

Anti ds DNA of 65?

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