Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,744 members • 28,102 posts

All posts for April 2018

Working Full Time

Hi all, Sorry I have not posted or spoken to anyone for a while, my life has been pretty hetic with work and appointments. I have had a pretty bad flare both...

Hi all, Sorry I have not posted or spoken to anyone for a while, my life has bee...

LSurtees

•6 years ago

4 Replies

Nervous to Start taking Hydroxychloroqine

I have recently been diagnosed with RA After reading the long list of side effects of Hydroxychloroqine, I'm not sure I want to start taking it. 400 mg per...

I have recently been diagnosed with RA After reading the long list of side effe...

Castlebeary

•6 years ago

51 Replies

Plaquenil Only for Lupus

Hi everyone. I am wondering if anyone is successfully treating their lupus with plaquenil only. My rheumatologist has said 'hopefully' this is all I need and...

Hi everyone. I am wondering if anyone is successfully treating their lupus with ...

sflynn84

•6 years ago

12 Replies

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Kidneys

Hi, I have mixed connective tissue disease, I have a bit of everything from lupus, arthritis and so on. In February I started getting really bad pains in my...

Hi, I have mixed connective tissue disease, I have a bit of everything from lupu...

Jess_doyle

•6 years ago

4 Replies

Lupus diagnosis

Hi, I don't have any questions but just wanted to share with you my experience with Lupus. I got diagnosed with SLE on March 2017, i was 40 years old then. I...

Hi, I don't have any questions but just wanted to share with you my experience w...

Douny

•6 years ago

5 Replies

A variety of experiences, perspectives, and perhaps success with alternative treatments for Lupus

I was diagnosed with Lupus in October. My Kidney's are constantly attacked, headaches that just don't go away for sometimes days, bruises out of nowhere,...

I was diagnosed with Lupus in October. My Kidney's are constantly attacked, head...

Jennwest

•6 years ago

3 Replies

Extremely itchy small bumps

A few days ago i noticed these very itchy small bumps on my chest and back. I just go home from travelling in south east asia (Cambodia and Kuala Lumpur) so...

A few days ago i noticed these very itchy small bumps on my chest and back. I ju...

hilaryamandaa

•6 years ago

3 Replies

SLE depression

I'm a high school student, I frequently have depression from SLE and memory confusion. With this it is hard for me to focus on my work, which is causing my...

I'm a high school student, I frequently have depression from SLE and memory con...

0EmilyWanamaker0

•6 years ago

11 Replies

Hi everyone , Looking for support group for lupus , Sjögren’s or Arthritis 🌸

Hi everyone 🤗 Can anyone tell me if there is a support group for either lupus, sjogrens or Arthritis in either Andover, Salisbury or in between ,for any one...

Hi everyone 🤗 Can anyone tell me if there is a support group for either lupus,...

Mellisa1066

•6 years ago

11 Replies

Radio programme on the microbiome

BBC Radio 4 programme today, focusing on research on the gut microbiome, how it interacts with the brain and autonomic system. As usual, it's full of...

BBC Radio 4 programme today, focusing on research on the gut microbiome, how it ...

whisperit

•6 years ago

1 Reply

Newly diagnosed with Auto immune rheumatic disease

Hi All, Diagnosed 5 months ago, I have positive ANCA test and my symptoms mirror those of lupus. Signed off work for 4 months, am practically bed and house...

Hi All, Diagnosed 5 months ago, I have positive ANCA test and my symptoms mirror...

Lin007

•6 years ago

14 Replies

Reaction to Naproxen

Has anyone had a crazy reaction to Naproxen. My poor husband said I put my head in my hands and groaned for about 30 seconds. I was then completely...

Has anyone had a crazy reaction to Naproxen. My poor husband said I put my head...

HeKe

•6 years ago

7 Replies

Saying hello and would like your thoughts.

Hello everyone, I've been diagnosed with SLE about 4 weeks ago. It's been quite a journey to get to this diagnosis. I'm a nurse and live in the West Norfolk...

Hello everyone, I've been diagnosed with SLE about 4 weeks ago. It's been quite ...

JimCWalker

•6 years ago

7 Replies

I have sle lupus

I don’t understand how the Drs call it mild lupus my bones and back of my legs hurt so bad I get real bad memory loss confusion chest pain the Drs Don’t find...

I don’t understand how the Drs call it mild lupus my bones and back of my legs h...

Vanessaperez102214

•6 years ago

3 Replies

Lupus Flare after 15 years of remission

Hi, so I was diagnosed with sle when I was 8, and its has now been about 22 years. Lupus first attacked my kidneys very early and I recieved a kidney...

Hi, so I was diagnosed with sle when I was 8, and its has now been about 22 year...

Kay2006

•6 years ago

11 Replies

Hair loss with hydroxychloroquine?

Does anyone know how likely it is for hydroxychloroquine to cause hair loss? I’ve struggled with hair loss before (telogen effluvium) but it was put down to...

Does anyone know how likely it is for hydroxychloroquine to cause hair loss? I’v...

AmyG6500

•6 years ago

13 Replies

Any non-prescription meds for pain that anyone can suggest?

With SLE, extreme pain is very common, and very irritating to not be able to focus on life with. I've tried Canabis oils and such but the pain relief only...

With SLE, extreme pain is very common, and very irritating to not be able to foc...

0EmilyWanamaker0

•6 years ago

13 Replies

Rapid decline in ability - do I go to my GP?

Hi, I've posted here quite a lot since my UCTD diagnosis. So thanks for all the support. Now I have another question. I had my last rheumatology appointment...

Hi, I've posted here quite a lot since my UCTD diagnosis. So thanks for all the...

eescvc

•6 years ago

12 Replies

Methotrexate + hair loss

Hi All, I’ve been on mthx. 15mg weekly for the past six weeks and really started to notice my hair thinning quite dramatically. Are there any alternatives to...

Hi All, I’ve been on mthx. 15mg weekly for the past six weeks and really started...

Sin123

•6 years ago

15 Replies

Pain in silly places

I'm feeling rough, very tired. Does anyone experience pain in random places? I've got pain in my calves, under my shoulder blades and in my right bicep....

I'm feeling rough, very tired. Does anyone experience pain in random places? I...

kt11

•6 years ago

8 Replies

Lupus and Sun/Holiday

Hi All, Are there any tips for dealing with Lupus in the sun. My symptoms are generally mild. Mainly stiffness and joint pains and fatigue - I am going on...

Hi All, Are there any tips for dealing with Lupus in the sun. My symptoms are g...

MsTMP

•6 years ago

7 Replies

Feeling low

Feel so low right now have so much going on at the moment not sure how to cope :( how do others deal with feeling like this I'm litterally at breaking point

Feel so low right now have so much going on at the moment not sure how to cope :...

Hidden

•6 years ago

15 Replies

One of those days, when my concentration is non existent and any noise is hurting my head and ears!!!! On top of an active 4 year old

Just one of them days, where fatigue is so bad but unable to sleep!!!! I can’t focus and my little boy is simply playing with toys, the noise of which hurts...

Just one of them days, where fatigue is so bad but unable to sleep!!!! I can’t ...

Lisalou19

•6 years ago

2 Replies

Iv steroid

Good morning all I'm in hospital since Friday on a 200mg steroid infusion every 6 hours try get my cough variant asthma under control if my symptoms improve I...

Good morning all I'm in hospital since Friday on a 200mg steroid infusion every...

copdber

•6 years ago

3 Replies

Losing faith

Due to all my issues last year and beginning of this year I was overdue for my Rheumatology appointment so getting my ducks in a row I made one. Went to see...

Due to all my issues last year and beginning of this year I was overdue for my R...

Hollydebs

•6 years ago

5 Replies

Wobbling insides?

Does anyone ever feel like their insides are wobbling like jelly? My head is ok, but I'm wobbling internally from the neck down. H

Does anyone ever feel like their insides are wobbling like jelly? My head is ok...

HeKe

•6 years ago

11 Replies

What a month!!

Feeling extremely weak and low. Got a call about a month ago that i was to go in for a minor op, on the day of it I had a temp of 38.2 but they decided to go...

Feeling extremely weak and low. Got a call about a month ago that i was to go in...

CarolMcl

•6 years ago

22 Replies

Lupus and papelladem

Could any one answer my question. Are papelladem and lupus linked. Since having a papelladem my health has got worse.problems with headaches nervous...

Could any one answer my question. Are papelladem and lupus linked. Since having...

Piperic

•6 years ago

1 Reply

Overdoing it.....will I ever learn!!??!!!

So yesterday I felt ok to do a little bit of gardening/weeding, nothing mega strenuous as I have to sit on the floor to do it anyway. Well....today I feel...

So yesterday I felt ok to do a little bit of gardening/weeding, nothing mega str...

Sara_A

•6 years ago

23 Replies

Rash on hands

I have lupus rash, ring finger is swollen looks infected last couple of days feel heat coming from it the whole hand is hurting like fibro pain don't know If...

I have lupus rash, ring finger is swollen looks infected last couple of days fee...

Hidden

•6 years ago

3 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for April 2018

Working Full Time

Nervous to Start taking Hydroxychloroqine

Plaquenil Only for Lupus

Kidneys

Lupus diagnosis

A variety of experiences, perspectives, and perhaps success with alternative treatments for Lupus

Extremely itchy small bumps

SLE depression

Hi everyone , Looking for support group for lupus , Sjögren’s or Arthritis 🌸

Radio programme on the microbiome

Newly diagnosed with Auto immune rheumatic disease

Reaction to Naproxen

Saying hello and would like your thoughts.

I have sle lupus

Lupus Flare after 15 years of remission

Hair loss with hydroxychloroquine?

Any non-prescription meds for pain that anyone can suggest?

Rapid decline in ability - do I go to my GP?

Methotrexate + hair loss

Pain in silly places

Lupus and Sun/Holiday

Feeling low

One of those days, when my concentration is non existent and any noise is hurting my head and ears!!!! On top of an active 4 year old

Iv steroid

Losing faith

Wobbling insides?

What a month!!

Lupus and papelladem

Overdoing it.....will I ever learn!!??!!!

Rash on hands

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