Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,744 members • 28,102 posts

All posts for May 2018

ileostomy

I'm relatively new to having an ileostomy, it's not been a whole year yet. I'm finding that I am having to change my bag more often as the weather warms up as...

I'm relatively new to having an ileostomy, it's not been a whole year yet. I'm f...

suzannah16

•6 years ago

6 Replies

Lupus

Hi everyone am currently being tested for lupus. 2 of the blood tests have come back as positive consistently over the last ten years now having more tests....

Hi everyone am currently being tested for lupus. 2 of the blood tests have come ...

Hidden

•6 years ago

3 Replies

Rash

Hi Sat outside in my garden for approx an hour and now I have this rash. Any idea what it could be? It really stings. What can put on it to make it better?...

Hi Sat outside in my garden for approx an hour and now I have this rash. Any ide...

Tulipano

•6 years ago

11 Replies

Want to take advantage of all our features? Just log in!

Young and active autoimmune condition?

I'm 24 and strugglig with the effects of lupus and sjogren's, and also depression and anxiety. I have been told that I have to slow down and let go of my...

I'm 24 and strugglig with the effects of lupus and sjogren's, and also depressio...

IWTGO

•6 years ago

19 Replies

does anyone else have sticky blood?

I have sticky blood because of lupus does anyone else? I got blood clots on my lungs about 18 months ago and am now on blood thinners. I don't recall seeing it...

I have sticky blood because of lupus does anyone else? I got blood clots on my l...

suzannah16

•6 years ago

12 Replies

Methatrexate hangovers

Had my first Metatrexate injection in 8mth last night forgot how bad it gave me a hangover and my wife’s layed up with we think a slipped disc it horrible...

Had my first Metatrexate injection in 8mth last night forgot how bad it gave me ...

Ianrussell69

•6 years ago

1 Reply

Do you have a form of inflammatory arthritis? Have you been pregnant in the last year?

A team of researchers at City, University of London are aiming to explore the impact of inflammatory arthritis on planning and trying for a family, pregnancy...

A team of researchers at City, University of London are aiming to explore the im...

Paul_Howard

Partner•6 years ago

Be the first to reply

Endless battle to find meds I can cope with

Hi my lupy friends, I have SLE ITP sjorgens Raynards fibromyalgia and neuropathy, greedy I know 😊 since the beginning of the year I have been fighting a...

Hi my lupy friends, I have SLE ITP sjorgens Raynards fibromyalgia and neuropathy...

Manclady61

•6 years ago

9 Replies

Lupus with depression and anxiety. Now the Perimenopause! What natural remedies can I take? Yam cream?

Hi, I have Lupus (26 years now), which is under control, Depression and Anxiety (11 years) and I'm now premenopausal with an increase in my...

Hi, I have Lupus (26 years now), which is under control, Depression and Anxiety...

LilyMistri2

•6 years ago

14 Replies

Prescription wows

Hi had a productive appointment with my daughter at rumi wish she was under same consultant as me just for consistency any how as mentioned before she was...

Hi had a productive appointment with my daughter at rumi wish she was under same...

Ianrussell69

•6 years ago

2 Replies

PIP assessment today

My best friend, who came with me to my first PIP assessment and then accompanied me today, came around on Tuesday to look at a copy of my form and the various...

My best friend, who came with me to my first PIP assessment and then accompanied...

Lupiknits

•6 years ago

8 Replies

Blood tests confusing

Hi all, my husband has just had his blood test results which are supposed to be normal. He saw a consultant 5 days ago who diagnosed SCLE & took a biopsy. My...

Hi all, my husband has just had his blood test results which are supposed to be ...

sandibea

•6 years ago

3 Replies

Vote now!

(Not really)

whisperit

•6 years ago

1 Reply

Letter to my partner about Lupus

Overdid it lately. Yesterday wasn't a great day. Partner came home knackered after after a scorching day at work (he's a roofer) he didn't say as much but I...

Overdid it lately. Yesterday wasn't a great day. Partner came home knackered aft...

anjia

•6 years ago

13 Replies

Miss Lowe

Hello all, I have mixed connective tissue disease for 19 years now, and have just been diagnosed with Bells Palsy, by an emergency Doctor at the hospital. My...

Hello all, I have mixed connective tissue disease for 19 years now, and have jus...

OLGA-JANE

•6 years ago

2 Replies

Lupus & Melasma

Hi all, just wondering if anyone else suffers with melasma since being diagnosed with Lupus? Thanks

Hi all, just wondering if anyone else suffers with melasma since being diagnosed...

Westkey

•6 years ago

2 Replies

Lymph nodes

Hi, I am just wondering if many of you have little swollen glands down one side of your neck most of the time and even more pop up in a flare :)

Hi, I am just wondering if many of you have little swollen glands down one side ...

Charl80

•6 years ago

9 Replies

Mesenteric lymphadenitis?

Hello everyone Just wondering if anyone has been diagnosed with this. ?.I would love to know how was it treated, symptoms and if it did eventually go?. My GP...

Hello everyone Just wondering if anyone has been diagnosed with this. ?.I would ...

misty14

•6 years ago

25 Replies

Lupus Hypothyroidism and Ramadan

Hi I hope someone can help me with a question. It’s a personal one but I don’t know anyone else with Lupus I can ask. I have Lupus and Hypothyroidism. I take...

Hi I hope someone can help me with a question. It’s a personal one but I don’t k...

Ibraniya

•6 years ago

14 Replies

Too Long on Prednisolone

I have been taking Prednisolone for fifteen to twenty years, for PMR and Asthma. I have taken various doses depending on each flare up. I now have very thin...

I have been taking Prednisolone for fifteen to twenty years, for PMR and Asthma....

Lizby4

•6 years ago

12 Replies

Pain day 😞

I’ve just finished work, I’m knackered. Luckily my boss has given me the night off cause I was supposed to be working tonight as well. I’ve been getting...

I’ve just finished work, I’m knackered. Luckily my boss has given me the night o...

lisa___s

•6 years ago

3 Replies

Vitamin D deficiency

Hell everyone. Following my visit to dermatology at the beginning of the month the consultant has now written to me confirming I am deficient in vitamin D....

Hell everyone. Following my visit to dermatology at the beginning of the month ...

Barbara17

•6 years ago

30 Replies

Sun, sea, SI joints and Cellcept

I haven't posted for a little while and am just trying to catch up with what's going on with all of you lovely folks. I had some great advice here prior to my...

I haven't posted for a little while and am just trying to catch up with what's g...

flap7

•6 years ago

14 Replies

New - SLE and coping

Imagine that you have to do some real hard work, physical or mental, for a long period of time. Several days. Months. You can maximum sleep 8 hours per 24...

Imagine that you have to do some real hard work, physical or mental, for a long ...

IWTGO

•6 years ago

7 Replies

Here we go again

It seems as I only post here when things are not going well . I’m so exhausted today I could cry . As I walked my grandsons to school this morning it took all...

It seems as I only post here when things are not going well . I’m so exhausted t...

Angelamarston1963

•6 years ago

2 Replies

Really scared

Hello guys Been a while since I’ve posted anything. Basically as you know I was an in patient in St Thomas’s for two weeks in Nov under care of Prof Cruz. The...

Hello guys Been a while since I’ve posted anything. Basically as you know I was ...

Wolf1

•6 years ago

17 Replies

How did you know?

Hi there. I'm hoping you guys might be able to help me a bit. I'm currently diagnosed with 2 AI conditions (thyroid and Palindromic Rheumatism), but I'm...

Hi there. I'm hoping you guys might be able to help me a bit. I'm currently dia...

BubbleMonkey

•6 years ago

8 Replies

Waiting for results anxiety

Hi all! I've recently had blood tests and a scalp biopsy following 20 years of extreme hair loss (I currently wear a topper). The past year I have developed...

Hi all! I've recently had blood tests and a scalp biopsy following 20 years of e...

Racheal21

•6 years ago

17 Replies

esa and pip health assessment failures

i have been to so many esa medial assessments and also have been to so many pip health assessments and most of the time they have kept on failing me with these...

i have been to so many esa medial assessments and also have been to so many pip ...

johntravolta2017

•6 years ago

2 Replies

How are you?

David Shrigley has it about right. I've deteriorated quite badly in the last couple of weeks, with increasing muscle weakness and fatigue now making it hard to...

David Shrigley has it about right. I've deteriorated quite badly in the last cou...

whisperit

•6 years ago

35 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for May 2018

ileostomy

Lupus

Rash

Young and active autoimmune condition?

does anyone else have sticky blood?

Methatrexate hangovers

Do you have a form of inflammatory arthritis? Have you been pregnant in the last year?

Endless battle to find meds I can cope with

Lupus with depression and anxiety. Now the Perimenopause! What natural remedies can I take? Yam cream?

Prescription wows

PIP assessment today

Blood tests confusing

Vote now!

Letter to my partner about Lupus

Miss Lowe

Lupus & Melasma

Lymph nodes

Mesenteric lymphadenitis?

Lupus Hypothyroidism and Ramadan

Too Long on Prednisolone

Pain day 😞

Vitamin D deficiency

Sun, sea, SI joints and Cellcept

New - SLE and coping

Here we go again

Really scared

How did you know?

Waiting for results anxiety

esa and pip health assessment failures

How are you?

Search posts

Pinned Posts

Latest poll

Did you experience more frequent and/or severe lupus flares during the hot summer 2018 compared to summer 2017? (Please explain in comments)

Topics

Archive