Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,744 members • 28,102 posts

All posts for May 2018

Who’s treating you?

Is everyone here under a specialist? Anyone being treated solely by their GP?

maye1

•6 years ago

14 Replies

Worried for my 19 year old daughter!

I have SLE and was diagnosed in 2001 although I had been experiencing symptoms since 1991. My Aunty had rheumatoid arthritis and my father had raynauds...

I have SLE and was diagnosed in 2001 although I had been experiencing symptoms s...

Nokuse

•6 years ago

5 Replies

Has anyone with sjorgrens started having aches in their joints in this nice weather?

I was only sat outside for a short time under a gazebo which was not in full sun yesterday. Today all my joints are aching. I know I have some uv sensitivity...

I was only sat outside for a short time under a gazebo which was not in full sun...

Nikkipool

•6 years ago

15 Replies

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Feeling happy

Hi everyone its a long long time i didn't post any updates....my sister is sooo strong and doing great...her Dr reduced her prednisone by 3...she was using 60...

Hi everyone its a long long time i didn't post any updates....my sister is sooo...

Hidden

•6 years ago

4 Replies

Just wondering if thier are an...

Just wondering if thier are any new treatments for SLE since Bensylta

Reesie813

•6 years ago

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Teeth advice

Hi can anyone give me any advice on teeth, some of you may recall me mentioning previously about my teeth falling apart and spending quite a bit of my time at...

Hi can anyone give me any advice on teeth, some of you may recall me mentioning ...

Tinkerjack1912

•6 years ago

10 Replies

Hashimotos & Given antibody Kell during a blood transfusion 16yrs ago... now have mixed connective tissue disease... is there a link...?

Degenerative spine 7 levels, adenomyosis, fibroids, fatigue, chronic pain

PAMSTER

•6 years ago

2 Replies

Dressage Competition

I've felt better over the last few days. Last time I wanted to do a dressage competition I prepared but ended up in bed for three days with exhaustion and...

I've felt better over the last few days. Last time I wanted to do a dressage co...

HeKe

•6 years ago

11 Replies

Kefir milk

Has anyone tried Kefir probiotic milk? I've has three small glasses over three days. I'm feeling rough and fatigue is bad, I don't know if it's the kefir or...

Has anyone tried Kefir probiotic milk? I've has three small glasses over three d...

kt11

•6 years ago

4 Replies

Head very frustrated with this body!!!!!!

So... am just trying to do a bit of weeding again! My hands and wrists are not good at the mo so got both splints on but my hands just won’t work!!! Am so fed...

So... am just trying to do a bit of weeding again! My hands and wrists are not g...

Sara_A

•6 years ago

3 Replies

Sjorgens symptoms

Hi Im awaiting a lip biopsy testing for Sjorgen’s. I have all of the symptoms but blood test negative . I had a period of feeling well for about 10-12 days...

Hi Im awaiting a lip biopsy testing for Sjorgen’s. I have all of the symptoms b...

Angelamarston1963

•6 years ago

7 Replies

What's wrong with me?

My last bloods have all come back normal, yet I still have joint pain, fatigue, Raynauds, muscle pain and mouth sores. My husband and I feel we've hit a stone...

My last bloods have all come back normal, yet I still have joint pain, fatigue, ...

HeKe

•6 years ago

9 Replies

TENS machine helping!!

I have been really suffering with muscle spasm upper back and neck and occipital neuralgia lately. I’ve had the ON before but been ok for a while but it’s...

I have been really suffering with muscle spasm upper back and neck and occipital...

Sara_A

•6 years ago

7 Replies

Hello from D.. SLE diagnosee..! Struggling :(

Hello all - I'm Deb, Sussex UK based. First of all, I'm sorry you needed to put yourself on this blog... but hoping you find it a positive "raft" to cling to...

Hello all - I'm Deb, Sussex UK based. First of all, I'm sorry you needed to put ...

DJK99

•6 years ago

11 Replies

Still on the testing marathon

Hi All I do hope everyone is as well as can be. I’ve been keeping my head down and trying to come to terms with my suspect diagnosis of ME, Fibromyalgia and...

Hi All I do hope everyone is as well as can be. I’ve been keeping my head down a...

MsAndyIvy

•6 years ago

4 Replies

Steroid infusions

I have just had a steroid infusion, and I am feeling really fatigued, can’t move off bed, how long does it take to kick in or give some relief. Is it normal to...

I have just had a steroid infusion, and I am feeling really fatigued, can’t move...

Harold123

•6 years ago

9 Replies

Oral hygiene on point but always need dental treatment at each visit !!!! Can this disease attack your gums too I wonder !

Every day I brush my teeth at least twice a day, some times more. I use a mouthwash and floss daily too. Unless I put my mouth in the washing machine, I...

Every day I brush my teeth at least twice a day, some times more. I use a mouth...

Lisalou19

•6 years ago

20 Replies

Burning Pins & Needles!

Hi everyone I will apologise now for the ranting and long winded post! I have CTD & RA and I take a lowering dose of Prednisolone (down to 6mg a day from...

Hi everyone I will apologise now for the ranting and long winded post! I have C...

Bakbre

•6 years ago

7 Replies

Fatigue self-help guide

Hi all, Due to some inquiries about this on Tulipano's post about fatigue from a couple days ago, I'm adding a link here in a new post with some information my...

Hi all, Due to some inquiries about this on Tulipano's post about fatigue from a...

panda2

•6 years ago

5 Replies

Desperately trying to figure out what’s going on with me...

Hi everyone, I’m wondering if it could be a side effect or allergic reaction from a medication or maybe Lupus? I just recently realized when I take my blood...

Hi everyone, I’m wondering if it could be a side effect or allergic reaction fro...

Karaph

•6 years ago

7 Replies

So much to learn !! - New to lupus

Hello my name is tekoa , I’m 28 years old . I experience loosing two babies last year both around 12-16 weeks and had to be induced and deliver . Was very...

Hello my name is tekoa , I’m 28 years old . I experience loosing two babies las...

Tekoamussard

•6 years ago

4 Replies

Don’t know how I’m going to work tonight.

I’ve got to work tonight but my body doesn’t want to. I worked this morning till lunch time and then I’ve been resting on the sofa with horrible pains in my...

I’ve got to work tonight but my body doesn’t want to. I worked this morning till...

lisa___s

•6 years ago

6 Replies

PIP Appeal date

Got my letter through today , my appeal date is the 30th May at 3pm . I’m not going to stress about it , I see it as I have nothing to lose !

Got my letter through today , my appeal date is the 30th May at 3pm . I’m not g...

LouLamb

•6 years ago

29 Replies

Multiple auto immune illnesses

Hi I have suffered numerous autoimmune diseases. I had transverse myelitis in 2002, then overactive thyroid in 2008 for 2.5 years, I have now been diagnosed...

Hi I have suffered numerous autoimmune diseases. I had transverse myelitis in 2...

Hhood

•6 years ago

4 Replies

Subacute cultaneous lupus and inflammatory spondyloarthropathy

Hi all, could do with a bit of a vent, I've been on hydroxychloroquine for 2 years and it really seemed like my migraines improved on it, but I'm now starting...

Hi all, could do with a bit of a vent, I've been on hydroxychloroquine for 2 yea...

Comeonpeeps

•6 years ago

6 Replies

How longs a piece of string ?

Hi I’m sure many of you have been in the position I find my self in . Back in December I started with joint pain , fatigue etc - I’ve had fibro for many years...

Hi I’m sure many of you have been in the position I find my self in . Back in De...

Angelamarston1963

•6 years ago

12 Replies

sjogren's testing?

How would I get tested for this? Would I have to see an eye doctor, or a normal rheumatologist?

How would I get tested for this? Would I have to see an eye doctor, or a normal ...

0EmilyWanamaker0

•6 years ago

7 Replies

Fatique

This week my fatigue is really bad, I feel very weak and drained. How do you cope with fatigue?

This week my fatigue is really bad, I feel very weak and drained. How do you cop...

Tulipano

•6 years ago

15 Replies

NHS wait times

Hi everyone. I am as yet undiagnosed And waiting for my rheumatology appointment to come through. I have been waiting eight weeks just to receive a letter...

Hi everyone. I am as yet undiagnosed And waiting for my rheumatology appointmen...

abt84

•6 years ago

16 Replies

Thigh pain after excercise.

after starting excercise I didn't feel uneasy but at night I feel to start thigh pain.and when I wake up next day same feeling.cant even move normally or bend...

after starting excercise I didn't feel uneasy but at night I feel to start thigh...

ava97

•6 years ago

9 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for May 2018

Who’s treating you?

Worried for my 19 year old daughter!

Has anyone with sjorgrens started having aches in their joints in this nice weather?

Feeling happy

Just wondering if thier are an...

Teeth advice

Hashimotos & Given antibody Kell during a blood transfusion 16yrs ago... now have mixed connective tissue disease... is there a link...?

Dressage Competition

Kefir milk

Head very frustrated with this body!!!!!!

Sjorgens symptoms

What's wrong with me?

TENS machine helping!!

Hello from D.. SLE diagnosee..! Struggling :(

Still on the testing marathon

Steroid infusions

Oral hygiene on point but always need dental treatment at each visit !!!! Can this disease attack your gums too I wonder !

Burning Pins & Needles!

Fatigue self-help guide

Desperately trying to figure out what’s going on with me...

So much to learn !! - New to lupus

Don’t know how I’m going to work tonight.

PIP Appeal date

Multiple auto immune illnesses

Subacute cultaneous lupus and inflammatory spondyloarthropathy

How longs a piece of string ?

sjogren's testing?

Fatique

NHS wait times

Thigh pain after excercise.

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