Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,744 members • 28,102 posts

All posts for April 2018

Hi ya :)

Hey my names Emma I'm 32 and was diagnosed with sle at the age of 14 . even now after all these years I'm still learning about it and how differently it can...

Hey my names Emma I'm 32 and was diagnosed with sle at the age of 14 . even now ...

•6 years ago

Who believes that it was your mental health which led to the development of Lupus?

I think it is too much of a coincidence that my Lupus symptoms and diagnosis came so soon after a bout of severe circumstantial anxiety, stress and......

I think it is too much of a coincidence that my Lupus symptoms and diagnosis cam...

•6 years ago

Six months ago I had a hysterectomy, still struggling.

I have SLE, Hughes and osteoporosis , I had a hysterectomy six months ago, the op took over 4 hours due to scar tissue and they ended up opening me up instead...

I have SLE, Hughes and osteoporosis , I had a hysterectomy six months ago, the o...

•6 years ago

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Skin problems

Hi Guys Sorry I havent been online for ages. We have been having problems at home for the past 12 months. I am hoping one of you guys might be able to help or...

Hi Guys Sorry I havent been online for ages. We have been having problems at hom...

•6 years ago

Anyone get spaced out ?

Anyone get spaced out experiences 🤯- especially after being busy busy busy tidying sorting ready for a trip or something- then stop and sort of phase out !!!...

Anyone get spaced out experiences 🤯- especially after being busy busy busy tidy...

•6 years ago

Chronic pain: pain pump implant?

Hi all - reaching out for some advise. Looks like I'm going to be on pain medicine longer than I would have hoped. It really saddens me because I feel that I...

Hi all - reaching out for some advise. Looks like I'm going to be on pain medici...

•6 years ago

Lupus Nephritis - steroids and imnunosuppresants

Hi Diagnoised with stage 4 Lupus Nephritis 2 months ago currently on masses of drugs but the main one being 50mg prednisolone and 1.5mg MMF. So apart from...

Hi Diagnoised with stage 4 Lupus Nephritis 2 months ago currently on masses of d...

•6 years ago

Arthritis of the hands

Afternoon all I have SLE & most of the issues which come with it including kidney failure, dialysis & a transplant. I started a nail course in January which...

Afternoon all I have SLE & most of the issues which come with it including kidne...

•6 years ago

Free online courses

Hi everyone, a while ago someone posted about a free learning site with courses such as Italian language and lots of other subjects....does anyone know what...

Hi everyone, a while ago someone posted about a free learning site with courses ...

•6 years ago

Is it lupus?

Good morning all I was diagnosed with CNS lupus over a year ago. I know lupus can take years to fully diagnose. I have been very lucky and seen highly...

Good morning all I was diagnosed with CNS lupus over a year ago. I know lupus c...

•6 years ago

Professional with Lupus?

Hi, I’m a 23 year old recently diagnosed with SLE (lupus cerebritis + HLH on my first flare 1 yr ago). I’m hoping to ask for advice from or to connect with...

Hi, I’m a 23 year old recently diagnosed with SLE (lupus cerebritis + HLH on my ...

•6 years ago

Lupus Rash

What helps the lupus rash, I feel very embarrassed at time with it as it’s very unsightly on occasions, I use bare mineral make up which helps to cover it....

What helps the lupus rash, I feel very embarrassed at time with it as it’s very ...

•6 years ago

Excruciating pain

My legs are excruciatingly painful tonight and nothing is touching it. Getting fed up with my symptoms changing, getting worse and new ones coming up. 😖😔

My legs are excruciatingly painful tonight and nothing is touching it. Getting f...

•6 years ago

Long term LSE sufferer

I was diagnosed with Lupus in 1999. I also have Osteoporosis of the spine and arthritis in feet, knees and hips. I am now 73 years of age and was widowed just...

I was diagnosed with Lupus in 1999. I also have Osteoporosis of the spine and ar...

•6 years ago

Lazy

Hi I am 57 work full time in a challenging physical job I do my best at home bu am often so tired I just want to rest or sleep. I was diagnosed with lupus over...

Hi I am 57 work full time in a challenging physical job I do my best at home bu ...

•6 years ago

Painful lump

Hi not been for a while . I am totally fed up . That is putting it mildly . I have a golf ball sized lump some where unpleasant and in a uncomfortable place...

Hi not been for a while . I am totally fed up . That is putting it mildly . I ha...

•6 years ago

Purple knees

Hi can anyone tell me what has caused purple knees , had this three years summer and winter , I’m UCTD hypothyroidism Raynauds I’ve appointment with...

Hi can anyone tell me what has caused purple knees , had this three years summe...

•6 years ago

Microphage investigation

REALLY really early days yet but just come across some fascinating research by Trinity College Dublin:...

REALLY really early days yet but just come across some fascinating research by T...

•6 years ago

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Headache and vomiting

Last night I had such a bad headache that I ending up vomiting few times. Should I be worried about it and call my lupus nurse? Xx

Last night I had such a bad headache that I ending up vomiting few times. Shoul...

•6 years ago

Always feel the need to pee?

Past few weeks I have been having moments of being ‘bursting’ for the bathroom and turns out. to be a false alarm or passing very little I don’t have a uti as...

Past few weeks I have been having moments of being ‘bursting’ for the bathroom a...

•6 years ago

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