Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,842 members • 28,186 posts

All posts for January 2018

Screen burn

My laptop crashed around Xmas so I haven't been around lately. Today, it is back, complete with the new features added by my expert repairman - two strips of...

My laptop crashed around Xmas so I haven't been around lately. Today, it is back...

whisperit

•6 years ago

7 Replies

Please provide your feedback for this research looking at lupus and employment - People living with moderate/severe lupus (in work and not)

This post is for the discussion of one of the next important questions in the research of lupus and employment. For more background about this, please...

This post is for the discussion of one of the next important questions in the re...

Paul_Howard

Partner•6 years ago

20 Replies

Please provide your feedback for this research looking at lupus and employment - Benefits system

This post is for the discussion of one of the next important questions in the research of lupus and employment. For more background about this, please...

This post is for the discussion of one of the next important questions in the re...

Paul_Howard

Partner•6 years ago

7 Replies

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Please provide your feedback for this research looking at lupus and employment - Managers in large companies

This post is for the discussion of one of the next important questions in the research of lupus and employment. For more background about this, please...

This post is for the discussion of one of the next important questions in the re...

Paul_Howard

Partner•6 years ago

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Please provide your feedback for this research looking at lupus and employment

Dr Sara Booth, Professor Elisabeth Walker and Dr Elizabeth Price would like to thank everyone who took part in their research survey on employment and lupus...

Dr Sara Booth, Professor Elisabeth Walker and Dr Elizabeth Price would like to t...

Paul_Howard

Partner•6 years ago

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Positive Ana 1:320 now it's negative

Hi all. Just back from my rheumatology appt feeling quite disheartened 😢 I had a positive Ana test 6months ago by a private rheumatologist and have aching...

Hi all. Just back from my rheumatology appt feeling quite disheartened 😢 I had ...

DaniDC

•6 years ago

9 Replies

Today’s Appointment: meeting my consultant- Oral and maxillofacial surgeon

Hey all, it’s a very important day. Yesterday I had 2 hours of painful reconstructive surgery with my amazing dentist. And today is important because we...

Hey all, it’s a very important day. Yesterday I had 2 hours of painful reconst...

LauraMk30

•6 years ago

11 Replies

Addenbrooke’s Hospital awarded LUPUS UK Centre of Excellence

LUPUS UK has named Addenbrooke’s Hospital as a LUPUS UK Centre of Excellence in recognition of the Cambridge based hospital’s multi-disciplinary approach to...

LUPUS UK has named Addenbrooke’s Hospital as a LUPUS UK Centre of Excellence in ...

Paul_Howard

Partner•6 years ago

12 Replies

Our journey with magringa

I made fresh maringa tea for my sis today....i had a cup also

Hidden

•6 years ago

1 Reply

Awaiting more tests

I have had face rash for last five years or so, last 3 years fingers get rash then split and bleed dermatologist tested and came back with 4 pages full of what...

I have had face rash for last five years or so, last 3 years fingers get rash th...

stuart68

•6 years ago

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Bone pains in Calf and elbow

My wife who has recently been diagnosed with lupus has gradually developed severe pains in calf and arms. It is a deep,into the bone pain, severe 8-9 and comes...

My wife who has recently been diagnosed with lupus has gradually developed sever...

jimbo1605

•6 years ago

3 Replies

Feeling concerned

Can anyone tell me the worst type of lupus???

Hidden

•6 years ago

3 Replies

Hydrocortisone and fillings...

Hi, I’m due two fillings tomorrow at the dentist. I currently take 15mg of hydrocortisone (10mg am and 5pm). I’m now worried about ‘adrenal crisis caused by...

Hi, I’m due two fillings tomorrow at the dentist. I currently take 15mg of hydr...

imzi

•6 years ago

1 Reply

Query pins and needles in lips and tongue

Hi everyone, I am not sure if this is the forum I should even be on. I had a blood test August which shows positive ENA antibodies mixed connective tissue...

Hi everyone, I am not sure if this is the forum I should even be on. I had a blo...

EveWarwick

•6 years ago

11 Replies

I hate lupus

Hi everyone good day...i read on the internet about collidal silver...it help with a lot of deases including lupus...have anybody try it before?? Does it help...

Hi everyone good day...i read on the internet about collidal silver...it help wi...

Hidden

•6 years ago

7 Replies

Not feeling well

I am not feeling well. Weak and so lethargic. My face is very red and my right ear and eye is starting to hurt. 😭 when is essential to call the consultant?...

I am not feeling well. Weak and so lethargic. My face is very red and my right...

Tulipano

•6 years ago

2 Replies

5 mg lisinopril

hi I'm new on here, was just after a bit of advice please.. is it possible that on diagnosing you with hypertension, the doctor puts you on a starter 2.5gm...

hi I'm new on here, was just after a bit of advice please.. is it possible that ...

abbydabby

•6 years ago

5 Replies

Chest Pain above right breast

For about 1-2 weeks I've had a horrible chest cold. Coughing and mucus galore. I started to get better, coughing less, when I got a new symptom. I have strange...

For about 1-2 weeks I've had a horrible chest cold. Coughing and mucus galore. I...

Faustian

•6 years ago

4 Replies

PLEASE HELP - DLA backpay on an indefinite claim (active for 3 years without payment)

Does anybody know where I stand with this? I was in receipt of DLA from my 18th birthday and it was paid into my mothers account and she gave me it so I was...

Does anybody know where I stand with this? I was in receipt of DLA from my 18th ...

Hidden

•6 years ago

2 Replies

Increasing Urine Protein Crea Ratio - Anyone has been through this?

A little background introduction here.. I have Lupus Nephritis Class IV, and was diagnosed in Jan 2015. I was in remission until early Dec 2017, where the...

A little background introduction here.. I have Lupus Nephritis Class IV, and was...

LLLin

•6 years ago

9 Replies

Hydrocortisone and headaches

Hii, To help me wean off pred my rheumy referred me to endocrinology who put me on hydrocortisone. This is now my second week of taking it and i have noticed...

Hii, To help me wean off pred my rheumy referred me to endocrinology who put m...

imzi

•6 years ago

12 Replies

Second job

So just gone and got myself a second job a few hours on a Saturday and Sunday as an elderly carer. I’ve got to stay at least 6 months otherwise I have to pay...

So just gone and got myself a second job a few hours on a Saturday and Sunday as...

LouLamb

•6 years ago

13 Replies

DMARDS and flu

I am taking Mycophenolate for Sjogrens/ MCTD. Does anyone know about the problems involved if you get flu.......(especially Australian flu ) ? At what point...

I am taking Mycophenolate for Sjogrens/ MCTD. Does anyone know about the proble...

bones-bones

•6 years ago

4 Replies

CBD oils

Hiya :) I am wanting to try CBD for some pain management and was wondering if anyone has any advice or prior experience. Which brands, what strength etc. Would...

Hiya :) I am wanting to try CBD for some pain management and was wondering if an...

Kass_Bruni

•6 years ago

12 Replies

Despair

Hi my Mum has had Lupus for many years and wasn’t really diagnosed until about 15 years ago. She is know bedridden cannot do anything herself and is in severe...

Hi my Mum has had Lupus for many years and wasn’t really diagnosed until about 1...

Kp55

•6 years ago

23 Replies

Exercise during flare up?

I suspect I have Lupus and my ANA blood test just came back as positive mixed homogeneous and speckled titre 1:640. Fatigue is debilitating and my legs have...

I suspect I have Lupus and my ANA blood test just came back as positive mixed ho...

rencat

•6 years ago

2 Replies

Advice please

Hi everyone. Looking for some advice please. Had my 3 monthly appointment with my rheumatology team last Wednesday, when I pointed out how puffy and swollen my...

Hi everyone. Looking for some advice please. Had my 3 monthly appointment with m...

Oliver27

•6 years ago

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Anti-dsDNA and negative ANA

Hello, all! I have many of the symptoms of Lupus(extreme fatigue, face rash, joint pain...) but my ANA came back negative twice. But my anti-dsdna came back...

Hello, all! I have many of the symptoms of Lupus(extreme fatigue, face rash, joi...

Blahblahblah123

•6 years ago

4 Replies

ANA Question

My blood test came back as Positive Hi Homogenous 1:80 with notation that it is consistent with SLE Lupus. I've read different things, including here that 1:80...

My blood test came back as Positive Hi Homogenous 1:80 with notation that it is ...

LisaLachapelle

•6 years ago

1 Reply

fast heart rate?

is there a connection between lupus and a faster heart rate? my heart rate tends to be I am not the 100s and I am only 23 years old

is there a connection between lupus and a faster heart rate? my heart rate tends...

baekhyunkitti

•6 years ago

5 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for January 2018

Screen burn

Please provide your feedback for this research looking at lupus and employment - People living with moderate/severe lupus (in work and not)

Please provide your feedback for this research looking at lupus and employment - Benefits system

Please provide your feedback for this research looking at lupus and employment - Managers in large companies

Please provide your feedback for this research looking at lupus and employment

Positive Ana 1:320 now it's negative

Today’s Appointment: meeting my consultant- Oral and maxillofacial surgeon

Addenbrooke’s Hospital awarded LUPUS UK Centre of Excellence

Our journey with magringa

Awaiting more tests

Bone pains in Calf and elbow

Feeling concerned

Hydrocortisone and fillings...

Query pins and needles in lips and tongue

I hate lupus

Not feeling well

5 mg lisinopril

Chest Pain above right breast

PLEASE HELP - DLA backpay on an indefinite claim (active for 3 years without payment)

Increasing Urine Protein Crea Ratio - Anyone has been through this?

Hydrocortisone and headaches

Second job

DMARDS and flu

CBD oils

Despair

Exercise during flare up?

Advice please

Anti-dsDNA and negative ANA

ANA Question

fast heart rate?

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