Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,717 members • 28,083 posts

All posts for June 2018

Horrible allergic reaction!

Hello all, I’ve been taking prednisalone for about 2 months now with no issues. Started taking hydroxychloroquine about 2 weeks ago and since Tuesday I’ve had...

Hello all, I’ve been taking prednisalone for about 2 months now with no issues....

mollyaimee

•6 years ago

7 Replies

Gabapentin

Answering the question about Gabapentin:- This painkiller like most of them is highly addictive and if coming off it has serious withdrawal symptoms. I...

Answering the question about Gabapentin:- This painkiller like most of them is h...

Geordie-Y

•6 years ago

16 Replies

Stabbing, shooting pain in middle of left hand. Had for years, driving me crazy.

Can anyone tell me what maybe the cause of my anguish. I have An intermittent pain in my left hand. It comes and goes. Right now it’s the second day of the...

Can anyone tell me what maybe the cause of my anguish. I have An intermittent pa...

MostynWitham

•6 years ago

5 Replies

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Guy's Hospital

Hi, Just wondering if anyone else has had their appointment rescheduled at Guy's, I was due to see Prof D'Cruz on 13th July, I had a text this evening and it...

Hi, Just wondering if anyone else has had their appointment rescheduled at Guy's...

Leesy

•6 years ago

17 Replies

Dry skin & sun cream

So I have been using zero double prescribed. My doctor rang up and said you can have it anyone on prescription so I have to go and buy some from the chemist ....

So I have been using zero double prescribed. My doctor rang up and said you can ...

LouLamb

•6 years ago

19 Replies

Not sure what this positive means

Hi everyone, I’m under the care of the vasculitis clinic at Addenbrooke’s (thanks admin for the advice of getting myself referred there!). I’ve just had my...

Hi everyone, I’m under the care of the vasculitis clinic at Addenbrooke’s (thank...

Makimon

•6 years ago

4 Replies

Anyone tried Gabapentin for pain?

I have tried various painkillers and can’t take them - they make me vomit. I have just been given Gabapentin to try just wondering how anyone has got on with...

I have tried various painkillers and can’t take them - they make me vomit. I hav...

mskmb

•6 years ago

6 Replies

Hrdroxychloroquine

My dermatologist has prescribed me with Hydroxychloroquine 200mg one bd. Im also on Tacrolimus and Mrcophenalte Mofetil for my Lupus and to protect my renal...

My dermatologist has prescribed me with Hydroxychloroquine 200mg one bd. Im also...

MandaM

•6 years ago

18 Replies

Symptoms affecting my head!! Upper jaw, throat and scalp.

Hi there, anyone familiar with the following? I’m being driven a bit bonkers with them at the moment and a bit of help would be great. Diagnosed with UCTD in...

Hi there, anyone familiar with the following? I’m being driven a bit bonkers wit...

Horsewhisper

•6 years ago

14 Replies

Feel terrible

I feel ill but I am caring for my mom who has dementia. She moved in with me and my sis who works 10 hours a day. I work 10 hours a week but am struggling with...

I feel ill but I am caring for my mom who has dementia. She moved in with me and...

kt11

•6 years ago

5 Replies

Methoject

I had my first methoject today at the hospital . I did a lot better than I thought I have really come far in 2 years . I need to go back for a chest X-ray...

I had my first methoject today at the hospital . I did a lot better than I thoug...

LouLamb

•6 years ago

8 Replies

Mycophenolate and periods

I wonder if anyone has experienced a change in their cycle after starting mycophenolate. I have had troublesome periods for years, more so in the last two...

I wonder if anyone has experienced a change in their cycle after starting mycoph...

flap7

•6 years ago

2 Replies

The sun!! My enemy!

So everyone has been out enjoying the sun, I went out yesterday for 10 mins max and oh my goodness I was getting chest pains and joint pains! Recently during...

So everyone has been out enjoying the sun, I went out yesterday for 10 mins max ...

imzi

•6 years ago

2 Replies

The sun!! My enemy!

So everyone has been out enjoying the sun, I went out yesterday for 10 mins max and oh my goodness I was getting chest pains and joint pains! Recently during...

So everyone has been out enjoying the sun, I went out yesterday for 10 mins max ...

imzi

•6 years ago

2 Replies

Accessing the nhs as an expat.

This is following on from my previous post. Upon further research I see that we pay for healthcare as part of our visas, about 200 a year per person. According...

This is following on from my previous post. Upon further research I see that we ...

Iris365

•6 years ago

4 Replies

Moving from US to UK with Lupus

Hello everyone! I was diagnosed with Lupus last year, but since then my health has been stable and my family and I are looking to take a job opportunity in the...

Hello everyone! I was diagnosed with Lupus last year, but since then my health h...

Iris365

•6 years ago

12 Replies

Mycophenolate update after Rheumy appt

Hi all, It's the wee hours of the morning. Can't sleep -- but that's another story. I saw my Rheumatologist earlier today to review my experience on...

Hi all, It's the wee hours of the morning. Can't sleep -- but that's another s...

panda2

•6 years ago

11 Replies

Coughing that seems never ending!

Hi everyone I will apologise now because this is a very long post. I have had 3 chest infections since January with a really bad cough. The kind of cough that...

Hi everyone I will apologise now because this is a very long post. I have had 3 ...

Bakbre

•6 years ago

8 Replies

My rheumy steps it up - and free CPD!

For the second time, I am posting to praise my rheumy. I saw him on Monday to review my myositis and today he rang me at home - again - with the results of...

For the second time, I am posting to praise my rheumy. I saw him on Monday to re...

whisperit

•6 years ago

14 Replies

Suspected Lupus, diagnosed with Fibro. I need help!!!!! Please.

I need help. I've been ill for over 7 years. Fevers just about every day.....and the list goes on. I was told suspected Lupus but after a recent blood work...

I need help. I've been ill for over 7 years. Fevers just about every day.....and...

AngelaMew

•6 years ago

17 Replies

Lupus & hernias

Had to see an Immunologist last week for allergy tests. I took a long list of my food and medications that I have re actions too. Which I have discovered that...

Had to see an Immunologist last week for allergy tests. I took a long list of my...

Cal66

•6 years ago

8 Replies

Rheumatology versus Dermatology

I was wondering if anyone that suffers from Lupus rashes or lesions have had luck seeing a Dermatologist for treatment ? The reason I ask is I am on a waiting...

I was wondering if anyone that suffers from Lupus rashes or lesions have had luc...

Kwarshel06

•6 years ago

7 Replies

Aarrrgghh!!

Phew! I had to go to the dentist today, I was only out 2 1/2 hours but I'm exhausted. I covered up well and wore a scarf on my head, I have good reacter light...

Phew! I had to go to the dentist today, I was only out 2 1/2 hours but I'm exhau...

Bronn

•6 years ago

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Blood test results? Book recommendation?

Hey all just want to say thank you for everyone here. It feels like a community and I don’t experience those things by myself.❤️ My doctor asked me to do...

Hey all just want to say thank you for everyone here. It feels like a community ...

linicole

•6 years ago

7 Replies

Muscle pains

Afternoon lupies Does anyone get cramp like pain in their legs and struggle to bend the knee. I’m finding it hard to walk normally and manage day to day jobs.

Afternoon lupies Does anyone get cramp like pain in their legs and struggle to ...

Coffeetime

•6 years ago

13 Replies

Constant thirst, dry mouth, glug glug

Hi there. I had neg biopsy for Sjogren's this time last year, diagnosis of SLE. Not sure if sun affect, but the last couple of weeks my usual constant thirst...

Hi there. I had neg biopsy for Sjogren's this time last year, diagnosis of SLE. ...

DJK99

•6 years ago

10 Replies

Purple striae/stretchmarks?

Hi, sorry for the disturbing photo. Does anyone have stretchmarks on the belly and hips? They started appearing after a very bad flare last year which required...

Hi, sorry for the disturbing photo. Does anyone have stretchmarks on the belly a...

ellejay46

•6 years ago

4 Replies

Immunosuppressants

Hi Has anyone have experience with lowering immunopressions ( ASopress)

Voeltjie

•6 years ago

1 Reply

lupus reversal - any experience

hi has anyone read about Dr Goldner Brooke who reversed her lupus..

pookavi

•6 years ago

7 Replies

As my appointment is getting closer, I’m sitting here doubting my own self. Does anyone else have a rash that presents itself differently ?

The photo I am posting, shows a variation in how my rash exposes its self. The left photo is during a spike in my hormines, it burns like hell but no rise in...

The photo I am posting, shows a variation in how my rash exposes its self. The ...

Lisalou19

•6 years ago

6 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for June 2018

Horrible allergic reaction!

Gabapentin

Stabbing, shooting pain in middle of left hand. Had for years, driving me crazy.

Guy's Hospital

Dry skin & sun cream

Not sure what this positive means

Anyone tried Gabapentin for pain?

Hrdroxychloroquine

Symptoms affecting my head!! Upper jaw, throat and scalp.

Feel terrible

Methoject

Mycophenolate and periods

The sun!! My enemy!

The sun!! My enemy!

Accessing the nhs as an expat.

Moving from US to UK with Lupus

Mycophenolate update after Rheumy appt

Coughing that seems never ending!

My rheumy steps it up - and free CPD!

Suspected Lupus, diagnosed with Fibro. I need help!!!!! Please.

Lupus & hernias

Rheumatology versus Dermatology

Aarrrgghh!!

Blood test results? Book recommendation?

Muscle pains

Constant thirst, dry mouth, glug glug

Purple striae/stretchmarks?

Immunosuppressants

lupus reversal - any experience

As my appointment is getting closer, I’m sitting here doubting my own self. Does anyone else have a rash that presents itself differently ?

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