Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,744 members • 28,102 posts

All posts for April 2018

Methotrexate Injections 🙈

Hi everyone, I’m new here 👋 looking for some advice/words of wisdom regarding methotrexate injections 💉 I’ve been self administrating for 8 weeks now & I’m...

Hi everyone, I’m new here 👋 looking for some advice/words of wisdom regarding m...

tweetyburd

•6 years ago

7 Replies

40 MILE CHALLENGE

In November it is 40 years since my brother died (aged 19) of Lupus. To mark his memory I have set up a just giving page for a series of running events to...

In November it is 40 years since my brother died (aged 19) of Lupus. To mark his...

JohnnyBgood

•6 years ago

2 Replies

Anyone else with SLE have painful legs after waxing?

I came off Methotrexate (under rheumatologist) a few months ago and thought I'd try waxing again. Last night I did my lower legs and today, they are SO...

I came off Methotrexate (under rheumatologist) a few months ago and thought I'd ...

Joanna098

•6 years ago

4 Replies

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Malar rash? Much needed guidance please

Good afternoon everyone. I will write a post once ive navigated tgis site fully explaining a bit more about myself. But at the moment im in a very dark place...

Good afternoon everyone. I will write a post once ive navigated tgis site fully...

Staywildmoonchild

•6 years ago

14 Replies

Baby Growing!

Hi all - just a quick update - I posted 2 or 3 weeks ago about my pregnancy worries when I was told my baby had more or less stopped growing. Had a scan...

Hi all - just a quick update - I posted 2 or 3 weeks ago about my pregnancy worr...

Swifty77

•6 years ago

14 Replies

Meds concern

Hi I have a highly likely diagnosis of Lupus due to past history of 2 other auto immune diseases and having double stranded DNA. I have been on...

Hi I have a highly likely diagnosis of Lupus due to past history of 2 other auto...

Hhood

•6 years ago

5 Replies

SLE and Vitamin D.... Help

Quick question has anybody had a problem with vitamin D levels and their SLE? My vitamin D levels are very low I thought maybe going out for 15 to 20 minutes a...

Quick question has anybody had a problem with vitamin D levels and their SLE? My...

Kismetsoul

•6 years ago

11 Replies

Life with lupus once you're off the meds?

Hey lupies! I was diagnosed last March with SLE, and since then my meds have been tapered off to hydroxy & methotrexate - and my body's responding quite well....

Hey lupies! I was diagnosed last March with SLE, and since then my meds have bee...

kyliexc

•6 years ago

4 Replies

Life with lupus once you're off the meds?

Hey lupies! I was diagnosed last March with SLE, and since then my meds have been tapered off to hydroxy & methotrexate - which my body is responding pretty...

Hey lupies! I was diagnosed last March with SLE, and since then my meds have bee...

kyliexc

•6 years ago

4 Replies

Light sensitive ??

Hi I posted a couple of days ago about a reaction I had after sitting out in the sun for 10minutes (instant overwhelming fatigue and increased joint pain )...

Hi I posted a couple of days ago about a reaction I had after sitting out in the...

Angelamarston1963

•6 years ago

8 Replies

Just asking

Are papledemas common in lupus sufferers

Piperic

•6 years ago

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Addenbrooke’s Vasculitis Clinic

Hi everyone, I was just wondering if anyone has been to the Vasculitis Clinic at Addenbrooke’s Hospital? I’ve been referred by my GP after the advice I got...

Hi everyone, I was just wondering if anyone has been to the Vasculitis Clinic a...

Makimon

•6 years ago

13 Replies

Lupus.answers needed

In 2006 I had a papelladem.doctors couldn't find any reason for it.since then I have had flare ups of stomach pains.nausea muscle fatigue .joint...

In 2006 I had a papelladem.doctors couldn't find any reason for it.since then I ...

Piperic

•6 years ago

4 Replies

Autonomic crises?

Anyone have any experience of this? In the absence of medical assistance, I continue my efforts to self-diagnose. As some here may know, after several months...

Anyone have any experience of this? In the absence of medical assistance, I cont...

whisperit

•6 years ago

23 Replies

Looking for private Rheumatologist

Hi there, Just wondered if anyone could recommend any good Rheumatologists in Scotland please? I am wanting to go private as the waiting list is so long. I...

Hi there, Just wondered if anyone could recommend any good Rheumatologists in S...

BexColyer

•6 years ago

2 Replies

A pic of my stick seat

This is for twitchy and anyone else who might be interested in these stick seats!. They are such a boon for us who need to sit quickly and easily whilst...

This is for twitchy and anyone else who might be interested in these stick seats...

misty14

•6 years ago

12 Replies

Private rheumatologist appointment - how to present the best case?

I've just made some further enquiries regarding a private referral to a rheumatologist at the Nuffield Medical Centre in Chester with Dr Roger Bucknall. Dr...

I've just made some further enquiries regarding a private referral to a rheumato...

Poppet2308

•6 years ago

4 Replies

Side effects 🤔

Hello everyone, I hope you are all as well as can be. I apologise in advance for the similar topic post to one I made two months ago, however after a delay in...

Hello everyone, I hope you are all as well as can be. I apologise in advance for...

_jenc_

•6 years ago

12 Replies

Night swets AGAIN

Started off with headaches 2weeks ago then migraine that come on very quickly and go very quickly then night swets for the last week the fatigue has got...

Started off with headaches 2weeks ago then migraine that come on very quickly an...

Ianrussell69

•6 years ago

2 Replies

School and Flares

I've been having bad flares lately, including today. I'm not able to focus on my school work because of my pain. I want to go home and cry, and finish my...

I've been having bad flares lately, including today. I'm not able to focus on my...

0EmilyWanamaker0

•6 years ago

11 Replies

Drug interactions

DRUG interactions: Can I take Gabapenten and meloxicam?

ADPSONNY

•6 years ago

1 Reply

Lupus?

Hi all! I am new to this site. I am diagnosed with fibromyalgia and RA. I also have many of the signs and symptoms of lupus. It did not show up on the...

Hi all! I am new to this site. I am diagnosed with fibromyalgia and RA. I also h...

Sfelton

•6 years ago

1 Reply

Newly diagnosed and waiting for blood test results

Hello to everyone, I have recently been diagnosed with SLE (by a dermatologist) and I am waiting for blood tests and treatment. I live in Barcelona and today...

Hello to everyone, I have recently been diagnosed with SLE (by a dermatologist) ...

Nelly10

•6 years ago

3 Replies

Dr Hakim Appoinment

Hi All! I've been for my visit with Dr Hakim. Absolutely lovely person. Sadly I don't have anything to report to you. I'm being sent for numerous tests and...

Hi All! I've been for my visit with Dr Hakim. Absolutely lovely person. Sadly ...

Ladyuponthelake

•6 years ago

Be the first to reply

Prednisolone diary 10 - a disastrous experiment

Since getting down to 4mg daily about 10 months ago, my fatigue has steadily increased. I have become virtually housebound, and wake each morning severely...

Since getting down to 4mg daily about 10 months ago, my fatigue has steadily inc...

whisperit

•6 years ago

12 Replies

How do you handle it when you have to cancel appointments...like for your beautician or nail technician or just anything non medical??

It seems I have had to cancel appointments more than usual. I can hear it in the person's voice like "not again". It leaves me feeling like a failure. I have...

It seems I have had to cancel appointments more than usual. I can hear it in the...

Barbarajeand

•6 years ago

29 Replies

Hydroxychloroquine and eye testing

Hi everyone, Can anyone tell me how often they attend their local hospital for their eye tests on Hydroxy? My rheumy has told me to have my eyes tested at...

Hi everyone, Can anyone tell me how often they attend their local hospital for ...

Nurseladybird

•6 years ago

30 Replies

Further harrumphing!

Just been to GP. Very nice lady who looks very sympathetic, looks in your eyes with her head to one side and nods a lot but who is frankly more clueless than...

Just been to GP. Very nice lady who looks very sympathetic, looks in your eyes w...

MsAndyIvy

•6 years ago

38 Replies

New to Lupus.... possibly!

Hi, my diagnosis was ANA positive without any clinical features of SLE. However I saw the specialist nurse 2 weeks ago as I started to have increased fatigue...

Hi, my diagnosis was ANA positive without any clinical features of SLE. However ...

Scubes

•6 years ago

7 Replies

Lupus/UCTD, Chemotherapy and Research

Hi all, I'm just wondering if anyone here has had a similar experience of developing a connective tissue disease (Undifferentiated, Lupus, Sjogrens or...

Hi all, I'm just wondering if anyone here has had a similar experience of develo...

panda2

•6 years ago

23 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for April 2018

Methotrexate Injections 🙈

40 MILE CHALLENGE

Anyone else with SLE have painful legs after waxing?

Malar rash? Much needed guidance please

Baby Growing!

Meds concern

SLE and Vitamin D.... Help

Life with lupus once you're off the meds?

Life with lupus once you're off the meds?

Light sensitive ??

Just asking

Addenbrooke’s Vasculitis Clinic

Lupus.answers needed

Autonomic crises?

Looking for private Rheumatologist

A pic of my stick seat

Private rheumatologist appointment - how to present the best case?

Side effects 🤔

Night swets AGAIN

School and Flares

Drug interactions

Lupus?

Newly diagnosed and waiting for blood test results

Dr Hakim Appoinment

Prednisolone diary 10 - a disastrous experiment

How do you handle it when you have to cancel appointments...like for your beautician or nail technician or just anything non medical??

Hydroxychloroquine and eye testing

Further harrumphing!

New to Lupus.... possibly!

Lupus/UCTD, Chemotherapy and Research

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