Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,693 members • 28,072 posts

All posts for April 2018

mood swings with lupus

I know you can get depression and anxiety with lupus but I have been feeling weird lately and don't know why. I feel ok indoors, I feel ok with large groups of...

I know you can get depression and anxiety with lupus but I have been feeling wei...

suzannah16

•6 years ago

10 Replies

Brain MRI white spots

Clusters of hyperintensities (white spots) in subcortical white matter. Wondering how common this is with Lupus? Thanks

Clusters of hyperintensities (white spots) in subcortical white matter. Wonderin...

maye1

•6 years ago

33 Replies

Positive ENA screening test - Help I don't understand

I have just come back from an appointment with my GP who wanted to speak to me regarding my recent blood test. Unfortunately, I saw a different GP from usual...

I have just come back from an appointment with my GP who wanted to speak to me r...

HedgeEnd

•6 years ago

4 Replies

Want to take advantage of all our features? Just log in!

Update on the "lady" problem

Hello Thanks to everyone for such good, sensible and accurate advice. I have now seen the GP and I've been referred urgently to gynae. I'll update you when I...

Hello Thanks to everyone for such good, sensible and accurate advice. I have no...

HeKe

•6 years ago

8 Replies

Low white cell count - raising it with smoothies ?😳

Hello all , recap of probelm , wbc fluctuating between low and very low since August due to rituximab treatment for Sjögrens , slipped disc in December and...

Hello all , recap of probelm , wbc fluctuating between low and very low since Au...

weathervane

•6 years ago

28 Replies

PIP Suspense

Since completing my "check up" PIP form and sending it back by the due date of 23 March, I received a text from DWP on 20 April to say thank you and they'll...

Since completing my "check up" PIP form and sending it back by the due date of 2...

Lupiknits

•6 years ago

4 Replies

wanting to work when you have lupus

I am long term unemployed getting ESA and in the support group. I worry that when I have to change to UC that I will be declared fit for work and would like to...

I am long term unemployed getting ESA and in the support group. I worry that whe...

suzannah16

•6 years ago

6 Replies

Medications

Hi all, I'm just cautious, what meds have you used & have they worked, any symptoms reduced? thanks

Hi all, I'm just cautious, what meds have you used & have they worked, any sympt...

Angellealea1

•6 years ago

7 Replies

MIXED CONNECTIVE TISSUE DISEASE

After 10 long years and many many diagnotic tests and issues special blood work finally showed mixed connective tissue disease (ok so I'm not a total...

After 10 long years and many many diagnotic tests and issues special blood work ...

Sandyfa

•6 years ago

11 Replies

Fibromyalgia and Lupus

Hi everyone I’m a ‘Newbie’ so a big hello!!! I was diagnosed officially in 2011 with Fibromyalgia and ME but really had it in the late 90’s according to my old...

Hi everyone I’m a ‘Newbie’ so a big hello!!! I was diagnosed officially in 2011 ...

breano

•6 years ago

13 Replies

Little to No progress made

Hey everyone, I hope your doing as well as you can be. No cardiology No Dietitian No colonoscopy As I’ve written above no progress has been made since my...

Hey everyone, I hope your doing as well as you can be. No cardiology No Dieti...

LauraMk30

•6 years ago

Be the first to reply

Lupus and Trigeminal Neuralgia.

I've been ill for around 12 years now (I'm 59) and now diagnosed with Lupus. But an accident 3 years ago brought on TN. I've been on Gabapentin for the face...

I've been ill for around 12 years now (I'm 59) and now diagnosed with Lupus. But...

larryuk

•6 years ago

13 Replies

Forest-bathing

https://curiosity.com/topics/boost-your-health-with-japanese-forest-bathing-curiosity/ Often felt my blood pressure drop just by sitting in the garden for 5 to...

https://curiosity.com/topics/boost-your-health-with-japanese-forest-bathing-curi...

rubina786

•6 years ago

2 Replies

Antidepressants!!!! Anyone found these to be useful?

So here I am 13.5 years of suffering. The past 4 have been hell. I’m slowly becoming a shadow of my former self, but try to remain as positive as possible. I...

So here I am 13.5 years of suffering. The past 4 have been hell. I’m slowly be...

Lisalou19

•6 years ago

19 Replies

Don't use the 'Q' word

The last time (in fact the first time) I wrote was to get an idea of whether to return to work. That day I did some work from home then popped in, driven by...

The last time (in fact the first time) I wrote was to get an idea of whether to ...

JimCWalker

•6 years ago

2 Replies

Please can i just have a self indulgent moan...IM FED UP.....

Im so fed up! Fed up of being positive. Fed up of carrying on. Fed up of fighting. Fed up of reading. Fed up of wrist pain. Fed up of knee pain. Fed up of...

Im so fed up! Fed up of being positive. Fed up of carrying on. Fed up of fightin...

Staywildmoonchild

•6 years ago

25 Replies

Keeping my hands and mind busy

Just wanted to share some thing a bit cheery hope you all don’t mind. After feeling pretty crap all week and my mind going mad and my fingers googling when...

Just wanted to share some thing a bit cheery hope you all don’t mind. After fee...

HelenL75

•6 years ago

9 Replies

A "lady" question 😳

So, last night I went to bed with all the usual fairly mild aches and pains when a new one arrived. I had a nostalgic moment. "That feels just like a period...

So, last night I went to bed with all the usual fairly mild aches and pains when...

HeKe

•6 years ago

23 Replies

Low iron and lupus

Hi, So the past few months and I mean about 4 months I have been feeling very dizzy, extremely fatigued and no energy, told my dr snd rheumy both responses...

Hi, So the past few months and I mean about 4 months I have been feeling very d...

imzi

•6 years ago

2 Replies

Is it possible to have Lupus when blood results are negative?

I appreciate that members here can't offer medical advice, but wonder if anyone might be able to offer any practical advice please? I have a diagnosis of ME...

I appreciate that members here can't offer medical advice, but wonder if anyone ...

PurplePeril

•6 years ago

14 Replies

World lupus day ?

Hey , I know it’s on the 10th May world lupus day. I was wondering if anyone does anything for it to share awareness . I’m hoping to get at least 5 people...

Hey , I know it’s on the 10th May world lupus day. I was wondering if anyone d...

LouLamb

•6 years ago

14 Replies

Can anyone recommend hand or wrist supports to help with pain while writing and drawing?

My hand and wrist joints ache easily, especially my thumb and forefinger. I've (probably stupidly) just booked a drawing class and wondering if anyone finds...

My hand and wrist joints ache easily, especially my thumb and forefinger. I've (...

Joanna098

•6 years ago

14 Replies

Occipital neuralgia and sle, aps

Hi does anyone else with sle or aps suffer with occipital neuralgia?? I have suffered with it several yrs back and was on gabapentin and had nerve block...

Hi does anyone else with sle or aps suffer with occipital neuralgia?? I have su...

Sara_A

•6 years ago

4 Replies

Great quote that applies to us all??

‘Grant us the serenity to accept the things we cannot change, the courage to change the things we can and the wisdom to know the difference’ I copied this...

‘Grant us the serenity to accept the things we cannot change, the courage to cha...

Melba1

•6 years ago

4 Replies

Sensation

Hi all, I have a very strange sensation. A cold feeling down the right side of my head, almost like running water. I’ve tried looking it up but can not find...

Hi all, I have a very strange sensation. A cold feeling down the right side of m...

Tinkerjack1912

•6 years ago

19 Replies

What main things to ask or mention to the gp for a refferal?

Hi all. I have an appointment on tues with my gp with the aim of getting another rheumy appointment. Its been about 5 years since my last. I have gathered...

Hi all. I have an appointment on tues with my gp with the aim of getting anothe...

Staywildmoonchild

•6 years ago

2 Replies

Knee infection

Haven’t posted on here for a while, but this week my right knee began to hurt, then when I got up next morning could hardly walk. My knee was also burning, hit...

Haven’t posted on here for a while, but this week my right knee began to hurt, t...

elizabeth-57

•6 years ago

2 Replies

Allergic reaction?

My daughter is 27 and has just been diagnosed with lupus. We have been on strict lupus diet and avoided all diary, wheat eggs etc. She has been having lots of...

My daughter is 27 and has just been diagnosed with lupus. We have been on strict...

LupusMum23

•6 years ago

14 Replies

Blood results

Hi all, I've been poorly, for around 4 years now, seen lots of different specialists, had loads different tests etc & last week I had my bloods done again &...

Hi all, I've been poorly, for around 4 years now, seen lots of different special...

Angellealea1

•6 years ago

10 Replies

Hanging on the telephone

My rheumy just rang me. At home. In person. My flabber has never been so ghasted. After running through a few questions, he told me that he is ordering an...

My rheumy just rang me. At home. In person. My flabber has never been so ghasted...

whisperit

•6 years ago

30 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for April 2018

mood swings with lupus

Brain MRI white spots

Positive ENA screening test - Help I don't understand

Update on the "lady" problem

Low white cell count - raising it with smoothies ?😳

PIP Suspense

wanting to work when you have lupus

Medications

MIXED CONNECTIVE TISSUE DISEASE

Fibromyalgia and Lupus

Little to No progress made

Lupus and Trigeminal Neuralgia.

Forest-bathing

Antidepressants!!!! Anyone found these to be useful?

Don't use the 'Q' word

Please can i just have a self indulgent moan...IM FED UP.....

Keeping my hands and mind busy

A "lady" question 😳

Low iron and lupus

Is it possible to have Lupus when blood results are negative?

World lupus day ?

Can anyone recommend hand or wrist supports to help with pain while writing and drawing?

Occipital neuralgia and sle, aps

Great quote that applies to us all??

Sensation

What main things to ask or mention to the gp for a refferal?

Knee infection

Allergic reaction?

Blood results

Hanging on the telephone

Search posts

Pinned Posts

Latest poll

Did you experience more frequent and/or severe lupus flares during the hot summer 2018 compared to summer 2017? (Please explain in comments)

Topics

Archive