Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,848 members • 28,191 posts

All posts for May 2018

Chicken pox and lupus

i have lupus and my friend has been in contacted with her grandchildren who have chicken pox we were going to meet up on Monday for a day out can i still she...

i have lupus and my friend has been in contacted with her grandchildren who have...

louloi

•6 years ago

5 Replies

HAPPY (?) WORLD LUPUS DAY!! 🦋🦄♥️🤗

When I told Mum it was World Lupus Day today, she asked me what I was doing for it. I gave it a think, and responded, ‘Enjoying my life, enjoying being me...

When I told Mum it was World Lupus Day today, she asked me what I was doing for ...

lupusinflight

•6 years ago

5 Replies

Contribute your views to new research looking at diet and lupus

A group of researchers at University College London (UCL) want to increase our understanding of what causes lupus so that we can improve and develop new...

A group of researchers at University College London (UCL) want to increase our u...

Paul_Howard

Partner•6 years ago

10 Replies

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World lupus day

So pleased to say that 9 people at work wore purple today !! I also left some leaflets in the staff room 🙂

So pleased to say that 9 people at work wore purple today !! I also left some le...

LouLamb

•6 years ago

2 Replies

Blotchy arms

Hi everyone, At my appointment yesterday my rheumatologist used something that looked a bit like a flashlight to closely look at the skies n in my arm. He said...

Hi everyone, At my appointment yesterday my rheumatologist used something that l...

WordWeaver

•6 years ago

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Pip

I've just returned from my assessment in Bristol. I don't think it went well. She asked me what I got in maths o level which was 40 years ago, I did remember...

I've just returned from my assessment in Bristol. I don't think it went well. Sh...

kt11

•6 years ago

4 Replies

Urine test

Hi, I always had blood in my urine but the last 3 times I had my urine checked by my gp I also had leukocytes cells (white blood cells) but no sign of...

Hi, I always had blood in my urine but the last 3 times I had my urine checked b...

Tulipano

•6 years ago

2 Replies

Dental Issues ...

Hello I have recently had to have a root canal treatment to a very angry tooth! Ended up in A&E and now had 3 visits and still tooth is too tender to get the...

Hello I have recently had to have a root canal treatment to a very angry tooth!...

Dcruz

•6 years ago

5 Replies

Butterfly Jewellery for World Lupus Day

My dear friend is donating 50% of all butterfly necklace sales (which she handmakes) to Lupus UK for World Lupus Day. I’ve linked the Facebook page below. Her...

My dear friend is donating 50% of all butterfly necklace sales (which she handma...

Wizz13

•6 years ago

1 Reply

Swollen feet and ankles

My feet swelled up terrible I actually got a fright. We were on holiday on a boat for seven days and the last two days my feet were swollen. I do notice as...

My feet swelled up terrible I actually got a fright. We were on holiday on a boa...

molly19

•6 years ago

13 Replies

Hi friends🙂

I was diagnosed in February of this year with, 'mild' Lupus. Been struggling with acceptance. I did not think that 'mild' could be so painful and restrictive....

I was diagnosed in February of this year with, 'mild' Lupus. Been struggling wit...

ChantelF

•6 years ago

2 Replies

Hi friends🙂

I was diagnosed in February of this year with, 'mild' Lupus. Been struggling with acceptance. I did not think that 'mild' could be so painful and restrictive....

I was diagnosed in February of this year with, 'mild' Lupus. Been struggling wit...

ChantelF

•6 years ago

18 Replies

World Lupus Day - 10th May

Hello everyone Just wondering what folks are doing for World Lupus Day. I will try to do something even if its just posting a few things on facebook and...

Hello everyone Just wondering what folks are doing for World Lupus Day. I will ...

fabwheelie

•6 years ago

3 Replies

ESA

Today I received the letter notifying me that ESA will no longer be available to me as of 03.05.2018. I had my medical review a few weeks ago & I scored 0...

Today I received the letter notifying me that ESA will no longer be available to...

Taurion

•6 years ago

18 Replies

Frustrated pericarditis versus inflammation of esophagus

I was diagnosed with pericarditis on April 11th . It started out as palpitations and then progressed to sternal chest tightness . On my first cardiologist...

I was diagnosed with pericarditis on April 11th . It started out as palpitations...

Nickel38

•6 years ago

3 Replies

Methotrexate and major hair thinning

I have been taking methotrexate 10 mg for 8 weeks. My hair is thinning each day. It has thinned by 40 percent. Anyone else have this effect, did it ever slow/...

I have been taking methotrexate 10 mg for 8 weeks. My hair is thinning each day....

tamib0713

•6 years ago

5 Replies

Hello I'm new

I was diagnosed with lupus March 2017

Barbeann

•6 years ago

2 Replies

Massage & Lupus meds

Hi folks, Hope you are all as well as can be. I was hoping someone would be able to answer this question for me, as I would really like to go for a full body...

Hi folks, Hope you are all as well as can be. I was hoping someone would be able...

_jenc_

•6 years ago

11 Replies

Lupus out of "remission"? Gall bladder removal

Lupus - I hate you!!! After few years of respite, since Sunday have been having the worse Lupus flare up imaginable accompanied with severe excruciating...

Lupus - I hate you!!! After few years of respite, since Sunday have been having ...

denden

•6 years ago

4 Replies

Positive ana 1.8 speckled neurologist ordered ana panel positive 19 high anti double stranded dna homogenous I don't understand is it lupus

Hello, my name is Kelly an I'm 40 years old. I'm exhausted all the time some days I can barely hold my head up. I hurt consistently. I have a red under the...

Hello, my name is Kelly an I'm 40 years old. I'm exhausted all the time some day...

KellyRenai

•6 years ago

11 Replies

EYE swelling and inflamation

Extreme eye inflamation. Surgery put me on infected eye drops. Swelling got extreme, went to eye hospital. They told me to stop infected eye drops, put me on...

Extreme eye inflamation. Surgery put me on infected eye drops. Swelling got extr...

Vrin

•6 years ago

6 Replies

Cracking performance by Paul Howard in the Milton Keynes half marathon yesterday!

Paul completed the Milton Keynes half marathon in sweltering temperatures yesterday, despite being dressed in full wolf costume! It was a pleasure to cheer...

Paul completed the Milton Keynes half marathon in sweltering temperatures yester...

sarahsch

•6 years ago

18 Replies

Heel Pain

Can anyone help please? Over the past few months my heels have got progressively worse. I have psoriatic arthritis, ankylosing spondylitis, ,...

Can anyone help please? Over the past few months my heels have got progressively...

Sarahd1609

•6 years ago

3 Replies

Path To Diagnosis: Can anybody offer some advice?

Hi My name is Rach. After 35 years of dragging myself through life every day in agony and exhaustion, I was finally diagnosed with Ehlers Danlos Hypermobility...

Hi My name is Rach. After 35 years of dragging myself through life every day in ...

Rachblack1972

•6 years ago

5 Replies

What next

As a sufferer of SLE and many other health problems sometimes I just feel like giving up.I’m 56yrs old and the last 20 have been hell.Everything I ever worked...

As a sufferer of SLE and many other health problems sometimes I just feel like g...

jeff61

•6 years ago

11 Replies

Should I find a new Rheumy? I’m torn. Please help.

I absolutely love my Rheumy, but I am being forced to find a new Rheumy due to the horrible office staff. The staff is rude, unprofessional and incompetent at...

I absolutely love my Rheumy, but I am being forced to find a new Rheumy due to t...

Hidden

•6 years ago

3 Replies

Sjorgens

Hi there Can anybody out there tell me how I pronounce Sjorgens please, as I can spell it but how you say it is another matter! Thanks everyone

Hi there Can anybody out there tell me how I pronounce Sjorgens please, as I ca...

Bakbre

•6 years ago

7 Replies

Neck and Rib Cage Pain

Hi Everyone, My daughter is 12 years of age and has been complaining about severe neck pain lately. She has GERD but I don’t think this has anything to do with...

Hi Everyone, My daughter is 12 years of age and has been complaining about sever...

HannahStrauss

•6 years ago

1 Reply

Does this sound like lupus?

I've had these symptoms for years now My symptoms aren't all there at the same time, they fluctuate. My symptom list is as follows: stingy eyes puffy eyes dark...

I've had these symptoms for years now My symptoms aren't all there at the same t...

healthiskey

•6 years ago

5 Replies

Constant Gastric problem in SLE

My mom was diagnosed with SLE in 2014. She has already been operated for colostomy in 2008 with complete rectum removed. She is currently on Omnacortil 10mg...

My mom was diagnosed with SLE in 2014. She has already been operated for colosto...

samsitr

•6 years ago

1 Reply

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for May 2018

Chicken pox and lupus

HAPPY (?) WORLD LUPUS DAY!! 🦋🦄♥️🤗

Contribute your views to new research looking at diet and lupus

World lupus day

Blotchy arms

Pip

Urine test

Dental Issues ...

Butterfly Jewellery for World Lupus Day

Swollen feet and ankles

Hi friends🙂

Hi friends🙂

World Lupus Day - 10th May

ESA

Frustrated pericarditis versus inflammation of esophagus

Methotrexate and major hair thinning

Hello I'm new

Massage & Lupus meds

Lupus out of "remission"? Gall bladder removal

Positive ana 1.8 speckled neurologist ordered ana panel positive 19 high anti double stranded dna homogenous I don't understand is it lupus

EYE swelling and inflamation

Cracking performance by Paul Howard in the Milton Keynes half marathon yesterday!

Heel Pain

Path To Diagnosis: Can anybody offer some advice?

What next

Should I find a new Rheumy? I’m torn. Please help.

Sjorgens

Neck and Rib Cage Pain

Does this sound like lupus?

Constant Gastric problem in SLE

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