Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,725 members • 28,086 posts

All posts for February 2018

Symptom Mapping

In response to posts about others not understanding how we feel, to aid my rheumatologist consultation next week and just to check I wasn’t making this all up,...

In response to posts about others not understanding how we feel, to aid my rheum...

MsAndyIvy

•6 years ago

15 Replies

Medications

Is anyone on these medications and how are you coping with them prednisolone Lansoprazole Hydroxychloroquine Mycophenolate Ramipril

Is anyone on these medications and how are you coping with them prednisolone La...

Tash1987

•6 years ago

15 Replies

Streptycoccal pneumonia

After my first taper on steroids I recently posted that I had become very ill and had developed an awful reaction on tapering to 5mg. I had also been on...

After my first taper on steroids I recently posted that I had become very ill an...

Joanna36

•6 years ago

1 Reply

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Black Seed Oil

Ok, Ive tried CBD oil and didn't get any real pain relief. So now I'm going to try Black Seed Oil. Has anyone tried it and got good results? I'm looking into...

Ok, Ive tried CBD oil and didn't get any real pain relief. So now I'm going to t...

KimW4

•6 years ago

6 Replies

My lupus

Please check my blog out, about my lupus journey, it’s could to talk to people that’s have the same or similar condition like me...

Please check my blog out, about my lupus journey, it’s could to talk to people t...

Tash1987

•6 years ago

4 Replies

Tumeric

Hi everyone first I must say I read the posts every day and it is really informative and helps me to understand a lot of the things we all are going through. I...

Hi everyone first I must say I read the posts every day and it is really informa...

tini44

•6 years ago

2 Replies

A whinge!

Lots of helpful replies on pushing through. Thank you. I don't have a diagnosis yet, but Lupus looks like a contender. This time last year I was working...

Lots of helpful replies on pushing through. Thank you. I don't have a diagnosi...

HeKe

•6 years ago

6 Replies

I need a shrink???

Hi all, Im feeling so lost, spent a week in hospital having soo many tests to find almost nothing! My shoulder pain is from Bursitis..cannot tell me what my...

Hi all, Im feeling so lost, spent a week in hospital having soo many tests to fi...

Loopy-Claire

•6 years ago

4 Replies

Guilty for being sick

Started getting sick around 11 years old. The way I grew up was you pull yourself up by your bootstraps and do not complain. As a result I did not voice how...

Started getting sick around 11 years old. The way I grew up was you pull yoursel...

nancarolyn

•6 years ago

12 Replies

Rang rumi nurse

Hi I rang the rumi nurse last Wednesday to ask for steroid injection and rainods Meds did not get the usual nurse got quite an abrasive nurse who sounded quite...

Hi I rang the rumi nurse last Wednesday to ask for steroid injection and rainods...

Ianrussell69

•6 years ago

3 Replies

Recommendations for Holiday Travel and Travel Insurance

Hi All, I'm currently on a course of steroids to bring my flare down. Only taken for two days and so far I'm feeling the benefit. We have a pre-booked holiday...

Hi All, I'm currently on a course of steroids to bring my flare down. Only taken...

Sin123

•6 years ago

7 Replies

Skin Problems - are these serious or what?

I have been fighting rash and welts on my elbows, fingers, feet and now on my neck and a spot on my nose - I could peel my skin off the itching is so bad....

I have been fighting rash and welts on my elbows, fingers, feet and now on my ne...

fruzsi01

•6 years ago

4 Replies

Numbness and pain in face after chewing? Also, anyone developed urge incontinence as a result of their Lupus/Sjogrens/Vasculits/MCTD?

Hi everyone. I am hoping some of you may be able to identify with either of the above please? I ate some chicken today for lunch, and I appreciate it can be...

Hi everyone. I am hoping some of you may be able to identify with either of the...

Minnskimoo

•6 years ago

4 Replies

Insomnia!!!!

I’m so desperately tired but this insomnia is driving me mad! It takes what feels like ages to fall asleep and then either at the magic time of about 2-3am I...

I’m so desperately tired but this insomnia is driving me mad! It takes what feel...

LLH76

•6 years ago

22 Replies

Is it safe to visit a chiropractor?

Its been a couple months since i had an extremely bad flare up. The worst part was my left shoulder and arm. I had to sleep with my arm above my head in order...

Its been a couple months since i had an extremely bad flare up. The worst part w...

Jodziebear

•6 years ago

5 Replies

Can I push through?

Hi I don't have a diagnosis yet, but it is looking like I may have Lupus. I know my blood tests are indicating problems, but I'm not able to see my dr for...

Hi I don't have a diagnosis yet, but it is looking like I may have Lupus. I kno...

HeKe

•6 years ago

25 Replies

Humira

Has anybody had any experience of Humira? Did it help?

Jaxqueline

•6 years ago

2 Replies

Holiday booking !

So really excited to say that it looks like my 2nd ever holiday abroad with be Feb 2019 in the half term. To Benidorm . I will be going with 9 others who are...

So really excited to say that it looks like my 2nd ever holiday abroad with be F...

LouLamb

•6 years ago

17 Replies

Can anyone tell me what is it?

I started to loose weight a year back and lost 10kgs.I have shortness of breath from more than 2 years. I was getting very weak day by day. Then 3 months back...

I started to loose weight a year back and lost 10kgs.I have shortness of breath ...

K_Singh

•6 years ago

2 Replies

Lupus?

Hi, I am 29 and recently have been diagnosed with Raynaud’s disease. Yesterday I had a slight rash over my nose and cheeks when I came in from the cold. What...

Hi, I am 29 and recently have been diagnosed with Raynaud’s disease. Yesterday I...

GavinBrennan

•6 years ago

10 Replies

Seriously...why are my feet burning red and hurt??

Went to the rheumatologist this past week and was told that it’s not caused by my lupus or fibromyalgia but something else. She wasn’t quite sure so decided to...

Went to the rheumatologist this past week and was told that it’s not caused by m...

Macsimum_de

•6 years ago

9 Replies

danger of fleurescent lights for lupus people

Lighting has bothered me for years, but did not know that when young.

nancarolyn

•6 years ago

7 Replies

Need advice pls

For the last few days I keep getting really strange sensations I feel almost like I’m going to faint but I don’t and my head feels like it’s in a bubble. I...

For the last few days I keep getting really strange sensations I feel almost lik...

Tinkerjack1912

•6 years ago

6 Replies

Infrared Lamp

I have been thinking about investing in an Infrared lamp. Has anyone used one to help with joint and muscle pain? Do they work or not? Should people with Lupus...

I have been thinking about investing in an Infrared lamp. Has anyone used one to...

KimW4

•6 years ago

1 Reply

Newbie

Hi! I’m new here and undiagnosed... Background - I had a baby 16 months ago (simple pregnancy, quick labour, placenta removal op after) and have had so many...

Hi! I’m new here and undiagnosed... Background - I had a baby 16 months ago (sim...

abt84

•6 years ago

5 Replies

Why so much itching issue is on both hands after I go to bed?

Everyday in night when I go to bed and took my blanket on my body, itching happen on my hands and on back of my body. I live in Lithuania. I am 20years old....

Everyday in night when I go to bed and took my blanket on my body, itching happe...

Hidden

•6 years ago

2 Replies

Stabbing pain in arms and legs

sometimes stabbing pain in arms and legs will last for hours. Does anyone have ideas about it?

sometimes stabbing pain in arms and legs will last for hours. Does anyone have i...

nancarolyn

•6 years ago

1 Reply

Outdoor heater.

I was out with friend's a few wks ago and we were under an outdoor heater. One of those that is red, don't know if it was an halogen or Infrared heater....

I was out with friend's a few wks ago and we were under an outdoor heater. One o...

smudge1980

•6 years ago

5 Replies

Naproxen blues

Hi alll, I’ve been prescribed naproxen 2x250mg a day to bring my flare under control. Only been on it for a week so far and rheumatologist has prescribed x2...

Hi alll, I’ve been prescribed naproxen 2x250mg a day to bring my flare under con...

Sin123

•6 years ago

5 Replies

Newbie

My illness probably begun around 6 years ago when I just couldn't shake off tiredness, luckily for me it came and went so I just put it down to having a young...

My illness probably begun around 6 years ago when I just couldn't shake off tire...

Purple83

•6 years ago

8 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for February 2018

Symptom Mapping

Medications

Streptycoccal pneumonia

Black Seed Oil

My lupus

Tumeric

A whinge!

I need a shrink???

Guilty for being sick

Rang rumi nurse

Recommendations for Holiday Travel and Travel Insurance

Skin Problems - are these serious or what?

Numbness and pain in face after chewing? Also, anyone developed urge incontinence as a result of their Lupus/Sjogrens/Vasculits/MCTD?

Insomnia!!!!

Is it safe to visit a chiropractor?

Can I push through?

Humira

Holiday booking !

Can anyone tell me what is it?

Lupus?

Seriously...why are my feet burning red and hurt??

danger of fleurescent lights for lupus people

Need advice pls

Infrared Lamp

Newbie

Why so much itching issue is on both hands after I go to bed?

Stabbing pain in arms and legs

Outdoor heater.

Naproxen blues

Newbie

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