Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,744 members • 28,102 posts

All posts for February 2018

Seizures with lupus??

Can anyone tell me off they have ever experienced a seizure with lupus. I had a strange experience that felt like it could have been a seizure but I don't...

Can anyone tell me off they have ever experienced a seizure with lupus. I had a ...

Barbarajeand

•6 years ago

7 Replies

Fibromyalgia Symptoms but Vitamin D Deficient - relief!

Hi All, I've been experiencing symptoms as those described for Lupus and Fibromyalgia for some time now - building up over the last 2 years. My GP surgery has...

Hi All, I've been experiencing symptoms as those described for Lupus and Fibromy...

AField

•6 years ago

9 Replies

Metoject prescription being stopped - help!

I have had a call from my lupus nurse to say my gp has written to them to say the ccg have stopped them prescribing metoject and that I will now have to get it...

I have had a call from my lupus nurse to say my gp has written to them to say th...

Mifford

•6 years ago

6 Replies

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Rash?

Hello everyone it has been a while since I have posted anything. Been busy pretty much everything that could go wrong has gone wrong! Finally got to do...

Hello everyone it has been a while since I have posted anything. Been busy prett...

Tiras

•6 years ago

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What is a fever? (Lupus related)

I finally have a rheumatology appointment next Friday so I've been collecting my notes from my previous doctors' appointments and any new developments. Because...

I finally have a rheumatology appointment next Friday so I've been collecting my...

anyothergirl

•6 years ago

5 Replies

Jeeez Doc

Very frustrated at how some MD's look at you like you are imagining things. So frustrating and annoying. I'm trying to tell you how I feel, so you can make a...

Very frustrated at how some MD's look at you like you are imagining things. So f...

Winniesue

•6 years ago

4 Replies

Just so bogged down with it all!!!!

Probably just a moan really!! I just feel so bogged down with this blinking illness at the moment! I’m really struggling with trying to hold it all together....

Probably just a moan really!! I just feel so bogged down with this blinking illn...

Sara_A

•6 years ago

6 Replies

Azathioprine and probiotics

Hi there, I’ve recently been put on Azathioprine and I usually take probiotics, does anyone know if it’s safe to take probiotics while on immunosuppressants? I...

Hi there, I’ve recently been put on Azathioprine and I usually take probiotics, ...

ExtremeDuvetDaze

•6 years ago

2 Replies

Hydroxychloroquine and bowels

Hi all, this medication has an amazing effect on my bowels, I go regularly and if I reduce it I get terrible constipation. This was one of the first things to...

Hi all, this medication has an amazing effect on my bowels, I go regularly and i...

Comeonpeeps

•6 years ago

3 Replies

Meals

So my calorie counting weight loss has not been going to plan. I think a big part of that is what I eat. So I’m a plain person who doesn’t like spicy foods....

So my calorie counting weight loss has not been going to plan. I think a big par...

LouLamb

•6 years ago

14 Replies

Update.....

Hi... so as u know from first post I was diagnosed with Lupus in January and also pregnant. I was admitted to hospital again on the 31st January due to a...

Hi... so as u know from first post I was diagnosed with Lupus in January and als...

RahanaBi98

•6 years ago

6 Replies

Positive ANA

Hi all. I've had symptoms for 18 months on & off. GP very dismissive but now had a positive ANA. Waiting on ENA results following ANA. Anyone have any advice...

Hi all. I've had symptoms for 18 months on & off. GP very dismissive but now had...

Cm24

•6 years ago

11 Replies

One more sleep~ 2 Wisdom teeth removal & biopsies TOMORROW!

Morning all, Tomorrow is just around the corner, I’ve recently been to the dentist as I was suffering with a thumping pulse in my upper right back wisdom...

Morning all, Tomorrow is just around the corner, I’ve recently been to the den...

LauraMk30

•6 years ago

14 Replies

Looking for people around Stratford areas to meet up as m alone just someone who chat with n compare notes with regarding this disease

Thanks all u we r all fighters

Mystik

•6 years ago

3 Replies

Help!

...I'm so frustrated. I was diagnosed with mono a couple weeks ago. Since then I'm dealing with 3 infections that won't heal. I haven't had an antibiotic...

...I'm so frustrated. I was diagnosed with mono a couple weeks ago. Since then...

Tessie62

•6 years ago

2 Replies

Planquenil

Does anybody in UK get prescribed Planquenil for Sjogrens or Lupus related diseases?

Does anybody in UK get prescribed Planquenil for Sjogrens or Lupus related disea...

mistygrey

•6 years ago

11 Replies

POTs/ dysautonomia/ autonomic nervous system issues anyone??

Hello, looking for your experiences please and my release from hospital may depend on it!! I have been struggling with various lupus symptoms recently, had...

Hello, looking for your experiences please and my release from hospital may depe...

Melba1

•6 years ago

14 Replies

My Mother’s Lupus Diagnosis

My Mum has been diagnosed. I live so far and she is alone. Sometimes she can barely move. Surgery is so far away, and she needs to work to pay rent. Does...

My Mum has been diagnosed. I live so far and she is alone. Sometimes she can bar...

bobbyedmo

•6 years ago

7 Replies

lupus

Good morning everyone, this is all new to me i just found out i have lupus i have all sorts of feelings i was expecting to find out what type of arthritis i...

Good morning everyone, this is all new to me i just found out i have lupus i hav...

sammysam2880

•6 years ago

5 Replies

Endocrinology referral

I went to my long awaited endo referral today - long awaited, but tbh I was not expecting much. I seem to have exhausted every clinician in the hospital now....

I went to my long awaited endo referral today - long awaited, but tbh I was not ...

whisperit

•6 years ago

23 Replies

The Wolf Inside

Since the new year I have been going along to a creative writing class just to challenge myself to try something new and to get my mind occupied with something...

Since the new year I have been going along to a creative writing class just to c...

SjogiBear

•6 years ago

9 Replies

Reducing dosage from 200mg to 50mg, is this drastic?

I have recently had my full bloods done and also my thyroid, my bloods i have done as I am on methotrexate and they were fine but apparently my thyroid result...

I have recently had my full bloods done and also my thyroid, my bloods i have do...

tmh66

•6 years ago

4 Replies

Update:

Well, not much of an update. ANA tests came back - all negative. Not really sure how I’m feeling about that to be honest. Been referred to Rheumy anyway - only...

Well, not much of an update. ANA tests came back - all negative. Not really sure...

Cellul

•6 years ago

4 Replies

SLE and Fibromyalgia, also expert in all aspects of pain and chronic fatigue!😩😴

Hi I’m Wolf_1, I’m a 46 year old male and have lived with SLE and Fibromyalgia for 20 years! 🦋

Hi I’m Wolf_1, I’m a 46 year old male and have lived with SLE and Fibromyalgia f...

Wolf_1

•6 years ago

2 Replies

Travelling to Australia - advice please

My in-laws live in Australia and my sister-in-law has just announced her engagement. She and her fiance made the effort to come over to the UK to our wedding...

My in-laws live in Australia and my sister-in-law has just announced her engagem...

JenniferW

•6 years ago

11 Replies

Too cute to be ill!

Hi all. I’m Telly, suffering with Lupus for a decade but was in remission for 6 until the birth of my 3 years old daughter. I was recently hospitalised for an...

Hi all. I’m Telly, suffering with Lupus for a decade but was in remission for 6 ...

Tellyfic

•6 years ago

3 Replies

Lupus, a short story

I was diagnosed a while ago with UCTD with Lupus traits. I was inspired to write this short story by a post I read on here. I'm sure some of you will relate...

I was diagnosed a while ago with UCTD with Lupus traits. I was inspired to writ...

kyliesinead

•6 years ago

15 Replies

SLE UK

hi 🙋 all ..my name Nikki I was diagnosed SLE 1996 ... 2yr after i had my first son..... I also have daughter 20yr who gave me my gourgeous granddaughter...

hi 🙋 all ..my name Nikki I was diagnosed SLE 1996 ... 2yr after i had my first...

nikfras

•6 years ago

2 Replies

It’s like living a life with bipolar!!!!

I have no diagnosis. But at this time of writing I feel really up beat. I have just come out of my most recent flare up I’m just sitting here thinking how...

I have no diagnosis. But at this time of writing I feel really up beat. I have...

Lisalou19

•6 years ago

4 Replies

Med reduction

I am a mum of a 21 year old who was diagnosed with lupus last year . Last week she was phoned my her the my after her bloodsshowed raised levels with think of...

I am a mum of a 21 year old who was diagnosed with lupus last year . Last week ...

Sandie1964

•6 years ago

2 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for February 2018

Seizures with lupus??

Fibromyalgia Symptoms but Vitamin D Deficient - relief!

Metoject prescription being stopped - help!

Rash?

What is a fever? (Lupus related)

Jeeez Doc

Just so bogged down with it all!!!!

Azathioprine and probiotics

Hydroxychloroquine and bowels

Meals

Update.....

Positive ANA

One more sleep~ 2 Wisdom teeth removal & biopsies TOMORROW!

Looking for people around Stratford areas to meet up as m alone just someone who chat with n compare notes with regarding this disease

Help!

Planquenil

POTs/ dysautonomia/ autonomic nervous system issues anyone??

My Mother’s Lupus Diagnosis

lupus

Endocrinology referral

The Wolf Inside

Reducing dosage from 200mg to 50mg, is this drastic?

Update:

SLE and Fibromyalgia, also expert in all aspects of pain and chronic fatigue!😩😴

Travelling to Australia - advice please

Too cute to be ill!

Lupus, a short story

SLE UK

It’s like living a life with bipolar!!!!

Med reduction

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