Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,825 members • 28,164 posts

All posts for May 2018

Knitter required?

My good friend just told me I need ripped out and re knitted. I had a lump in my neck, went to my doctor who sent an urgent referral to see an ent doctor, saw...

My good friend just told me I need ripped out and re knitted. I had a lump in my...

Lizard28

•6 years ago

12 Replies

Embarrassing problem of incontinent during flare ups!!!!

I’ve always needed to empty my bladder very regular. Usually 15-20 times a day. Lately as I delve into the world of fatigue I have noticed that why I still...

I’ve always needed to empty my bladder very regular. Usually 15-20 times a day....

Lisalou19

•6 years ago

22 Replies

Lupus neuropathy treatment?- prickly all over

Hello everyone. I was diagnosed last year with Lupus/Sjogrens. I have many symptoms- mostly mild, that come and go, aches, fluish, chills, internal trembling,...

Hello everyone. I was diagnosed last year with Lupus/Sjogrens. I have many sympt...

poseymint

•6 years ago

6 Replies

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SCLE atypical rash?

Hi all, thank you for allowing me to join. My husband saw a dermatologist yesterday who thinks he has SCLE. He has taken a biopsy & blood tests. The rash is...

Hi all, thank you for allowing me to join. My husband saw a dermatologist yester...

sandibea

•6 years ago

14 Replies

Red Rash - thoughts? Please help!

Hello there folks! This is my first time on the forums - I’ve hesitated on asking for help as I don’t want to be seen to wanting to be ill, please understand...

Hello there folks! This is my first time on the forums - I’ve hesitated on aski...

Peppytea

•6 years ago

13 Replies

Help and advise please

Hello everyone I’m not posting for me today it’s my daughters birthday (19)tomorrow and she had her long overdue rumi app yesterday and she got a diagnosis so...

Hello everyone I’m not posting for me today it’s my daughters birthday (19)tomor...

Ianrussell69

•6 years ago

8 Replies

Gabapentin and weight gain...?

Hi everyone, I started gabapentin about amonth ago... 300mg daily tapering to 2700mg which I reached 9 days ago... Having lost a serious amount of weight...

Hi everyone, I started gabapentin about amonth ago... 300mg daily tapering to 27...

Poppyfields65

•6 years ago

7 Replies

Osteoarthritis

I've been managing OA for some years now and have found walking difficult at times. Recently built up a 30 min walk with my sons support having had the docs...

I've been managing OA for some years now and have found walking difficult at tim...

chrisj

•6 years ago

3 Replies

Blood test results and what tests should be taken next?

I suspect i have an autoimmune disease since i have all the signs of one. My symptoms aren't all there at the same time, they fluctuate. My symptom list is as...

I suspect i have an autoimmune disease since i have all the signs of one. My sym...

healthiskey

•6 years ago

12 Replies

LOOPS HOOPS AND ALL

Hi my name is Amanda im 44 but inside I am 94 it seems I am getting all the ails of an elderly person on top of which I mostly feel like an old lady too(no...

Hi my name is Amanda im 44 but inside I am 94 it seems I am getting all the ails...

amanda73

•6 years ago

5 Replies

Exhaustion & Photosensitivity/Lupus Patient

I would like to know how Lupus patients deal with the exhaustion. I would also like to know What photosensitivity does to you & what treatment entails if you...

I would like to know how Lupus patients deal with the exhaustion. I would also l...

Caroleborrmann

•6 years ago

15 Replies

Lupus

Hi, My name is Carole & am new,have Lupus, Sjogrens, & Barretts Disease.

Caroleborrmann

•6 years ago

8 Replies

Tomatoe problem anyone?

I'm rather new to flare up of auto-immune disease. I'm used to EDS issues. So I ask if anyone else is familiar with this problem. I finally made pasta sauce...

I'm rather new to flare up of auto-immune disease. I'm used to EDS issues. So I ...

Ladyuponthelake

•6 years ago

34 Replies

Trouble with Rheumatologist

I believe it was in February when I saw a new Rhumie. I had a woman who wasn't the one I was supposed to be with, but she was a stand in because the one I was...

I believe it was in February when I saw a new Rhumie. I had a woman who wasn't t...

0EmilyWanamaker0

•6 years ago

4 Replies

Anti CCP positive. I dont know what it means..

Hi all. Hope you are all having a tiptop day or at least a good plodding on day. Plodding on is very much under rated...anyway.... Ive just spoken with my GP...

Hi all. Hope you are all having a tiptop day or at least a good plodding on day....

Staywildmoonchild

•6 years ago

5 Replies

Negative ANA?

I've not been diagnosed with Lupus, but I do have many of its symptoms. I've had a few blood tests and the ANA keeps coming back as negative. Has anyone had...

I've not been diagnosed with Lupus, but I do have many of its symptoms. I've ha...

chriscarter

•6 years ago

8 Replies

So fatigued

Hi everyone I’ve just joined recently and although I only have a diagnosis of ME and Fibromyalgia, I really appreciate this site for the information and...

Hi everyone I’ve just joined recently and although I only have a diagnosis of ME...

breano

•6 years ago

4 Replies

DWP once again. When will they learn?

http://www.bbc.co.uk/news/uk-wales-44157953

Lupiknits

•6 years ago

3 Replies

Update on the "lady" question.

All clear 😁! Thanks for all the great advice on here.

HeKe

•6 years ago

7 Replies

thanx

I've been taking 5mg of Prednisolone for 5 month how i can stop use ity ?

makto

•6 years ago

4 Replies

Side effect of hydroxychloroquine or symptom of seronegative lupus?

I’ve had a fantastic response to hydroxychloroquine and 3 kenalogue IM injections since June last year - severe joint and muscle pain n stiffness improved but...

I’ve had a fantastic response to hydroxychloroquine and 3 kenalogue IM injection...

Lupymo

•6 years ago

10 Replies

Hot Hot Hot

Does anyone else feel like they are on fire when they are flaring? My face and neck feel and look like I’m on fire.

Does anyone else feel like they are on fire when they are flaring? My face and n...

Loopydroopy

•6 years ago

8 Replies

Rumi appointment

Hi had a really productive appointment yesterday took a list with me went through it been put back on methatrexate 😁and finally got prescribed salidaphil for...

Hi had a really productive appointment yesterday took a list with me went throug...

Ianrussell69

•6 years ago

4 Replies

New antibody! What does this mean?

Have uctd and on hydroxychloroquine but got letter today from consultant to say want to start me on methotrexate too as I've a new antibody. What does this...

Have uctd and on hydroxychloroquine but got letter today from consultant to say ...

suky6

•6 years ago

5 Replies

Update went to pcm

I Went to my pcm she isnt completely on board with neurologist but she ordered a 24 hour urine and said if my protein levels are high enough she will order a...

I Went to my pcm she isnt completely on board with neurologist but she ordered a...

KellyRenai

•6 years ago

7 Replies

Long road.

I feel like I’m on a long road to getting answers. I finally saw my rheumatologist yesterday, instead of sticking to my list I broke. It was so hot in there...

I feel like I’m on a long road to getting answers. I finally saw my rheumatologi...

lisa___s

•6 years ago

9 Replies

Anti-CCP 900+ but Lupus rather than RA?

Good evening all. I'm "on the verge" of being diagnosed with either Lupus or RA, but maybe neither...who knows 😕 I have lots of symptoms of both and my recent...

Good evening all. I'm "on the verge" of being diagnosed with either Lupus or RA,...

Deb_Dragon

•6 years ago

2 Replies

This forum is brilliant

As you may know I’m still Lupus undiagnosed and have been fobbed off with ME, fibromyalgia and chroocymigraine. I’ve tried to interact with said forums and by...

As you may know I’m still Lupus undiagnosed and have been fobbed off with ME, fi...

MsAndyIvy

•6 years ago

6 Replies

I feel like no one understands what I’m going through, work is a joke, one minute I’m happy the next I’m sad, which I never had lupus 😔😔

Lupus

Tash1987

•6 years ago

3 Replies

I'm a new member with a question..

Hello everyone, I've just joined the forum. I have had many of the symptoms of lupus for a long time and am very interested in finding complementary...

Hello everyone, I've just joined the forum. I have had many of the symptoms of l...

Mandadown

•6 years ago

2 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for May 2018

Knitter required?

Embarrassing problem of incontinent during flare ups!!!!

Lupus neuropathy treatment?- prickly all over

SCLE atypical rash?

Red Rash - thoughts? Please help!

Help and advise please

Gabapentin and weight gain...?

Osteoarthritis

Blood test results and what tests should be taken next?

LOOPS HOOPS AND ALL

Exhaustion & Photosensitivity/Lupus Patient

Lupus

Tomatoe problem anyone?

Trouble with Rheumatologist

Anti CCP positive. I dont know what it means..

Negative ANA?

So fatigued

DWP once again. When will they learn?

Update on the "lady" question.

thanx

Side effect of hydroxychloroquine or symptom of seronegative lupus?

Hot Hot Hot

Rumi appointment

New antibody! What does this mean?

Update went to pcm

Long road.

Anti-CCP 900+ but Lupus rather than RA?

This forum is brilliant

I feel like no one understands what I’m going through, work is a joke, one minute I’m happy the next I’m sad, which I never had lupus 😔😔

I'm a new member with a question..

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