Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,723 members • 28,084 posts

All posts for May 2018

Just looking for some advice!

I suffer from Juevenile Rheumatoid Arthritis, but was diagnosed with Lupus last year by my GO. Circumstances have forces me to stop working and recently in...

I suffer from Juevenile Rheumatoid Arthritis, but was diagnosed with Lupus last...

chellykm

•6 years ago

5 Replies

Lupus

Can anyone give me some advice. I am really struggling to get a lupus diagnosis. have had pay privately to see a rheumatologist and I am now awaiting an NHS...

Can anyone give me some advice. I am really struggling to get a lupus diagnosis....

Hidden

•6 years ago

24 Replies

Running and arthritis

For my Physical education final coming up early next week. I have to run/jog a mile. For me, it is extremely hard for me to run because of the intense pain I...

For my Physical education final coming up early next week. I have to run/jog a m...

0EmilyWanamaker0

•6 years ago

10 Replies

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Sick and tired of feeling sick and tired 😓

Hi all I’ve never posted before but really wanted some advice - I know no one here is a doctor but I really appreciate your opinions. I think that I may have...

Hi all I’ve never posted before but really wanted some advice - I know no one he...

Bahmum

•6 years ago

7 Replies

Thank you

I just want to thank you all for your comments about my appeal. I can honestly say with out the support of all you lot I wouldn’t have gone to appeal again. I...

I just want to thank you all for your comments about my appeal. I can honestly s...

LouLamb

•6 years ago

3 Replies

Lupus, factor 5 lieden, raynauds, multifocal long bone avascular necrosis

Hi, new here and dont normally introduce myself with illness list but am desperate for advice. Have had avascular necrosis in hip joints (now replaced) and...

Hi, new here and dont normally introduce myself with illness list but am despera...

popclarky

•6 years ago

6 Replies

Got admitted into hospital for hypoxia but left with diagnosis of diastolic heart failure

Went to ER due to not being able to breathe in deeply my breathing was fast passed an heart rate dropping PCM is now on board with lupus an is sending me to...

Went to ER due to not being able to breathe in deeply my breathing was fast pass...

KellyRenai

•6 years ago

2 Replies

Toxemia question.

I have a question. Does anyone know if toxemia can be part of lupus?.

Tara1_

•6 years ago

1 Reply

Appeal

The clerk rang me this morning asking if I could come at 1pm instead on 3pm for my appeal . I said yes . I went on my own I went in to the 3 people on the...

The clerk rang me this morning asking if I could come at 1pm instead on 3pm for ...

LouLamb

•6 years ago

19 Replies

Taking my own advice

I am incapable of this. Yesterday, I rang my rheumy nurse to request she sends me the results from my latest bloods and MRIs. I explained that my GP could not...

I am incapable of this. Yesterday, I rang my rheumy nurse to request she sends m...

whisperit

•6 years ago

34 Replies

Meeting n sharing

Hi wanted to know if there r anyone groups or meet up places in east London Feeling lonely n depressed

Hi wanted to know if there r anyone groups or meet up places in east London Fee...

Mystik

•6 years ago

4 Replies

Never giving up

I wanted to kno if being off my medicine causing more damage im trying to find sum help for instance n medication

I wanted to kno if being off my medicine causing more damage im trying to find s...

Brenaenelams179

•6 years ago

3 Replies

Never giving up

I'm a 48 yr old woman mother of 3 grown kid's i was diagnosed with lupus n 2010 it's been a hard confusing road i hurt alot muscle n joint pain skin...

I'm a 48 yr old woman mother of 3 grown kid's i was diagnosed with lupus n 2010 ...

Brenaenelams179

•6 years ago

4 Replies

Body pains

I have had Lupus for 7 years now, recently I’ve been going through quite a flare. My joints are unbearably sore especially my knees. They injected my muscle...

I have had Lupus for 7 years now, recently I’ve been going through quite a flare...

Suhaila_issa

•6 years ago

2 Replies

Umbrellas and Driving Sleeves for the Sun Sensitive

After the post by Button2 last week about driver's windshield uv guard, I mentioned to Fredabooboo that I'd share my update on my Coolibar driving sleeves....

After the post by Button2 last week about driver's windshield uv guard, I mentio...

panda2

•6 years ago

2 Replies

Can’t cope with the heat 😡

Hello all , i have Sjögrens and i dont usually perspire that much but OMG since the hot weather came on it’s dreadful . I have a cold shower and i try to dry...

Hello all , i have Sjögrens and i dont usually perspire that much but OMG since ...

weathervane

•6 years ago

13 Replies

worried

I'm not sure what's wrong with me today. firstly I had a shower and didn't need a nap afterwards. I have been shopping all over town and been for a walk this...

I'm not sure what's wrong with me today. firstly I had a shower and didn't need ...

suzannah16

•6 years ago

7 Replies

New Herbal Medication

Good day everyone, recently I've been extremely sick with the medication I've been prescribed so I decided to go to a herbal doctor. Has anyone ever use...

Good day everyone, recently I've been extremely sick with the medication I've be...

Stephanie0210

•6 years ago

9 Replies

Artritis in hands

One of my issues is arthritis, and it affects different areas on my body, and one of them is in my hands. My fingers on my right hand and daily bent and...

One of my issues is arthritis, and it affects different areas on my body, and on...

0EmilyWanamaker0

•6 years ago

8 Replies

CANT GET AVATAR PIC TO STAY.

Hi can anyone help? I keep trying to add my photo to the profile page. it says add avatar. I click on it, it takes me straight to my photo storage, I select...

Hi can anyone help? I keep trying to add my photo to the profile page. it says a...

dawnisup

•6 years ago

1 Reply

Epstein Barr

Anyone have Mono in the past? I’ve read an article that states Lupus can be linked to the Epstein Barr virus.

Anyone have Mono in the past? I’ve read an article that states Lupus can be link...

rchristi

•6 years ago

11 Replies

Appeal on Wednesday

I’ve got my appeal on Wednesday. I will be spending a good amount of time preparing for it tomorrow . I am going by myself this time . Last time I took my...

I’ve got my appeal on Wednesday. I will be spending a good amount of time prepar...

LouLamb

•6 years ago

9 Replies

Appeal on Wednesday

I’ve got my appeal on Wednesday. I will be spending a good amount of timing preparing for it tomorrow . I am going by myself this time . Last time I took my...

I’ve got my appeal on Wednesday. I will be spending a good amount of timing prep...

LouLamb

•6 years ago

2 Replies

Anyone have any idea?

Hi Probably nothing but does anyone know what this is? Started initially a few weeks ago after a period of being unwell. Skin became flaky in that small area...

Hi Probably nothing but does anyone know what this is? Started initially a few w...

CarolMcl

•6 years ago

29 Replies

Rituximab experiences?

I'm still waiting to hear the results of my myositis investigations, but my symptoms continue to worsen. My rheumy was clear that the treatment of choice is iv...

I'm still waiting to hear the results of my myositis investigations, but my symp...

whisperit

•6 years ago

15 Replies

Itchy skin

Hi my Lupie friends I was diagnosed with Sue last year and on Prednisone n Navique. Now of late my skin is itching getting worse daily. I went to see my...

Hi my Lupie friends I was diagnosed with Sue last year and on Prednisone n Navi...

Dibage

•6 years ago

3 Replies

Guy's and St Thomas' lupus clinic?

Okay so I'm quite certain I have lupus. Fits all my symptoms and the time frame and I can't work put anything else that fits as well as it does. I've started...

Okay so I'm quite certain I have lupus. Fits all my symptoms and the time frame ...

BubbleMonkey

•6 years ago

7 Replies

Finally

Hi everyone just a quick update I have finally had my lump removed. Turns out it was a cyst with a vascular. Had it done on Wednesday. So still a little bit...

Hi everyone just a quick update I have finally had my lump removed. Turns out it...

barbdockeray

•6 years ago

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Swollen Tongue

Hi, I’m waiting for an appointment to see a rheumatologist. I’ve been having problems with sores and upsets in my mouth which my dentist is trying to help...

Hi, I’m waiting for an appointment to see a rheumatologist. I’ve been having p...

Jacbar

•6 years ago

19 Replies

Painful feet, swollen ankle

My feet have been niggling since January. I've had gentle ankle pain and a tight feeling in the arches of my feet which often leads to cramping. Today my...

My feet have been niggling since January. I've had gentle ankle pain and a tigh...

HeKe

•6 years ago

2 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for May 2018

Just looking for some advice!

Lupus

Running and arthritis

Sick and tired of feeling sick and tired 😓

Thank you

Lupus, factor 5 lieden, raynauds, multifocal long bone avascular necrosis

Got admitted into hospital for hypoxia but left with diagnosis of diastolic heart failure

Toxemia question.

Appeal

Taking my own advice

Meeting n sharing

Never giving up

Never giving up

Body pains

Umbrellas and Driving Sleeves for the Sun Sensitive

Can’t cope with the heat 😡

worried

New Herbal Medication

Artritis in hands

CANT GET AVATAR PIC TO STAY.

Epstein Barr

Appeal on Wednesday

Appeal on Wednesday

Anyone have any idea?

Rituximab experiences?

Itchy skin

Guy's and St Thomas' lupus clinic?

Finally

Swollen Tongue

Painful feet, swollen ankle

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